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Newest in this topic

  1. Is there a role for artificial intelligence in end-of-life care for persons with dementia? Perspectives of and recommendations by caregivers and hospice staff 2026-09-17
  2. Online Peer Support Use Among Informal Caregivers of People Living With Alzheimer Disease or Related Dementias: National Cross-Sectional Web-Based Survey 2026-09-07
  3. Interconnected Challenges in Dementia Caregiving: A Co-occurrence Network Analysis of Burden, Unmet Needs, and System Failures Among Caregivers 2026-08-17

Studies

1,013 studies carry this tag; 1,012 of them have a date.

Date range

1986 to 2026

Top journals

  • Journal of the American Geriatrics Society 63
  • The Gerontologist 48
  • Alzheimer s & Dementia 28
  • International psychogeriatrics 28
  • Journal of the American Medical Directors Association 26

339 journals in all.

Newest first, then by address. Each study has a usefulness score out of 100 (rubric version 4.0); tap a score to see what makes it up. Tags were assigned automatically from each study's title and summary. The same studies as a filter in the library.

  1. Making decisions for people with dementia who lack capacity: qualitative study of family carers in UK

    ✓ Peer-reviewed alzhub usefulness score 52 out of 100. BMJ (Clinical research ed.) 2010-08-18 Caregiving

    The following strategies helped with implementation of decisions: introducing change slowly; organising legal changes for the carer as well as the patient; involving a professional to persuade the patient to accept services; and emphasising that services optimised, not impeded, independence.

  2. Palliative care for people with dementia

    ✓ Peer-reviewed alzhub usefulness score 36 out of 100. British medical bulletin 2010-07-30 End-of-life care

    The number of people with dementia will rise dramatically over the next 20 years.

  3. Advance directives for euthanasia in dementia: do law-based opportunities lead to more euthanasia?

    ✓ Peer-reviewed alzhub usefulness score 36 out of 100. Health policy (Amsterdam, Netherlands) 2010-07-27 End-of-life care

    Over the years 2005-2006, many ECPs took care of patients with dementia and an ADE, actual life termination of these patients took place very rarely and never in incompetent patients.

  4. Targeting and managing behavioral symptoms in individuals with dementia: a randomized trial of a nonpharmacological intervention

    ✓ Peer-reviewed alzhub usefulness score 65 out of 100. Journal of the American Geriatrics Society 2010-07-19 Caregiving

    At 16 weeks, 67.5% of intervention caregivers reported improvement in targeted problem behavior, compared with 45.8% of caregivers in a no-treatment control group (P=.002), and reduced upset with (P=.03) and enhanced confidence managing (P=.01) the behavior.

  5. Primary care and dementia: 2. Long-term care at home: psychosocial interventions, information provision, carer support and case management

    ✓ Peer-reviewed alzhub usefulness score 64 out of 100. International journal of geriatric psychiatry 2010-07-01 End-of-life care

    Caring for people with dementia in primary care demands the same systematic approach as the management of other long-term conditions.

  6. Withholding, discontinuing and withdrawing medications in dementia patients at the end of life: a neglected problem in the disadvantaged dying?

    ✓ Peer-reviewed alzhub usefulness score 36 out of 100. Drugs & aging 2010-06-01 End-of-life care

    Recent years have seen a growing recognition that dementia is a terminal illness and that patients with advanced dementia nearing the end of life do not currently receive adequate palliative care.

  7. Reviews: developing culturally sensitive dementia caregiver interventions: are we there yet?

    ✓ Peer-reviewed alzhub usefulness score 59 out of 100. American journal of Alzheimer's disease and other dementias 2010-05-27 Caregiving

    Despite evidence of ethnic differences in family caregivers' experiences, the extent to which caregiver interventions are culturally tailored to address these differences is unknown.

  8. Recording care time in nursing homes: development and validation of the "RUD-FOCA" (Resource Utilization in Dementia-Formal Care)

    ✓ Peer-reviewed alzhub usefulness score 51 out of 100. International psychogeriatrics 2010-05-18 Treatments

    Overall time and the times for ADL care and supervision can be considered valid estimates.

  9. Daily medication use in nursing home residents with advanced dementia

    ✓ Peer-reviewed alzhub usefulness score 64 out of 100. Journal of the American Geriatrics Society 2010-04-14 End-of-life care

    Questionably beneficial medications are common in advanced dementia, even as death approaches.

