How should I approach advance care planning (ACP) and goals of care (GOC) discussions with patients living with dementia? 3 key findings →
Evidence: low
Full summary, score breakdown and related studies → Original source Free full text
Research
27,380 Alzheimer's and dementia studies in plain English, each scored out of 100.
30/100
As dementia progresses to advanced stages, the need for compassionate and person-centred care becomes paramount. 5 key findings →
Evidence: low
Full summary, score breakdown and related studies → Original source Free full text
Six key themes were identified: Inadequate preparation, guidance and access to appropriate resources; Taboo and misunderstanding: talking about death; Dementia as a terminal illness and the role of palliative care; Key time points, critical events and decisions; Planning ahead not in reality; Family issues and dynamics. 5 key findings →
Evidence: low
Full summary, score breakdown and related studies → Original source Free full text
With increasing dementia prevalence and reliance on spousal care partners, understanding how caregiving identity evolves and how resilience is fostered across the care trajectory is crucial. 5 key findings →
Evidence: low
Full summary, score breakdown and related studies → Original source Free full text
The study highlights the significant role FCPs play in DSD care and the urgent need for interventions that address their educational and emotional needs to improve patient and caregiver well-being. [ Research in Gerontological Nursing, 18 (3), 113–123.] 2 key findings →
Evidence: low
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認知症を有する人のためのアドバンス・ケア・プランニング（ACP）では，意思決定能力の揺らぎを前提に，「過去」の意思と「現在」の意向を統合し，非言語的サインも含めて本人の推定意思をくみ取ることが重要である．家族を本人の想いを伝える代弁者として位置づけ，その心理的負担を医療・ケアチームが支える必要がある．また，関係依存性自律を踏まえ，多職種協働で本人中心の対話を継続することが求められる．さらに，想いのかけらを情報通信技術（ICT）等で共有し，ACPを組織的に実施する体制整備が重要である． 1 key finding →
Evidence: low
Full summary, score breakdown and related studies → Original source Free full text
Evidence: low
Full summary, score breakdown and related studies → Original source Full text may need a subscription
Forty studies were included. Key stakeholders included healthcare professionals (HCPs); family members and caregivers; PWD; dyads (PWD and their caregivers); the broader public; policymakers; and researchers. 5 key findings →
Evidence: low
Full summary, score breakdown and related studies → Original source Free full text
In the context of an aging population, China’s elderly care market is experiencing a period of significant transformation. 1 key finding →
Evidence: low
Full summary, score breakdown and related studies → Original source Free full text
There is very little documented evidence on the experiences of healthcare professionals caring for their own family outside of their role. 1 key finding →
Evidence: low
Full summary, score breakdown and related studies → Original source Full text may need a subscription
Patients and their caregivers and families confronting dementia often face heavy burdens from difficult-to-control symptoms, uncertainty about the future, and a high risk of care partner burnout. 5 key findings →
Evidence: low
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This paper examined the prevalence of and risk factors associated with unmet needs for activities of daily living (ADL) for older adults dying with dementia. 2 key findings →
Evidence: low
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1 in 3 older adults die with or from dementia. 5 key findings →
Evidence: low
Full summary, score breakdown and related studies → Original source Free full text
Providing end-of-life care for patients with COPD, dementia, and cancer involves a focus on symptom management, integration of palliative care, and respecting patient preferences, while engaging families in the care process. 1 key finding →
Evidence: low
Full summary, score breakdown and related studies → Original source Free full text
Dementia-specific ACP/AD require a relational, flexible and ethically grounded approach that evolves with the individual’s condition. 5 key findings →
Evidence: low
Full summary, score breakdown and related studies → Original source Free full text
Polypharmacy is an important healthcare issue, especially in elderly patients with dementia. 3 key findings →
Evidence: low
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27/100
Puerto Rico is experiencing a rapidly aging population due to outmigration and other demographic changes. 2 key findings →
Evidence: low
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Empowering family caregivers of patients with ADOD in a personalized DCEP provides durable reductions in patient hospitalizations and medical costs. 3 key findings →
Evidence: low
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Advance care planning aims to allow individuals to discuss their goals and preferences for future medical and nursing care with family members and medical personnel in advance when they still have decision-making ability, so that individuals can receive medical care that meets their preferences when they lose their decision-making ability. 2 key findings →
Evidence: low
Full summary, score breakdown and related studies → Original source Free full text
Riverside Health has developed a new palliative care pathway to serve as an innovative standard of person-centered care for persons living with dementia (PLWD) and their care partners. 1 key finding →
Evidence: low
Full summary, score breakdown and related studies → Original source Free full text
Dementia is a progressive condition that gradually impairs cognitive function, memory, and daily living skills. 1 key finding →
Evidence: low
Full summary, score breakdown and related studies → Original source Free full text
The project exposes a discrepancy between the manner in which the nursing staff perceive use of restraints in an idealistic situation and in a realistic situation and the greater tendency to use restraints in the realistic situation than in the idealistic situation. 3 key findings →
Evidence: low
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Individuals living alone with dementia are rising rapidly, yet this group remains largely unrecognized in dementia care planning. 5 key findings →
Evidence: low
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26/100
Otępienie to zespół objawów wywołany postępującymi chorobami neurodegeneracyjnymi mózgu, które prowadzą do znacznego pogorszenia funkcji poznawczych, a w końcowym etapie do całkowitej zależności pacjenta od otoczenia. 2 key findings →
Evidence: low
Full summary, score breakdown and related studies → Original source Free full text
In this study, a preliminary reliability assessment on the Chinese version of the EOLD scale was conducted, revealing that the three subscales exhibit strong internal consistency in reliability and structural validity. 2 key findings →
Evidence: low
Full summary, score breakdown and related studies → Original source Free full text
From across this tag
10 of the 1,002 studies in this tag, picked by a fixed rule (a hash of each study's address), not by score or date; each page of this list shows a different 10. The same 10 appear here every time.
