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Newest in this topic

  1. Is there a role for artificial intelligence in end-of-life care for persons with dementia? Perspectives of and recommendations by caregivers and hospice staff 2026-09-17
  2. Online Peer Support Use Among Informal Caregivers of People Living With Alzheimer Disease or Related Dementias: National Cross-Sectional Web-Based Survey 2026-09-07
  3. Interconnected Challenges in Dementia Caregiving: A Co-occurrence Network Analysis of Burden, Unmet Needs, and System Failures Among Caregivers 2026-08-17

Studies

1,013 studies carry this tag; 1,012 of them have a date.

Date range

1986 to 2026

Top journals

  • Journal of the American Geriatrics Society 63
  • The Gerontologist 48
  • Alzheimer s & Dementia 28
  • International psychogeriatrics 28
  • Journal of the American Medical Directors Association 26

339 journals in all.

Newest first, then by address. Each study has a usefulness score out of 100 (rubric version 4.0); tap a score to see what makes it up. Tags were assigned automatically from each study's title and summary. The same studies as a filter in the library.

  1. Mindfulness-based stress reduction for family caregivers: a randomized controlled trial

    ✓ Peer-reviewed alzhub usefulness score 58 out of 100. The Gerontologist 2012-10-15 Disparities

    MBSR was more effective at improving overall mental health, reducing stress, and decreasing depression than CCES.

  2. The quality of advanced dementia care in the nursing home: the role of special care units

    ✓ Peer-reviewed alzhub usefulness score 62 out of 100. Medical care 2012-10-01 End-of-life care

    Residence in an SCU is associated with some, but not all, markers of better quality end-of-life care among nursing home residents with advanced dementia.

  3. Engaging life in two Irish nursing home units for people with dementia: Quantitative comparisons before and after implementing household environments

    ✓ Peer-reviewed alzhub usefulness score 38 out of 100. Aging & Mental Health 2012-09-03 Health systems and care delivery

    The results were consistent for both nursing homes and data were aggregated.

  4. Assessment and management of pain, with particular emphasis on central neuropathic pain, in moderate to severe dementia

    ✓ Peer-reviewed alzhub usefulness score 36 out of 100. Drugs & aging 2012-09-01 End-of-life care

    Concerning pain assessment, the findings of this review suggest that self-report pain rating scales, in particular the Verbal Rating Scale, the Horizontal Visual Analogue Scale and the Faces Pain Scale can be administered to patients in a more advanced stage of dementia.

  5. Palliative care services for people with dementia: a synthesis of the literature reporting the views and experiences of professionals and family carers

    ✓ Peer-reviewed alzhub usefulness score 36 out of 100. Dementia (London, England) 2012-08-10 End-of-life care

    The experience of being a carer of a person with dementia at the end of life is expressed in these 12 accounts.

  6. Sources of stress for family members of nursing home residents with advanced dementia

    ✓ Peer-reviewed alzhub usefulness score 52 out of 100. Alzheimer disease and associated disorders 2012-07-01 End-of-life care

    The sources of stress for families of nursing home (NH) residents with advanced dementia have not been well described.

  7. The impact of family caregivers on potentially inappropriate medication use in noninstitutionalized older adults with dementia

    ✓ Peer-reviewed alzhub usefulness score 57 out of 100. The American journal of geriatric pharmacotherapy 2012-06-09 Disparities

    PIM use may be higher in dementia patients and their informal caregivers compared with the general older adult population.

  8. ENRICH: a new innovation to facilitate dementia research in care homes

    ✓ Peer-reviewed alzhub usefulness score 25 out of 100. British Journal of Community Nursing 2012-06-01 Health systems and care delivery

    There are currently almost three times as many care home beds as NHS hospital beds in England, and the number is projected to rise significantly by 2019 (Laing and Buisson, 2009).

  9. Older people dying with dementia: a nationwide study

    ✓ Peer-reviewed alzhub usefulness score 36 out of 100. International psychogeriatrics 2012-05-30 End-of-life care

    Several areas of end-of-life care provision could be improved.

  10. Preferences for end-of-life treatment: concordance between older adults with dementia or mild cognitive impairment and their spouses

    ✓ Peer-reviewed alzhub usefulness score 43 out of 100. International psychogeriatrics 2012-05-22 End-of-life care

    Our results show that regarding end-of-life preferences for patients, there is moderate agreement between patients and their spouses, but limited evidence for projection of spouses' preferences on patients (i.e. spouse making a prediction based on own wishes).