  10. Differential features of burden between spouse and adult-child caregivers of patients with Alzheimer's disease: an exploratory comparative design

    ✓ Peer-reviewed alzhub usefulness score 52 out of 100. International journal of nursing studies 2010-04-05 Caregiving

    Overall burden was greater among adult-child caregivers, especially those who lived with the patient and who had other family duties.

  11. End of life care for community dwelling older people with dementia: an integrated review

    ✓ Peer-reviewed alzhub usefulness score 36 out of 100. International journal of geriatric psychiatry 2010-04-01 End-of-life care

    Research on end-of-life care for people with dementia has yet to develop interventions that address the particular challenges that dying with dementia poses.

  12. Place of Death of Older Persons with Dementia. A Study in Five European Countries

    ✓ Peer-reviewed alzhub usefulness score 49 out of 100. Journal of the American Geriatrics Society 2010-04-01 Health systems and care delivery

    The aging of the European population will lead to a rapid increase in dementia cases in the coming decades, posing challenges for the organization and provision of end-of-life care.

  13. Factors determining the impact of care-giving on caregivers of elderly patients with dementia. A systematic literature review

    ✓ Peer-reviewed alzhub usefulness score 52 out of 100. Maturitas 2010-03-21 Caregiving

    Caregiver characteristics rather than objective care needs of the patients tend to be responsible for the onset of depression.

  14. People with dementia living alone: what are their needs and what kind of support are they receiving?

    ✓ Peer-reviewed alzhub usefulness score 51 out of 100. International psychogeriatrics 2010-03-10 Prevention and risk

    This study illustrates the need to identify these individuals and to make provisions among social service agencies to monitor their well-being regularly and provide a higher level of support when needs are identified.

  15. Recommendations on end-of-life care for people with dementia

    ✓ Peer-reviewed alzhub usefulness score 40 out of 100. The journal of nutrition, health & aging 2010-02-01 End-of-life care

    In this article we aim to present these recommendations and to invite professionals to consider these important issues and to contribute towards a broader discussion.

  16. Nursing home funding -- deal or no deal ? -- an Irish perspective

    ✓ Peer-reviewed alzhub usefulness score 38 out of 100. Age and Ageing 2010-01-19 Health systems and care delivery

    The costs of illness can be huge; medical bankruptcy is a significant problem in the United States [9].

  17. Dying with dementia: what we know after more than a decade of research

    ✓ Peer-reviewed alzhub usefulness score 48 out of 100. Journal of Alzheimer's disease : JAD 2010-01-01 Caregiving

    Death with dementia is increasingly common.

  18. Enhancing caregiver health: findings from the resources for enhancing Alzheimer's caregiver health II intervention

    ✓ Peer-reviewed alzhub usefulness score 65 out of 100. Journal of the American Geriatrics Society 2010-01-01 Caregiving

    A structured, multicomponent skills training intervention that targeted CG self-care behaviors as one of five target areas, improved self-reported health status, and decreased burden and bother in racially and ethnically diverse CGs of people with dementia.

  19. Quality of end-of-life care for dementia patients during acute hospital admission: a retrospective study in Ireland

    ✓ Peer-reviewed alzhub usefulness score 47 out of 100. General hospital psychiatry 2009-11-12 End-of-life care

    Individuals with dementia may be receiving different end-of-life care from those without.

  20. Hospice care in the nursing home setting: a review of the literature

    ✓ Peer-reviewed alzhub usefulness score 36 out of 100. Journal of pain and symptom management 2009-09-01 End-of-life care

    The U.S. Medicare hospice benefit has expanded considerably into the nursing home (NH) setting in recent years.

  21. What do community-dwelling people with dementia need? A survey of those who are known to care and welfare services

    ✓ Peer-reviewed alzhub usefulness score 44 out of 100. International psychogeriatrics 2009-07-15 Caregiving

    This study showed a large number of unmet needs in dementia.

  22. Dementia and life expectancy: what do we know?

    ✓ Peer-reviewed alzhub usefulness score 64 out of 100. Journal of the American Medical Directors Association 2009-06-27 End-of-life care

    Despite much data, we lack a unifying guideline for dementia prognostication.

  23. Video decision support tool for advance care planning in dementia: randomised controlled trial

    ✓ Peer-reviewed alzhub usefulness score 79 out of 100. BMJ (Clinical research ed.) 2009-05-28 End-of-life care

    Older people who view a video depiction of a patient with advanced dementia after hearing a verbal description of the condition are more likely to opt for comfort as their goal of care compared with those who solely listen to a verbal description.

