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Newest in this topic

  1. Is there a role for artificial intelligence in end-of-life care for persons with dementia? Perspectives of and recommendations by caregivers and hospice staff 2026-09-17
  2. Online Peer Support Use Among Informal Caregivers of People Living With Alzheimer Disease or Related Dementias: National Cross-Sectional Web-Based Survey 2026-09-07
  3. Interconnected Challenges in Dementia Caregiving: A Co-occurrence Network Analysis of Burden, Unmet Needs, and System Failures Among Caregivers 2026-08-17

Studies

1,013 studies carry this tag; 1,012 of them have a date.

Date range

1986 to 2026

Top journals

  • Journal of the American Geriatrics Society 63
  • The Gerontologist 48
  • Alzheimer s & Dementia 28
  • International psychogeriatrics 28
  • Journal of the American Medical Directors Association 26

339 journals in all.

Newest first, then by address. Each study has a usefulness score out of 100 (rubric version 4.0); tap a score to see what makes it up. Tags were assigned automatically from each study's title and summary. The same studies as a filter in the library.

  1. Tailored activities to manage neuropsychiatric behaviors in persons with dementia and reduce caregiver burden: a randomized pilot study

    ✓ Peer-reviewed alzhub usefulness score 56 out of 100. The American journal of geriatric psychiatry : official journal of the American Association for Geriatric Psychiatry 2008-03-01 Caregiving

    Tailoring activities to the capabilities of dementia patients and training families in activity use resulted in clinically relevant benefits for patients and caregivers.

  2. Patients dying with dementia: experience at the end of life and impact of hospice care

    ✓ Peer-reviewed alzhub usefulness score 50 out of 100. Journal of pain and symptom management 2008-02-08 End-of-life care

    To evaluate the impact hospice enrollment has on the terminal care of patients with dementia and describe the symptom burden these patients experience, caregivers of dementia decedents were assessed in a mortality follow-back survey.

  3. A European consensus on outcome measures for psychosocial intervention research in dementia care

    ✓ Peer-reviewed alzhub usefulness score 60 out of 100. Aging & mental health 2008-01-01 Caregiving

    Psychosocial intervention makes a vital contribution to dementia care.

  4. Preserving health of Alzheimer caregivers: impact of a spouse caregiver intervention

    ✓ Peer-reviewed alzhub usefulness score 64 out of 100. The American journal of geriatric psychiatry : official journal of the American Association for Geriatric Psychiatry 2007-09-01 Treatments

    Counseling and support preserved SRH in vulnerable caregivers.

  5. Prediction of 6-month mortality in nursing home residents with advanced dementia: validity of a risk score

    ✓ Peer-reviewed alzhub usefulness score 56 out of 100. Journal of the American Medical Directors Association 2007-08-13 End-of-life care

    The original mortality risk score predicted 6-month mortality with reasonable accuracy in 2 validation cohorts of nursing home residents with advanced dementia.

  6. Hospitalization of Nursing Home Residents With Cognitive Impairments: The Influence of Organizational Features and State Policies

    ✓ Peer-reviewed alzhub usefulness score 40 out of 100. The Gerontologist 2007-08-01 Risk factors

    Of 359,474 cognitively impaired residents, 49% had a diagnosis of dementia.

  7. The protocols for the 10/66 dementia research group population-based research programme

    ✓ Peer-reviewed alzhub usefulness score 69 out of 100. BMC public health 2007-07-20 Caregiving

    The 10/66 DRG baseline population-based studies are nearly complete.

  8. Forget me not: palliative care for people with dementia

    ✓ Peer-reviewed alzhub usefulness score 36 out of 100. Postgraduate medical journal 2007-06-01 End-of-life care

    Dementia is a progressive life limiting condition with increasing prevalence and complex needs.

  9. Hospice care for patients with dementia

    ✓ Peer-reviewed alzhub usefulness score 50 out of 100. Journal of pain and symptom management 2007-05-23 End-of-life care

    Dementia is a leading cause of death in the USA.

  10. Emotional impact of dementia diagnosis: exploring persons with dementia and caregivers' perspectives

    ✓ Peer-reviewed alzhub usefulness score 42 out of 100. Aging & mental health 2007-05-01 Caregiving

    This paper examined the emotional impact of diagnosis disclosure on recently diagnosed people with dementia.

  11. Caring for a relative with dementia: family caregiver burden

    ✓ Peer-reviewed alzhub usefulness score 51 out of 100. Journal of advanced nursing 2007-04-17 Caregiving

    The results showed that 68.02% of caregivers were highly burdened and 65% exhibited depressive symptoms.

