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Research

27,380 Alzheimer's and dementia studies in plain English, each scored out of 100.

Find studies

Showing 1–25 of 65 studies in Health systems and care delivery (page 1 of 3) · 27,380 in the whole library · How the 0–100 score works

Showing 65 studies tagged home — clear

Browse by subject, author or institution

Each number is how many studies that link shows, with your other filters kept.

Other subjects

Authors

Names as each record prints them; the same person can appear under two spellings.

Institutions

From OpenAlex; 12,859 studies have no institution on record and are not counted here.

What “Health systems and care delivery” covers

Health systems and care delivery — How health systems organise, coordinate and pay for dementia care, and where and how people with dementia actually receive it.

A note on reading research. One study is rarely the final word.

We try to note the size of a study, whether it was in humans or animals, and how early-stage the finding is. If a summary here doesn't make that clear, treat it with extra caution and check the original source.

Care Ecosystem Collaborative Model and Health Care Costs in Medicare Beneficiaries With Dementia: A Secondary Analysis of a Randomized Clinical Trial

✓ Peer-reviewed alzhub usefulness score 65 out of 100. JAMA internal medicine 2023-09-18

Collaborative dementia care programs are effective in addressing the needs of patients with dementia and their caregivers. 3 key findings →

Participants: 780 Evidence: high

Full summary, score breakdown and related studies → Original source

The Use of Telehealth Among People Living With Dementia-Caregiver Dyads During the COVID-19 Pandemic: Scoping Review

✓ Peer-reviewed alzhub usefulness score 60 out of 100. Journal of medical Internet research 2023-05-25

The inclusion criteria for peer-reviewed English publications from March 2020 to August 2022 consisted of studies related to telehealth services for people living with dementia and their family caregivers and studies conducted during the COVID-19 pandemic. 5 key findings →

Design: randomized controlled trial Participants: 24 Evidence: high

Full summary, score breakdown and related studies → Original source

Risk of Discharge to Lower-Quality Nursing Homes Among Hospitalized Older Adults With Alzheimer Disease and Related Dementias

✓ Peer-reviewed alzhub usefulness score 56 out of 100. JAMA Network Open 2023-02-08

The sample included 2 619 464 patients (mean [SD] age, 81.3 [8.6] years; 61% women; 87% were White; 8% were Black; 22% with ADRD). 5 key findings →

Design: cross-sectional Participants: 464 Evidence: low

Full summary, score breakdown and related studies → Original source Free full text

Health Care Costs of Alzheimer’s and Related Dementias Within a Medicare Managed Care Provider

✓ Peer-reviewed alzhub usefulness score 54 out of 100. Medical Care 2020-07-23

Total monthly health care costs for individuals with ADRD are statistically greater (P<0.05) than controls beginning in the third month before diagnosis and remain significantly greater through the eighth month following diagnosis. 4 key findings →

Design: cohort study Participants: 927 Evidence: moderate

Full summary, score breakdown and related studies → Original source Free full text

Factors associated with the place of death of persons with advanced dementia: A systematic review of international literature with meta-analysis

✓ Peer-reviewed alzhub usefulness score 54 out of 100. Palliative medicine 2024-08-02

Many individuals with advanced dementia die in hospital, despite preferring home death. 1 key finding →

Design: systematic review Evidence: high

Full summary, score breakdown and related studies → Original source Free full text

Dying with dementia in Medicare Advantage, Accountable Care Organizations, or traditional Medicare

✓ Peer-reviewed alzhub usefulness score 53 out of 100. Journal of the American Geriatrics Society 2021-05-14

Among 370,094 persons with dementia, 93,801 (25.4%) were in MA (mean age [SD], 86.9 [7.7], 67.6% female), 39,586 (10.7%) were ACO attributed (mean age [SD], 87.2 [7.6], 67.3% female), and 236,707 (63.9%) were in TM (mean age [SD], 87.0 [7.8], 67.6% female). 5 key findings →

Participants: 370,094 Evidence: low

Full summary, score breakdown and related studies → Original source Free full text

Patient and Caregiver Benefit From a Comprehensive Dementia Care Program: 1‐Year Results From the UCLA Alzheimer's and Dementia Care Program

✓ Peer-reviewed alzhub usefulness score 52 out of 100. Journal of the American Geriatrics Society 2019-07-29

At year 1, persons with ADRD improved on all scales, except MMSE and functional status measures; caregivers improved on all scales. 5 key findings →

Participants: 554 Evidence: low

Full summary, score breakdown and related studies → Original source Free full text

A population-based retrospective cohort study of end-of-life emergency department visits by people with dementia: multilevel modelling of individual- and service-level factors using linked data

