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The experience of dying: an ethnographic nursing home study
Kayser-Jones J.. The Gerontologist, 2002-10-01
Topic: Risk, prevention and care in population studies
Purpose This article reviews the literature on "The Experience of Dying" and presents data from a larger, ongoing study of an ethnography of dying in nursing homes. The purpose of the ethnographic study was to investigate the process of providing end-of-life care to residents who were dying in nursing homes. Design and methods Participant observation, in-depth interviews, and event analysis were used to obtain data in three nursing facilities. Results The review of the literature disclosed that research on the experience of dying is limited; most of the studies have been conducted in acute care hospitals among people who were dying of cancer. The ethnographic study found that lack of attention to cultural needs, cognitive status, inadequate staffing, and inappropriate and inadequate communication between health care providers and nursing home residents and their families were the predominant factors that influenced the experience of dying. Implications Future research is needed on: The experience of dying for patients with dementia, for people in a comatose state, and for non-English speaking patients; symptom management; health care provider/patient-family interaction; the burden of caregiving for families; and the consequences of the constraints within our health care system for people who are dying in various settings.
Cite this study APA, Vancouver, BibTeX · download .bib or .ris
APA 7th
Kayser-Jones, J. (2002). The experience of dying: an ethnographic nursing home study. The Gerontologist. https://doi.org/10.1093/geront/42.suppl_3.11
Vancouver
Kayser-Jones J. The experience of dying: an ethnographic nursing home study. The Gerontologist. 2002. doi:10.1093/geront/42.suppl_3.11. PMID: 12415128.
BibTeX
@article{kayserjones2002-12415128,
author = {Kayser-Jones, J.},
title = {{The experience of dying: an ethnographic nursing home study}},
journal = {The Gerontologist},
year = {2002},
doi = {10.1093/geront/42.suppl_3.11},
pmid = {12415128},
url = {https://doi.org/10.1093/geront/42.suppl_3.11}
}
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Key findings
- Results The review of the literature disclosed that research on the experience of dying is limited; most of the studies have been conducted in acute care hospitals among people who were dying of cancer.
Study details
- Evidence strengthLow
How this study scored 38/100
Published in a peer-reviewed journal. Scored zero for study design, sample size, effect reported, studied in people and randomised / blinded because the record does not state it. We have no data on journal's citation record, times cited, citations per year, impact for its field and year, cited by studies here, still being cited, senior author's track record and institution's track record, so those were left out: it earned 23 of the 61 points we could judge it on, which is 38 out of 100.
| Component | Points | Why |
|---|---|---|
| Journal tier | 7 / 10 | Tier 3 — peer-reviewed journal (The Gerontologist) |
| Journal's citation record | — / 4 | No journal record from OpenAlex — left out of this score |
| Study design | 0 / 12 | No study design recorded — scores zero, not guessed (not stated in the record — scored 0) |
| Strength of evidence | 1 / 5 | Rated “low” in our summary |
| Peer-review validation | 10 / 10 | Peer-reviewed. Published as an article in a named peer-reviewed journal. |
| How recent | 1 / 5 | 2002 — older than 20 years, still counted |
| Sample size | 0 / 4 | Participant count not stated — scores zero (not stated in the record — scored 0) |
| Effect reported | 0 / 3 | No effect size reported — scores zero (not stated in the record — scored 0) |
| Studied in people | 0 / 3 | Not stated whether this was studied in people — scores zero (not stated in the record — scored 0) |
| Randomised / blinded | 0 / 2 | No randomisation or blinding stated — scores zero (not stated in the record — scored 0) |
| Times cited | — / 7 | No citation count (not found in OpenAlex) — left out of this score |
| Citations per year | — / 5 | No citation count or no year — left out of this score |
| Impact for its field and year | — / 6 | No field-weighted citation impact (OpenAlex has none yet) — left out of this score |
| Cited by studies here | — / 6 | Not yet checked against this library's citation graph — left out of this score |
| Still being cited | — / 4 | No yearly citation counts — left out of this score |
| Senior author's track record | — / 4 | Senior author's record not available — left out of this score |
| Institution's track record | — / 3 | No institution listed in OpenAlex — left out of this score |
| Multi-centre collaboration | 2 / 3 | PubMed indexes it as a multicentre study |
| Indexed in PubMed | 2 / 2 | Indexed in PubMed (PMID 12415128) |
| Free to read | 0 / 2 | Behind a paywall — scores zero |
| Points | 23 / 61 | Scored on 12 of 20 parts. We have no data for the rest, so they are left out: 23 of the 61 points we could judge it on is 38 out of 100. |
| Total | 38 / 100 | — |
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