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Newest in this topic

  1. Is there a role for artificial intelligence in end-of-life care for persons with dementia? Perspectives of and recommendations by caregivers and hospice staff 2026-09-17
  2. Online Peer Support Use Among Informal Caregivers of People Living With Alzheimer Disease or Related Dementias: National Cross-Sectional Web-Based Survey 2026-09-07
  3. Interconnected Challenges in Dementia Caregiving: A Co-occurrence Network Analysis of Burden, Unmet Needs, and System Failures Among Caregivers 2026-08-17

Studies

1,013 studies carry this tag; 1,012 of them have a date.

Date range

1986 to 2026

Top journals

  • Journal of the American Geriatrics Society 63
  • The Gerontologist 48
  • Alzheimer s & Dementia 28
  • International psychogeriatrics 28
  • Journal of the American Medical Directors Association 26

339 journals in all.

Newest first, then by address. Each study has a usefulness score out of 100 (rubric version 4.0); tap a score to see what makes it up. Tags were assigned automatically from each study's title and summary. The same studies as a filter in the library.

  1. Palliative Excellence in Alzheimer Care Efforts (PEACE): a program description

    ✓ Peer-reviewed alzhub usefulness score 36 out of 100. Journal of palliative medicine 2003-04-01 End-of-life care

    Hospice is the standard method for providing quality end-of-life care in the United States.

  2. Associations of stressors and uplifts of caregiving with caregiver burden and depressive mood: a meta-analysis

    ✓ Peer-reviewed alzhub usefulness score 63 out of 100. The journals of gerontology. Series B, Psychological sciences and social sciences 2003-03-01 Caregiving

    In the present meta-analysis, we integrated findings from 228 studies on the association of six caregiving-related stressors and caregiving uplifts with burden and depressed mood.

  3. Predictors of six-month survival among patients with dementia: an evaluation of hospice Medicare guidelines

    ✓ Peer-reviewed alzhub usefulness score 60 out of 100. The American journal of hospice & palliative care 2003-03-01 End-of-life care

    The goal of the present study was to assess the validity of the Medicare hospice eligibility guidelines for dementia patients, as well as identify predictors that could more accurately identify prognosis in dementia patients referred to hospice.

  4. Dementia caregiver intervention research: in search of clinical significance

    ✓ Peer-reviewed alzhub usefulness score 46 out of 100. The Gerontologist 2002-10-01 Caregiving

    Although many studies have reported small to moderate statistically significant effects on a broad range of outcomes, only a small proportion of these studies achieved clinically meaningful outcomes.

  5. Can multidisciplinary guidelines improve the palliation of symptoms in the terminal phase of dementia?

    ✓ Peer-reviewed alzhub usefulness score 36 out of 100. International journal of palliative nursing 2002-08-01 End-of-life care

    Dementia is a progressive terminal disease.

  6. How effective are interventions with caregivers? An updated meta-analysis

    ✓ Peer-reviewed alzhub usefulness score 68 out of 100. The Gerontologist 2002-06-01 Caregiving

    The combined interventions produced a significant improvement of 0.14 to 0.41 standard deviation units, on average, for caregiver burden, depression, subjective well-being, perceived caregiver satisfaction, ability/knowledge, and care receiver symptoms.

  7. Assessing quality of life in older adults with cognitive impairment

    ✓ Peer-reviewed alzhub usefulness score 53 out of 100. Psychosomatic medicine 2002-05-01 Caregiving

    The QOL-AD seems to be reliable and valid for individuals with MMSE scores greater than 10.

  8. Measurement and correlates of family caregiver self-efficacy for managing dementia

    ✓ Peer-reviewed alzhub usefulness score 46 out of 100. Aging & mental health 2002-05-01 Caregiving

    Researchers in the aging field are paying increasing attention to the importance of perceived self-efficacy in understanding experiences and health-related outcomes of family caregivers.

  9. Palliative and aggressive end-of-life care for patients with dementia

    ✓ Peer-reviewed alzhub usefulness score 45 out of 100. Psychiatric services (Washington, D.C.) 2002-05-01 End-of-life care

    Use of systemic antibiotics is prevalent in the treatment of patients with end-stage dementia, despite the limited utility and discomfort associated with the use of these agents.

  10. Patient and caregiver characteristics and nursing home placement in patients with dementia

    ✓ Peer-reviewed alzhub usefulness score 64 out of 100. JAMA 2002-04-01 Caregiving

    Patients were divided into a development (n = 3859) and validation (n = 1929) cohort.