✓ Peer-reviewed alzhub usefulness score 51 out of 100. Age and Ageing 2023-03-01

of 74,486 decedents (60.5% women; mean age 87.1 years (standard deviation: 7.1)), 82.6% had at least one ED visit in their last year of life. 3 key findings →

Design: cohort study Evidence: moderate

Full summary, score breakdown and related studies → Original source Free full text

Mechanical Ventilation and Survival in Patients With Advanced Dementia in Medicare Advantage

✓ Peer-reviewed alzhub usefulness score 51 out of 100. Journal of pain and symptom management 2022-02-20

Medicare Advantage (MA) cares for an increasing proportion of traditional Medicare (TM) patients although, the association of MA on low-value care among hospitalized patients is uncertain. 3 key findings →

Design: retrospective cohort Participants: 147,153 Evidence: moderate

Full summary, score breakdown and related studies → Original source

Place of Death of Older Persons with Dementia. A Study in Five European Countries

✓ Peer-reviewed alzhub usefulness score 49 out of 100. Journal of the American Geriatrics Society 2010-04-01

The aging of the European population will lead to a rapid increase in dementia cases in the coming decades, posing challenges for the organization and provision of end-of-life care. 2 key findings →

Evidence: low

Full summary, score breakdown and related studies → Original source Free full text

Pain Impacting Quality of Life in Persons with Dementia Dying in the Nursing Home by Alternative Medicare Payment Model

✓ Peer-reviewed alzhub usefulness score 46 out of 100. Journal of Palliative Medicine 2022-06-08

There were 115,757 NH residents with dementia who self-reported pain in the last 30 days of life. 5 key findings →

Participants: 20,585 Evidence: low

Full summary, score breakdown and related studies → Original source Free full text

Population‐based Dementia Identification and Care Coordination: The CS CARES Program

✓ Peer-reviewed alzhub usefulness score 46 out of 100. Alzheimer s & Dementia 2023-12-01

PLWD proactively enrolled in a dementia care program have high baseline rates of behavioral issues and their caregivers have elevated depression and stress scores. 2 key findings →

Design: longitudinal study Participants: 195 Evidence: moderate

Full summary, score breakdown and related studies → Original source Free full text

Barriers and Facilitators for Implementing a Dementia Family Caregiver Support Strategy Among Latinos in Primary Care

✓ Peer-reviewed alzhub usefulness score 46 out of 100. Journal of applied gerontology : the official journal of the Southern Gerontological Society 2025-10-18

Latino family caregivers of people with dementia face significant challenges and limited access to support. 1 key finding →

Evidence: low

Full summary, score breakdown and related studies → Original source

The perspectives of people with dementia on their future, end of life and on being cared for by others: A qualitative study

✓ Peer-reviewed alzhub usefulness score 44 out of 100. Journal of Clinical Nursing 2021-01-15

Five overarching themes derived from the interviews were as follows: (a) My life still has value and meaning, (b) I am my own unique individual, (c) I place my trust in other people, (d) The future worries me, and (e) I accept and embrace what life brings. 5 key findings →

Evidence: low

Full summary, score breakdown and related studies → Original source Free full text

Cost–Benefit Analysis of the COPE Program for Persons Living With Dementia: Toward a Payment Model

✓ Peer-reviewed alzhub usefulness score 44 out of 100. Innovation in Aging 2021-10-16

Per-dyad mean cost savings at 12 months were $2 354 for those who received COPE with a mean difference-in-difference of -$6 667 versus HCBS alone (95% CI: -$15 473, $2 734; not statistically significant). 4 key findings →

Evidence: low

Full summary, score breakdown and related studies → Original source Free full text

Advance care planning and quality of life: A qualitative interview study in people with young-onset dementia and their family caregivers

✓ Peer-reviewed alzhub usefulness score 43 out of 100. Palliative Medicine 2025-03-15

Four themes were found: sense of self, connection to others, acceptance versus resistance in the face of adversity, and orientation toward the future versus focus on the present. 5 key findings →

Evidence: low

Full summary, score breakdown and related studies → Original source Free full text

Nursing home manager's knowledge, attitudes and beliefs about advance care planning for people with dementia in long‐term care settings: a cross‐sectional survey

✓ Peer-reviewed alzhub usefulness score 43 out of 100. Journal of Clinical Nursing 2017-02-09

Whilst nursing home managers recognise the potential benefits of advance care planning, barriers and challenges create a reluctance to facilitate. 3 key findings →

Participants: 178 Evidence: low

Full summary, score breakdown and related studies → Original source Free full text

Assessment of changes in place of death of older adults who died from dementia in the United States, 2000–2014: a time-series cross-sectional analysis

✓ Peer-reviewed alzhub usefulness score 42 out of 100. BMC Public Health 2020-06-10

