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Newest in this topic

  1. Is there a role for artificial intelligence in end-of-life care for persons with dementia? Perspectives of and recommendations by caregivers and hospice staff 2026-09-17
  2. Online Peer Support Use Among Informal Caregivers of People Living With Alzheimer Disease or Related Dementias: National Cross-Sectional Web-Based Survey 2026-09-07
  3. Interconnected Challenges in Dementia Caregiving: A Co-occurrence Network Analysis of Burden, Unmet Needs, and System Failures Among Caregivers 2026-08-17

Studies

1,013 studies carry this tag; 1,012 of them have a date.

Date range

1986 to 2026

Top journals

  • Journal of the American Geriatrics Society 63
  • The Gerontologist 48
  • Alzheimer s & Dementia 28
  • International psychogeriatrics 28
  • Journal of the American Medical Directors Association 26

339 journals in all.

Newest first, then by address. Each study has a usefulness score out of 100 (rubric version 4.0); tap a score to see what makes it up. Tags were assigned automatically from each study's title and summary. The same studies as a filter in the library.

  1. Factors Affecting Caregivers' Acceptance of the Use of Wearable Devices by Patients With Dementia: An Extension of the Unified Theory of Acceptance and Use of Technology Model

    ✓ Peer-reviewed alzhub usefulness score 42 out of 100. American journal of Alzheimer's disease and other dementias 2019-11-03 Digital health tools

    The results of the extended model show that social influence, effort expectancy, facilitating conditions, and behavioral intention (BI) all had P P value for RC and TA was greater than .05, hence were insignificant.

  2. A Systematic Review of Multimodal Non-Pharmacological Interventions for Cognitive Function in Older People with Dementia in Nursing Homes

    ✓ Peer-reviewed alzhub usefulness score 66 out of 100. Dementia and geriatric cognitive disorders 2019-10-21 Prevention trials

    Our review suggests that MNPIs may improve the global, executive function and memory of PWD in NHs.

  3. A Comparison of Users and Nonusers of a Web-Based Intervention for Carers of Older Persons With Alzheimer Disease and Related Dementias: Mixed Methods Secondary Analysis

    ✓ Peer-reviewed alzhub usefulness score 60 out of 100. Journal of medical Internet research 2019-10-17 Treatments

    At baseline, there were no statistically significant differences in demographic characteristics and in outcome variables (HHI, GSES, and SF-12v2 mental component score and physical component score) between users and nonusers.

  4. Implementing a peer-support programme by group videoconferencing for isolated carers of people with dementia

    ✓ Peer-reviewed alzhub usefulness score 47 out of 100. Journal of telemedicine and telecare 2019-10-01 Digital health tools

    Providing peer-support groups using telehealth may have the potential to develop self-sustaining peer networks for isolated caregivers of people with dementia.

  5. Influence of Positive Aspects of Dementia Caregiving on Caregivers' Well-Being: A Systematic Review

    ✓ Peer-reviewed alzhub usefulness score 60 out of 100. The Gerontologist 2019-09-01 Caregiving

    Fifty-three studies were included in the narrative synthesis.

  6. The Self-Care Needs and Behaviors of Dementia Informal Caregivers: A Systematic Review

    ✓ Peer-reviewed alzhub usefulness score 58 out of 100. The Gerontologist 2019-09-01 Disparities

    Three themes emerged from 29 included studies: self-care needs and behaviors of ICGs, barriers to performing self-care, and enablers of self-care.

  7. What do relatives value most in end-of-life care for people with dementia?

    ✓ Peer-reviewed alzhub usefulness score 45 out of 100. International journal of palliative nursing 2019-09-01 End-of-life care

    Experiences translated into four themes: acknowledging human dignity; being recognised as an important caregiver; (not) talking about death and dying and making decisions together.