  12. Assessment of quality of life as outcome in dementia and MCI intervention trials: a systematic review

    ✓ Peer-reviewed alzhub usefulness score 67 out of 100. Alzheimer disease and associated disorders 2007-04-01 End-of-life care

    We conducted a systematic review of the use of quality of life (QoL) measures as outcome in pharmacological and nonpharmacologic intervention trials in patients with Mild Cognitive Impairment or dementia, and their proxies.

  13. The 'natural' endpoint of dementia: death from cachexia or dehydration following palliative care?

    ✓ Peer-reviewed alzhub usefulness score 43 out of 100. International journal of geriatric psychiatry 2007-04-01 End-of-life care

    Patients who survive to the final phase of dementia are more likely to die from cachexia or dehydration than those who die before.

  14. Using video images of dementia in advance care planning

    ✓ Peer-reviewed alzhub usefulness score 48 out of 100. Archives of internal medicine 2007-04-01 End-of-life care

    Watching the video significantly changed preferences for care, transcending apparent differences in preferences associated with race/ethnicity and educational level.

  15. Would we rather lose our life than lose our self? Lessons from the Dutch debate on euthanasia for patients with dementia

    ✓ Peer-reviewed alzhub usefulness score 36 out of 100. The American journal of bioethics : AJOB 2007-04-01 End-of-life care

    This article reviews the Dutch societal debate on euthanasia/assisted suicide in dementia cases, specifically Alzheimer's disease.

  16. Correlates of physical health of informal caregivers: a meta-analysis

    ✓ Peer-reviewed alzhub usefulness score 64 out of 100. The journals of gerontology. Series B, Psychological sciences and social sciences 2007-03-01 Caregiving

    Effects of caregiving on physical health have received less theoretical and empirical attention than effects on psychological health.

  17. Caregiver burden associated with behavioral and psychological symptoms of dementia in elderly people in the local community

    ✓ Peer-reviewed alzhub usefulness score 46 out of 100. Dementia and geriatric cognitive disorders 2007-02-09 Caregiving

    The burden associated with BPSD is different for each symptom and does not always depend on frequency and severity of BPSD.

  18. Sleep disturbances in caregivers of persons with dementia: contributing factors and treatment implications

    ✓ Peer-reviewed alzhub usefulness score 46 out of 100. Sleep medicine reviews 2007-02-06 Caregiving

    Estimates suggest that there are more than 10 million adult caregivers of persons with dementia, two-thirds of who experience some form of sleep disturbance during the course of their caregiving career.

  19. Three methods of assessing values for advance care planning: comparing persons with and without dementia

    ✓ Peer-reviewed alzhub usefulness score 36 out of 100. Journal of aging and health 2007-02-01 End-of-life care

    Advance care planning ideally includes communication about values between patients, family members, and care providers.

  20. Nurses' perceptions around providing palliative care for long-term care residents with dementia

    ✓ Peer-reviewed alzhub usefulness score 38 out of 100. Journal of palliative care 2007-01-01 End-of-life care

    Providing palliative care for residents with dementia in long-term care (LTC) settings is problematic due to their declining verbal abilities and related challenges.

  21. Development of a new measure of health-related quality of life for people with dementia: DEMQOL

    ✓ Peer-reviewed alzhub usefulness score 46 out of 100. Psychological medicine 2006-12-19 Caregiving

    DEMQOL and DEMQOL-Proxy show psychometric properties that are comparable with the best available dementia-specific measures of HRQL.

  22. Systematic review of the effect of psychological interventions on family caregivers of people with dementia

    ✓ Peer-reviewed alzhub usefulness score 62 out of 100. Journal of affective disorders 2006-12-14 Caregiving

    We found excellent evidence for the efficacy of six or more sessions of individual behavioral management therapy centered on the care recipient's behavior in alleviating caregiver symptoms both immediately and for up to 32 months.

  23. Enhancing the Quality of Life of Dementia Caregivers From Different Ethnic or Racial Groups: A Randomized, Controlled Trial

    ✓ Peer-reviewed alzhub usefulness score 71 out of 100. Annals of Internal Medicine 2006-11-21 Caregiving

    This landmark NIH-funded trial (REACH II) tested a structured, multi-part support program for 642 Hispanic, White, and Black family caregivers of people with Alzheimer's or related dementias across 5 U.S. cities.

  24. Community based occupational therapy for patients with dementia and their care givers: randomised controlled trial

    ✓ Peer-reviewed alzhub usefulness score 76 out of 100. BMJ (Clinical research ed.) 2006-11-17 Caregiving

    Occupational therapy improved patients' daily functioning and reduced the burden on the care giver, despite the patients' limited learning ability.

