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Research

30,980 Alzheimer's and dementia studies in plain English, each scored out of 100.

Find studies

Showing 26–50 of 142 studies in End-of-life care · free to read (page 2 of 6) · 30,980 in the whole library · How the 0–100 score works

Download bibliography of these 142 studies, in this order: BibTeX (.bib) · RIS (.ris)

Browse by subject, author or institution

Each number is how many studies that link shows, with your other filters kept.

Other subjects

Authors

Names as each record prints them; the same person can appear under two spellings.

Institutions

From OpenAlex; 16,452 studies have no institution on record and are not counted here.

What “End-of-life care” covers

End-of-life care — Hospice, palliative care and end-of-life decision-making for people living with dementia.

A note on reading research. One study is rarely the final word.

We try to note the size of a study, whether it was in humans or animals, and how early-stage the finding is. If a summary here doesn't make that clear, treat it with extra caution and check the original source.

Free-Text Responses in a Nationally Representative Experimental Survey about End-of-Life Care Choices: ChatGPT-4o-Assisted Qualitative Analytical Study

✓ Peer-reviewed alzhub usefulness score 46 out of 100. JMIR Aging 2025-09-22

We identified several key themes: surrogates more often chose comfort care for care recipients with dementia, particularly at advanced stages. 5 key findings →

Participants: 3,931 Evidence: low

Full summary, score breakdown and related studies → Original source Free full text

Supporting decision making for individuals living with dementia and their care partners with knowledge translation: An umbrella review

✓ Peer-reviewed alzhub usefulness score 46 out of 100. Alzheimer s & Dementia 2025-09-01

Living with dementia requires decision making about numerous topics including daily activities and advance care planning (ACP). 1 key finding →

Design: umbrella review Participants: 21 Evidence: low

Full summary, score breakdown and related studies → Original source Free full text

Feasibility, acceptability, and preliminary efficacy protocol of an intervention for caregivers of hospice patients living with dementia: A pilot randomized control trial

✓ Peer-reviewed alzhub usefulness score 45 out of 100. PLoS ONE 2025-11-03

We have enrolled 29 clinicians and 53 FCPs and aim to have 24 clinicians matched with 96 FCPs (N = 120) to complete the intervention. 3 key findings →

Participants: 120 Evidence: high

Full summary, score breakdown and related studies → Original source Free full text

Physical and psychosocial benefits of an interdisciplinary end-of-life care model for older adults in residential care homes in Hong Kong

✓ Peer-reviewed alzhub usefulness score 45 out of 100. International Psychogeriatrics 2026-01-01

Pre-post evaluations revealed significant reductions in physical symptoms, psychosocial-spiritual distresses and information insufficiency of patients in the first three months of service. 4 key findings →

Participants: 567 Evidence: high

Full summary, score breakdown and related studies → Original source Free full text

Virtual, Nurse-Led Early Primary Palliative Care Intervention (ELICIT) for Community-Dwelling Older Adults With Cognitive Impairment: Protocol for a Randomized Controlled Trial

✓ Peer-reviewed alzhub usefulness score 45 out of 100. JMIR Research Protocols 2025-12-24

As of October 2025, we have recruited 200 participants. 4 key findings →

Participants: 200 Evidence: high

Full summary, score breakdown and related studies → Original source Free full text

Differences in survival and healthcare utilization amongst nursing home residents with advanced dementia and frailty compared to other end-of-life conditions: a retrospective cohort study

✓ Peer-reviewed alzhub usefulness score 45 out of 100. BMC Palliative Care 2025-12-07

There were 361 deaths. Median survival was longer for residents with advanced dementia and frailty (16.5 months, 95%CI:13.5–19.5 months, P < 0.001) compared to incurable cancer (8.1 months, 95%CI:5.1–11.1 months, P < 0.001) and end-stage organ failure (7.7 months, 95%CI:3.0-12.4 months, P < 0.001). 5 key findings →

Design: cohort study Evidence: moderate

Full summary, score breakdown and related studies → Original source Free full text

Key informants’ perceptions of telehealth palliative care for people living with dementia in nursing homes

