This page is alzhub.org's plain-English summary of a published study, not the paper itself. It is generated from the record we hold for this study, sourced and linked below — check the original for the full text and methods.

47/100

✓ Peer-reviewed alzhub usefulness score 47 out of 100. Health systems and care delivery

Topic: Risk, prevention and care in population studies

Among 6158 person-waves with a claims-based dementia diagnosis from 3278 PWPD (3134 [50.9%] aged 65-84 years; 4282 [69.5%] female; 1176 [19.1%] non-Hispanic Black, 617 [10.0%] Hispanic, and 4256 [69.1%] non-Hispanic White), the adjusted proportion not reporting their diagnosis was 42% (95% CI, 40%-43%) among all respondents and 67% (95% CI, 64%-69%) among self-respondents. This underreporting far exceeded that of other diagnosed conditions (overall mean, 31%; arthritis: 17%; 95% CI, 15%-18%; hypertension: 23%; 95% CI, 21%-24%; diabetes: 39%; 95% CI, 37%-41%; depression: 46%; 95% CI, 43%-48%). Dementia underreporting was highest before HRS-defined onset (82%; 95% CI, 76%-87%) and remained high after onset. Patient and care delivery factors were associated with underreporting, such as living alone (OR, 1.65; 95% CI, 1.27-2.13) and Medicare Advantage enrollment (OR, 0.68; 95% CI, 0.52-0.89). Patients who underreported were less likely to have a postdiagnosis problem-based visit (OR, 0.70; 95% CI, 0.55-0.90), receive an influenza vaccination (OR, 0.63; 95% CI, 0.51-0.77), or have a witnessed will or trust (OR, 0.70; 95% CI, 0.54-0.90) within 12 months of diagnosis. Conclusions and Relevance: In this cohort study of PWPD, underreporting of dementia diagnosis far exceeded that of other conditions and was associated with reduced postdiagnosis care engagement, underscoring the need to improve diagnostic disclosure to realize the benefits of early detection.

Key findings

Among 6158 person-waves with a claims-based dementia diagnosis from 3278 PWPD (3134 [50.9%] aged 65-84 years; 4282 [69.5%] female; 1176 [19.1%] non-Hispanic Black, 617 [10.0%] Hispanic, and 4256 [69.1%] non-Hispanic White), the adjusted proportion not reporting their diagnosis was 42% (95% CI, 40%-43%) among all respondents and 67% (95% CI, 64%-69%) among self-respondents.
This underreporting far exceeded that of other diagnosed conditions (overall mean, 31%; arthritis: 17%; 95% CI, 15%-18%; hypertension: 23%; 95% CI, 21%-24%; diabetes: 39%; 95% CI, 37%-41%; depression: 46%; 95% CI, 43%-48%).
Dementia underreporting was highest before HRS-defined onset (82%; 95% CI, 76%-87%) and remained high after onset.
Patient and care delivery factors were associated with underreporting, such as living alone (OR, 1.65; 95% CI, 1.27-2.13) and Medicare Advantage enrollment (OR, 0.68; 95% CI, 0.52-0.89).
Patients who underreported were less likely to have a postdiagnosis problem-based visit (OR, 0.70; 95% CI, 0.55-0.90), receive an influenza vaccination (OR, 0.63; 95% CI, 0.51-0.77), or have a witnessed will or trust (OR, 0.70; 95% CI, 0.54-0.90) within 12 months of diagnosis.

Why it matters

Among people with a claims-based dementia diagnosis, 42% did not report their diagnosis, far more than for other conditions, and underreporting was linked to less postdiagnosis care engagement such as problem-based visits and influenza vaccination. This concerns diagnosis awareness and care follow-through, not treating, curing or preventing the disease.

Study details

Study designcohort study
Effect size50.9%; 69.5%; 19.1%
Evidence strengthModerate

How this study scored 47/100

Published in a leading specialty journal, and it is a cohort study following people over time. Scored zero for sample size, studied in people and randomised / blinded because the record does not state it. We have no data on senior author's track record, so that was left out: it earned 45 of the 96 points we could judge it on, which is 47 out of 100.

