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Newest in this topic

  1. Elder Caregiving in Southeast Asia: A Systematic Review of Cultural Norms, Care Burdens, Carer Support and Policy Gaps 2026-10-29
  2. Beyond “Denial”: Understanding and Responding to Help-Refusal in Dementia 2026-10-26
  3. Caregiving experiences of older-adult informal family caregivers for older adults with comorbid dementia and physical disability: A qualitative study using the caregiving stress-process model 2026-10-14

Studies

195 studies carry this tag.

Date range

1982 to 2026

Top journals

  • The Gerontologist 15
  • Research Square 14
  • International journal of geriatric psychiatry 9
  • Aging & mental health 8
  • Dementia (London, England) 6

105 journals in all.

Newest first, then by address. Each study has a usefulness score out of 100 (rubric version 4.0); tap a score to see what makes it up. Tags were assigned automatically from each study's title and summary. The same studies as a filter in the library.

  1. Elder Caregiving in Southeast Asia: A Systematic Review of Cultural Norms, Care Burdens, Carer Support and Policy Gaps

    ⚠ Preprint — not yet peer-reviewed alzhub usefulness score 16 out of 100. Research Square 2026-10-29 Caregiving

    Forty-eight studies from ten Southeast Asian countries were reviewed.

  2. Beyond “Denial”: Understanding and Responding to Help-Refusal in Dementia

    ⚠ Preprint — not yet peer-reviewed alzhub usefulness score 16 out of 100. Preprints.org 2026-10-26 Getting a diagnosis

    Evidence for interventions that reduce refusal is strongest for music during personal care and modified bathing methods, with some support for positive communication and person-centred approaches, though quality is generally low and few studies involve family caregivers in community settings.

  3. Five core themes and fifteen corresponding sub-themes were extracted from interview transcripts: (1) Structural caregiving context, including family structural constraints, the influence of filial piety culture, and insufficient aged-care supply; (2) Multiple caregiving stressors, covering primary care burden, independent care decision-making pressure, restricted social engagement, and intra-family conflicts; (3) Limited buffering support resources, involving inadequate formal care services, insufficient informal assistance from relatives, and individual psychological coping strategies; (4) Negative caregiving experiences, including persistent physical exhaustion and sustained emotional depletion; (5) Dual perceptions of caregiving outcomes, consisting of emotional gains from kinship bonding, resistance to institutional care, and long-term anxiety about future care arrangements.

  4. Cultural and linguistic adaptation of a personalised post-diagnostic dementia intervention for Bangladeshi families in the UK: an iterative adaptation study

    ⚠ Preprint — not yet peer-reviewed alzhub usefulness score 16 out of 100. medRxiv 2026-10-14 Caregiving

    People from UK South Asian communities experience barriers to accessing dementia care.

  5. Navigating Life After Dementia Diagnosis: Questions, Challenges, and Support Needs Among Dementia Dyads

    ⚠ Preprint — not yet peer-reviewed alzhub usefulness score 16 out of 100. medRxiv 2026-10-09 Risk factors

    Dementia dyads experience substantial informational, emotional, and practical support needs in the early stages of MCI and AD/ADRD.

  6. Caregiver burden and mood changes among unpaid caregivers of older adults living with dementia

    ⚠ Preprint — not yet peer-reviewed alzhub usefulness score 16 out of 100. Research Square 2026-09-25 Risk factors

    Depressive and anxiety symptoms were more pronounced among caregivers with longer caregiving duration (p = 0.01; p = 0.001) and those living with the care recipient (p = 0.04; p = 0.02).

  7. Efficacy of care management in reducing needs of caregivers of people with dementia

    ⚠ Preprint — not yet peer-reviewed alzhub usefulness score 16 out of 100. Research Square 2026-09-10 Cognitive tests and assessment

    Our study delivers ambivalent results for the efficacy of care management for caregivers.