  11. End-of-life care in dementia: a review of problems, prospects, and solutions in practice

    ✓ Peer-reviewed alzhub usefulness score 36 out of 100. Journal of the American Medical Directors Association 2002-03-01 End-of-life care

    The purpose of this literature review was to assess the current state of affairs in end-of-life care for persons with dementia, to identify barriers to the provision of high-quality care, and to describe exemplary programs that have discovered ways to overcome these barriers.

  12. Gender differences in burden and depression among informal caregivers of demented elders in the community

    ✓ Peer-reviewed alzhub usefulness score 47 out of 100. International journal of geriatric psychiatry 2002-02-01 Caregiving

    Adequate assistance must be given to women caregivers to ensure that they are not strained beyond what is clinically healthy.

  13. Factors associated with long-term institutionalization of older people with dementia: data from the Canadian Study of Health and Aging

    ✓ Peer-reviewed alzhub usefulness score 49 out of 100. The journals of gerontology. Series A, Biological sciences and medical sciences 2001-11-01 Caregiving

    Screening caregivers for burden and depression and designing interventions to decrease the consequences of behavioral disturbance on caregivers would be relevant avenues to explore to decrease institutionalization of people with dementia.

  14. National estimates of the quantity and cost of informal caregiving for the elderly with dementia

    ✓ Peer-reviewed alzhub usefulness score 54 out of 100. Journal of general internal medicine 2001-11-01 Caregiving

    After adjusting for sociodemographics, comorbidities, and potential caregiving network, those with normal cognition received an average of 4.6 hours per week of informal care.

  15. A comprehensive, stage-sensitive model of grief in dementia caregiving

    ✓ Peer-reviewed alzhub usefulness score 42 out of 100. The Gerontologist 2001-10-01 Caregiving

    Significant differences emerged between spouse and adult-child caregiver groups as a whole and as a function of Clinical Dementia Rating impairment level.

  16. Interventions to reduce the burden of caregiving for an adult with dementia: a meta-analysis

    ✓ Peer-reviewed alzhub usefulness score 53 out of 100. Research in nursing & health 2001-10-01 Caregiving

    Because of conflicting results, in order to clarify the state of the science it was necessary to do a systematic analysis of the literature on research testing the effect of interventions on the burden of persons caring for family members with dementia.

  17. Scales for evaluation of End-of-Life Care in Dementia

    ✓ Peer-reviewed alzhub usefulness score 36 out of 100. Alzheimer disease and associated disorders 2001-10-01 End-of-life care

    Systematic evaluation of end-of-life care in dementia has been hampered by a lack of instruments to specifically address those issues that are unique for persons who are dying with dementia.

  18. The effects of driving cessation on the elderly with dementia and their caregivers

    ✓ Peer-reviewed alzhub usefulness score 36 out of 100. Accident; analysis and prevention 2001-07-01 Clinical safety

    This research explores how the loss of driving privileges by impaired drivers affects households.

  19. Racial, ethnic, and cultural differences in the dementia caregiving experience: recent findings

    ✓ Peer-reviewed alzhub usefulness score 45 out of 100. The Gerontologist 2001-06-01 Caregiving

    Twenty-one studies based on 18 samples were identified.

  20. Cholinesterase inhibitors benefit patients with AD (Standard), although the average benefit appears small; vitamin E likely delays the time to clinical worsening (Guideline); selegiline, other antioxidants, anti-inflammatories, and estrogen require further study.

  21. Dementia family caregiver training: affecting beliefs about caregiving and caregiver outcomes

    ✓ Peer-reviewed alzhub usefulness score 59 out of 100. Journal of the American Geriatrics Society 2001-04-01 Caregiving

    This study tested role-training intervention as a way to help family caregivers appreciate and assume a more clinical belief set about caregiving and thereby ameliorate the adverse outcomes associated with caregiving.

  22. Purpose of study The authors determined short-term effects of a home environmental intervention on self-efficacy and upset in caregivers and daily function of dementia patients.

  23. Family caregiving in hospice: effects on psychological and health functioning among spousal caregivers of hospice patients with lung cancer or dementia

    ✓ Peer-reviewed alzhub usefulness score 36 out of 100. The Hospice journal 2001-01-01 End-of-life care

    Hospice family caregivers are at high risk for both psychological and physical health disorders, and caregiver depression and health problems should be systematically assessed and treated by the hospice team.

  24. The therapeutic design of environments for people with dementia: a review of the empirical research

    ✓ Peer-reviewed alzhub usefulness score 44 out of 100. The Gerontologist 2000-08-01 Caregiving

    Design of the physical environment is increasingly recognized as an important aid in caring for people with dementia.

