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Patient and Family Outcomes of Community Neurologist Palliative Education and Telehealth Support in Parkinson Disease
Kluger BM, Katz M, Galifianakis NB, Pantilat SZ, Hauser JM, Khan R, Friedman C, Vaughan CL et al.. JAMA neurology, 2024-01-01
Topic: Risk, prevention and care in population studies
Results A total of 359 patients with PDRD (233 men [64.9%]; mean [SD] age, 74.0 [8.8] years) and 300 caregivers were enrolled. At 6 months, compared with usual care, participants receiving the intervention had better QOL (QOL-AD score, 0.09 [95% CI, -0.63 to 0.82] vs -0.88 [95% CI, -1.62 to -0.13]; treatment effect estimate, 0.97; 95% CI, 0.07-1.86; P = .03). No significant difference was observed in caregiver burden (Zarit Burden Interview score, 1.19 [95% CI, 0.16 to 2.23] vs 0.55 [95%, -0.44 to 1.54]; treatment effect estimate, 0.64; 95% CI, -0.62 to 1.90; P = .32). Overall treatment effects were small and suggest opportunities to improve both the intervention and implementation.
Key findings
- Results A total of 359 patients with PDRD (233 men [64.9%]; mean [SD] age, 74.0 [8.8] years) and 300 caregivers were enrolled.
- At 6 months, compared with usual care, participants receiving the intervention had better QOL (QOL-AD score, 0.09 [95% CI, -0.63 to 0.82] vs -0.88 [95% CI, -1.62 to -0.13]; treatment effect estimate, 0.97; 95% CI, 0.07-1.86; P = .03).
- No significant difference was observed in caregiver burden (Zarit Burden Interview score, 1.19 [95% CI, 0.16 to 2.23] vs 0.55 [95%, -0.44 to 1.54]; treatment effect estimate, 0.64; 95% CI, -0.62 to 1.90; P = .32).
- Overall treatment effects were small and suggest opportunities to improve both the intervention and implementation.
Why it matters
A palliative education and telehealth support intervention improved quality of life for patients with Parkinson disease and related disorders compared with usual care. It found no significant difference in caregiver burden, and the treatment effects were small.
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Study details
- Participants612
- Effect size64.9%
- Evidence strengthHigh
How this study scored 70/100
Published in a leading specialty journal, and it is a randomised controlled trial.
| Component | Points | Why |
|---|---|---|
| Journal tier | 9 / 10 | Tier 2 — leading specialty journal (JAMA neurology) |
| Journal's citation record | 2 / 4 | JAMA Neurology: journal h-index 235 (OpenAlex, 2026-10-29) |
| Study design | 11 / 12 | A randomised controlled trial (from PubMed type “Randomized Controlled Trial”) |
| Strength of evidence | 5 / 5 | Rated “high” in our summary |
| Peer-review validation | 10 / 10 | Peer-reviewed. Published as an article in a named peer-reviewed journal. |
| How recent | 4 / 5 | 2024 — within 3 year(s) of the newest study here |
| Sample size | 2 / 4 | 612 participants |
| Effect reported | 2 / 3 | Effect reported as a number, without an interval or test |
| Studied in people | 3 / 3 | Studied in people (participant count stated) |
| Randomised / blinded | 1 / 2 | Randomised (as stated in the record) |
| Times cited | 3 / 7 | Cited 22 times (OpenAlex, 2026-10-10) |
| Citations per year | 2 / 5 | 5.5 citations a year over 4 year(s) since 2024 |
| Impact for its field and year | 3 / 6 | Cited 5.1× the average for papers of its field and year (OpenAlex FWCI) |
| Cited by studies here | 0 / 6 | No other study in this library cites it |
| Still being cited | 2 / 4 | Cited 22 times in 2024–2026 (2026 still in progress; OpenAlex) |
| Senior author's track record | 3 / 4 | Last-listed author Jean S. Kutner: h-index 57 (OpenAlex, whole career) |
| Institution's track record | 3 / 3 | Stanford University: institution h-index 2,684 (OpenAlex) |
| Multi-centre collaboration | 3 / 3 | OpenAlex lists 10 institution(s) in 1 country |
| Indexed in PubMed | 2 / 2 | Indexed in PubMed (PMID 37955923) |
| Free to read | 0 / 2 | Behind a paywall — scores zero |
| Total | 70 / 100 | — |
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Read the original
- DOI: 10.1001/jamaneurol.2023.4260
- PubMed: 37955923
- Original source →
- Free full text: PubMed Central →
Full text: free to read — PubMed Central lists this copy as free to read: the link above (checked 10 Oct 2026).
Cite this study APA, Vancouver, BibTeX · download .bib or .ris
Built from the record alzhub holds for this paper, not looked up. Volume, issue and page numbers are not held in the record. The record's author list ends in “et al.”, so not every author is named. Check the citation against the original before you use it.
APA 7th
Kluger, B. M., Katz, M., Galifianakis, N. B., Pantilat, S. Z., Hauser, J. M., Khan, R., et al. (2024). Patient and Family Outcomes of Community Neurologist Palliative Education and Telehealth Support in Parkinson Disease. JAMA neurology. https://doi.org/10.1001/jamaneurol.2023.4260
Vancouver
Kluger BM, Katz M, Galifianakis NB, Pantilat SZ, Hauser JM, Khan R, et al. Patient and Family Outcomes of Community Neurologist Palliative Education and Telehealth Support in Parkinson Disease. JAMA neurology. 2024. doi:10.1001/jamaneurol.2023.4260. PMID: 37955923.
BibTeX
@article{kluger2024-37955923,
author = {Kluger, B. M. and Katz, M. and Galifianakis, N. B. and Pantilat, S. Z. and Hauser, J. M. and Khan, R. and Friedman, C. and Vaughan, C. L. and others},
title = {{Patient and Family Outcomes of Community Neurologist Palliative Education and Telehealth Support in Parkinson Disease}},
journal = {JAMA neurology},
year = {2024},
doi = {10.1001/jamaneurol.2023.4260},
pmid = {37955923},
url = {https://doi.org/10.1001/jamaneurol.2023.4260}
}
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