  8. Risk factors for Dementia Public Stigma in Zhejiang Province, China: A Cross-Sectional Study

    ⚠ Preprint — not yet peer-reviewed alzhub usefulness score 16 out of 100. Research Square 2026-09-07 Getting a diagnosis

    Dementia public stigma was associated with education, dementia knowledge, media exposure, chronic diseases, and contact experience with people living with dementia.

  9. The Complex Dynamics of Caregiving for ADRD Patients in Uganda: Selection Factors, Challenges, and Benefits

    ⚠ Preprint — not yet peer-reviewed alzhub usefulness score 16 out of 100. Research Square 2026-09-03 Caregiving

    Three interrelated themes emerged: relational foundations of caregiving, multidimensional struggles of caregiving, and benefits of caregiving.

  10. Our results showed that caregiving burden was negatively associated with the sense of ability..

  11. Older adults in senior living communities (SLCs) often face barriers to maintaining emotional well-being and family ties.

  12. Research Trends of Drama Therapy in Mental Health : A Comprehensive Bibliometric analysis

    ⚠ Preprint — not yet peer-reviewed alzhub usefulness score 16 out of 100. Research Square 2026-08-14 Disparities

    Drama therapy is in an accelerated growth phase, with substantial scholarly expansion expected over the next two decades.

  13. Fine-Grained Emotional Characterization of Dementia Caregivers in Online Support Communities Using Large Language Models

    ⚠ Preprint — not yet peer-reviewed alzhub usefulness score 16 out of 100. medRxiv 2026-07-29 Caregiving

    Caregiver narratives were predominantly negative (89.3% of posts; mean valence - 0.46), with interpretable structure.

  14. Building confidence in dementia care: The experience of Chinese Carers in participation in culturally and linguistically appropriate Carer Support Program

    ⚠ Preprint — not yet peer-reviewed alzhub usefulness score 16 out of 100. Research Square 2026-07-28 Caregiving

    Four main themes emerged from the data: 1) the unseen challenges of caregiving; 2) knowledge and experiences lead to stronger self-confidence; 3) the power of peer influence on caregiving; and 4) pursuing better support for carers.

  15. Co-design, Cultural Adaptation, and Mixed-Methods Evaluation of a Carer Support Program for Chinese Australian Dementia Carers

    ⚠ Preprint — not yet peer-reviewed alzhub usefulness score 16 out of 100. Research Square 2026-07-28 Caregiving

    The culturally adapted CSP enhanced self-efficacy among Chinese Australian carers of people with dementia, but not carer burden, quality of life and approach to dementia care.

  16. Navigating young-onset dementia caregiving: A qualitative study of unmet needs, support, and resilience

    ⚠ Preprint — not yet peer-reviewed alzhub usefulness score 16 out of 100. Research Square 2026-07-27 Caregiving

    Although caregivers demonstrated resilience and adaptive coping, YOD caregiving in Singapore remained constrained by limited access to visible, tailored, and age-appropriate support.

  17. Caring in the Shadows: The Lived Experiences of family Caregivers of Older Adults with Dementia in Fragile and Conflict-Affected Setting in Ethiopia

    ⚠ Preprint — not yet peer-reviewed alzhub usefulness score 16 out of 100. Research Square 2026-07-20 Caregiving

    Caregiving for older adults with dementia in Northern Ethiopia is a totalizing and demanding experience that profoundly affects caregivers’ lives.

  18. Person-Centredness in Dementia Diagnosis & Detection: A Scoping Review

    ⚠ Preprint — not yet peer-reviewed alzhub usefulness score 16 out of 100. Research Square 2026-07-01 End-of-life care

    We included 23 studies with qualitative (73.9%) or quantitative/mixed-methods (26.1%) designs.

  19. Transitional care needs of persons with dementia and their care partners: a secondary analysis using Transitions Theory

    ⚠ Preprint — not yet peer-reviewed alzhub usefulness score 16 out of 100. medRxiv 2026-06-29 End-of-life care

    Persons with dementia (PWD) and their care partners experience multidimensional care transitions across the illness trajectory.