  8. Can Persons with Dementia Meaningfully Participate in Advance Care Planning Discussions? A Mixed-Methods Study of SPIRIT

    ✓ Peer-reviewed alzhub usefulness score 71 out of 100. Journal of palliative medicine 2019-08-02 End-of-life care

    All 23 were able to articulate their end-of-life wishes very or somewhat coherently during the SPIRIT session; of those, 14 PWDs had moderate dementia.

  9. Sex-Specific Differences in End-of-Life Burdensome Interventions and Antibiotic Therapy in Nursing Home Residents With Advanced Dementia

    ✓ Peer-reviewed alzhub usefulness score 71 out of 100. JAMA network open 2019-08-02 End-of-life care

    The final cohort included 27 243 nursing home residents with advanced dementia (19 363 [71.1%] women) who died between June 1, 2010, and March 31, 2015, at the median (interquartile range) age of 88 (83-92) years.

  10. Sleep Duration and Sleep Quality in Caregivers of Patients With Dementia: A Systematic Review and Meta-analysis

    ✓ Peer-reviewed alzhub usefulness score 67 out of 100. JAMA network open 2019-08-02 Caregiving

    Thirty-five studies were analyzed with data from 3268 caregivers (pooled mean age [SD of sample means], 63.48 [5.99] years; 76.7% female) were analyzed.

  11. A systematic review and meta-analysis of the prevalence and associations of stress and burnout among staff in long-term care facilities for people with dementia

    ✓ Peer-reviewed alzhub usefulness score 74 out of 100. International psychogeriatrics 2019-08-01 Caregiving

    Most care staff for long-term care residents with dementia experience low or moderate burnout levels.

  12. Patient and Caregiver Benefit From a Comprehensive Dementia Care Program: 1‐Year Results From the UCLA Alzheimer's and Dementia Care Program

    ✓ Peer-reviewed alzhub usefulness score 52 out of 100. Journal of the American Geriatrics Society 2019-07-29 Health systems and care delivery

    At year 1, persons with ADRD improved on all scales, except MMSE and functional status measures; caregivers improved on all scales.

  13. Limited engagement in, yet clear preferences for advance care planning in young-onset dementia: An exploratory interview-study with family caregivers

    ✓ Peer-reviewed alzhub usefulness score 45 out of 100. Palliative medicine 2019-07-25 End-of-life care

    A gap of knowledge, of information and in care intertwiningly hinder advance care planning.

  14. Attitudes toward advance care planning among persons with dementia and their caregivers

    ✓ Peer-reviewed alzhub usefulness score 45 out of 100. International psychogeriatrics 2019-07-16 End-of-life care

    Educational programs may be useful in reducing racial differences in attitudes towards ACP.

  15. Development and Validation of a Deep Learning Algorithm for Mortality Prediction in Selecting Patients With Dementia for Earlier Palliative Care Interventions

    ✓ Peer-reviewed alzhub usefulness score 71 out of 100. JAMA network open 2019-07-03 Clinical safety

    A deep learning algorithm based on patient demographic information and longitudinal clinical notes appeared to show promising results in predicting mortality among patients with dementia in different time frames.

  16. Perspectives and Experiences of Persons With Dementia With Advance Care Planning: An Integrative Literature Review

    ✓ Peer-reviewed alzhub usefulness score 38 out of 100. Journal of geriatric psychiatry and neurology 2019-06-12 End-of-life care

    Research is needed with methodologically rigorous designs and theoretical frameworks that examine cognitive, psychosocial, and environmental factors influencing ACP attitudes, preferences, and behaviors among PWDs in order to improve engagement among this population.

  17. Psychological Interventions for Dementia Caregivers: What We Have Achieved, What We Have Learned

    ✓ Peer-reviewed alzhub usefulness score 53 out of 100. Current psychiatry reports 2019-06-06 Caregiving

    With the rising dementia population, more and more programs have been developed to help caregivers deal with the care-recipient as well as their own frustrations.