  25. Survival in end-stage dementia following acute illness

    ✓ Peer-reviewed alzhub usefulness score 64 out of 100. JAMA 2000-07-01 End-of-life care

    In this study, patients with advanced dementia and hip fracture or pneumonia had a very poor prognosis.

  26. Palliative care for advanced dementia

    ✓ Peer-reviewed alzhub usefulness score 36 out of 100. Clinics in geriatric medicine 2000-05-01 End-of-life care

    Dementia is a common, devastating, and ultimately fatal illness.

  27. The quality of life in late-stage dementia (QUALID) scale

    ✓ Peer-reviewed alzhub usefulness score 39 out of 100. Journal of the American Medical Directors Association 2000-05-01 Cognitive tests and assessment

    A group of clinicians with extensive experience in dealing with dementia patients developed by consensus the Quality of Life in Dementia Scale (QUALID), an 11-item scale.

  28. End-of-life decision making for nursing home residents with dementia

    ✓ Peer-reviewed alzhub usefulness score 36 out of 100. Journal of nursing scholarship : an official publication of Sigma Theta Tau International Honor Society of Nursing 2000-01-01 End-of-life care

    Five themes were identified that describe the context of decision making: emotional effect, insult-to-life story, two faces of death, values and goals regarding end-of-life treatments, and the unrecognized trajectory of dying.

  29. Palliative care in advanced dementia: a randomized controlled trial and descriptive analysis

    ✓ Peer-reviewed alzhub usefulness score 71 out of 100. Journal of palliative medicine 2000-01-01 End-of-life care

    It was difficult for a palliative care research team to influence the care of advanced dementia patients in the acute hospital setting.

  30. Planning end-of-life care for patients with dementia: roles of families and health professionals

    ✓ Peer-reviewed alzhub usefulness score 36 out of 100. Omega 2000-01-01 End-of-life care

    We examined families' end-of-life decision making and their interactions with health professionals.

  31. Working with culture: a qualitative analysis of barriers to the recruitment of Chinese-American family caregivers for dementia research

    ✓ Peer-reviewed alzhub usefulness score 40 out of 100. Journal of cross-cultural gerontology 2000-01-01 Disparities

    The National Institutes of Health is making efforts to increase the representation of minority elders in aging research.

  32. EUROCARE: a cross-national study of co-resident spouse carers for people with Alzheimer's disease: I--Factors associated with carer burden

    ✓ Peer-reviewed alzhub usefulness score 43 out of 100. International journal of geriatric psychiatry 1999-08-01 Prevention and risk

    There have, however, been few studies which have sought to investigate factors associated with carer burden and differences and similarities between countries.

  33. Reducing caregiver burden: a randomized psychoeducational intervention for caregivers of persons with dementia

    ✓ Peer-reviewed alzhub usefulness score 64 out of 100. The Gerontologist 1999-06-01 Caregiving

    This 3-year randomized clinical trial tested the effectiveness of an interdisciplinary psychoeducational family group intervention in decreasing the caregivers' perceptions of the frequency and severity of behavioral problems in persons with dementia and their reactions to those problems, and in decreasing caregiver burden and depression.

  34. Prevalence and impact of caregiving: a detailed comparison between dementia and nondementia caregivers

    ✓ Peer-reviewed alzhub usefulness score 53 out of 100. The Gerontologist 1999-04-01 Caregiving

    Analyzing data from more than 1,500 family caregivers from the 1996 National Caregiver Survey, this study documents the ways in which dementia care is different from other types of family caregiving.

  35. With the exception of motor performance (walking), the caregiver's report and the performance-based assessment of functional status measure different aspects of a patient's functional status.

  36. Criteria for enrolling dementia patients in hospice: a replication

    ✓ Peer-reviewed alzhub usefulness score 36 out of 100. The American journal of hospice & palliative care 1999-01-01 End-of-life care

    Because survival time varies greatly in dementia, it is difficult for dementia patients to meet a key criterion for the Medicare Hospice Benefit, a six-month survival time.

  37. Predictors of institutionalization for people with dementia living at home with a carer

    ✓ Peer-reviewed alzhub usefulness score 57 out of 100. International journal of geriatric psychiatry 1998-10-01 Caregiving

    Both behaviour and psychological functioning and the caring environment can help in predicting which patients with dementia currently living at home will enter an institution 1 year later.

  38. Dementia caregiver burden: a review of the literature and guidelines for assessment and intervention

    ✓ Peer-reviewed alzhub usefulness score 48 out of 100. Neurology 1998-07-01 Caregiving

    Alzheimer's disease (AD) and other dementias are common degenerative disorders in the elderly.