✓ Peer-reviewed alzhub usefulness score 44 out of 100. BMC Geriatrics 2025-03-19

(n = 14) included NH administrators and other leaders, palliative care providers, telehealth representatives, dementia advocates, a care partner, and a PLWD. 5 key findings →

Participants: 14 Evidence: low

Full summary, score breakdown and related studies → Original source Free full text

Dementia as a predictor of palliative care: Uncovering patient patterns based on German claims data

✓ Peer-reviewed alzhub usefulness score 44 out of 100. BMC Palliative Care 2025-02-18

The study cohort for the analysis of inpatient palliative care comprised 43,896 patients, while the cohort for the analysis of outpatient palliative care included a total of 37,430 patients. 5 key findings →

Participants: 37,430 Evidence: moderate

Full summary, score breakdown and related studies → Original source Free full text

Suffering and loss in Lewy body dementia: Applying a palliative care lens to a longitudinal narrative study

✓ Peer-reviewed alzhub usefulness score 44 out of 100. Palliative & Supportive Care 2025-01-01

Participants with Lewy body dementia described losses associated with communication, continence, and energy leading to a progressive loss of independence. 5 key findings →

Design: longitudinal study Evidence: moderate

Full summary, score breakdown and related studies → Original source Free full text

Expanding the Boundaries of Palliative Care: Diseases of the Nervous System and Survival Prognosis in Home-Based Programs

✓ Peer-reviewed alzhub usefulness score 44 out of 100. American Journal of Hospice and Palliative Medicine® 2025-12-22

DNS conditions, particularly dementia, were associated with longer survival among non-oncologic HBPC patients. 4 key findings →

Design: cohort study Evidence: moderate

Full summary, score breakdown and related studies → Original source Free full text

Emergency Departments Leading the Transformation of Alzheimer's and Dementia Care

✓ Peer-reviewed alzhub usefulness score 44 out of 100. Journal of the American Geriatrics Society 2026-05-07

More than 50% of older adults with AD/ADRD visit the emergency department (ED) each year [3, 4] and those who do are seriously ill, have significant healthcare costs (e.g., hospital admissions, repeat ED visits) and mortality [4-6]. 5 key findings →

Evidence: high

Full summary, score breakdown and related studies → Original source Free full text

Contrasting Approaches in Advance Care Planning in Dementia as Perceived by General Practitioners

✓ Peer-reviewed alzhub usefulness score 44 out of 100. Innovation in Aging 2025-12-01

Various approaches to advance care planning are in use and generally acceptable also for persons with dementia and their care partners. 1 key finding →

Design: randomized controlled trial Evidence: high

Full summary, score breakdown and related studies → Original source Free full text

Palliative Care in the Community and the Relevance of Percutaneous Endoscopic Gastrostomy Placement to Quality of Life and Survival

✓ Peer-reviewed alzhub usefulness score 43 out of 100. Journal of dementia and Alzheimer's disease 2025-03-01

The statistical analysis revealed that the survival time was significantly longer in females compared to males (p = 0.003). 5 key findings →

Design: cohort study Participants: 54 Evidence: moderate

Full summary, score breakdown and related studies → Original source Free full text

Advance care planning with people living with dementia: ethical considerations of physicians in the United States and the Netherlands

✓ Peer-reviewed alzhub usefulness score 42 out of 100. The Journals of Gerontology Series B 2025-08-21

Interviews with 50 Dutch physicians and 47 American physicians and 3 nurse practitioners generated three themes of ethical considerations: (1) Respecting the autonomy of the person with dementia, (2) Rationality as the basis for decisions and subsequent actions, and (3) Minimizing burden and suffering. 3 key findings →

Evidence: low

Full summary, score breakdown and related studies → Original source Free full text

Trends in palliative care utilization among older adult decedents with and without cancer in Taiwan: a population-based comparative study

✓ Peer-reviewed alzhub usefulness score 42 out of 100. The Lancet Regional Health - Western Pacific 2025-01-28

The proportion of palliative utilization in cancer deaths started at 21.7% in 2010 and increased to 63.2% by 2020 with the beta coefficient of 0.09 (95% CI: 0.09-0.09). 5 key findings →

