27,380 Alzheimer's and dementia studies in plain English, each scored out of 100.
This will be vital in moving to a phase III trial that is pragmatic and feasible for these complex patients within the NHS. 2 key findings →
Design: randomized controlled trial Participants: 40 Evidence: high
Full summary, score breakdown and related studies → Original source
There is small but significant increase in access to specialist palliative care services in Western Australia, specifically in patients dying with non-cancer conditions. 5 key findings →
Design: cohort study Participants: 4,928 Evidence: moderate
Full summary, score breakdown and related studies → Original source
The most common place of death in patients with dementia is the retirement or nursing home, followed by hospital and home. 3 key findings →
Design: cross-sectional Participants: 10,364 Evidence: low
Full summary, score breakdown and related studies → Original source
The paper highlights elevated levels of burden experienced by patients with palliative care requirements. 4 key findings →
Participants: 185 Evidence: low
Full summary, score breakdown and related studies → Original source
Further investments to facilitate dying at home are desirable. 2 key findings →
Participants: 135,000 Evidence: low
Full summary, score breakdown and related studies → Original source
Further guidelines should be developed to help clinicians to promptly refer terminal cancer and non-cancer patients to hospice care. 5 key findings →
Participants: 8,459 Evidence: low
Full summary, score breakdown and related studies → Original source
Optimal timing of ACP discussions should be determined by the readiness of the patient and family carer to face end of life. 2 key findings →
Design: cross-sectional Evidence: low
Full summary, score breakdown and related studies → Original source
No high-quality guidelines are available for ACP in dementia care. 1 key finding →
Participants: 24 Evidence: low
Full summary, score breakdown and related studies → Original source
Contextual factors regarding the care home environment may be obdurate and tend to negatively impact on the quality of end of life dementia care. 1 key finding →
Participants: 14 Evidence: low
Full summary, score breakdown and related studies → Original source
There were 361 deaths. Median survival was longer for residents with advanced dementia and frailty (16.5 months, 95%CI:13.5–19.5 months, P < 0.001) compared to incurable cancer (8.1 months, 95%CI:5.1–11.1 months, P < 0.001) and end-stage organ failure (7.7 months, 95%CI:3.0-12.4 months, P < 0.001). 5 key findings →
Design: cohort study Evidence: moderate
Full summary, score breakdown and related studies → Original source Free full text
The changing dynamics over a 20-year period of this palliative care programme in Kerala, India, highlights the need for similar programmes to remain flexible and adapt their services in response to a growing global burden of Non Communicable Diseases. 2 key findings →
Evidence: moderate
Full summary, score breakdown and related studies → Original source
The study cohort for the analysis of inpatient palliative care comprised 43,896 patients, while the cohort for the analysis of outpatient palliative care included a total of 37,430 patients. 5 key findings →
Participants: 37,430 Evidence: moderate
Full summary, score breakdown and related studies → Original source Free full text
We interviewed 30 participants (9 PWD, 21 carepartners). 4 key findings →
Participants: 30 Evidence: low
Full summary, score breakdown and related studies → Original source Free full text
Information on determinants of place of death can inform public health policy regarding care at the end of life and make resource allocation more efficient. 3 key findings →
Evidence: low
Full summary, score breakdown and related studies → Original source
Participants sought to feel secure by following recommended practices, manage uncertainty, avoid crises, share burdens within families, and avoid poor end-of-life experiences. 5 key findings →
Participants: 16 Evidence: moderate
Full summary, score breakdown and related studies → Original source Free full text
The Shifting Expectations narrative indicated that PwD's needs shifted to co-constructed needs with their family as PwD's independence declined. 5 key findings →
Evidence: low
Full summary, score breakdown and related studies → Original source Free full text
Healthcare assistants are frontline staff who have a key role in direct patient care, spending a considerable amount of time with patients in comparison to other health professionals. 1 key finding →
Evidence: low
Full summary, score breakdown and related studies → Original source
A mobile team that specializes in palliative care in dementia and supports professional and family caregivers is a promising model. 2 key findings →
Evidence: low
Full summary, score breakdown and related studies → Original source
The care experienced by people with dementia and their families has the potential to be improved; palliative care frameworks may have much to offer in this endeavour. 5 key findings →