- Dementia caregiving: the experiences of Hispanic/Latino caregivers
- Facing the digital divide into a dementia clinic during COVID-19 pandemic: caregiver age matters
- Advance Care Planning in Nursing Home Patients With Dementia: A Qualitative Interview Study Among Family and Professional Caregivers
- Triggered Palliative Care for Late-Stage Dementia: A Pilot Randomized Trial
- Shared decision-making in dementia: A review of patient and family carer involvement
- Pain Assessment and Management in Dementia Care: Qualitative Perspectives of People With Dementia, Their Families, and Healthcare Professionals
- Dementia Family Caregivers’ Involvement and Perceived Challenges in Health Care Interactions: Informing the GUIDE Model
- Predictors of emergency department attendance by people with dementia in their last year of life: Retrospective cohort study using linked clinical and administrative data
- Hospice Improves Care Quality For Older Adults With Dementia In Their Last Month Of Life
- Educating Dutch General Practitioners in Dementia Advance Care Planning: A Cluster Randomized Controlled Trial
Where “Free full text” comes from
Free full text links and the Full text may need a subscription label come from Unpaywall, Europe PMC and OpenAlex records of free copies, checked 10 Oct 2026. A study with neither is unknown, not paywalled. Show only studies that are free to read
How the 0–100 score works — and why some entries are capped
This is alzhub's own score. It is not an official metric, not an impact factor, and no journal, publisher or ranking body endorses it. We built it so that a reader who is not a scientist can tell a landmark trial from a conference abstract without having to already know the difference. Every point comes from one of 20 components, all of them printed on the study itself, so you can disagree with our arithmetic rather than having to trust the total.
- Journal tier up to 10 pts
- Journal's citation record up to 4 pts
- Study design up to 12 pts
- Strength of evidence up to 5 pts
- Peer-review validation up to 10 pts
- How recent up to 5 pts
- Sample size up to 4 pts
- Effect reported up to 3 pts
- Studied in people up to 3 pts
- Randomised / blinded up to 2 pts
- Times cited up to 7 pts
- Citations per year up to 5 pts
- Impact for its field and year up to 6 pts
- Cited by studies here up to 6 pts
- Still being cited up to 4 pts
- Senior author's track record up to 4 pts
- Institution's track record up to 3 pts
- Multi-centre collaboration up to 3 pts
- Indexed in PubMed up to 2 pts
- Free to read up to 2 pts
Journals are placed in ordered tiers, never given a numeric impact factor — we could not verify current impact factors from a source we control, and an invented one would be worse than none. Tier 1 is the top-tier general journals (NEJM, The Lancet, JAMA, Nature, Science, Nature Medicine); tier 2 is the leading specialty journals; tier 3 is every other peer-reviewed journal. A separate part scores how much the journal's own papers are cited, which tells the tier-3 journals apart.
Two rules we don't bend. First, we never fill in a missing value: if a record does not state a sample size or a design, that component scores zero, and if we simply have no data for a part, such as a citation count, that part is left out and the study is scored on the parts we could check. The study card says which. Second, anything that is not a peer-reviewed article is capped at 16/100 and carries a warning chip — so a conference abstract or a company press release can never outrank a peer-reviewed paper, no matter how good it looks.
We rank a rigorous null result — a good trial showing that something does not work — above an early positive finding. Someone deciding whether to buy a supplement is served by that, and the rigour is already counted by the design and journal components.
The score is computed from the published data alone and is reproducible: the same file always yields the same numbers.
See the whole rubric drawn out → — four charts covering all 27,380 studies: how the scores are spread and where the cap bites, which of the 20 components the library is strong and weak on, which subjects rest on stronger evidence, and what kinds of study each subject is actually built from.
What this library is — and isn't
This is a large sample of the Alzheimer's literature, not an exhaustive index of it. It holds 27,380 records, built mostly from automated pulls of Europe PMC (60.6% of the library) and OpenAlex (18.6%), plus smaller pulls from PubMed, Crossref and medRxiv. If a study, a drug, or a finding isn't here, that is not evidence it doesn't exist in the literature — it may simply not have been pulled in yet.
1,032 records (3.8% of the library) are not peer-reviewed — 962 of those are preprints posted before any journal review, and the rest are conference abstracts, regulatory notices and reports. Every study card on this page states its status plainly, and the score above is capped for anything that isn't a peer-reviewed article.
See the full, machine-readable breakdown of this library's coverage →