  25. Improving Caregiver Well-Being Delays Nursing Home Placement of Patients With Alzheimer Disease

    ✓ Peer-reviewed alzhub usefulness score 73 out of 100. Neurology 2006-11-14 Caregiving

    This randomized trial of 406 spouse caregivers of people with Alzheimer's tested whether counseling and support (six counseling sessions, mandatory support groups, and on-call phone counseling) could delay nursing home placement.

  26. Dementia care: mental health effects, intervention strategies, and clinical implications

    ✓ Peer-reviewed alzhub usefulness score 48 out of 100. The Lancet. Neurology 2006-11-01 Caregiving

    Caring for elderly people with dementia is associated with well-documented increases in burden, distress, and decrements in mental health and wellbeing.

  27. Enhancing the quality of life of dementia caregivers from different ethnic or racial groups: a randomized, controlled trial

    ✓ Peer-reviewed alzhub usefulness score 61 out of 100. Annals of internal medicine 2006-11-01 Treatments

    A structured multicomponent intervention adapted to individual risk profiles can increase the quality of life of ethnically diverse dementia caregivers.

  28. Improving caregiver well-being delays nursing home placement of patients with Alzheimer disease

    ✓ Peer-reviewed alzhub usefulness score 73 out of 100. Neurology 2006-11-01 Treatments

    Greater access to effective programs of counseling and support could yield considerable benefits for caregivers, patients with Alzheimer disease, and society.

  29. The effect of a disease management intervention on quality and outcomes of dementia care: a randomized, controlled trial

    ✓ Peer-reviewed alzhub usefulness score 68 out of 100. Annals of internal medicine 2006-11-01 Caregiving

    A dementia guideline-based disease management program led to substantial improvements in quality of care for patients with dementia.

  30. Satisfaction with end-of-life care for nursing home residents with advanced dementia

    ✓ Peer-reviewed alzhub usefulness score 43 out of 100. Journal of the American Geriatrics Society 2006-10-01 End-of-life care

    Better communication, greater resident comfort, no tube feeding, and care in a specialized dementia unit are modifiable factors that may improve satisfaction with care in advanced dementia.

  31. A systematic review of the prevalence and covariates of anxiety in caregivers of people with dementia

    ✓ Peer-reviewed alzhub usefulness score 59 out of 100. International psychogeriatrics 2006-09-28 Caregiving

    Coping style may be more associated with anxiety than depression while other covariates (burden and poor physical health) are similar to those for caregiver depression.

  32. Caregiver burden, health-related quality of life and coping in dementia caregivers: a comparison of frontotemporal dementia and Alzheimer's disease

    ✓ Peer-reviewed alzhub usefulness score 42 out of 100. Dementia and geriatric cognitive disorders 2006-09-11 Caregiving

    Frontotemporal dementia (FTD) is the second most prevalent dementia after Alzheimer's disease (AD).

  33. Their last 6 months: suffering and survival of end-stage dementia patients

    ✓ Peer-reviewed alzhub usefulness score 60 out of 100. Age and ageing 2006-08-22 End-of-life care

    We included 134 consecutive bedridden end-stage dementia patients admitted during a 36-month period, and surviving in the ward for <6 months.

  34. Predictors of complicated grief among dementia caregivers: a prospective study of bereavement

    ✓ Peer-reviewed alzhub usefulness score 48 out of 100. The American journal of geriatric psychiatry : official journal of the American Association for Geriatric Psychiatry 2006-08-01 Caregiving

    This study identifies predictors of complicated grief for which interventions could be developed to not only ease caregiver distress, but also serve as preventive interventions for bereavement.

  35. Rural-urban differences in medical care for nursing home residents with severe dementia at the end of life

    ✓ Peer-reviewed alzhub usefulness score 62 out of 100. Journal of the American Geriatrics Society 2006-08-01 End-of-life care

    Rural residence was also associated with lower risk of more than 10 days of hospitalization and ICU admission.

  36. Dementia as a predictor of mortality in dialysis patients

    ✓ Peer-reviewed alzhub usefulness score 52 out of 100. Clinical journal of the American Society of Nephrology : CJASN 2006-07-26 End-of-life care

    The life expectancy of patients who have dementia and are initiated on dialysis in the United States has not been described in the medical literature.

  37. Advanced dementia research in the nursing home: the CASCADE study

    ✓ Peer-reviewed alzhub usefulness score 52 out of 100. Alzheimer disease and associated disorders 2006-07-01 End-of-life care

    Despite the growing number of persons with advanced dementia, and the need to improve their end-of-life care, few studies have addressed this important topic.

  38. The validity and reliability of scales for the evaluation of end-of-life care in advanced dementia

    ✓ Peer-reviewed alzhub usefulness score 38 out of 100. Alzheimer disease and associated disorders 2006-07-01 End-of-life care

    The lack of valid and reliable instruments designed to measure the experiences of older persons with advanced dementia and those of their health care proxies has limited palliative care research for this condition.

