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Attitudes toward advance care planning among persons with dementia and their caregivers
Pettigrew C, Brichko R, Black B, O'Connor MK, Austrom MG, Robinson MT, Lindauer A, Shah RC et al.. International psychogeriatrics, 2019-07-16
Topic: Risk, prevention and care in population studies
Objectives To examine factors that influence decision-making, preferences, and plans related to advance care planning (ACP) and end-of-life care among persons with dementia and their caregivers, and examine how these may differ by race. Design Cross-sectional survey. Setting 13 geographically dispersed Alzheimer's Disease Centers across the United States. Participants 431 racially diverse caregivers of persons with dementia. Measurements Survey on "Care Planning for Individuals with Dementia." Results The respondents were knowledgeable about dementia and hospice care, indicated the person with dementia would want comfort care at the end stage of illness, and reported high levels of both legal ACP (e.g., living will; 87%) and informal ACP discussions (79%) for the person with dementia. However, notable racial differences were present. Relative to white persons with dementia, African American persons with dementia were reported to have a lower preference for comfort care (81% vs. 58%) and lower rates of completion of legal ACP (89% vs. 73%). Racial differences in ACP and care preferences were also reflected in geographic differences. Additionally, African American study partners had a lower level of knowledge about dementia and reported a greater influence of religious/spiritual beliefs on the desired types of medical treatments. Notably, all respondents indicated that more information about the stages of dementia and end-of-life health care options would be helpful. Conclusions Educational programs may be useful in reducing racial differences in attitudes towards ACP. These programs could focus on the clinical course of dementia and issues related to end-of-life care, including the importance of ACP.
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APA 7th
Pettigrew, C., Brichko, R., Black, B., O'Connor, M. K., Austrom, M. G., Robinson, M. T., et al. (2020). Attitudes toward advance care planning among persons with dementia and their caregivers. International psychogeriatrics. https://doi.org/10.1017/s1041610219000784
Vancouver
Pettigrew C, Brichko R, Black B, O'Connor MK, Austrom MG, Robinson MT, et al. Attitudes toward advance care planning among persons with dementia and their caregivers. International psychogeriatrics. 2020. doi:10.1017/s1041610219000784. PMID: 31309906.
BibTeX
@article{pettigrew2020-31309906,
author = {Pettigrew, C. and Brichko, R. and Black, B. and O'Connor, M. K. and Austrom, M. G. and Robinson, M. T. and Lindauer, A. and Shah, R. C. and others},
title = {{Attitudes toward advance care planning among persons with dementia and their caregivers}},
journal = {International psychogeriatrics},
year = {2020},
doi = {10.1017/s1041610219000784},
pmid = {31309906},
url = {https://doi.org/10.1017/s1041610219000784}
}
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Key findings
- Measurements Survey on "Care Planning for Individuals with Dementia." Results The respondents were knowledgeable about dementia and hospice care, indicated the person with dementia would want comfort care at the end stage of illness, and reported high levels of both legal ACP (e.g., living will; 87%) and informal ACP discussions (79%) for the person with dementia.
- Notably, all respondents indicated that more information about the stages of dementia and end-of-life health care options would be helpful.
Study details
- Study designcross-sectional
- Evidence strengthLow
How this study scored 45/100
Published in a peer-reviewed journal, and it is a snapshot of people at one point in time. Scored zero for sample size, effect reported, studied in people and randomised / blinded because the record does not state it. We have no data on journal's citation record, times cited, citations per year, impact for its field and year, cited by studies here, still being cited, senior author's track record, institution's track record and multi-centre collaboration, so those were left out: it earned 26 of the 58 points we could judge it on, which is 45 out of 100.
| Component | Points | Why |
|---|---|---|
| Journal tier | 7 / 10 | Tier 3 — peer-reviewed journal (International psychogeriatrics) |
| Journal's citation record | — / 4 | No journal record from OpenAlex — left out of this score |
| Study design | 4 / 12 | A snapshot of people at one point in time |
| Strength of evidence | 1 / 5 | Rated “low” in our summary |
| Peer-review validation | 10 / 10 | Peer-reviewed. Published as an article in a named peer-reviewed journal. |
| How recent | 2 / 5 | 2020 — within 10 year(s) of the newest study here |
| Sample size | 0 / 4 | Participant count not stated — scores zero (not stated in the record — scored 0) |
| Effect reported | 0 / 3 | No effect size reported — scores zero (not stated in the record — scored 0) |
| Studied in people | 0 / 3 | Not stated whether this was studied in people — scores zero (not stated in the record — scored 0) |
| Randomised / blinded | 0 / 2 | No randomisation or blinding stated — scores zero (not stated in the record — scored 0) |
| Times cited | — / 7 | No citation count (not found in OpenAlex) — left out of this score |
| Citations per year | — / 5 | No citation count or no year — left out of this score |
| Impact for its field and year | — / 6 | No field-weighted citation impact (OpenAlex has none yet) — left out of this score |
| Cited by studies here | — / 6 | Not yet checked against this library's citation graph — left out of this score |
| Still being cited | — / 4 | No yearly citation counts — left out of this score |
| Senior author's track record | — / 4 | Senior author's record not available — left out of this score |
| Institution's track record | — / 3 | No institution listed in OpenAlex — left out of this score |
| Multi-centre collaboration | — / 3 | Institutions not listed — left out of this score |
| Indexed in PubMed | 2 / 2 | Indexed in PubMed (PMID 31309906) |
| Free to read | 0 / 2 | Behind a paywall — scores zero |
| Points | 26 / 58 | Scored on 11 of 20 parts. We have no data for the rest, so they are left out: 26 of the 58 points we could judge it on is 45 out of 100. |
| Total | 45 / 100 | — |
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