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Breaking the silence: understanding the unique burden on informal Black male dementia caregivers
Aaron P. Henry, Lilcelia A. Williams, Alexander DeLong, Amani M. El Amin Ali, Robert W. Turner II. Alzheimer s & Dementia, 2025-05-01
Topic: Risk, prevention and care in population studies
As the rates of Alzheimer's disease (AD) and AD and related dementias (ADRD) in the United States steadily rise, so too does the demand for informal caregiving. Research on AD/ADRD caregiving highlights the associated risk of adverse health outcomes and lower quality of life; however, there is a lack of discussion about Black male dementia caregivers, who already face unique health challenges. Through an intersectionality lens, this perspective will raise awareness of the multifaceted burden of Black male informal AD/ADRD caregiving, along with strategies to better support this underserved community. HIGHLIGHTS: The non-Hispanic Black population in the United States is disproportionately affected by Alzheimer's disease (AD) and AD and related dementias (ADRD), which will increase the demand for caregiving. Most dementia informal caregiving research focuses on non-Hispanic White females, with little emphasis on Black men, who represent an at-risk population. By adopting an intersectional approach, clinicians, researchers, and policymakers can better understand and improve the health of informal Black male AD/ADRD caregivers. The increasing prevalence of AD and ADRD in the US Black community can create an added strain on Black male informal caregivers. Examining the unique AD/ADRD caregiving needs of Black men can inform future research to improve the health of similar at-risk communities.
Cite this study APA, Vancouver, BibTeX · download .bib or .ris
APA 7th
Henry, A. P., Williams, L. A., DeLong, A., Ali, A. M. E. A., & Turner, R. W., II. (2025). Breaking the silence: understanding the unique burden on informal Black male dementia caregivers. Alzheimer s & Dementia. https://doi.org/10.1002/alz.70264
Vancouver
Henry AP, Williams LA, DeLong A, Ali AMEA, Turner RW II. Breaking the silence: understanding the unique burden on informal Black male dementia caregivers. Alzheimer s & Dementia. 2025. doi:10.1002/alz.70264. PMID: 40369888.
BibTeX
@article{henry2025-40369888,
author = {Henry, Aaron P. and Williams, Lilcelia A. and DeLong, Alexander and Ali, Amani M. El Amin and Turner, II., Robert W.},
title = {{Breaking the silence: understanding the unique burden on informal Black male dementia caregivers}},
journal = {Alzheimer s \& Dementia},
year = {2025},
doi = {10.1002/alz.70264},
pmid = {40369888},
url = {https://doi.org/10.1002/alz.70264}
}
Built from the record alzhub holds for this paper, not looked up. Volume, issue and page numbers are not held in the record. Check the citation against the original before you use it.
Key findings
- HIGHLIGHTS: The non-Hispanic Black population in the United States is disproportionately affected by Alzheimer's disease (AD) and AD and related dementias (ADRD), which will increase the demand for caregiving.
- Most dementia informal caregiving research focuses on non-Hispanic White females, with little emphasis on Black men, who represent an at-risk population.
- By adopting an intersectional approach, clinicians, researchers, and policymakers can better understand and improve the health of informal Black male AD/ADRD caregivers.
- The increasing prevalence of AD and ADRD in the US Black community can create an added strain on Black male informal caregivers.
- Examining the unique AD/ADRD caregiving needs of Black men can inform future research to improve the health of similar at-risk communities.
Why it matters
This perspective highlights the multifaceted burden on informal Black male dementia caregivers and the lack of research focused on them. It calls for better support for this group and does not address treating, curing, or preventing Alzheimer's disease.
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Study details
- Evidence strengthLow
How this study scored 36/100
Published in a peer-reviewed journal. Scored zero for study design, sample size, effect reported, studied in people and randomised / blinded because the record does not state it.
| Component | Points | Why |
|---|---|---|
| Journal tier | 7 / 10 | Tier 3 — peer-reviewed journal (Alzheimer s & Dementia) |
| Journal's citation record | 2 / 4 | Alzheimer s & Dementia: journal h-index 228 (OpenAlex, 2026-10-29) |
| Study design | 0 / 12 | No study design recorded — scores zero, not guessed (not stated in the record — scored 0) |
| Strength of evidence | 1 / 5 | Rated “low” in our summary |
| Peer-review validation | 10 / 10 | Peer-reviewed. Published as an article in a named peer-reviewed journal. |
| How recent | 4 / 5 | 2025 — within 3 year(s) of the newest study here |
| Sample size | 0 / 4 | Participant count not stated — scores zero (not stated in the record — scored 0) |
| Effect reported | 0 / 3 | No effect size reported — scores zero (not stated in the record — scored 0) |
| Studied in people | 0 / 3 | Not stated whether this was studied in people — scores zero (not stated in the record — scored 0) |
| Randomised / blinded | 0 / 2 | No randomisation or blinding stated — scores zero (not stated in the record — scored 0) |
| Times cited | 1 / 7 | Cited 1 times (OpenAlex, 2026-10-10) |
| Citations per year | 0 / 5 | 0.3 citations a year over 3 year(s) since 2025 |
| Impact for its field and year | 1 / 6 | Cited 0.6× the average for papers of its field and year (OpenAlex FWCI) |
| Cited by studies here | 1 / 6 | Cited by 1 other studies in this library |
| Still being cited | 0 / 4 | Cited 1 times in 2024–2026 (2026 still in progress; OpenAlex) |
| Senior author's track record | 2 / 4 | Last-listed author Robert W. Turner II: h-index 31 (OpenAlex, whole career) |
| Institution's track record | 2 / 3 | Duke University: institution h-index 1,541 (OpenAlex) |
| Multi-centre collaboration | 1 / 3 | OpenAlex lists 3 institution(s) in 1 country |
| Indexed in PubMed | 2 / 2 | Indexed in PubMed (PMID 40369888) |
| Free to read | 2 / 2 | Free to read |
| Total | 36 / 100 | — |
What each of these 20 components measures, and what this score is not →
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