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Introduction of an open‐access national‐level U.S. dementia surveillance system
Melinda C. Power, Kan Z. Gianattasio, Wachsmuth Jason, Ryan Anne Murphy, Alex Hartzman, Jaleh S. Montazer, Erin Cutroneo, John S. Wittenborn et al.. Alzheimer s & Dementia, 2025-12-01
Topic: Risk, prevention and care in population studies
The Dementia Datahub (https://dementiadatahub.org/) currently provides mapping, data reporting dashboards, system documentation, and public use files (available upon request) of statistics from the year 2020. Available statistics include prevalence and incidence of diagnosed dementia, as well as mortality and COVID-19 infections among prevalent dementia cases and all average all cause expenditures among prevalent dementia cases in fee-for-service Medicare. All estimates are available at the national, state, and county level, overall and within subgroups defined by age group, sex, race/ethnicity, and FFS/MA enrollment status. The tool additionally allows for bi-variate analyses and overlay with state or county-level measures of demographics, poverty and education levels, vision or hearing impairment, number of physicians per capita, and FFS/MA enrollment rates. This year we will add 2021 data and additional outcome measures of hospitalizations and long stay nursing home placement among prevalent dementia cases. If funding can be obtained, goals include expansion to add additional years of data, additional capabilities, and updating closer to real-time. The Dementia DataHub provides an important resource to government, academic, industry, advocacy, and medical organizations working to address the epidemic of cognitive impairment and dementia.
Cite this study APA, Vancouver, BibTeX · download .bib or .ris
APA 7th
Power, M. C., Gianattasio, K. Z., Jason, W., Murphy, R. A., Hartzman, A., Montazer, J. S., et al. (2025). Introduction of an open‐access national‐level U.S. dementia surveillance system. Alzheimer s & Dementia. https://doi.org/10.1002/alz70860_100503
Vancouver
Power MC, Gianattasio KZ, Jason W, Murphy RA, Hartzman A, Montazer JS, et al. Introduction of an open‐access national‐level U.S. dementia surveillance system. Alzheimer s & Dementia. 2025. doi:10.1002/alz70860_100503. PMID: 41434796.
BibTeX
@article{power2025-41434796,
author = {Power, Melinda C. and Gianattasio, Kan Z. and Jason, Wachsmuth and Murphy, Ryan Anne and Hartzman, Alex and Montazer, Jaleh S. and Cutroneo, Erin and Wittenborn, John S. and others},
title = {{Introduction of an open‐access national‐level U.S. dementia surveillance system}},
journal = {Alzheimer s \& Dementia},
year = {2025},
doi = {10.1002/alz70860_100503},
pmid = {41434796},
url = {https://doi.org/10.1002/alz70860_100503}
}
Built from the record alzhub holds for this paper, not looked up. Volume, issue and page numbers are not held in the record. The record's author list ends in “et al.”, so not every author is named. Check the citation against the original before you use it.
Key findings
- The Dementia Datahub (https://dementiadatahub.org/) currently provides mapping, data reporting dashboards, system documentation, and public use files (available upon request) of statistics from the year 2020.
- Available statistics include prevalence and incidence of diagnosed dementia, as well as mortality and COVID-19 infections among prevalent dementia cases and all average all cause expenditures among prevalent dementia cases in fee-for-service Medicare.
- All estimates are available at the national, state, and county level, overall and within subgroups defined by age group, sex, race/ethnicity, and FFS/MA enrollment status.
- The tool additionally allows for bi-variate analyses and overlay with state or county-level measures of demographics, poverty and education levels, vision or hearing impairment, number of physicians per capita, and FFS/MA enrollment rates.
- This year we will add 2021 data and additional outcome measures of hospitalizations and long stay nursing home placement among prevalent dementia cases.
Why it matters
The Dementia DataHub is a public surveillance resource offering 2020 statistics on diagnosed dementia prevalence, incidence, mortality, COVID-19 infections and Medicare expenditures at national, state and county levels. It is a data tool for organizations working on dementia, not a study of any treatment, cure or prevention.
Study details
- Evidence strengthLow
How this study scored 32/100
Published in a peer-reviewed journal. Scored zero for study design, sample size, effect reported, studied in people and randomized / blinded because the record does not state it.
| Component | Points | Why |
|---|---|---|
| Journal tier | 7 / 10 | Tier 3 — peer-reviewed journal (Alzheimer s & Dementia) |
| Journal's citation record | 2 / 4 | Alzheimer s & Dementia: journal h-index 228 (OpenAlex, 2026-10-29) |
| Study design | 0 / 12 | No study design recorded — scores zero, not guessed (not stated in the record — scored 0) |
| Strength of evidence | 1 / 5 | Rated “low” in our summary |
| Peer-review validation | 10 / 10 | Peer-reviewed. Published as an article in a named peer-reviewed journal. |
| How recent | 4 / 5 | 2025 — within 3 year(s) of the newest study here |
| Sample size | 0 / 4 | Participant count not stated — scores zero (not stated in the record — scored 0) |
| Effect reported | 0 / 3 | No effect size reported — scores zero (not stated in the record — scored 0) |
| Studied in people | 0 / 3 | Not stated whether this was studied in people — scores zero (not stated in the record — scored 0) |
| Randomized / blinded | 0 / 2 | No randomization or blinding stated — scores zero (not stated in the record — scored 0) |
| Times cited | 0 / 7 | Cited 0 times (OpenAlex, 2026-10-10) |
| Citations per year | 0 / 5 | 0.0 citations a year over 3 year(s) since 2025 |
| Impact for its field and year | 0 / 6 | Cited 0.0× the average for papers of its field and year (OpenAlex FWCI) |
| Cited by studies here | 0 / 6 | No other study in this library cites it |
| Still being cited | 0 / 4 | Cited 0 times in 2024–2026 (2026 still in progress; OpenAlex) |
| Senior author's track record | 2 / 4 | Last-listed author David B. Rein: h-index 35 (OpenAlex, whole career) |
| Institution's track record | 1 / 3 | George Washington University: institution h-index 881 (OpenAlex) |
| Multicenter collaboration | 1 / 3 | OpenAlex lists 2 institution(s) in 1 country |
| Indexed in PubMed | 2 / 2 | Indexed in PubMed (PMID 41434796) |
| Free to read | 2 / 2 | Free to read |
| Total | 32 / 100 | — |
What each of these 20 components measures, and what this score is not →
Read the original
- DOI: 10.1002/alz70860_100503
- PubMed: 41434796
- Original source →
- Free full text: Alzheimer s & Dementia →
Full text: free to read — OpenAlex lists this copy as free to read: the link above (checked 6 Feb 1020).
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