Home › Research › Risk factors
Characterising Informal Care in Older Individuals Receiving Long‐Term Home Care Support: A National Epidemiological Study
Tesfahun Chanie Eshetie, Alana R. Cuthbert, Janet Kathleen Sluggett, S. Yu, Carolyn Dawkins, Marjorie Schulze, Gillian Elizabeth Caughey, Maria C S Inacio. Australasian Journal on Ageing, 2026-01-22
Topic: Risk, prevention and care in population studies
Overall, 233,567 long-term home care recipients with known carer status were studied. The proportion of care recipients with an informal carer decreased from 86% in 2012 to 78% in 2019 (adjusted OR: 0.95, 95% CI 0.95-0.95). The decrease in informal care reported over time was more pronounced in females (OR: 0.96, 95% CI 0.95-0.97) than in males and in individuals without dementia (OR: 0.95, 95% CI 0.94-0.95). Visualisations of informal care prevalence showed substantial geographical (range: 60%-98%) variation nationally. There was a decline in reported informal care availability for older Australians entering long-term home care between 2012 and 2019, with substantial national variation. Lower informal carer availability likely translates in greater formal care needs.
Cite this study APA, Vancouver, BibTeX · download .bib or .ris
APA 7th
Eshetie, T. C., Cuthbert, A. R., Sluggett, J. K., Yu, S., Dawkins, C., Schulze, M., et al. (2026). Characterising Informal Care in Older Individuals Receiving Long‐Term Home Care Support: A National Epidemiological Study. Australasian Journal on Ageing. https://doi.org/10.1111/ajag.70128
Vancouver
Eshetie TC, Cuthbert AR, Sluggett JK, Yu S, Dawkins C, Schulze M, et al. Characterising Informal Care in Older Individuals Receiving Long‐Term Home Care Support: A National Epidemiological Study. Australasian Journal on Ageing. 2026. doi:10.1111/ajag.70128. PMID: 41567104.
BibTeX
@article{eshetie2026-41567104,
author = {Eshetie, Tesfahun Chanie and Cuthbert, Alana R. and Sluggett, Janet Kathleen and Yu, S. and Dawkins, Carolyn and Schulze, Marjorie and Caughey, Gillian Elizabeth and Inacio, Maria C S},
title = {{Characterising Informal Care in Older Individuals Receiving Long‐Term Home Care Support: A National Epidemiological Study}},
journal = {Australasian Journal on Ageing},
year = {2026},
doi = {10.1111/ajag.70128},
pmid = {41567104},
url = {https://doi.org/10.1111/ajag.70128}
}
Built from the record alzhub holds for this paper, not looked up. Volume, issue and page numbers are not held in the record. The record names 8 authors; APA and Vancouver show the first six, BibTeX and the downloads carry all of them. Check the citation against the original before you use it.
Key findings
- Overall, 233,567 long-term home care recipients with known carer status were studied.
- The proportion of care recipients with an informal carer decreased from 86% in 2012 to 78% in 2019 (adjusted OR: 0.95, 95% CI 0.95-0.95).
- The decrease in informal care reported over time was more pronounced in females (OR: 0.96, 95% CI 0.95-0.97) than in males and in individuals without dementia (OR: 0.95, 95% CI 0.94-0.95).
- Visualisations of informal care prevalence showed substantial geographical (range: 60%-98%) variation nationally.
- There was a decline in reported informal care availability for older Australians entering long-term home care between 2012 and 2019, with substantial national variation.
Why it matters
Among 233,567 older Australians receiving long-term home care, the share with an informal carer fell from 86% in 2012 to 78% in 2019, with large geographic variation. Lower availability of informal carers likely means greater need for formal care.
New to this subject? Start with our plain-English guide: Risk factors, ranked →
Study details
- Study designcross-sectional
- Effect sizeOR: 0.95; OR: 0.96
- Evidence strengthModerate
How this study scored 49/100
Published in a peer-reviewed journal, and it is a snapshot of people at one point in time. Scored zero for sample size, studied in people and randomised / blinded because the record does not state it. We have no data on journal's citation record, so that was left out: it earned 47 of the 96 points we could judge it on, which is 49 out of 100.
| Component | Points | Why |
|---|---|---|
| Journal tier | 7 / 10 | Tier 3 — peer-reviewed journal (Australasian Journal on Ageing) |
| Journal's citation record | — / 4 | No journal record from OpenAlex — left out of this score |
| Study design | 4 / 12 | A snapshot of people at one point in time |
| Strength of evidence | 3 / 5 | Rated “moderate” in our summary |
| Peer-review validation | 10 / 10 | Peer-reviewed. Published as an article in a named peer-reviewed journal. |
| How recent | 5 / 5 | 2026 — within 1 year(s) of the newest study here |
| Sample size | 0 / 4 | Participant count not stated — scores zero (not stated in the record — scored 0) |
| Effect reported | 3 / 3 | Effect reported with a statistic (interval, p-value, ratio or similar) |
| Studied in people | 0 / 3 | Not stated whether this was studied in people — scores zero (not stated in the record — scored 0) |
| Randomised / blinded | 0 / 2 | No randomisation or blinding stated — scores zero (not stated in the record — scored 0) |
| Times cited | 1 / 7 | Cited 1 times (OpenAlex, 2026-10-10) |
| Citations per year | 0 / 5 | 0.5 citations a year over 2 year(s) since 2026 |
| Impact for its field and year | 4 / 6 | Cited 8.6× the average for papers of its field and year (OpenAlex FWCI) |
| Cited by studies here | 0 / 6 | No other study in this library cites it |
| Still being cited | 0 / 4 | Cited 1 times in 2024–2026 (2026 still in progress; OpenAlex) |
| Senior author's track record | 3 / 4 | Last-listed author Maria C S Inacio: h-index 58 (OpenAlex, whole career) |
| Institution's track record | 1 / 3 | The University of Adelaide: institution h-index 918 (OpenAlex) |
| Multi-centre collaboration | 2 / 3 | OpenAlex lists 9 institution(s) in 1 country |
| Indexed in PubMed | 2 / 2 | Indexed in PubMed (PMID 41567104) |
| Free to read | 2 / 2 | Free to read |
| Points | 47 / 96 | Scored on 19 of 20 parts. We have no data for the rest, so they are left out: 47 of the 96 points we could judge it on is 49 out of 100. |
| Total | 49 / 100 | — |
What each of these 20 components measures, and what this score is not →
Read the original
- DOI: 10.1111/ajag.70128
- PubMed: 41567104
- Original source →
- Free full text: Australasian Journal on Ageing →
Full text: free to read — OpenAlex lists this copy as free to read: the link above (checked 6 Feb 1020).
Related studies in Risk factors
Also tagged “delirium”
858 studies in the library carry the topic tag “delirium”; these are this study's neighbours in a fixed, alphabetical-by-hash tour of them, not the closest in content. All 858 tagged studies.