Evidence: low
Full summary, score breakdown and related studies → Original source
The Interdisciplinary Care Leader role offers a promising method for supporting and improving end-of-life care discussions between families of people with advanced dementia and nursing home staff. 1 key finding →
Evidence: low
Full summary, score breakdown and related studies → Original source
When planning an improvement project in PC, services should pay particular attention to factors associated with their chosen implementation strategy. 2 key findings →
Evidence: low
Full summary, score breakdown and related studies → Original source
The results of the study identified that professionals across Europe have different opinions regarding the time point when to consider a person with dementia in need of palliative care. 2 key findings →
Evidence: low
Full summary, score breakdown and related studies → Original source
For people with dementia living and dying in care homes, EoL interventions need to provide strategies that can accommodate or "hold" the inevitable and often unresolvable uncertainties of providing and receiving care in these settings. 2 key findings →
Evidence: low
Full summary, score breakdown and related studies → Original source
Four broad areas were identified as requiring complex decisions at the end of life; 1) eating/swallowing difficulties, 2) agitation/restlessness, 3) ending life-sustaining treatment, and 4) providing "routine care" at the end of life. 3 key findings →
Evidence: low
Full summary, score breakdown and related studies → Original source
Most HCWs recognised a need for palliative care for people with PD; however several barriers to implementing a palliative care approach in this population need to be addressed. 1 key finding →
Evidence: low
Full summary, score breakdown and related studies → Original source
Free full text links and the Full text may need a subscription label come from Unpaywall, Europe PMC and OpenAlex records of free copies, checked 10 Oct 2026. A study with neither is unknown, not paywalled. Show only studies that are free to read
This is alzhub's own score. It is not an official metric, not an impact factor, and no journal, publisher or ranking body endorses it. We built it so that a reader who is not a scientist can tell a landmark trial from a conference abstract without having to already know the difference. Every point comes from one of 20 components, all of them printed on the study itself, so you can disagree with our arithmetic rather than having to trust the total.
Journals are placed in ordered tiers, never given a numeric impact factor — we could not verify current impact factors from a source we control, and an invented one would be worse than none. Tier 1 is the top-tier general journals (NEJM, The Lancet, JAMA, Nature, Science, Nature Medicine); tier 2 is the leading specialty journals; tier 3 is every other peer-reviewed journal. A separate part scores how much the journal's own papers are cited, which tells the tier-3 journals apart.
Two rules we don't bend. First, we never fill in a missing value: if a record does not state a sample size or a design, that component scores zero, and if we simply have no data for a part, such as a citation count, that part is left out and the study is scored on the parts we could check. The study card says which. Second, anything that is not a peer-reviewed article is capped at 16/100 and carries a warning chip — so a conference abstract or a company press release can never outrank a peer-reviewed paper, no matter how good it looks.
We rank a rigorous null result — a good trial showing that something does not work — above an early positive finding. Someone deciding whether to buy a supplement is served by that, and the rigour is already counted by the design and journal components.
The score is computed from the published data alone and is reproducible: the same file always yields the same numbers.
See the whole rubric drawn out → — four charts covering all 27,380 studies: how the scores are spread and where the cap bites, which of the 20 components the library is strong and weak on, which subjects rest on stronger evidence, and what kinds of study each subject is actually built from.
This is a large sample of the Alzheimer's literature, not an exhaustive index of it. It holds 27,380 records, built mostly from automated pulls of Europe PMC (60.6% of the library) and OpenAlex (18.6%), plus smaller pulls from PubMed, Crossref and medRxiv. If a study, a drug, or a finding isn't here, that is not evidence it doesn't exist in the literature — it may simply not have been pulled in yet.
1,032 records (3.8% of the library) are not peer-reviewed — 962 of those are preprints posted before any journal review, and the rest are conference abstracts, regulatory notices and reports. Every study card on this page states its status plainly, and the score above is capped for anything that isn't a peer-reviewed article.
See the full, machine-readable breakdown of this library's coverage →