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Factors influencing adults' willingness to be screened for dementia risk
Alexandra S. Reed, Andrew Hooyman, Nicole Lee, Elizabeth Braungart Fauth, Jill Love, Sydney Y. Schaefer. Alzheimer s & Dementia, 2024-12-01
Topic: Risk, prevention and care in population studies
Although White and non-White participants were both willing to test (∼77%), non-White participants were approximately four times more likely to test only if their results were not shared with their medical provider/insurer. The desire to test outside of medical environments is further supported by the fact that the most common reason for taking the test was peace of mind (78%) rather than facilitating treatment plans, and that a positive test result would be most shared with family (62%) rather than with doctors right away. Older age was also associated with increased willingness to test, while ethnicity and socioeconomic status were not. Historical contexts and marginalization of minoritized groups may also impact willingness to screen for early ADRD risk/detection, which needs to be explored further. Building medical trust may take decades for some populations, thus supporting the need to develop options now for biomarkers or other ADRD-risk screeners that are accessible and appropriate for culturally diverse groups, both within and outside of a medical context.
Key findings
- Although White and non-White participants were both willing to test (∼77%), non-White participants were approximately four times more likely to test only if their results were not shared with their medical provider/insurer.
- The desire to test outside of medical environments is further supported by the fact that the most common reason for taking the test was peace of mind (78%) rather than facilitating treatment plans, and that a positive test result would be most shared with family (62%) rather than with doctors right away.
- Older age was also associated with increased willingness to test, while ethnicity and socioeconomic status were not.
- Historical contexts and marginalization of minoritized groups may also impact willingness to screen for early ADRD risk/detection, which needs to be explored further.
- Building medical trust may take decades for some populations, thus supporting the need to develop options now for biomarkers or other ADRD-risk screeners that are accessible and appropriate for culturally diverse groups, both within and outside of a medical context.
Why it matters
About 77% of both White and non-White participants were willing to test for dementia risk, but non-White participants were approximately four times more likely to test only if results were not shared with their medical provider or insurer. The study is about willingness to be screened, not about treating, curing, or preventing Alzheimer's disease.
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Study details
- Evidence strengthLow
How this study scored 34/100
Published in a peer-reviewed journal. Scored zero for study design, sample size, effect reported, studied in people and randomised / blinded because the record does not state it.
| Component | Points | Why |
|---|---|---|
| Journal tier | 7 / 10 | Tier 3 — peer-reviewed journal (Alzheimer s & Dementia) |
| Journal's citation record | 2 / 4 | Alzheimer s & Dementia: journal h-index 228 (OpenAlex, 2026-10-29) |
| Study design | 0 / 12 | No study design recorded — scores zero, not guessed (not stated in the record — scored 0) |
| Strength of evidence | 1 / 5 | Rated “low” in our summary |
| Peer-review validation | 10 / 10 | Peer-reviewed. Published as an article in a named peer-reviewed journal. |
| How recent | 4 / 5 | 2024 — within 3 year(s) of the newest study here |
| Sample size | 0 / 4 | Participant count not stated — scores zero (not stated in the record — scored 0) |
| Effect reported | 0 / 3 | No effect size reported — scores zero (not stated in the record — scored 0) |
| Studied in people | 0 / 3 | Not stated whether this was studied in people — scores zero (not stated in the record — scored 0) |
| Randomised / blinded | 0 / 2 | No randomisation or blinding stated — scores zero (not stated in the record — scored 0) |
| Times cited | 1 / 7 | Cited 1 times (OpenAlex, 2026-10-10) |
| Citations per year | 0 / 5 | 0.2 citations a year over 4 year(s) since 2024 |
| Impact for its field and year | 1 / 6 | Cited 0.3× the average for papers of its field and year (OpenAlex FWCI) |
| Cited by studies here | 0 / 6 | No other study in this library cites it |
| Still being cited | 0 / 4 | Cited 1 times in 2024–2026 (2026 still in progress; OpenAlex) |
| Senior author's track record | 2 / 4 | Last-listed author Sydney Y. Schaefer: h-index 26 (OpenAlex, whole career) |
| Institution's track record | 1 / 3 | Arizona State University: institution h-index 987 (OpenAlex) |
| Multi-centre collaboration | 1 / 3 | OpenAlex lists 2 institution(s) in 1 country |
| Indexed in PubMed | 2 / 2 | Indexed in PubMed (PMID 39750458) |
| Free to read | 2 / 2 | Free to read |
| Total | 34 / 100 | — |
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Read the original
Full text: free to read — OpenAlex lists this copy as free to read: the link above (checked 6 Feb 1020).
Cite this study APA, Vancouver, BibTeX · download .bib or .ris
Built from the record alzhub holds for this paper, not looked up. Volume, issue and page numbers are not held in the record. Check the citation against the original before you use it.
APA 7th
Reed, A. S., Hooyman, A., Lee, N., Fauth, E. B., Love, J., & Schaefer, S. Y. (2024). Factors influencing adults' willingness to be screened for dementia risk. Alzheimer s & Dementia. https://doi.org/10.1002/alz.091041
Vancouver
Reed AS, Hooyman A, Lee N, Fauth EB, Love J, Schaefer SY. Factors influencing adults' willingness to be screened for dementia risk. Alzheimer s & Dementia. 2024. doi:10.1002/alz.091041. PMID: 39750458.
BibTeX
@article{reed2024-39750458,
author = {Reed, Alexandra S. and Hooyman, Andrew and Lee, Nicole and Fauth, Elizabeth Braungart and Love, Jill and Schaefer, Sydney Y.},
title = {{Factors influencing adults' willingness to be screened for dementia risk}},
journal = {Alzheimer s \& Dementia},
year = {2024},
doi = {10.1002/alz.091041},
pmid = {39750458},
url = {https://doi.org/10.1002/alz.091041}
}
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