  39. Preparedness for the death of a loved one and mental health in bereaved caregivers of patients with dementia: findings from the REACH study

    ✓ Peer-reviewed alzhub usefulness score 44 out of 100. Journal of palliative medicine 2006-06-01 Disparities

    Despite providing high-intensity care, often for years, many bereaved caregivers perceived themselves as unprepared for the death.

  40. Helping caregivers of persons with dementia: which interventions work and how large are their effects?

    ✓ Peer-reviewed alzhub usefulness score 64 out of 100. International psychogeriatrics 2006-05-11 Caregiving

    Because most interventions have domain-specific outcomes, clinicians must tailor interventions according to the specific needs of the individual caregivers.

  41. Impact of behavioural problems on spousal caregivers: a comparison between Alzheimer's disease and frontotemporal dementia

    ✓ Peer-reviewed alzhub usefulness score 45 out of 100. Dementia and geriatric cognitive disorders 2006-05-04 Caregiving

    Caregivers of FTD patients were overall more distressed by the behaviour of their partners than were the caregivers of AD patients.

  42. Effectiveness of collaborative care for older adults with Alzheimer disease in primary care: a randomized controlled trial

    ✓ Peer-reviewed alzhub usefulness score 66 out of 100. JAMA 2006-05-01 Treatments

    Collaborative care for the treatment of Alzheimer disease resulted in significant improvement in the quality of care and in behavioral and psychological symptoms of dementia among primary care patients and their caregivers.

  43. Neuropsychiatric symptoms as a predictor of caregiver burden in Alzheimer's disease

    ✓ Peer-reviewed alzhub usefulness score 45 out of 100. Neuropsychiatric disease and treatment 2006-03-01 Caregiving

    No correlation with neuropsychiatric symptoms such as apathy and depression was found.

  44. Caregivers' reasons for nursing home placement: clues for improving discussions with families prior to the transition

    ✓ Peer-reviewed alzhub usefulness score 54 out of 100. The Gerontologist 2006-02-01 Caregiving

    Caregivers' reasons for placement included (a) the need for more skilled care (65%); (b) the caregivers' health (49%); (c) the patients' dementia-related behaviors (46%); and (d) the need for more assistance (23%).

  45. Occurrence and treatment of suspected pneumonia in long-term care residents dying with advanced dementia

    ✓ Peer-reviewed alzhub usefulness score 55 out of 100. Journal of the American Geriatrics Society 2006-02-01 End-of-life care

    Pneumonia is a common terminal event in advanced dementia for which many patients receive parenteral antibiotics.

  46. Quality of life in dementia: more than just cognition. An analysis of associations with quality of life in dementia

    ✓ Peer-reviewed alzhub usefulness score 50 out of 100. Journal of neurology, neurosurgery, and psychiatry 2006-02-01 Caregiving

    These data suggest that quality of life in dementia is complex, and that simple proxy substitutions of discrete measures such as cognition or function are likely to miss important factors.

  47. Family decision-making for nursing home residents with dementia: rural-urban differences

    ✓ Peer-reviewed alzhub usefulness score 36 out of 100. The Journal of rural health : official journal of the American Rural Health Association and the National Rural Health Care Association 2006-01-01 End-of-life care

    Most rural focus group participants voiced unqualified acceptance of death and placed few conditions on death, beyond their hope that it would be quick and peaceful.

  48. Unmet care needs and key outcomes in dementia

    ✓ Peer-reviewed alzhub usefulness score 54 out of 100. Journal of the American Geriatrics Society 2005-12-01 Caregiving

    Unmet need may be useful in identifying dementia care recipients at risk for nursing home placement and death.

  49. Worksite-based internet multimedia program for family caregivers of persons with dementia

    ✓ Peer-reviewed alzhub usefulness score 60 out of 100. The Gerontologist 2005-12-01 Caregiving

    Those who viewed Caregiver's Friend: Dealing with Dementia 30 days postexposure demonstrated significant improvements in depression, anxiety, level and frequency of stress, caregiver strain, self-efficacy, and intention to seek help, as well as perceptions of positive aspects of caregiving.

  50. Systematic review of psychological approaches to the management of neuropsychiatric symptoms of dementia

    ✓ Peer-reviewed alzhub usefulness score 65 out of 100. The American journal of psychiatry 2005-11-01 Caregiving

    Only behavior management therapies, specific types of caregiver and residential care staff education, and possibly cognitive stimulation appear to have lasting effectiveness for the management of dementia-associated neuropsychiatric symptoms.

From across this tag

9 of the 1,002 studies in this tag, picked by a fixed rule (a hash of each study's address), not by score or date; each page of this list shows a different 9. The same 9 appear here every time.

All topic tags with their study counts