  11. The evidence is not conclusive as to whether some symptoms are more important than others.

  12. Hospital transfers of nursing home residents with advanced dementia

    ✓ Peer-reviewed alzhub usefulness score 52 out of 100. Journal of the American Geriatrics Society 2012-03-16 End-of-life care

    The majority of hospitalizations of NH residents with advanced dementia were due to infections and thus were potentially avoidable, because infections are often treatable in the NH.

  13. Grief reactions in dementia carers: a systematic review

    ✓ Peer-reviewed alzhub usefulness score 56 out of 100. International journal of geriatric psychiatry 2012-03-08 Caregiving

    Grief in dementia carers can be expected; however, those at risk of distressing anticipatory and complicated grief may be identified and targeted for intervention when necessary.

  14. Barriers to providing end-of-life care for people with dementia: a whole-system qualitative study

    ✓ Peer-reviewed alzhub usefulness score 43 out of 100. BMJ supportive & palliative care 2012-03-01 End-of-life care

    Qualitative methods of service evaluation facilitated a broader and deeper understanding of a range of perspectives, which, with other components of rapid participatory appraisal, generated potential solutions to improve care.

  15. Advance directives and physicians' orders in nursing home residents with dementia in Flanders, Belgium: prevalence and associated outcomes

    ✓ Peer-reviewed alzhub usefulness score 48 out of 100. International psychogeriatrics 2012-02-27 End-of-life care

    Nursing home residents receiving palliative care are more likely to have a GP order.

  16. End-of-life care for people with dementia from ethnic minority groups: a systematic review

    ✓ Peer-reviewed alzhub usefulness score 64 out of 100. Journal of the American Geriatrics Society 2012-02-01 End-of-life care

    A systematic review of the literature was conducted to examine the relationship between ethnic minority status and provision of end-of-life care for people with dementia.

  17. Interventions for Hispanic caregivers of patients with dementia: a review of the literature

    ✓ Peer-reviewed alzhub usefulness score 38 out of 100. American journal of Alzheimer's disease and other dementias 2012-02-01 Disparities

    Future studies should consider culturally tailoring interventions for Hispanic/Latino caregivers from differing subcultures, utilizing relevant technology in studies, and evaluating the functional level of the care receiver and assess where he/she is in the disease process continuum.

  18. Family perceptions of end-of-life care for long-term care residents with dementia: differences between the United States and the Netherlands

    ✓ Peer-reviewed alzhub usefulness score 36 out of 100. Journal of the American Geriatrics Society 2012-01-30 End-of-life care

    Because previous research favored care in the Netherlands to that in the United States, findings suggest improvement in end-of-life care and outcomes in the United States and stability in the Netherlands.

  19. Dying in U.S. nursing homes with advanced dementia: how does health care use differ for residents with, versus without, end-of-life Medicare skilled nursing facility care?

    ✓ Peer-reviewed alzhub usefulness score 48 out of 100. Journal of palliative medicine 2011-12-16 End-of-life care

    Dual hospice/SNF access may result in fewer hospital deaths and higher quality of life for dying NH residents.

  20. A systematic review of the effectiveness of advance care planning interventions for people with cognitive impairment and dementia

    ✓ Peer-reviewed alzhub usefulness score 64 out of 100. Age and ageing 2011-12-08 End-of-life care

    Our aim was to review systematically the effectiveness of ACP interventions in people with cognitive impairment and dementia.

  21. Improving end-of-life care for people with dementia

    ✓ Peer-reviewed alzhub usefulness score 36 out of 100. The British journal of psychiatry : the journal of mental science 2011-11-01 End-of-life care

    One in three adults over the age of 60 years will die with dementia.

  22. Barriers and facilitators to the receipt of palliative care for people with dementia: the views of medical and nursing staff

    ✓ Peer-reviewed alzhub usefulness score 43 out of 100. Palliative medicine 2011-10-03 End-of-life care

    Four themes were identified: Making the transition; Competence challenged; 'The long view' and Working together.

  23. Dying well with dementia: qualitative examination of end-of-life care

    ✓ Peer-reviewed alzhub usefulness score 36 out of 100. The British journal of psychiatry : the journal of mental science 2011-09-22 End-of-life care

    The quality of end-of-life care exists on a continuum across care settings.

  24. Nurses will sign up to improve care in RCN dementia campaign

    ✓ Peer-reviewed alzhub usefulness score 24 out of 100. Nursing Standard 2011-09-21 Health systems and care delivery

    A five-point action plan designed to drive up the quality of hospital care for people with dementia is to be issued by the RCN this week.