  39. Criteria for enrolling dementia patients in hospice

    ✓ Peer-reviewed alzhub usefulness score 36 out of 100. Journal of the American Geriatrics Society 1997-09-01 End-of-life care

    Our hospice enrollment criteria identified a group with a median survival time of 4 months and a mean survival time of 6.9 months.

  40. Behavioral treatment of depression in dementia patients: a controlled clinical trial

    ✓ Peer-reviewed alzhub usefulness score 61 out of 100. The journals of gerontology. Series B, Psychological sciences and social sciences 1997-07-01 Getting a diagnosis

    The current study is a controlled clinical investigation of two nonpharmacological treatments of depression in patients with Alzheimer's disease.

  41. Racial, ethnic, and cultural differences in dementia caregiving: review and analysis

    ✓ Peer-reviewed alzhub usefulness score 57 out of 100. The Gerontologist 1997-06-01 Caregiving

    This study provides a review and analysis of the empirical research published since 1985 that has examined the impact of race, culture, and/or ethnicity on the dementia caregiving experience.

  42. Treatment of the dying in the acute care hospital. Advanced dementia and metastatic cancer

    ✓ Peer-reviewed alzhub usefulness score 45 out of 100. Archives of internal medicine 1996-10-01 End-of-life care

    Incurably ill patients often receive nonpalliative interventions at the end of life.

  43. An audit of palliative care in dementia

    ✓ Peer-reviewed alzhub usefulness score 36 out of 100. European journal of cancer care 1996-03-01 End-of-life care

    A retrospective case note audit was conducted in order to determine the most prevalent symptoms in terminal dementia and to assess the palliation given.

  44. Assessment of activities of daily living in dementia: development of the Bristol Activities of Daily Living Scale

    ✓ Peer-reviewed alzhub usefulness score 40 out of 100. Age and ageing 1996-03-01 Caregiving

    A new assessment of Activities of Daily Living has been developed specifically for use with people with dementia.

  45. Performance of the dementia severity rating scale: a caregiver questionnaire for rating severity in Alzheimer disease

    ✓ Peer-reviewed alzhub usefulness score 40 out of 100. Alzheimer disease and associated disorders 1996-01-01 Caregiving

    The Dementia Severity Rating Scale (DSRS) is an informant-based, multiple-choice questionnaire that assesses severity from the mildest to the most severe stages in the major functional and cognitive domains affected in Alzheimer disease (AD).

  46. Psychiatric and physical morbidity effects of dementia caregiving: prevalence, correlates, and causes

    ✓ Peer-reviewed alzhub usefulness score 50 out of 100. The Gerontologist 1995-12-01 Caregiving

    The dementia caregiving literature is reviewed with the goals of (a) assessing the prevalence and magnitude of psychiatric and physical morbidity effects among caregivers, (b) identifying individual and contextual correlates of reported health effects and their underlying causes, and (c) examining the policy relevance of observed findings.

  47. A population-based assessment of the impact and burden of caregiving for long-term stroke survivors

    ✓ Peer-reviewed alzhub usefulness score 48 out of 100. Stroke 1995-05-01 Caregiving

    In this population, the high level of emotional distress among caregivers of stroke patients suggests that many caregivers have unmet needs.

  48. Access to hospice programs in end-stage dementia: a national survey of hospice programs

    ✓ Peer-reviewed alzhub usefulness score 36 out of 100. Journal of the American Geriatrics Society 1995-01-01 End-of-life care

    A national survey of hospices revealed that few patients with primary dementia are currently treated by these programs, unless they have other terminal illnesses.

  49. When home caregiving ends: a longitudinal study of outcomes for caregivers of relatives with dementia

    ✓ Peer-reviewed alzhub usefulness score 47 out of 100. Journal of the American Geriatrics Society 1995-01-01 Disparities

    Caregivers most frequently cite deteriorating patient conditions as the main causes of ending home care.

  50. The Clinician Interview-Based Impression (CIBI): a clinician's global change rating scale in Alzheimer's disease

    ✓ Peer-reviewed alzhub usefulness score 65 out of 100. Neurology 1994-12-01 Caregiving

    Global assessments are Food and Drug Administration-required primary outcome measures in trials of putative antidementia drugs.

From across this tag

10 of the 1,002 studies in this tag, picked by a fixed rule (a hash of each study's address), not by score or date; each page of this list shows a different 10. The same 10 appear here every time.

All topic tags with their study counts