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Optimizing Approaches in Advance Care Planning in Dementia as Perceived by General Practitioners
Jenny Theodora van der Steen, Jingyuan Xu, Willemijn Tros, Jeanet W. Blom. Journal of Pain and Symptom Management, 2026-04-30
Topic: Risk, prevention and care in population studies
Four attributes distinguished situations in which either approach is preferred: understanding, trust, readiness, and momentum. For the order-setting approach, understanding, trust, and readiness of person and care partner were prerequisites for momentum (time right to express preferences), when not triggered for urgent medical reasons. In contrast, the goal-eliciting approach would help understand the person, foster trust, and create readiness from a first conversation. Without a clear trigger, however, momentum would need to be created. Skill in employing various approaches to ACP conversations, each with specific benefits, could help tailor ACP to the individual and their situation. Further theoretical and empirical research, including in other populations and settings, may inform person-centered ACP.
Cite this study APA, Vancouver, BibTeX · download .bib or .ris
APA 7th
van der Steen, J. T., Xu, J., Tros, W., & Blom, J. W. (2026). Optimizing Approaches in Advance Care Planning in Dementia as Perceived by General Practitioners. Journal of Pain and Symptom Management. https://doi.org/10.1016/j.jpainsymman.2026.04.618
Vancouver
van der Steen JT, Xu J, Tros W, Blom JW. Optimizing Approaches in Advance Care Planning in Dementia as Perceived by General Practitioners. Journal of Pain and Symptom Management. 2026. doi:10.1016/j.jpainsymman.2026.04.618. PMID: 42069237.
BibTeX
@article{vandersteen2026-42069237,
author = {van der Steen, Jenny Theodora and Xu, Jingyuan and Tros, Willemijn and Blom, Jeanet W.},
title = {{Optimizing Approaches in Advance Care Planning in Dementia as Perceived by General Practitioners}},
journal = {Journal of Pain and Symptom Management},
year = {2026},
doi = {10.1016/j.jpainsymman.2026.04.618},
pmid = {42069237},
url = {https://doi.org/10.1016/j.jpainsymman.2026.04.618}
}
Built from the record alzhub holds for this paper, not looked up. Volume, issue and page numbers are not held in the record. Check the citation against the original before you use it.
Key findings
- Four attributes distinguished situations in which either approach is preferred: understanding, trust, readiness, and momentum.
- For the order-setting approach, understanding, trust, and readiness of person and care partner were prerequisites for momentum (time right to express preferences), when not triggered for urgent medical reasons.
- In contrast, the goal-eliciting approach would help understand the person, foster trust, and create readiness from a first conversation.
- Without a clear trigger, however, momentum would need to be created.
- Skill in employing various approaches to ACP conversations, each with specific benefits, could help tailor ACP to the individual and their situation.
Why it matters
This study identified four attributes—understanding, trust, readiness and momentum—that distinguish when different advance care planning approaches are preferred for people with dementia. It is about tailoring care conversations, not treating, curing or preventing Alzheimer's disease.
Study details
- Evidence strengthLow
How this study scored 34/100
Published in a peer-reviewed journal. Scored zero for study design, sample size, effect reported, studied in people and randomised / blinded because the record does not state it.
| Component | Points | Why |
|---|---|---|
| Journal tier | 7 / 10 | Tier 3 — peer-reviewed journal (Journal of Pain and Symptom Management) |
| Journal's citation record | 2 / 4 | Journal of Pain and Symptom Management: journal h-index 213 (OpenAlex, 2026-10-29) |
| Study design | 0 / 12 | No study design recorded — scores zero, not guessed (not stated in the record — scored 0) |
| Strength of evidence | 1 / 5 | Rated “low” in our summary |
| Peer-review validation | 10 / 10 | Peer-reviewed. Published as an article in a named peer-reviewed journal. |
| How recent | 5 / 5 | 2026 — within 1 year(s) of the newest study here |
| Sample size | 0 / 4 | Participant count not stated — scores zero (not stated in the record — scored 0) |
| Effect reported | 0 / 3 | No effect size reported — scores zero (not stated in the record — scored 0) |
| Studied in people | 0 / 3 | Not stated whether this was studied in people — scores zero (not stated in the record — scored 0) |
| Randomised / blinded | 0 / 2 | No randomisation or blinding stated — scores zero (not stated in the record — scored 0) |
| Times cited | 0 / 7 | Cited 0 times (OpenAlex, 2026-10-10) |
| Citations per year | 0 / 5 | 0.0 citations a year over 2 year(s) since 2026 |
| Impact for its field and year | 0 / 6 | Cited 0.0× the average for papers of its field and year (OpenAlex FWCI) |
| Cited by studies here | 0 / 6 | No other study in this library cites it |
| Still being cited | 0 / 4 | Cited 0 times in 2024–2026 (2026 still in progress; OpenAlex) |
| Senior author's track record | 2 / 4 | Last-listed author Jeanet W. Blom: h-index 33 (OpenAlex, whole career) |
| Institution's track record | 1 / 3 | King's College London: institution h-index 1,348 (OpenAlex) |
| Multi-centre collaboration | 2 / 3 | OpenAlex lists 4 institution(s) in 2 countries |
| Indexed in PubMed | 2 / 2 | Indexed in PubMed (PMID 42069237) |
| Free to read | 2 / 2 | Free to read |
| Total | 34 / 100 | — |
What each of these 20 components measures, and what this score is not →
Read the original
- DOI: 10.1016/j.jpainsymman.2026.04.618
- PubMed: 42069237
- Original source →
- Free full text: Journal of Pain and Symptom Management →
Full text: free to read — OpenAlex lists this copy as free to read: the link above (checked 6 Feb 1020).
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Referenced by this study and also in the alzhub library, so you can read them here.
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