  25. Improving decision-making for feeding options in advanced dementia: a randomized, controlled trial

    ✓ Peer-reviewed alzhub usefulness score 69 out of 100. Journal of the American Geriatrics Society 2011-09-15 Clinical safety

    A decision aid about feeding options in advanced dementia reduced decisional conflict for surrogates and increased their knowledge and communication about feeding options with providers.

  26. Advance care planning for people with dementia: a review

    ✓ Peer-reviewed alzhub usefulness score 36 out of 100. International psychogeriatrics 2011-08-26 End-of-life care

    The current evidence base for ACP in dementia is limited.

  27. Care at the end of life for people with dementia living in a care home: a qualitative study of staff experience and attitudes

    ✓ Peer-reviewed alzhub usefulness score 36 out of 100. International journal of geriatric psychiatry 2011-08-22 End-of-life care

    The staff require education and support about discussing and implementing plans around care at the end of life in dementia and about cultural issues around death to improve practice.

  28. Psychometric properties of instruments to measure the quality of end-of-life care and dying for long-term care residents with dementia

    ✓ Peer-reviewed alzhub usefulness score 47 out of 100. Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation 2011-08-05 End-of-life care

    Our comparative study of psychometric properties of instruments allows for informed selection of QOC and QOD measures for LTC residents with dementia.

  29. Does hospice improve quality of care for persons dying from dementia?

    ✓ Peer-reviewed alzhub usefulness score 40 out of 100. Journal of the American Geriatrics Society 2011-07-28 End-of-life care

    Bereaved family members of people with dementia who received hospice reported higher perceptions of the quality of care and quality of dying.

  30. Predictors of caregiver burden in caregivers of individuals with dementia

    ✓ Peer-reviewed alzhub usefulness score 52 out of 100. Journal of advanced nursing 2011-07-28 Caregiving

    This article is a report on a study of the multidimensional predictors of caregiver burden in caregivers of individuals with dementia using nationally representative data.

  31. Advance directives for euthanasia in dementia: how do they affect resident care in Dutch nursing homes? Experiences of physicians and relatives

    ✓ Peer-reviewed alzhub usefulness score 36 out of 100. Journal of the American Geriatrics Society 2011-06-07 End-of-life care

    Advance directives for euthanasia are never adhered to in the Netherlands in the case of people with advanced dementia, and their role in advance care planning and end-of-life care of people with advanced dementia is limited.

  32. Self-efficacy for managing dementia may protect against burden and depression in Alzheimer's caregivers

    ✓ Peer-reviewed alzhub usefulness score 52 out of 100. Aging & mental health 2011-05-24 Cognitive tests and assessment

    Self-efficacy is the belief that one can perform a specific task or behaviour and is a modifiable attribute which has been shown to influence health behaviours.

  33. A family booklet about comfort care in advanced dementia: three-country evaluation

    ✓ Peer-reviewed alzhub usefulness score 46 out of 100. Journal of the American Medical Directors Association 2011-03-21 End-of-life care

    The booklet is suitable to inform Dutch and Canadian families on comfort care in dementia, but implementation in Italy requires further consideration.

  34. Advanced care planning in care homes for older people: a qualitative study of the views of care staff and families

    ✓ Peer-reviewed alzhub usefulness score 36 out of 100. Age and ageing 2011-02-22 End-of-life care

    Design qualitative exploration of views from care home staff and the family of residents in care homes for older people.

  35. Caregiver support groups in patients with dementia: a meta-analysis

    ✓ Peer-reviewed alzhub usefulness score 59 out of 100. International journal of geriatric psychiatry 2011-02-09 Caregiving

    Support groups benefit caregivers and findings of this meta-analysis serve as immediate guidance for group facilitators.

  36. Assessing end-of-life preferences for advanced dementia in rural patients using an educational video: a randomized controlled trial

    ✓ Peer-reviewed alzhub usefulness score 65 out of 100. Journal of palliative medicine 2011-01-21 Disparities

    Rural subjects with higher health literacy were more likely to want comfort care compared to those with lower levels of health literacy.

  37. Palliative assessment and advance care planning in severe dementia: an exploratory randomized controlled trial of a complex intervention

    ✓ Peer-reviewed alzhub usefulness score 71 out of 100. Palliative medicine 2011-01-12 End-of-life care

    Patients with advanced dementia often receive poor end-of-life care.