  18. Self-reported needs and experiences of people with dementia living in nursing homes: a scoping review

    ✓ Peer-reviewed alzhub usefulness score 45 out of 100. Aging & mental health 2019-06-04 End-of-life care

    A total of 41 articles met the eligibility criteria.

  19. End-of-life experiences in dementia with Lewy bodies: Qualitative interviews with former caregivers

    ✓ Peer-reviewed alzhub usefulness score 41 out of 100. PloS one 2019-05-30 End-of-life care

    Study results emphasize the need for improved EOL counseling in DLB, recognition of EOL symptoms, earlier hospice involvement, tailoring EOL care to DLB-specific needs, and clinician-family communication.

  20. Moving beyond 'safety' versus 'autonomy': a qualitative exploration of the ethics of using monitoring technologies in long-term dementia care

    ✓ Peer-reviewed alzhub usefulness score 44 out of 100. BMC geriatrics 2019-05-24 Digital health tools

    There is an urgent need for greater consideration of the ethical and legal implications that remote technological monitoring might have upon workforce morale, recruitment and retention.

  21. End of life care for long-term care residents with dementia, chronic illness and cancer: prospective staff survey

    ✓ Peer-reviewed alzhub usefulness score 50 out of 100. BMC geriatrics 2019-05-22 End-of-life care

    Overall, symptoms in the last week and month of life did not vary by diagnosis.

  22. Palliative care for people with dementia living at home: A systematic review of interventions

    ✓ Peer-reviewed alzhub usefulness score 69 out of 100. Palliative medicine 2019-05-06 End-of-life care

    The review highlights the paucity of high-quality dementia-specific research in this area and recommends key areas for future work, for example, the need for process evaluation to identify facilitators and barriers to implementing interventions.

  23. Understanding the factors associated with patients with dementia achieving their preferred place of death: a retrospective cohort study

    ✓ Peer-reviewed alzhub usefulness score 69 out of 100. Age and ageing 2019-05-01 End-of-life care

    Little is known about preferred place of death, or the factors associated with achieving this, for people with dementia.

  24. Taking Care of the Dyad: Frequency of Caregiver Assessment Among Veterans with Dementia

    ✓ Peer-reviewed alzhub usefulness score 56 out of 100. Journal of the American Geriatrics Society 2019-04-19 Treatments

    Healthcare providers identified caregivers in most of the sample, but less than 50% assessed their well-being and needs.

  25. Factors influencing palliative care in advanced dementia: a systematic review

    ✓ Peer-reviewed alzhub usefulness score 66 out of 100. BMJ supportive & palliative care 2019-04-03 End-of-life care

    Even though the provision of PC was empirically recognised as a care step in the management of dementia, there are barriers that hinder access of patients with dementia to appropriate facilities.

  26. Long-Term Outcomes of the Benefit-Finding Group Intervention for Alzheimer Family Caregivers: A Cluster-Randomized Double-Blind Controlled Trial

    ✓ Peer-reviewed alzhub usefulness score 62 out of 100. The American journal of geriatric psychiatry : official journal of the American Association for Geriatric Psychiatry 2019-03-26 Treatments

    Benefit-finding reduces depressive symptoms as well as global burden in the long-term and increases psychological well-being in the medium-term.

  27. What the NHS Long-Term Plan means for dementia care

    ✓ Peer-reviewed alzhub usefulness score 22 out of 100. Nursing and Residential Care 2019-03-02 Health systems and care delivery

    In January, the NHS presented its long-awaited plan to transform care over the next 10 years.

  28. Advance care planning in dementia: recommendations for healthcare professionals

    ✓ Peer-reviewed alzhub usefulness score 41 out of 100. Palliative care 2019-02-27 End-of-life care

    The process of advance care planning in dementia is far from straightforward; as dementia progresses, the ability to consider future thoughts and actions becomes compromised, thus affecting decision-making abilities.