Evidence: low

Full summary, score breakdown and related studies → Original source Free full text

How bereaved adult-children of parents with dementia use end-of-life caregiving experiences to inform their personal advance care planning

✓ Peer-reviewed alzhub usefulness score 42 out of 100. The Journals of Gerontology Series B 2026-05-20

Participants actively contemplated ACP following their parents' death, referring to their end-of-life caregiving experiences as guideposts for issues to anticipate and opportunities to enhance receipt of healthcare during serious illness or incapacitation. 5 key findings →

Participants: 32 Evidence: low

Full summary, score breakdown and related studies → Original source Free full text

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Where “Free full text” comes from

Free full text links and the Full text may need a subscription label come from Unpaywall, Europe PMC and OpenAlex records of free copies, checked 10 Oct 2026. A study with neither is unknown, not paywalled.

How the 0–100 score works — and why some entries are capped

This is alzhub's own score. It is not an official metric, not an impact factor, and no journal, publisher or ranking body endorses it. We built it so that a reader who is not a scientist can tell a landmark trial from a conference abstract without having to already know the difference. Every point comes from one of 20 components, all of them printed on the study itself, so you can disagree with our arithmetic rather than having to trust the total.

  • Journal tier up to 10 pts
  • Journal's citation record up to 4 pts
  • Study design up to 12 pts
  • Strength of evidence up to 5 pts
  • Peer-review validation up to 10 pts
  • How recent up to 5 pts
  • Sample size up to 4 pts
  • Effect reported up to 3 pts
  • Studied in people up to 3 pts
  • Randomised / blinded up to 2 pts
  • Times cited up to 7 pts
  • Citations per year up to 5 pts
  • Impact for its field and year up to 6 pts
  • Cited by studies here up to 6 pts
  • Still being cited up to 4 pts
  • Senior author's track record up to 4 pts
  • Institution's track record up to 3 pts
  • Multi-centre collaboration up to 3 pts
  • Indexed in PubMed up to 2 pts
  • Free to read up to 2 pts

Journals are placed in ordered tiers, never given a numeric impact factor — we could not verify current impact factors from a source we control, and an invented one would be worse than none. Tier 1 is the top-tier general journals (NEJM, The Lancet, JAMA, Nature, Science, Nature Medicine); tier 2 is the leading specialty journals; tier 3 is every other peer-reviewed journal. A separate part scores how much the journal's own papers are cited, which tells the tier-3 journals apart.

Two rules we don't bend. First, we never fill in a missing value: if a record does not state a sample size or a design, that component scores zero, and if we simply have no data for a part, such as a citation count, that part is left out and the study is scored on the parts we could check. The study card says which. Second, anything that is not a peer-reviewed article is capped at 16/100 and carries a warning chip — so a conference abstract or a company press release can never outrank a peer-reviewed paper, no matter how good it looks.

We rank a rigorous null result — a good trial showing that something does not work — above an early positive finding. Someone deciding whether to buy a supplement is served by that, and the rigour is already counted by the design and journal components.

The score is computed from the published data alone and is reproducible: the same file always yields the same numbers.

See the whole rubric drawn out → — four charts covering all 30,980 studies: how the scores are spread and where the cap bites, which of the 20 components the library is strong and weak on, which subjects rest on stronger evidence, and what kinds of study each subject is actually built from.

What this library is — and isn't

This is a large sample of the Alzheimer's literature, not an exhaustive index of it. It holds 30,980 records, built mostly from automated pulls of Europe PMC (65.2% of the library) and OpenAlex (16.4%), plus smaller pulls from PubMed, Crossref and medRxiv. If a study, a drug, or a finding isn't here, that is not evidence it doesn't exist in the literature — it may simply not have been pulled in yet.

1,040 records (3.4% of the library) are not peer-reviewed — 965 of those are preprints posted before any journal review, and the rest are conference abstracts, regulatory notices and reports. Every study card on this page states its status plainly, and the score above is capped for anything that isn't a peer-reviewed article.

See the full, machine-readable breakdown of this library's coverage →

Newest studies, as a dated timeline →    Atom feed    Where this research is being discussed: events