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Designing an mHealth application for informal carers concerning the management of behavioural and psychological symptoms of dementia: a need analysis survey
Jagoda T, Dharmaratne SD, Rathnayake S.. BMC health services research, 2024-08-14
Topic: Risk, prevention and care in population studies
Background Informal carers face difficulties and challenges when dealing with the behavioural and psychological symptoms of dementia (BPSD) of their family members or friends residing at home. Mobile health (mHealth) applications are promising for educating and supporting carers. However, needs analysis studies have not been conducted in Sri Lanka to develop mHealth applications for informal carers of people with dementia. Aims To explore the needs to design an mHealth application for informal carers of people with dementia concerning the management of BPSD. Method An exploratory cross-sectional survey was conducted among a convenience sample (N = 203) of informal carers as a part of developing an mHealth application. Family members, relatives, or friends who lived with people with dementia and provided care on an unpaid basis for more than three months were included. The questionnaire included sociodemographic data, carer-rated prevalence and severity of BPSD, and informal carers' knowledge of dementia, carer burden, information-seeking sources, availability of smartphones, mHealth information seeking and perception of mHealth information seeking related to managing BPSD. Descriptive analysis and inferential tests were performed. Results Informal carers of people with dementia were predominantly female (70.4%), and 64% showed low knowledge of dementia. Of the participants, 35% reported a high carer burden, 53.7% reported a low burden, and only 11.3% reported no carer burden. Most of their care recipients (97%) had at least one BPSD. The prevalence and severity of BPSD were significantly and positively correlated with the carer burden. The participants' main source of information was health professionals. Most of them owned smartphones (63.5%), but none used mHealth applications for dementia-related information seeking. Approximately half of the respondents were ready to spend time (52.7%) and money (46.8%) on mHealth information seeking. Perceived mHealth usefulness was significantly associated with dementia knowledge, smartphone ownership, and readiness to spend time and money on mHealth information seeking. Conclusion Informal carers of people with dementia were affected by BPSD in their care recipients. This study explored carers' educational needs concerning dementia, BPSD, and carer burden. Informal carers could adapt mHealth for dementia-related information seeking. Their unmet needs in managing BPSD should be explored.
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APA 7th
Jagoda, T., Dharmaratne, S. D., & Rathnayake, S. (2024). Designing an mHealth application for informal carers concerning the management of behavioural and psychological symptoms of dementia: a need analysis survey. BMC health services research. https://doi.org/10.1186/s12913-024-11273-9
Vancouver
Jagoda T, Dharmaratne SD, Rathnayake S. Designing an mHealth application for informal carers concerning the management of behavioural and psychological symptoms of dementia: a need analysis survey. BMC health services research. 2024. doi:10.1186/s12913-024-11273-9. PMID: 39143591.
BibTeX
@article{jagoda2024-39143591,
author = {Jagoda, T. and Dharmaratne, S. D. and Rathnayake, S.},
title = {{Designing an mHealth application for informal carers concerning the management of behavioural and psychological symptoms of dementia: a need analysis survey}},
journal = {BMC health services research},
year = {2024},
doi = {10.1186/s12913-024-11273-9},
pmid = {39143591},
url = {https://doi.org/10.1186/s12913-024-11273-9}
}
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Key findings
- Results Informal carers of people with dementia were predominantly female (70.4%), and 64% showed low knowledge of dementia.
- The prevalence and severity of BPSD were significantly and positively correlated with the carer burden.
- Perceived mHealth usefulness was significantly associated with dementia knowledge, smartphone ownership, and readiness to spend time and money on mHealth information seeking.
Study details
- Study designcross-sectional
- Participants203
- Effect size70.4%; 53.7%; 11.3%
- Evidence strengthLow
How this study scored 64/100
Published in a peer-reviewed journal, and it is a snapshot of people at one point in time. Scored zero for randomized / blinded because the record does not state it. We have no data on journal's citation record, times cited, citations per year, impact for its field and year, cited by studies here, still being cited, senior author's track record, institution's track record and multicenter collaboration, so those were left out: it earned 37 of the 58 points we could judge it on, which is 64 out of 100.
| Component | Points | Why |
|---|---|---|
| Journal tier | 7 / 10 | Tier 3 — peer-reviewed journal (BMC health services research) |
| Journal's citation record | — / 4 | No journal record from OpenAlex — left out of this score |
| Study design | 4 / 12 | A snapshot of people at one point in time |
| Strength of evidence | 1 / 5 | Rated “low” in our summary |
| Peer-review validation | 10 / 10 | Peer-reviewed. Published as an article in a named peer-reviewed journal. |
| How recent | 4 / 5 | 2024 — within 3 year(s) of the newest study here |
| Sample size | 2 / 4 | 203 participants |
| Effect reported | 2 / 3 | Effect reported as a number, without an interval or test |
| Studied in people | 3 / 3 | Studied in people (participant count stated) |
| Randomized / blinded | 0 / 2 | No randomization or blinding stated — scores zero (not stated in the record — scored 0) |
| Times cited | — / 7 | No citation count (not found in OpenAlex) — left out of this score |
| Citations per year | — / 5 | No citation count or no year — left out of this score |
| Impact for its field and year | — / 6 | No field-weighted citation impact (OpenAlex has none yet) — left out of this score |
| Cited by studies here | — / 6 | Not yet checked against this library's citation graph — left out of this score |
| Still being cited | — / 4 | No yearly citation counts — left out of this score |
| Senior author's track record | — / 4 | Senior author's record not available — left out of this score |
| Institution's track record | — / 3 | No institution listed in OpenAlex — left out of this score |
| Multicenter collaboration | — / 3 | Institutions not listed — left out of this score |
| Indexed in PubMed | 2 / 2 | Indexed in PubMed (PMID 39143591) |
| Free to read | 2 / 2 | Free to read |
| Points | 37 / 58 | Scored on 11 of 20 parts. We have no data for the rest, so they are left out: 37 of the 58 points we could judge it on is 64 out of 100. |
| Total | 64 / 100 | — |
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