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Palliative care provision in long-term care facilities differs across Europe: Results of a cross-sectional study in six European countries (PACE)
Ten Koppel M, Onwuteaka-Philipsen BD, Van den Block L, Deliens L, Gambassi G, Heymans MW, Kylänen M, Oosterveld-Vlug MG et al.. Palliative medicine, 2019-07-01
Topic: Risk, prevention and care in population studies
Background While the need for palliative care in long-term care facilities is growing, it is unknown whether palliative care in this setting is sufficiently developed. Aim To describe and compare in six European countries palliative care provision in long-term care facilities and to assess associations between patient, facility and advance care planning factors and receipt and timing of palliative care. Design Cross-sectional after-death survey regarding care provided to long-term care residents in Belgium, England, Finland, Italy, the Netherlands and Poland. Generalized estimating equations were used for analyses. Setting/participants Nurses or care assistants who are most involved in care for the resident. Results We included 1298 residents in 300 facilities, of whom a majority received palliative care in most countries (England: 72.6%-Belgium: 77.9%), except in Poland (14.0%) and Italy (32.1%). Palliative care typically started within 2 weeks before death and was often provided by the treating physician (England: 75%-the Netherlands: 98.8%). A palliative care specialist was frequently involved in Belgium and Poland (57.1% and 86.7%). Residents with cancer, dementia or a contact person in their record more often received palliative care, and it started earlier for residents with whom the nurse had spoken about treatments or the preferred course of care at the end of life. Conclusion The late initiation of palliative care (especially when advance care planning is lacking) and palliative care for residents without cancer, dementia or closely involved relatives deserve attention in all countries. Diversity in palliative care organization might be related to different levels of its development.
Key findings
- Results We included 1298 residents in 300 facilities, of whom a majority received palliative care in most countries (England: 72.6%-Belgium: 77.9%), except in Poland (14.0%) and Italy (32.1%).
Study details
- Study designcross-sectional
- Participants1,298
- Effect size72.6%; 77.9%; 14.0%
- Evidence strengthLow
How this study scored 59/100
Published in a peer-reviewed journal, and it is a snapshot of people at one point in time. Scored zero for randomised / blinded because the record does not state it. We have no data on journal's citation record, times cited, citations per year, impact for its field and year, cited by studies here, still being cited, senior author's track record, institution's track record and multi-centre collaboration, so those were left out: it earned 34 of the 58 points we could judge it on, which is 59 out of 100.
| Component | Points | Why |
|---|---|---|
| Journal tier | 7 / 10 | Tier 3 — peer-reviewed journal (Palliative medicine) |
| Journal's citation record | — / 4 | No journal record from OpenAlex — left out of this score |
| Study design | 4 / 12 | A snapshot of people at one point in time |
| Strength of evidence | 1 / 5 | Rated “low” in our summary |
| Peer-review validation | 10 / 10 | Peer-reviewed. Published as an article in a named peer-reviewed journal. |
| How recent | 2 / 5 | 2019 — within 10 year(s) of the newest study here |
| Sample size | 3 / 4 | 1,298 participants |
| Effect reported | 2 / 3 | Effect reported as a number, without an interval or test |
| Studied in people | 3 / 3 | Studied in people (participant count stated) |
| Randomised / blinded | 0 / 2 | No randomisation or blinding stated — scores zero (not stated in the record — scored 0) |
| Times cited | — / 7 | No citation count (not found in OpenAlex) — left out of this score |
| Citations per year | — / 5 | No citation count or no year — left out of this score |
| Impact for its field and year | — / 6 | No field-weighted citation impact (OpenAlex has none yet) — left out of this score |
| Cited by studies here | — / 6 | Not yet checked against this library's citation graph — left out of this score |
| Still being cited | — / 4 | No yearly citation counts — left out of this score |
| Senior author's track record | — / 4 | Senior author's record not available — left out of this score |
| Institution's track record | — / 3 | No institution listed in OpenAlex — left out of this score |
| Multi-centre collaboration | — / 3 | Institutions not listed — left out of this score |
| Indexed in PubMed | 2 / 2 | Indexed in PubMed (PMID 31258004) |
| Free to read | 0 / 2 | Behind a paywall — scores zero |
| Points | 34 / 58 | Scored on 11 of 20 parts. We have no data for the rest, so they are left out: 34 of the 58 points we could judge it on is 59 out of 100. |
| Total | 59 / 100 | — |
What each of these 20 components measures, and what this score is not →
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APA 7th
Ten Koppel, M., Onwuteaka-Philipsen, B. D., Van den Block, L., Deliens, L., Gambassi, G., Heymans, M. W., et al. (2019). Palliative care provision in long-term care facilities differs across Europe: Results of a cross-sectional study in six European countries (PACE). Palliative medicine. https://doi.org/10.1177/0269216319861229
Vancouver
Ten Koppel M, Onwuteaka-Philipsen BD, Van den Block L, Deliens L, Gambassi G, Heymans MW, et al. Palliative care provision in long-term care facilities differs across Europe: Results of a cross-sectional study in six European countries (PACE). Palliative medicine. 2019. doi:10.1177/0269216319861229. PMID: 31258004.
BibTeX
@article{tenkoppel2019-31258004,
author = {Ten Koppel, M. and Onwuteaka-Philipsen, B. D. and Van den Block, L. and Deliens, L. and Gambassi, G. and Heymans, M. W. and Kylänen, M. and Oosterveld-Vlug, M. G. and others},
title = {{Palliative care provision in long-term care facilities differs across Europe: Results of a cross-sectional study in six European countries (PACE)}},
journal = {Palliative medicine},
year = {2019},
doi = {10.1177/0269216319861229},
pmid = {31258004},
url = {https://doi.org/10.1177/0269216319861229}
}