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Community-engaged intervention mapping for developing the DIGNITY program: Supporting decision-making in aging and dementia for autonomy in rural nursing homes
Liza L. Behrens, Kimberly S. Van Haitsma, Susan Ryan, Kalei Crimi, Marie L. Boltz, Jennifer Lynn Kraschnewski. Journal of Clinical and Translational Science, 2026-01-01
Topic: Risk, prevention and care in population studies
A total of 53 stakeholders participated in focus groups and engagement sessions. Feedback informed six key refinements to the DIGNITY program: manual formatting, communication strategies, staff role delineation, addressing resident decision-making capacity, and identifying implementation barriers and facilitators. The final intervention includes a structured manual, decision-making tools, and a training and coaching program to support NH staff in honoring resident preferences while managing perceived risks. DIGNITY is a novel, stakeholder-informed intervention designed to support preference-based dementia care in rural NHs. Future research should assess its feasibility, acceptability, and impact on staff attitudes and resident outcomes.
Key findings
- A total of 53 stakeholders participated in focus groups and engagement sessions.
- Feedback informed six key refinements to the DIGNITY program: manual formatting, communication strategies, staff role delineation, addressing resident decision-making capacity, and identifying implementation barriers and facilitators.
- The final intervention includes a structured manual, decision-making tools, and a training and coaching program to support NH staff in honoring resident preferences while managing perceived risks.
- DIGNITY is a novel, stakeholder-informed intervention designed to support preference-based dementia care in rural NHs.
- Future research should assess its feasibility, acceptability, and impact on staff attitudes and resident outcomes.
Why it matters
This project used feedback from 53 stakeholders to refine the DIGNITY program, which includes a manual, decision-making tools, and staff training to support preference-based dementia care in rural nursing homes. The authors state future research should assess its feasibility, acceptability, and impact, so no treatment or prevention effect is yet shown.
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Study details
- Participants53
- Evidence strengthLow
How this study scored 43/100
Published in a peer-reviewed journal. Scored zero for study design, effect reported and randomised / blinded because the record does not state it.
| Component | Points | Why |
|---|---|---|
| Journal tier | 7 / 10 | Tier 3 — peer-reviewed journal (Journal of Clinical and Translational Science) |
| Journal's citation record | 0 / 4 | Journal of Clinical and Translational Science: journal h-index 46 (OpenAlex, 2026-10-29) |
| Study design | 0 / 12 | No study design recorded — scores zero, not guessed (not stated in the record — scored 0) |
| Strength of evidence | 1 / 5 | Rated “low” in our summary |
| Peer-review validation | 10 / 10 | Peer-reviewed. Published as an article in a named peer-reviewed journal. |
| How recent | 5 / 5 | 2026 — within 1 year(s) of the newest study here |
| Sample size | 1 / 4 | 53 participants |
| Effect reported | 0 / 3 | No effect size reported — scores zero (not stated in the record — scored 0) |
| Studied in people | 3 / 3 | Studied in people (participant count stated) |
| Randomised / blinded | 0 / 2 | No randomisation or blinding stated — scores zero (not stated in the record — scored 0) |
| Times cited | 1 / 7 | Cited 3 times (OpenAlex, 2026-10-10) |
| Citations per year | 1 / 5 | 1.5 citations a year over 2 year(s) since 2026 |
| Impact for its field and year | 5 / 6 | Cited 25.9× the average for papers of its field and year (OpenAlex FWCI) |
| Cited by studies here | 0 / 6 | No other study in this library cites it |
| Still being cited | 1 / 4 | Cited 3 times in 2024–2026 (2026 still in progress; OpenAlex) |
| Senior author's track record | 2 / 4 | Last-listed author Jennifer L. Kraschnewski: h-index 35 (OpenAlex, whole career) |
| Institution's track record | 1 / 3 | Pennsylvania State University: institution h-index 1,397 (OpenAlex) |
| Multi-centre collaboration | 1 / 3 | OpenAlex lists 2 institution(s) in 1 country |
| Indexed in PubMed | 2 / 2 | Indexed in PubMed (PMID 41717646) |
| Free to read | 2 / 2 | Free to read |
| Total | 43 / 100 | — |
What each of these 20 components measures, and what this score is not →
Read the original
- DOI: 10.1017/cts.2025.10235
- PubMed: 41717646
- Original source →
- Free full text: Journal of Clinical and Translational Science →
Full text: free to read — OpenAlex lists this copy as free to read: the link above (checked 6 Feb 1020).
Cite this study APA, Vancouver, BibTeX · download .bib or .ris
Built from the record alzhub holds for this paper, not looked up. Volume, issue and page numbers are not held in the record. Check the citation against the original before you use it.
APA 7th
Behrens, L. L., Van Haitsma, K. S., Ryan, S., Crimi, K., Boltz, M. L., & Kraschnewski, J. L. (2026). Community-engaged intervention mapping for developing the DIGNITY program: Supporting decision-making in aging and dementia for autonomy in rural nursing homes. Journal of Clinical and Translational Science. https://doi.org/10.1017/cts.2025.10235
Vancouver
Behrens LL, Van Haitsma KS, Ryan S, Crimi K, Boltz ML, Kraschnewski JL. Community-engaged intervention mapping for developing the DIGNITY program: Supporting decision-making in aging and dementia for autonomy in rural nursing homes. Journal of Clinical and Translational Science. 2026. doi:10.1017/cts.2025.10235. PMID: 41717646.
BibTeX
@article{behrens2026-41717646,
author = {Behrens, Liza L. and Van Haitsma, Kimberly S. and Ryan, Susan and Crimi, Kalei and Boltz, Marie L. and Kraschnewski, Jennifer Lynn},
title = {{Community-engaged intervention mapping for developing the DIGNITY program: Supporting decision-making in aging and dementia for autonomy in rural nursing homes}},
journal = {Journal of Clinical and Translational Science},
year = {2026},
doi = {10.1017/cts.2025.10235},
pmid = {41717646},
url = {https://doi.org/10.1017/cts.2025.10235}
}