  38. Medicare expenditures among nursing home residents with advanced dementia

    ✓ Peer-reviewed alzhub usefulness score 48 out of 100. Archives of internal medicine 2011-01-10 End-of-life care

    Medicare expenditures among nursing home residents with advanced dementia vary substantially.

  39. Hospice care for persons with dementia: The growth of access in US nursing homes

    ✓ Peer-reviewed alzhub usefulness score 40 out of 100. American journal of Alzheimer's disease and other dementias 2010-12-01 End-of-life care

    Over 40% of US NH decedents have mild-to-moderately severe or advanced dementia.

  40. Hospice use and outcomes in nursing home residents with advanced dementia

    ✓ Peer-reviewed alzhub usefulness score 56 out of 100. Journal of the American Geriatrics Society 2010-12-01 Disparities

    A minority of NH residents with advanced dementia received hospice care.

  41. Dementia care in rural and remote settings: a systematic review of informal/family caregiving

    ✓ Peer-reviewed alzhub usefulness score 51 out of 100. Maturitas 2010-11-19 Disparities

    Despite the growing body of evidence over the 20 years of this review, and the widespread interest in family dementia caregiving generally, much of the research exploring family caregiving in rural areas focuses on the experience, use and barriers to formal service provision.

  42. Quality of life in nursing home residents with advanced dementia

    ✓ Peer-reviewed alzhub usefulness score 56 out of 100. Journal of the American Geriatrics Society 2010-11-04 End-of-life care

    The ADRQL is a valid indicator of QOL in NH residents with advanced dementia.

  43. Impact of early onset dementia on caregivers: a review

    ✓ Peer-reviewed alzhub usefulness score 44 out of 100. International journal of geriatric psychiatry 2010-11-01 Caregiving

    Whether there is a difference in impact between EOD and LOD on caregivers is still unclear.

  44. Palliative Care for Patients with Dementia: A National Survey

    ✓ Peer-reviewed alzhub usefulness score 41 out of 100. Journal of the American Geriatrics Society 2010-11-01 Health systems and care delivery

    Ninety-four percent of hospices and 72% of PC programs had served at least one patient with a primary diagnosis of dementia within the past year.

  45. Prediction of 6-month survival of nursing home residents with advanced dementia using ADEPT vs hospice eligibility guidelines

    ✓ Peer-reviewed alzhub usefulness score 60 out of 100. JAMA 2010-11-01 End-of-life care

    When prospectively validated at the bedside and used as a continuous measure, the ability of the ADEPT score to identify nursing home residents with advanced dementia at high risk of death within 6 months was modest, albeit better than hospice eligibility guidelines.

  46. The advanced dementia prognostic tool: a risk score to estimate survival in nursing home residents with advanced dementia

    ✓ Peer-reviewed alzhub usefulness score 67 out of 100. Journal of pain and symptom management 2010-11-01 End-of-life care

    A mortality risk score derived from MDS data predicted six-month survival in advanced dementia with moderate accuracy.

  47. Enhancing dementia care: a primary care-based memory clinic

    ✓ Peer-reviewed alzhub usefulness score 48 out of 100. Journal of the American Geriatrics Society 2010-10-26 Clinical safety

    Memory clinics have been promoted as opportunities for improving dementia diagnosis and care.

  48. Memory and communication support in dementia: research-based strategies for caregivers

    ✓ Peer-reviewed alzhub usefulness score 39 out of 100. International psychogeriatrics 2010-09-20 Digital health tools

    Using a knowledge-translation framework, information and strategies can be provided to family and professional caregivers to help them optimize residual memory and communication in people with dementia.

  49. A biobehavioral home-based intervention and the well-being of patients with dementia and their caregivers: the COPE randomized trial

    ✓ Peer-reviewed alzhub usefulness score 72 out of 100. JAMA 2010-09-01 Caregiving

    Among community-living dyads, a nonpharmacologic biobehavioral environmental intervention compared with control resulted in better outcomes for COPE dyads at 4 months.

  50. Dementia, dignity and quality of life: nursing practice and its dilemmas

    ✓ Peer-reviewed alzhub usefulness score 36 out of 100. International journal of older people nursing 2010-09-01 End-of-life care

    Each vignette promoted discussion of differences of perspectives about the ways to enhance the dignity of people with dementia in hospital, care home and community settings.

From across this tag

10 of the 1,002 studies in this tag, picked by a fixed rule (a hash of each study's address), not by score or date; each page of this list shows a different 10. The same 10 appear here every time.

All topic tags with their study counts