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Validation of the Danish version of the Carer Experience Scale in family caregivers of people with dementia
Eirin Pedersen, Laila Øksnebjerg, Gunhild Waldemar, Janet Janbek, Ann Merrit Rikke Nielsen, T. Rune Nielsen. Health and Quality of Life Outcomes, 2026-01-29
Topic: Risk, prevention and care in population studies
Plain-language summary
The CES effectively distinguished between different levels of caregiver strain. Further, the CES was not affected by different caregiver and care recipient characteristics. Supporting convergent validity, the CES index was moderately correlated with NPI-D (ρ=-0.42), WHO-5 (ρ = 0.44), and UCLA 3-item (ρ=-0.40). The CES index was weakly correlated with EQ-5D-5L (ρ = 0.27), and EQ-VAS (ρ = 0.26). The CES showed low internal consistency (α = 0.53), but high test-retest reliability (ICC = 0.76). The Danish version of CES demonstrated discriminative validity and acceptable psychometric properties, providing further evidence for its use in family caregivers of people with dementia.
What this study adds
Evidence grade: Low
This study validated a Danish version of the Carer Experience Scale in family caregivers of people with dementia, finding it distinguished levels of caregiver strain with acceptable psychometric properties. It is a measurement tool study and does not test any treatment, cure or prevention for dementia.
Taken from this record’s own fields, not from reading the paper. The grade is assigned from the abstract’s wording; what that means.
Cite this study APA, Vancouver, BibTeX · download .bib or .ris
APA 7th
Pedersen, E., Øksnebjerg, L., Waldemar, G., Janbek, J., Nielsen, A. M. R., & Nielsen, T. R. (2026). Validation of the Danish version of the Carer Experience Scale in family caregivers of people with dementia. Health and Quality of Life Outcomes. https://doi.org/10.1186/s12955-026-02477-0
Vancouver
Pedersen E, Øksnebjerg L, Waldemar G, Janbek J, Nielsen AMR, Nielsen TR. Validation of the Danish version of the Carer Experience Scale in family caregivers of people with dementia. Health and Quality of Life Outcomes. 2026. doi:10.1186/s12955-026-02477-0. PMID: 41612321.
BibTeX
@article{pedersen2026-41612321,
author = {Pedersen, Eirin and Øksnebjerg, Laila and Waldemar, Gunhild and Janbek, Janet and Nielsen, Ann Merrit Rikke and Nielsen, T. Rune},
title = {{Validation of the Danish version of the Carer Experience Scale in family caregivers of people with dementia}},
journal = {Health and Quality of Life Outcomes},
year = {2026},
doi = {10.1186/s12955-026-02477-0},
pmid = {41612321},
url = {https://doi.org/10.1186/s12955-026-02477-0}
}
Built from the record alzhub holds for this paper, not looked up. Volume, issue and page numbers are not held in the record. Check the citation against the original before you use it.
Key findings
- The CES effectively distinguished between different levels of caregiver strain.
- Further, the CES was not affected by different caregiver and care recipient characteristics.
- Supporting convergent validity, the CES index was moderately correlated with NPI-D (ρ=-0.42), WHO-5 (ρ = 0.44), and UCLA 3-item (ρ=-0.40).
- The CES index was weakly correlated with EQ-5D-5L (ρ = 0.27), and EQ-VAS (ρ = 0.26).
- The CES showed low internal consistency (α = 0.53), but high test-retest reliability (ICC = 0.76).
Why it matters
This study validated a Danish version of the Carer Experience Scale in family caregivers of people with dementia, finding it distinguished levels of caregiver strain with acceptable psychometric properties. It is a measurement tool study and does not test any treatment, cure or prevention for dementia.
New to this subject? Start with our plain-English guide: Caregiving →
Study details
- Evidence strengthLow
How this study scored 39/100
Published in a peer-reviewed journal. Scored zero for study design, sample size, effect reported, studied in people and randomized / blinded because the record does not state it.
| Component | Points | Why |
|---|---|---|
| Journal tier | 7 / 10 | Tier 3 — peer-reviewed journal (Health and Quality of Life Outcomes) |
| Journal's citation record | 2 / 4 | Health and Quality of Life Outcomes: journal h-index 180 (OpenAlex, 2026-10-29) |
| Study design | 0 / 12 | No study design recorded — scores zero, not guessed (not stated in the record — scored 0) |
| Strength of evidence | 1 / 5 | Rated “low” in our summary |
| Peer-review validation | 10 / 10 | Peer-reviewed. Published as an article in a named peer-reviewed journal. |
| How recent | 5 / 5 | 2026 — within 1 year(s) of the newest study here |
| Sample size | 0 / 4 | Participant count not stated — scores zero (not stated in the record — scored 0) |
| Effect reported | 0 / 3 | No effect size reported — scores zero (not stated in the record — scored 0) |
| Studied in people | 0 / 3 | Not stated whether this was studied in people — scores zero (not stated in the record — scored 0) |
| Randomized / blinded | 0 / 2 | No randomization or blinding stated — scores zero (not stated in the record — scored 0) |
| Times cited | 1 / 7 | Cited 2 times (OpenAlex, 2026-10-10) |
| Citations per year | 1 / 5 | 1.0 citations a year over 2 year(s) since 2026 |
| Impact for its field and year | 4 / 6 | Cited 9.5× the average for papers of its field and year (OpenAlex FWCI) |
| Cited by studies here | 0 / 6 | No other study in this library cites it |
| Still being cited | 0 / 4 | Cited 2 times in 2024–2026 (2026 still in progress; OpenAlex) |
| Senior author's track record | 2 / 4 | Last-listed author T. Rune Nielsen: h-index 34 (OpenAlex, whole career) |
| Institution's track record | 1 / 3 | University of Copenhagen: institution h-index 1,378 (OpenAlex) |
| Multicenter collaboration | 1 / 3 | OpenAlex lists 3 institution(s) in 1 country |
| Indexed in PubMed | 2 / 2 | Indexed in PubMed (PMID 41612321) |
| Free to read | 2 / 2 | Free to read |
| Total | 39 / 100 | — |
What each of these 20 components measures, and what this score is not →
Read the original
- DOI: 10.1186/s12955-026-02477-0
- PubMed: 41612321
- Original source →
- Free full text: Health and Quality of Life Outcomes →
Full text: free to read — OpenAlex lists this copy as free to read: the link above (checked 6 Feb 1020).
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