Component	Points	Why
Journal tier	9 / 10	Tier 2 — leading specialty journal (JAMA Network Open)
Journal's citation record	2 / 4	JAMA Network Open: journal h-index 235 (OpenAlex, 2026-10-29)
Study design	7 / 12	A cohort study following people over time
Strength of evidence	3 / 5	Rated “moderate” in our summary
Peer-review validation	10 / 10	Peer-reviewed. Published as an article in a named peer-reviewed journal.
How recent	5 / 5	2026 — within 1 year(s) of the newest study here
Sample size	0 / 4	Participant count not stated — scores zero (not stated in the record — scored 0)
Effect reported	2 / 3	Effect reported as a number, without an interval or test
Studied in people	0 / 3	Not stated whether this was studied in people — scores zero (not stated in the record — scored 0)
Randomised / blinded	0 / 2	No randomisation or blinding stated — scores zero (not stated in the record — scored 0)
Times cited	0 / 7	Cited 0 times (OpenAlex, 2026-10-10)
Citations per year	0 / 5	0.0 citations a year over 2 year(s) since 2026
Impact for its field and year	0 / 6	Cited 0.0× the average for papers of its field and year (OpenAlex FWCI)
Cited by studies here	0 / 6	No other study in this library cites it
Still being cited	0 / 4	Cited 0 times in 2024–2026 (2026 still in progress; OpenAlex)
Senior author's track record	— / 4	OpenAlex's profile for last-listed author Xi Chen holds only 2 work(s), too few to judge a track record — left out of this score
Institution's track record	2 / 3	Yale University: institution h-index 1,927 (OpenAlex)
Multi-centre collaboration	1 / 3	OpenAlex lists 2 institution(s) in 1 country
Indexed in PubMed	2 / 2	Indexed in PubMed (PMID 42646835)
Free to read	2 / 2	Free to read
Points	45 / 96	Scored on 19 of 20 parts. We have no data for the rest, so they are left out: 45 of the 96 points we could judge it on is 47 out of 100.
Total	47 / 100	—

What each of these 20 components measures, and what this score is not →

Read the original

Full text: free to read — OpenAlex lists this copy as free to read: the link above (checked 6 Feb 1020).

Cite this study APA, Vancouver, BibTeX · download .bib or .ris

Built from the record alzhub holds for this paper, not looked up. Volume, issue and page numbers are not held in the record. Check the citation against the original before you use it.

APA 7th

Qian, Y., Gavulic, K. A., & Chen, X. (2026). Dementia Diagnosis Underreporting and Care Engagement and Planning Among Older Adults. JAMA Network Open. https://doi.org/10.1001/jamanetworkopen.2026.31167

Vancouver

Qian Y, Gavulic KA, Chen X. Dementia Diagnosis Underreporting and Care Engagement and Planning Among Older Adults. JAMA Network Open. 2026. doi:10.1001/jamanetworkopen.2026.31167. PMID: 42646835.

BibTeX

@article{qian2026-42646835,
  author  = {Qian, Yuting and Gavulic, Kyle A. and Chen, Xi},
  title   = {{Dementia Diagnosis Underreporting and Care Engagement and Planning Among Older Adults}},
  journal = {JAMA Network Open},
  year    = {2026},
  doi     = {10.1001/jamanetworkopen.2026.31167},
  pmid    = {42646835},
  url     = {https://doi.org/10.1001/jamanetworkopen.2026.31167}
}

Studies this one cites

Referenced by this study and also in the alzhub library, so you can read them here.

Related studies in Health systems and care delivery

Also tagged “prevalence”

1,224 studies in the library carry the topic tag “prevalence”; these are this study's neighbours in a fixed, alphabetical-by-hash tour of them, not the closest in content. All 1,224 tagged studies.

Similar studies

More on Health systems and care delivery

See all studies in Health systems and care delivery →