  29. Families' Experiences With End-of-Life Care in Nursing Homes and Associations With Dying Peacefully With Dementia

    ✓ Peer-reviewed alzhub usefulness score 47 out of 100. Journal of the American Medical Directors Association 2019-02-01 End-of-life care

    Families' reports of unpleasant experiences with end-of-life care may inform practice to improve perceived quality of dying of their loved ones.

  30. Life Expectancy With and Without Dementia: A Population-Based Study of Dementia Burden and Preventive Potential

    ✓ Peer-reviewed alzhub usefulness score 53 out of 100. American journal of epidemiology 2019-02-01 Long-term cohort studies

    Reliable population estimates of life expectancy with dementia are required for shaping health-care policy.

  31. The Effect of a Comprehensive Dementia Care Management Program on End-of-Life Care

    ✓ Peer-reviewed alzhub usefulness score 66 out of 100. Journal of the American Geriatrics Society 2019-01-24 End-of-life care

    Enrollees in a comprehensive dementia care comanagement program had high engagement in advance care planning, high rates of hospice use, and low acute care utilization near the end of life.

  32. Nursing staff needs in providing palliative care for people with dementia at home or in long-term care facilities: A scoping review

    ✓ Peer-reviewed alzhub usefulness score 45 out of 100. International journal of nursing studies 2019-01-03 End-of-life care

    Of the 15 articles that were included, most used qualitative methods (N = 13) and were conducted in long-term care facilities (N = 14).

  33. TRENDS IN OPIOID USE IN LONG-TERM CARE NURSING HOME RESIDENTS WITH DEMENTIA

    ✓ Peer-reviewed alzhub usefulness score 37 out of 100. Innovation in Aging 2019 Health systems and care delivery

    Opioid use was significantly higher in females and Whites and varied by states.

  34. Planning ahead with dementia: what role can advance care planning play? A review on opportunities and challenges

    ✓ Peer-reviewed alzhub usefulness score 38 out of 100. Swiss medical weekly 2018-12-30 End-of-life care

    However, even though neurodegenerative dementia results in the gradual loss of decision-making capacity, ACP is still extremely rare.

  35. The Multidisciplinary Approach to Alzheimer's Disease and Dementia. A Narrative Review of Non-Pharmacological Treatment

    ✓ Peer-reviewed alzhub usefulness score 51 out of 100. Frontiers in neurology 2018-12-13 Caregiving

    The role of NPT has been largely explored in AD and dementia.

  36. Evaluation of Technology-Based Interventions for Informal Caregivers of Patients With Dementia-A Meta-Analysis of Randomized Controlled Trials

    ✓ Peer-reviewed alzhub usefulness score 56 out of 100. The American journal of geriatric psychiatry : official journal of the American Association for Geriatric Psychiatry 2018-12-06 Disparities

    Technology-based interventions have the potential to support informal caregivers of PWD.

  37. Pet robot intervention for people with dementia: A systematic review and meta-analysis of randomized controlled trials

    ✓ Peer-reviewed alzhub usefulness score 57 out of 100. Psychiatry research 2018-12-06 Digital health tools

    This study aims to systematically evaluate the efficacy of Pet robot intervention (PRI) for people with dementia.

  38. Disease Trajectories and End-of-Life Care for Dementias: Latent Topic Modeling and Trend Analysis Using Clinical Notes

    ✓ Peer-reviewed alzhub usefulness score 38 out of 100. AMIA ... Annual Symposium proceedings. AMIA Symposium 2018-12-05 End-of-life care

    Despite the increasing prevalence, growing costs, and high mortality of dementia in older adults in the U.S., little is known about the course of these diseases and what care dementia patients receive in their final years of life.

  39. What Does Death Preparedness Mean for Family Caregivers of Persons With Dementia?

    ✓ Peer-reviewed alzhub usefulness score 38 out of 100. The American journal of hospice & palliative care 2018-12-05 End-of-life care

    Most importantly attributes included (1) knowing and recognizing the symptoms of decline in dementia and what dying looks like; (2) understanding emotions and grief responses; (3) accessing and appraising supports needed to manage and care for dying; (4) organizing affairs and completing tasks in advance; (5) accepting that losses are inevitable and imminent; (6) reflecting on caregiving and finding meaning, "a silver-lining"; and (7) closing, reconciling, and renewing relationship bonds and completing the family member's life.