  20. Navigating Dementia Services: An International Review of Informal Caregiver Perspectives

    ✓ Peer-reviewed alzhub usefulness score 45 out of 100. Dementia (London, England) 2026-03-15 Caregiving

    Dementia is a growing global concern, with informal caregivers, typically unpaid family members or friends, providing essential support to those living with the condition.

  21. Wearable devices may facilitate the measurement and treatment of specific BPSD, as well as reduce caregiver burden.

  22. Dementia and communication comorbidities within the context of caregiver support systems: a scoping review

    ✓ Peer-reviewed alzhub usefulness score 71 out of 100. BMC geriatrics 2025-12-04 Caregiving

    A total of 228 articles were screened at the title and abstract levels, and 120 full-text articles were assessed for eligibility. 23 eligible studies were included in the narrative synthesis.

  23. Informal Caregiver Outcomes in Home-Based Dyadic Dementia Interventions: A Scoping Review

    ✓ Peer-reviewed alzhub usefulness score 59 out of 100. Journal of evidence-based social work (2019) 2025-10-25 Caregiving

    An initial database search yielded 3,977 studies of which 22 were included in this review.

  24. Emotion regulation strategies to improve outcomes in family caregivers of people with Alzheimer's disease and related dementias: A systematic review

    ✓ Peer-reviewed alzhub usefulness score 71 out of 100. Journal of health psychology 2025-08-17 Caregiving

    Interventions for family caregivers of individuals with Alzheimer's disease and related dementias (ADRD) incorporate diverse elements, but drivers of success are unclear.

  25. Social Isolation, Loneliness, and Cognitive Health

    ✓ Peer-reviewed alzhub usefulness score 43 out of 100. Clinics in geriatric medicine 2025-05-27 Risk factors

    Social connectedness is important for maintaining cognitive function and cognitive health in older age.

  26. Caregiver Support Program May Decrease Work-Family Conflict: An Intervention Study

    ✓ Peer-reviewed alzhub usefulness score 43 out of 100. Inquiry : a journal of medical care organization, provision and financing 2025-04-26 Caregiving

    The employed family caregivers juggle caregiving and work responsibilities constantly, highlighting a growing concern for their financial and professional well-being.

  27. A mindfulness-based multicomponent caregiver intervention (PAACC): objectives, study design, and cohort description

    ✓ Peer-reviewed alzhub usefulness score 82 out of 100. Alzheimer's & dementia (New York, N. Y.) 2025-03-24 Caregiving

    Baseline assessments were conducted on 133 family caregivers of veterans living with dementia.

  28. The effect of apathy on quality of life and caregiver burden in patients with dementia

    ✓ Peer-reviewed alzhub usefulness score 61 out of 100. Cognitive neuropsychiatry 2025-01-15 Caregiving

    The mean age of the patients was 73.1 ± 11.7, and the time since diagnosis was 3.9 ± 3.1 years; 64.8% had Alzheimer's type dementia, and 53.4% (n = 47) had mild dementia.

  29. Dyadic Comparison of Pain and Stress in Alzheimer's Disease and Caregivers

    ✓ Peer-reviewed alzhub usefulness score 43 out of 100. Pain management nursing : official journal of the American Society of Pain Management Nurses 2024-12-04 Caregiving

    Contrary to expectations, pain and mental health measures for PLWAD displayed a trend toward negative correlation with their hair cortisol levels.

  30. Ascertaining Out-of-Pocket Costs of Dementia Care: Feasibility Study of a Web-Based Weekly Survey

    ✓ Peer-reviewed alzhub usefulness score 43 out of 100. JMIR formative research 2024-09-25 Costs and economics

    Out-of-pocket costs of dementia care were collected via a web-based weekly survey for up to 18 months.

  31. Feasibility and acceptability of virtual programs for people with dementia and their caregivers

    ✓ Peer-reviewed alzhub usefulness score 50 out of 100. BMC geriatrics 2024-09-25 Risk factors

    The PWD and ICG interviews provided insight into the positive impacts of VP, challenges of VP, program barriers, program facilitating factors, and suggestions for future improvement for the OSCC55 + VPs.