  24. Healthcare proxies of nursing home residents with advanced dementia: decisions they confront and their satisfaction with decision-making

    ✓ Peer-reviewed alzhub usefulness score 55 out of 100. Journal of the American Geriatrics Society 2009-05-21 End-of-life care

    HCPs of NH patients with advanced dementia can most commonly expect to encounter medical decisions relating to feeding problems, infections, and pain.

  25. Caring for Aged Dementia Care Resident Study (CADRES) of person-centred care, dementia-care mapping, and usual care in dementia: a cluster-randomised trial

    ✓ Peer-reviewed alzhub usefulness score 72 out of 100. The Lancet. Neurology 2009-03-11 Clinical safety

    15 care sites with 289 residents were randomly assigned.

  26. Dementia in Nursing Home Patients: Assessment and Management

    ✓ Peer-reviewed alzhub usefulness score 26 out of 100. Psychiatry in Long-Term Care 2009-03-06 Health systems and care delivery

    Currently 4 million Americans suffer from dementia.

  27. Surrogate decision makers' understanding of dementia patients' prior wishes for end-of-life care

    ✓ Peer-reviewed alzhub usefulness score 36 out of 100. Journal of aging and health 2009-03-05 End-of-life care

    Most surrogates reported that patients had previously completed an advance directive (59%), discussed preferences for EOL care (56%), or done both (38%).

  28. The impact of the quality of relationship on the experiences and wellbeing of caregivers of people with dementia: a systematic review

    ✓ Peer-reviewed alzhub usefulness score 55 out of 100. Aging & mental health 2009-03-01 Caregiving

    Future research should examine both current and pre-caregiving relationship quality.

  29. Keeping In Touch Everyday (KITE) project: developing assistive technologies with people with dementia and their carers to promote independence

    ✓ Peer-reviewed alzhub usefulness score 36 out of 100. International psychogeriatrics 2009-02-05 Clinical safety

    Prototypes for two devices (armband and electronic notepad) were developed.

  30. Challenges for professional care of advanced dementia

    ✓ Peer-reviewed alzhub usefulness score 43 out of 100. International journal of nursing practice 2009-02-01 End-of-life care

    Qualitative methodology based on action research identified challenges when caring for persons with advanced dementia, as perceived by key professional providers.

  31. Natural history of feeding-tube use in nursing home residents with advanced dementia

    ✓ Peer-reviewed alzhub usefulness score 40 out of 100. Journal of the American Medical Directors Association 2009-01-09 Clinical safety

    Most feeding tubes are inserted in an acute care hospital.

  32. Discomfort in dementia patients dying from pneumonia and its relief by antibiotics

    ✓ Peer-reviewed alzhub usefulness score 45 out of 100. Scandinavian journal of infectious diseases 2009-01-01 End-of-life care

    Dementia patients frequently die after a pneumonia or prolonged intake problems.

  33. Family caregivers of people with dementia

    ✓ Peer-reviewed alzhub usefulness score 48 out of 100. Dialogues in clinical neuroscience 2009-01-01 Caregiving

    Family caregivers of people with dementia, often called the invisible second patients, are critical to the quality of life of the care recipients.

  34. Use of antipsychotics among elderly nursing home residents with dementia in the US: an analysis of National Survey Data

    ✓ Peer-reviewed alzhub usefulness score 39 out of 100. Drugs & aging 2009-01-01 Disparities

    However, recent data suggest that the risk of adverse effects may offset the benefits of atypical agents in patients with dementia.

  35. Educating nursing home staff about the progression of dementia and the comfort care option: impact on family satisfaction with end-of-life care

    ✓ Peer-reviewed alzhub usefulness score 36 out of 100. Journal of the American Medical Directors Association 2008-12-10 End-of-life care

    Although not significant, results as to the effectiveness of such an intervention to improve family satisfaction with end-of-life care are encouraging.

  36. Dying with dementia in long-term care

    ✓ Peer-reviewed alzhub usefulness score 36 out of 100. The Gerontologist 2008-12-01 End-of-life care

    We noted no differences between decedents with and without dementia in terms of pain, psychosocial status, family involvement, advance care planning, most life-prolonging interventions, and hospice use.

  37. The COACH prompting system to assist older adults with dementia through handwashing: an efficacy study

    ✓ Peer-reviewed alzhub usefulness score 50 out of 100. BMC geriatrics 2008-11-07 Digital health tools

    The COACH system shows promise as a tool to help support older adults with moderate-levels of dementia and their caregivers.