  40. Advance Care Planning in Nursing Homes - Improving the Communication Among Patient, Family, and Staff: Results From a Cluster Randomized Controlled Trial (COSMOS)

    ✓ Peer-reviewed alzhub usefulness score 62 out of 100. Frontiers in psychology 2018-12-04 End-of-life care

    Five hundred and forty five patients from 67 NH units were included and randomized to the intervention ( N = 297; 36 units) and control group ( N = 248; 31 units).

  41. What enables good end of life care for people with dementia? A multi-method qualitative study with key stakeholders

    ✓ Peer-reviewed alzhub usefulness score 41 out of 100. BMC geriatrics 2018-12-04 End-of-life care

    This unique study has confirmed the relevance of much of the content of existing end of life frameworks to dementia.

  42. Integrated care for adults with dementia and other cognitive disorders

    ✓ Peer-reviewed alzhub usefulness score 38 out of 100. International review of psychiatry (Abingdon, England) 2018-12-01 End-of-life care

    The importance of better care integration is emphasized in many national dementia plans.

  43. Multifactorial Examination of Caregiver Burden in a National Sample of Family and Unpaid Caregivers

    ✓ Peer-reviewed alzhub usefulness score 51 out of 100. Journal of the American Geriatrics Society 2018-11-19 Caregiving

    Caregiver characteristics and provision of caregiving tasks determine caregiver burden more than care recipient characteristics.

  44. Family Caregivers of Older Adults, 1999-2015: Trends in Characteristics, Circumstances, and Role-Related Appraisal

    ✓ Peer-reviewed alzhub usefulness score 53 out of 100. The Gerontologist 2018-11-01 Caregiving

    Purpose of study To assess trends in family caregiving between 1999 and 2015.

  45. Triggered Palliative Care for Late-Stage Dementia: A Pilot Randomized Trial

    ✓ Peer-reviewed alzhub usefulness score 72 out of 100. Journal of pain and symptom management 2018-10-18 End-of-life care

    Specialty palliative care consultation for hospitalized patients with late-stage dementia is feasible and promising to improve decision-making and some treatment outcomes.

  46. Quality of life of people with advanced dementia living in nursing homes is often suboptimal.

  47. This is the first study to test community-based family dementia caregiver intervention in Vietnam.

  48. Concordance Between Proxy Level of Care Preference and Advance Directives Among Nursing Home Residents With Advanced Dementia: A Cluster Randomized Clinical Trial

    ✓ Peer-reviewed alzhub usefulness score 78 out of 100. Journal of pain and symptom management 2018-09-29 End-of-life care

    Better alignment between preferences for comfort-focused care and advance directives is needed in advanced dementia.

  49. Perceived barriers and facilitators in providing palliative care for people with severe dementia: the healthcare professionals' experiences

    ✓ Peer-reviewed alzhub usefulness score 41 out of 100. BMC health services research 2018-09-12 End-of-life care

    The findings indicate that healthcare professionals experienced several structural barriers that prevented the provision of palliative care to people with severe dementia in long-term care facilities.

  50. The importance of trust-based relations and a holistic approach in advance care planning with people with dementia in primary care: a qualitative study

    ✓ Peer-reviewed alzhub usefulness score 41 out of 100. BMC geriatrics 2018-08-16 End-of-life care

    ACP is facilitated by an open relationship based on trust between the GP, the person with dementia and his/her family caregiver, in which both medical and non-medical issues are addressed.

From across this tag

10 of the 1,002 studies in this tag, picked by a fixed rule (a hash of each study's address), not by score or date; each page of this list shows a different 10. The same 10 appear here every time.

All topic tags with their study counts