Dementia decedents were more likely to die at home and other places and less likely to die at institutional settings over the study period. 5 key findings →

Evidence: low

Full summary, score breakdown and related studies → Original source Free full text

Trends in the use of advance care planning and cognitive assessment and care planning service visits: moving toward a palliative‐informed approach for ambulatory care of community‐dwelling persons with dementia and their caregivers

✓ Peer-reviewed alzhub usefulness score 42 out of 100. Alzheimer s & Dementia 2025-04-01

For 2018 and 2019, 3.5% and 5.4% received ACP visits, and 0.4% and 0.5% received CAACPS visits, similar to use reported elsewhere. 5 key findings →

Evidence: low

Full summary, score breakdown and related studies → Original source Free full text

How to create value with unobtrusive monitoring technology in home-based dementia care: a multimethod study among key stakeholders

✓ Peer-reviewed alzhub usefulness score 41 out of 100. BMC geriatrics 2022-12-01

The overall design-oriented need referred to clear situation classifications including urgent care (fall- and wandering detection), non-urgent care (deviations in eating, drinking, sleeping), and future care (risk predictions). 2 key findings →

Participants: 25 Evidence: low

Full summary, score breakdown and related studies → Original source

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Where “Free full text” comes from

Free full text links and the Full text may need a subscription label come from Unpaywall, Europe PMC and OpenAlex records of free copies, checked 10 Oct 2026. A study with neither is unknown, not paywalled. Show only studies that are free to read

How the 0–100 score works — and why some entries are capped

This is alzhub's own score. It is not an official metric, not an impact factor, and no journal, publisher or ranking body endorses it. We built it so that a reader who is not a scientist can tell a landmark trial from a conference abstract without having to already know the difference. Every point comes from one of 20 components, all of them printed on the study itself, so you can disagree with our arithmetic rather than having to trust the total.

  • Journal tier up to 10 pts
  • Journal's citation record up to 4 pts
  • Study design up to 12 pts
  • Strength of evidence up to 5 pts
  • Peer-review validation up to 10 pts
  • How recent up to 5 pts
  • Sample size up to 4 pts
  • Effect reported up to 3 pts
  • Studied in people up to 3 pts
  • Randomised / blinded up to 2 pts
  • Times cited up to 7 pts
  • Citations per year up to 5 pts
  • Impact for its field and year up to 6 pts
  • Cited by studies here up to 6 pts
  • Still being cited up to 4 pts
  • Senior author's track record up to 4 pts
  • Institution's track record up to 3 pts
  • Multi-centre collaboration up to 3 pts
  • Indexed in PubMed up to 2 pts
  • Free to read up to 2 pts

Journals are placed in ordered tiers, never given a numeric impact factor — we could not verify current impact factors from a source we control, and an invented one would be worse than none. Tier 1 is the top-tier general journals (NEJM, The Lancet, JAMA, Nature, Science, Nature Medicine); tier 2 is the leading specialty journals; tier 3 is every other peer-reviewed journal. A separate part scores how much the journal's own papers are cited, which tells the tier-3 journals apart.

Two rules we don't bend. First, we never fill in a missing value: if a record does not state a sample size or a design, that component scores zero, and if we simply have no data for a part, such as a citation count, that part is left out and the study is scored on the parts we could check. The study card says which. Second, anything that is not a peer-reviewed article is capped at 16/100 and carries a warning chip — so a conference abstract or a company press release can never outrank a peer-reviewed paper, no matter how good it looks.

We rank a rigorous null result — a good trial showing that something does not work — above an early positive finding. Someone deciding whether to buy a supplement is served by that, and the rigour is already counted by the design and journal components.

The score is computed from the published data alone and is reproducible: the same file always yields the same numbers.

See the whole rubric drawn out → — four charts covering all 27,380 studies: how the scores are spread and where the cap bites, which of the 20 components the library is strong and weak on, which subjects rest on stronger evidence, and what kinds of study each subject is actually built from.

What this library is — and isn't

This is a large sample of the Alzheimer's literature, not an exhaustive index of it. It holds 27,380 records, built mostly from automated pulls of Europe PMC (60.6% of the library) and OpenAlex (18.6%), plus smaller pulls from PubMed, Crossref and medRxiv. If a study, a drug, or a finding isn't here, that is not evidence it doesn't exist in the literature — it may simply not have been pulled in yet.

1,032 records (3.8% of the library) are not peer-reviewed — 962 of those are preprints posted before any journal review, and the rest are conference abstracts, regulatory notices and reports. Every study card on this page states its status plainly, and the score above is capped for anything that isn't a peer-reviewed article.

See the full, machine-readable breakdown of this library's coverage →

Newest studies, as a dated timeline →    Atom feed