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How Do Persons with Young and Late Onset Dementia Die?
Carola Roβmeier, Julia Hartmann, Lina Riedl, Bianca Dorn, Julia Fischer, Florentine Hartmann, Silvia Egert-Schwender, Victoria Kehl et al.. Journal of Alzheimer's disease : JAD, 2021
Topic: Health services, long-term care and technology
Circumstances of death, symptoms, and treatment appeared to be similar between YOD and LOD, except that persons with LOD had significantly more somatic comorbidities and were admitted to hospital in the last three months of life more often than persons with LOD. At end of life, 60% of PWAD appeared to be "at peace". Difficulty swallowing, gurgling, shortness of breath, and discomfort were observed most frequently. Large interindividual differences in suffering and QoD were present. Determinants of QoD were not identified. Our findings suggest that low QoD was caused by inadequate recognition and/or insufficient treatment of burdensome physical and emotional symptoms. PWADs' needs should be assessed regularly, and strategies focusing on treatment and implementing support for both the patient and caregiver must be established.
Key findings
- Circumstances of death, symptoms, and treatment appeared to be similar between YOD and LOD, except that persons with LOD had significantly more somatic comorbidities and were admitted to hospital in the last three months of life more often than persons with LOD.
- At end of life, 60% of PWAD appeared to be "at peace".
- Difficulty swallowing, gurgling, shortness of breath, and discomfort were observed most frequently.
- Large interindividual differences in suffering and QoD were present.
- Our findings suggest that low QoD was caused by inadequate recognition and/or insufficient treatment of burdensome physical and emotional symptoms.
Study details
- Participants46
- Evidence strengthLow
How this study scored 48/100
Published in a peer-reviewed journal. Scored zero for study design, effect reported and randomised / blinded because the record does not state it. We have no data on journal's citation record, times cited, citations per year, impact for its field and year, cited by studies here, still being cited, senior author's track record, institution's track record, multi-centre collaboration and free to read, so those were left out: it earned 27 of the 56 points we could judge it on, which is 48 out of 100.
| Component | Points | Why |
|---|---|---|
| Journal tier | 7 / 10 | Tier 3 — peer-reviewed journal (Journal of Alzheimer's disease : JAD) |
| Journal's citation record | — / 4 | No journal record from OpenAlex — left out of this score |
| Study design | 0 / 12 | No study design recorded — scores zero, not guessed (not stated in the record — scored 0) |
| Strength of evidence | 1 / 5 | Rated “low” in our summary |
| Peer-review validation | 10 / 10 | Peer-reviewed. Published as an article in a named peer-reviewed journal. |
| How recent | 3 / 5 | 2021 — within 6 year(s) of the newest study here |
| Sample size | 1 / 4 | 46 participants |
| Effect reported | 0 / 3 | No effect size reported — scores zero (not stated in the record — scored 0) |
| Studied in people | 3 / 3 | Studied in people (participant count stated) |
| Randomised / blinded | 0 / 2 | No randomisation or blinding stated — scores zero (not stated in the record — scored 0) |
| Times cited | — / 7 | No citation count (not found in OpenAlex) — left out of this score |
| Citations per year | — / 5 | No citation count or no year — left out of this score |
| Impact for its field and year | — / 6 | No field-weighted citation impact (OpenAlex has none yet) — left out of this score |
| Cited by studies here | — / 6 | Not yet checked against this library's citation graph — left out of this score |
| Still being cited | — / 4 | No yearly citation counts — left out of this score |
| Senior author's track record | — / 4 | Senior author's record not available — left out of this score |
| Institution's track record | — / 3 | No institution listed in OpenAlex — left out of this score |
| Multi-centre collaboration | — / 3 | Institutions not listed — left out of this score |
| Indexed in PubMed | 2 / 2 | Indexed in PubMed (PMID 33843681) |
| Free to read | — / 2 | Access not recorded — left out of this score |
| Points | 27 / 56 | Scored on 10 of 20 parts. We have no data for the rest, so they are left out: 27 of the 56 points we could judge it on is 48 out of 100. |
| Total | 48 / 100 | — |
What each of these 20 components measures, and what this score is not →
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APA 7th
Roβmeier, C., Hartmann, J., Riedl, L., Dorn, B., Fischer, J., Hartmann, F., et al. (2021). How Do Persons with Young and Late Onset Dementia Die? Journal of Alzheimer's disease : JAD. https://doi.org/10.3233/jad-210046
Vancouver
Roβmeier C, Hartmann J, Riedl L, Dorn B, Fischer J, Hartmann F, et al. How Do Persons with Young and Late Onset Dementia Die? Journal of Alzheimer's disease : JAD. 2021. doi:10.3233/jad-210046. PMID: 33843681.
BibTeX
@article{romeier2021-33843681,
author = {Roβmeier, Carola and Hartmann, Julia and Riedl, Lina and Dorn, Bianca and Fischer, Julia and Hartmann, Florentine and Egert-Schwender, Silvia and Kehl, Victoria and others},
title = {{How Do Persons with Young and Late Onset Dementia Die?}},
journal = {Journal of Alzheimer's disease : JAD},
year = {2021},
doi = {10.3233/jad-210046},
pmid = {33843681},
url = {https://doi.org/10.3233/jad-210046}
}