  32. Informal caregiver and healthcare professional perspectives on dementia and nutrition

    ✓ Peer-reviewed alzhub usefulness score 50 out of 100. Journal of human nutrition and dietetics : the official journal of the British Dietetic Association 2024-06-27 Prevention and risk

    Four major themes emerged: forgetting to eat, developing food aversions, strong preferences for sweets and weight changes.

  33. Needs analysis of family caregivers of people living with dementia in Sleman Regency, Yogyakarta

    ✓ Peer-reviewed alzhub usefulness score 54 out of 100. Psychogeriatrics : the official journal of the Japanese Psychogeriatric Society 2024-06-04 Caregiving

    The result of the validity test of the CNA-D instrument, Indonesian version, obtained a high value for content validity.

  34. Affiliate Stigma among family caregivers of individuals with dementia in China: a cross-sectional study

    ✓ Peer-reviewed alzhub usefulness score 59 out of 100. Frontiers in public health 2024-05-30 Caregiving

    The mean score for affiliate stigma of dementia family caregivers was 48.09 ± 16.38 (range: 22-86).

  35. Mason Caregivers Aiming for Resilience, Empowerment, and Support Study: Assessing Family Caregiver Burden Post-Intervention

    ✓ Peer-reviewed alzhub usefulness score 43 out of 100. Journal of applied gerontology : the official journal of the Southern Gerontological Society 2024-04-12 Caregiving

    Family caregivers of older adults living with severe dementia had the highest baseline Zarit Burden Interview (ZBI) score of 27.7 which decreased to 25.0 (p < .05); family caregivers of those living with moderate dementia had a baseline ZBI score of 24.3 which decreased to 20.4 (p < .01); and family caregivers of those living with mild dementia had the lowest baseline ZBI score of 21.0, which decreased to 18.0 (p < .01).

  36. Empathy and support exchanges in couples coping with early-stage Alzheimer's disease

    ✓ Peer-reviewed alzhub usefulness score 43 out of 100. Aging & mental health 2024-03-11 Caregiving

    People with early-stage AD and their spousal caregivers provided support to each other often.

  37. Interventions to Reduce Loneliness in Community-Living Older Adults: a Systematic Review and Meta-analysis

    ✓ Peer-reviewed alzhub usefulness score 82 out of 100. Journal of general internal medicine 2024-01-10 Risk factors

    A total of 5971 titles were reviewed and 60 studies were included in the analysis, 36 RCTs and 24 observational studies.

  38. Caregiver Experiences with Dementia-Related Feeding/Eating Difficulties

    ✓ Peer-reviewed alzhub usefulness score 50 out of 100. Healthcare (Basel, Switzerland) 2024-01-07 Caregiving

    This cross-sectional study explores caregivers' perceptions of feeding/eating difficulties in persons living with dementia, their support provisions, and the associated burdens.

  39. Social Loneliness in Older Adults with Mild Cognitive Impairment: Predictive Factors and Associated Clinical Characteristics

    ✓ Peer-reviewed alzhub usefulness score 52 out of 100. Journal of Alzheimer's disease : JAD 2024 Risk factors

    The predictors of the Social Loneliness factors were as follows; 1) perceived social support (R2 = 0.33): Neuroticism (β= 0.353), depression (β= 0.205), and perceived health (β= 0.133); 2) social participation (R2 = 0.24): Conscientiousness (β= -0.344) and Extraversion (β= -0.263); 3) use of communication technologies (R2 = 0.44): age (β= 0.409), type of cohabitation (β= 0.331), cognitive reserve (β= -0.303), and Conscientiousness (β= -0.247); all p < 0.05.

  40. The Effects of Neuropsychiatric Symptom Clusters in People with Dementia on Family Caregiver Burden

    ✓ Peer-reviewed alzhub usefulness score 50 out of 100. Journal of Alzheimer's disease : JAD 2024 Caregiving

    Adjusted for functional impairments and sociodemographic variables, neuropsychiatric symptoms were associated with more caregiver burden (p < 0.001).

