27,780 Alzheimer's and dementia studies in plain English, each scored out of 100.
Proactive interventions from a palliative care consultant within this subset of patients improved end-of-life care and decreased use of superfluous resources. 2 key findings →
Participants: 26 Evidence: low
Full summary, score breakdown and related studies → Original source
Better communication, greater resident comfort, no tube feeding, and care in a specialized dementia unit are modifiable factors that may improve satisfaction with care in advanced dementia. 4 key findings →
Design: cross-sectional Evidence: low
Full summary, score breakdown and related studies → Original source
Health and social care professionals can build on people's preferences for informal planning by exploring the assumptions underlying them, providing information about the possible illness trajectory and discussing the options of care available. 1 key finding →
Participants: 17 Evidence: low
Full summary, score breakdown and related studies → Original source
Qualitative methods of service evaluation facilitated a broader and deeper understanding of a range of perspectives, which, with other components of rapid participatory appraisal, generated potential solutions to improve care. 1 key finding →
Participants: 50 Evidence: low
Full summary, score breakdown and related studies → Original source
For older people living with a diagnosis of dementia, the experience of living and dying in a care home is inextricably linked. 2 key findings →
Participants: 18 Evidence: low
Full summary, score breakdown and related studies → Original source
Qualitative methodology based on action research identified challenges when caring for persons with advanced dementia, as perceived by key professional providers. 5 key findings →
Participants: 24 Evidence: low
Full summary, score breakdown and related studies → Original source
Four themes were identified: Making the transition; Competence challenged; 'The long view' and Working together. 4 key findings →
Participants: 58 Evidence: low
Full summary, score breakdown and related studies → Original source
This small non-randomized study is the first end-of-life care in dementia intervention to report an increase in family satisfaction with a reduction in hospital deaths. 2 key findings →
Evidence: high
Full summary, score breakdown and related studies → Original source
ACP is a multifactorial process, which may lean on professional caregivers' guidance. 2 key findings →
Participants: 26 Evidence: low
Full summary, score breakdown and related studies → Original source
We found no papers that informed the 'cultural aspects of care' domain. 2 key findings →
Evidence: low
Full summary, score breakdown and related studies → Original source
The decision-support intervention piloted in this study was feasible and relevant for surrogate decision-makers of persons with advanced dementia in NHs, and it improved quality of communication between SDM and NH providers. 1 key finding →
Evidence: high
Full summary, score breakdown and related studies → Original source
Advance care planning can assist patients to achieve a sense of control and 'peace of mind' and facilitates important family discussion. 2 key findings →
Design: cross-sectional Evidence: low
Full summary, score breakdown and related studies → Original source
Dementia and cancer occur commonly in older adults. 1 key finding →
Design: narrative review Evidence: low
Full summary, score breakdown and related studies → Original source
Consultations appear to reduce acute care use and (potentially) burdensome transitions for dying residents with dementia. 1 key finding →
Evidence: low
Full summary, score breakdown and related studies → Original source
Case conferencing provides opportunities to improve care palliative care outcomes for older people with dementia by engaging family and all relevant internal and external health providers in prospective care planning. 4 key findings →
Evidence: high
Full summary, score breakdown and related studies → Original source
Our results show that regarding end-of-life preferences for patients, there is moderate agreement between patients and their spouses, but limited evidence for projection of spouses' preferences on patients (i.e. spouse making a prediction based on own wishes). 2 key findings →
Design: cross-sectional Evidence: low
Full summary, score breakdown and related studies → Original source
To understand family members' perspectives on person- and family-centered end-of-life care provided to nursing home (NH) residents with advanced dementia, we conducted a qualitative follow-up interview with 16 respondents who had participated in an earlier prospective study, Choices, Attitudes, and Strategies for Care of Advance Dementia at End of Life (CASCADE). 1 key finding →
Participants: 16 Evidence: low
Full summary, score breakdown and related studies → Original source
This study highlights the need for nursing homes to employ specialist nurses who have been trained in the appropriate knowledge and skills to deal with the challenges of end-of-life care for people with advanced dementia and pain. 2 key findings →
Evidence: low
Full summary, score breakdown and related studies → Original source
Engagement in advance care planning might be hindered if it is too medicalized and exclusively patient-centered. 1 key finding →