  38. Validity and reliability of the brief COPE in carers of people with dementia: the LASER-AD Study

    ✓ Peer-reviewed alzhub usefulness score 48 out of 100. The Journal of nervous and mental disease 2008-11-01 Caregiving

    The Brief COPE is a self-completed questionnaire measuring coping strategies.

  39. Determinants of burden in those who care for someone with dementia

    ✓ Peer-reviewed alzhub usefulness score 50 out of 100. International journal of geriatric psychiatry 2008-10-01 Caregiving

    These results confirm previous correlational research on caregiver burden.

  40. The four-factor model of depressive symptoms in dementia caregivers: a structural equation model of ethnic differences

    ✓ Peer-reviewed alzhub usefulness score 46 out of 100. Psychology and aging 2008-09-01 Disparities

    Previous studies have suggested that 4 latent constructs (depressed affect, well-being, interpersonal problems, somatic symptoms) underlie the item responses on the Center for Epidemiological Studies Depression (CES-D) Scale.

  41. Caregiver burden among dementia patient caregivers: a review of the literature

    ✓ Peer-reviewed alzhub usefulness score 45 out of 100. Journal of the American Academy of Nurse Practitioners 2008-08-01 Caregiving

    Dementia caregiving has been associated with negative effects on caregiver health and early nursing home placement for dementia patients.

  42. Content of advance directives for individuals with advanced dementia

    ✓ Peer-reviewed alzhub usefulness score 36 out of 100. Journal of aging and health 2008-08-01 End-of-life care

    For advance directives to better reflect a person's wishes, discussions with individuals and families about advance directives should include a range of care issues in the settings of terminal illness, persistent vegetative state or end-stage illness.

  43. Palliative care in advanced dementia; A mixed methods approach for the development of a complex intervention

    ✓ Peer-reviewed alzhub usefulness score 74 out of 100. BMC palliative care 2008-07-11 End-of-life care

    This will be vital in moving to a phase III trial that is pragmatic and feasible for these complex patients within the NHS.

  44. Home based support for caregivers of persons with dementia, which emphasizes the use of locally available, low-cost human resources, is feasible, acceptable and leads to significant improvements in caregiver mental health and burden of caring.

  45. Effectiveness of interventions that assist caregivers to support people with dementia living in the community: a systematic review

    ✓ Peer-reviewed alzhub usefulness score 50 out of 100. International journal of evidence-based healthcare 2008-06-01 Caregiving

    A comprehensive search of relevant databases, hand searching and cross referencing found 685 articles that were assessed for relevance to the review.

  46. Integrating palliative medicine into the care of persons with advanced dementia: identifying appropriate medication use

    ✓ Peer-reviewed alzhub usefulness score 44 out of 100. Journal of the American Geriatrics Society 2008-05-12 End-of-life care

    Based on these preliminary findings, consensus criteria for prescribing in advanced dementia are needed to decrease polypharmacy and reduce the use of medications that are of minimal benefit or high risk.

  47. A critical literature review exploring the challenges of delivering effective palliative care to older people with dementia

    ✓ Peer-reviewed alzhub usefulness score 48 out of 100. Journal of clinical nursing 2008-05-01 End-of-life care

    This review reinforces the importance of providing appropriate palliative care to individuals suffering from end-stage dementia and identifies some of the barriers to extending such specialist palliative care provision.

  48. Antipsychotic therapy and short-term serious events in older adults with dementia

    ✓ Peer-reviewed alzhub usefulness score 52 out of 100. Archives of internal medicine 2008-05-01 Caregiving

    Serious events, as indicated by a hospital admission or death, are frequent following the short-term use of antipsychotic drugs in older adults with dementia.

  49. Family caregivers' strains: comparative analysis of cancer caregiving with dementia, diabetes, and frail elderly caregiving

    ✓ Peer-reviewed alzhub usefulness score 64 out of 100. Journal of aging and health 2008-04-17 Caregiving

    The comparative analysis provided a systematic review of cancer caregiving in the context of three other types of caregiving.

  50. Processes of decision making and end-of-life care for patients with dementia in group homes in Japan

    ✓ Peer-reviewed alzhub usefulness score 40 out of 100. Archives of gerontology and geriatrics 2008-03-21 End-of-life care

    The aim of the present study was to clarify the processes of decision making and end-of-life care for patients with dementia in the group homes in Japan.

From across this tag

10 of the 1,002 studies in this tag, picked by a fixed rule (a hash of each study's address), not by score or date; each page of this list shows a different 10. The same 10 appear here every time.

All topic tags with their study counts