  41. Correlations between Dementia and Loneliness

    ✓ Peer-reviewed alzhub usefulness score 41 out of 100. International journal of molecular sciences 2023-12-24 Risk factors

    This review describes associations between dementia and loneliness on the neurobiological and epidemiological levels according to the recent body of literature.

  42. Multiphase optimization of a multicomponent intervention for informal dementia caregivers: a study protocol

    ✓ Peer-reviewed alzhub usefulness score 48 out of 100. Trials 2023-12-05 Caregiving

    This is the first study adopting the multiphase optimisation strategy to identify the most active and engaging components of a psychological intervention for caregivers of patients with dementia.

  43. Implementing Dementia Caregiver Programs in Real-World Settings: Fidelity Considerations

    ✓ Peer-reviewed alzhub usefulness score 46 out of 100. Journal of the American Medical Directors Association 2023-11-27 Caregiving

    Testing interventions in real-world settings requires fidelity monitoring to ensure implementation integrity.

  44. Caring for Dementia Caregivers: Psychosocial Factors Related to Engagement in Self-Care Activities

    ✓ Peer-reviewed alzhub usefulness score 79 out of 100. Behavioral sciences (Basel, Switzerland) 2023-10-18 Caregiving

    Caregivers often prioritize the needs of the care recipient and neglect their own health needs.

  45. Comprehensive Older Adult and Caregiver Help (COACH): A person-centered caregiver intervention prevents elder mistreatment

    ✓ Peer-reviewed alzhub usefulness score 82 out of 100. Journal of the American Geriatrics Society 2023-10-04 Caregiving

    The treatment group had no EM after intervention completion (assessed at 3-month follow-up), a significantly lower rate than the control group (treatment = 0%, control = 23.1%, p = 0.010).

  46. Determining Evidence for Family Caregiver Communication: Associating Communication Behaviors With Breakdown and Repair

    ✓ Peer-reviewed alzhub usefulness score 50 out of 100. The Gerontologist 2023-09-02 Caregiving

    Breakdown (coded as 0) was associated with caregivers changing topic (median = -11.45, 95% credibility interval [CrI; -24.34, -4.37]), ignoring (median = -11.49, 95% CrI [-24.49, -4.72]), giving commands (median = -10.74, 95% CrI [-24.22, -3.38]), and taking over the task (median = -4.06, 95% CrI [-7.28, -1.77]).

  47. Exploring factors contributing to caregiver burden in family caregivers of congolese adults with suspected dementia

    ✓ Peer-reviewed alzhub usefulness score 41 out of 100. International journal of geriatric psychiatry 2023-09 Caregiving

    Average caregiver burden on the ZBI was 36.1 (SD = 14.6; range = 12-58).

  48. Caregiver burden related to feeding process in Alzheimer's disease

    ✓ Peer-reviewed alzhub usefulness score 55 out of 100. Dementia & neuropsychologia 2023-07-24 Caregiving

    We included 60 AD individuals-caregivers dyads.

  49. Reality of Family Caregiving for Hispanics With Alzheimer's Disease and Related Dementias: A Qualitative Analysis

    ✓ Peer-reviewed alzhub usefulness score 48 out of 100. Journal of palliative medicine 2023-06-13 Caregiving

    Four major themes emerged: Methods of Support, Cultural Expectations and Varying Family Contributions, Lack of Self-Care, and Awareness.

  50. Intersection of multiple factors shape Korean American caregiver experience in dementia caregiving

    ✓ Peer-reviewed alzhub usefulness score 48 out of 100. Aging & mental health 2023-06-06 Caregiving

    Three themes were identified; 1) intersectionality in the Korean American caregiver experience, 2) complex family dynamics, and 3) dementia care barriers and caregiver support needs.

From across this tag

9 of the 195 studies in this tag, picked by a fixed rule (a hash of each study's address), not by score or date; each page of this list shows a different 9. The same 9 appear here every time.

All topic tags with their study counts