Evidence: low
Full summary, score breakdown and related studies → Original source
Patients who survive to the final phase of dementia are more likely to die from cachexia or dehydration than those who die before. 1 key finding →
Evidence: moderate
Full summary, score breakdown and related studies → Original source
Family caregivers of nursing home residents with dementia received an educational booklet and a family care conference with a trained facilitator to discuss their relative's future care. 3 key findings →
Evidence: low
Full summary, score breakdown and related studies → Original source
When an individual has dementia, family members are involved in many care transitions in their roles as caregivers. 1 key finding →
Participants: 24 Evidence: low
Full summary, score breakdown and related studies → Original source
Written by leaders of six established comprehensive dementia-care programs (including Care Ecosystem, MIND at Home, and BRI Care Consultation) that helped shape the CMS GUIDE model, this paper lays out a practical four-step roadmap for organizations trying to launch or sustain comprehensive dementia care programs like GUIDE. 3 key findings →
Evidence: moderate
Full summary, score breakdown and related studies → Original source
While providing home care for a family member with senile dementia is clearly extremely stressful, there has been little controlled research assessing the specific effects of this stress on caregiver psychological, social, and health functioning. 3 key findings →
Evidence: low
Full summary, score breakdown and related studies → Original source Full text may need a subscription
Frontotemporal dementia (FTD) is the second most prevalent dementia after Alzheimer's disease (AD). 2 key findings →
Evidence: low
Full summary, score breakdown and related studies → Original source Full text may need a subscription
9 of the 1,002 studies in this tag, picked by a fixed rule (a hash of each study's address), not by score or date; each page of this list shows a different 9. The same 9 appear here every time.
Free full text links and the Full text may need a subscription label come from Unpaywall, Europe PMC and OpenAlex records of free copies, checked 10 Oct 2026. A study with neither is unknown, not paywalled. Show only studies that are free to read
This is alzhub's own score. It is not an official metric, not an impact factor, and no journal, publisher or ranking body endorses it. We built it so that a reader who is not a scientist can tell a landmark trial from a conference abstract without having to already know the difference. Every point comes from one of 20 components, all of them printed on the study itself, so you can disagree with our arithmetic rather than having to trust the total.
Journals are placed in ordered tiers, never given a numeric impact factor — we could not verify current impact factors from a source we control, and an invented one would be worse than none. Tier 1 is the top-tier general journals (NEJM, The Lancet, JAMA, Nature, Science, Nature Medicine); tier 2 is the leading specialty journals; tier 3 is every other peer-reviewed journal. A separate part scores how much the journal's own papers are cited, which tells the tier-3 journals apart.
Two rules we don't bend. First, we never fill in a missing value: if a record does not state a sample size or a design, that component scores zero, and if we simply have no data for a part, such as a citation count, that part is left out and the study is scored on the parts we could check. The study card says which. Second, anything that is not a peer-reviewed article is capped at 16/100 and carries a warning chip — so a conference abstract or a company press release can never outrank a peer-reviewed paper, no matter how good it looks.
We rank a rigorous null result — a good trial showing that something does not work — above an early positive finding. Someone deciding whether to buy a supplement is served by that, and the rigour is already counted by the design and journal components.
The score is computed from the published data alone and is reproducible: the same file always yields the same numbers.
See the whole rubric drawn out → — four charts covering all 27,780 studies: how the scores are spread and where the cap bites, which of the 20 components the library is strong and weak on, which subjects rest on stronger evidence, and what kinds of study each subject is actually built from.
This is a large sample of the Alzheimer's literature, not an exhaustive index of it. It holds 27,780 records, built mostly from automated pulls of Europe PMC (61.1% of the library) and OpenAlex (18.3%), plus smaller pulls from PubMed, Crossref and medRxiv. If a study, a drug, or a finding isn't here, that is not evidence it doesn't exist in the literature — it may simply not have been pulled in yet.
1,034 records (3.7% of the library) are not peer-reviewed — 962 of those are preprints posted before any journal review, and the rest are conference abstracts, regulatory notices and reports. Every study card on this page states its status plainly, and the score above is capped for anything that isn't a peer-reviewed article.
See the full, machine-readable breakdown of this library's coverage →