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The development of a guidance document for interprofessional collaborative advance care planning in dementia care
Chandni Khemai, Daisy J.A. Janssen, Jerôme Jean Jacques van Dongen, Jesper M A Biesmans, Sascha Bolt, Jos M. G. A. Schols, Judith M M Meijers. Journal of Integrated Care, 2025-04-22
Topic: Risk, prevention and care in population studies
Purpose Advance care planning (ACP) is an essential part of palliative dementia care and should embrace a collaborative approach involving people with dementia (PwD), family members and various healthcare professionals (HCPs). This study aimed to develop a guidance document for IPC in ACP in dementia care for HCPs working in nursing homes. Design/methodology/approach The methodology is characterised by a mixed-method design and an appreciative inquiry approach comprising semi-structured focus groups and interviews with HCPs. The study participants ( N = 18) included certified nurses, registered nurses, a quality nurse, nurse specialists, team leaders, physicians specialized in geriatric medicine, psychologists and a teacher/researcher (mean age 43.8 years; 79% female). The data analysis indicated six elements to include in the guidance document. Findings The first three elements concerned common awareness of collaborative ACP in dementia care, role clarification for various professions and actively working towards shared goals in collaborative ACP in dementia care. The last three themes focused on the dynamic processes in collaborative ACP in dementia care: interprofessional communication, coordination, monitoring and evaluation. This study provides a guidance document that HCPs could use in practice to identify the elements they can address to improve collaborative ACP in dementia care. Originality/value This study provides a guidance document that HCPs could use in practice to identify the elements they can address to improve collaborative ACP in dementia care.
Key findings
- The data analysis indicated six elements to include in the guidance document.
- Findings The first three elements concerned common awareness of collaborative ACP in dementia care, role clarification for various professions and actively working towards shared goals in collaborative ACP in dementia care.
- The last three themes focused on the dynamic processes in collaborative ACP in dementia care: interprofessional communication, coordination, monitoring and evaluation.
- This study provides a guidance document that HCPs could use in practice to identify the elements they can address to improve collaborative ACP in dementia care.
- Originality/value This study provides a guidance document that HCPs could use in practice to identify the elements they can address to improve collaborative ACP in dementia care.
Why it matters
This study developed a guidance document with six elements to help healthcare professionals work together on advance care planning in dementia care in nursing homes. It is about interprofessional collaboration in care planning, not treating, curing or preventing Alzheimer's disease.
Study details
- Participants18
- Evidence strengthLow
How this study scored 34/100
Published in a peer-reviewed journal. Scored zero for study design, effect reported and randomised / blinded because the record does not state it.
| Component | Points | Why |
|---|---|---|
| Journal tier | 7 / 10 | Tier 3 — peer-reviewed journal (Journal of Integrated Care) |
| Journal's citation record | 0 / 4 | Journal of Integrated Care: journal h-index 34 (OpenAlex, 2026-10-29) |
| Study design | 0 / 12 | No study design recorded — scores zero, not guessed (not stated in the record — scored 0) |
| Strength of evidence | 1 / 5 | Rated “low” in our summary |
| Peer-review validation | 10 / 10 | Peer-reviewed. Published as an article in a named peer-reviewed journal. |
| How recent | 4 / 5 | 2025 — within 3 year(s) of the newest study here |
| Sample size | 1 / 4 | 18 participants |
| Effect reported | 0 / 3 | No effect size reported — scores zero (not stated in the record — scored 0) |
| Studied in people | 3 / 3 | Studied in people (participant count stated) |
| Randomised / blinded | 0 / 2 | No randomisation or blinding stated — scores zero (not stated in the record — scored 0) |
| Times cited | 0 / 7 | Cited 0 times (OpenAlex, 2026-10-10) |
| Citations per year | 0 / 5 | 0.0 citations a year over 3 year(s) since 2025 |
| Impact for its field and year | 0 / 6 | Cited 0.0× the average for papers of its field and year (OpenAlex FWCI) |
| Cited by studies here | 0 / 6 | No other study in this library cites it |
| Still being cited | 0 / 4 | Cited 0 times in 2024–2026 (2026 still in progress; OpenAlex) |
| Senior author's track record | 2 / 4 | Last-listed author Judith M M Meijers: h-index 34 (OpenAlex, whole career) |
| Institution's track record | 1 / 3 | Maastricht University: institution h-index 876 (OpenAlex) |
| Multi-centre collaboration | 2 / 3 | OpenAlex lists 5 institution(s) in 1 country |
| Indexed in PubMed | 1 / 2 | Not in PubMed, but has a DOI |
| Free to read | 2 / 2 | Free to read |
| Total | 34 / 100 | — |
What each of these 20 components measures, and what this score is not →
Read the original
Full text: free to read — OpenAlex lists this copy as free to read: the link above (checked 6 Feb 1020).
Cite this study APA, Vancouver, BibTeX · download .bib or .ris
Built from the record alzhub holds for this paper, not looked up. Volume, issue and page numbers are not held in the record. The record names 7 authors; APA and Vancouver show the first six, BibTeX and the downloads carry all of them. Check the citation against the original before you use it.
APA 7th
Khemai, C., Janssen, D. J., van Dongen, J. J. J., Biesmans, J. M. A., Bolt, S., Schols, J. M. G. A., et al. (2025). The development of a guidance document for interprofessional collaborative advance care planning in dementia care. Journal of Integrated Care. https://doi.org/10.1108/jica-09-2023-0072
Vancouver
Khemai C, Janssen DJ, van Dongen JJJ, Biesmans JMA, Bolt S, Schols JMGA, et al. The development of a guidance document for interprofessional collaborative advance care planning in dementia care. Journal of Integrated Care. 2025. doi:10.1108/jica-09-2023-0072.
BibTeX
@article{khemai2025-f99db280,
author = {Khemai, Chandni and Janssen, Daisy J.A. and van Dongen, Jerôme Jean Jacques and Biesmans, Jesper M A and Bolt, Sascha and Schols, Jos M. G. A. and Meijers, Judith M M},
title = {{The development of a guidance document for interprofessional collaborative advance care planning in dementia care}},
journal = {Journal of Integrated Care},
year = {2025},
doi = {10.1108/jica-09-2023-0072},
url = {https://doi.org/10.1108/jica-09-2023-0072}
}
Studies this one cites
Referenced by this study and also in the alzhub library, so you can read them here.