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Newest in this topic

  1. Is there a role for artificial intelligence in end-of-life care for persons with dementia? Perspectives of and recommendations by caregivers and hospice staff 2026-09-17
  2. Online Peer Support Use Among Informal Caregivers of People Living With Alzheimer Disease or Related Dementias: National Cross-Sectional Web-Based Survey 2026-09-07
  3. Interconnected Challenges in Dementia Caregiving: A Co-occurrence Network Analysis of Burden, Unmet Needs, and System Failures Among Caregivers 2026-08-17

Studies

1,013 studies carry this tag; 1,012 of them have a date.

Date range

1986 to 2026

Top journals

  • Journal of the American Geriatrics Society 63
  • The Gerontologist 48
  • Alzheimer s & Dementia 28
  • International psychogeriatrics 28
  • Journal of the American Medical Directors Association 26

339 journals in all.

Newest first, then by address. Each study has a usefulness score out of 100 (rubric version 4.0); tap a score to see what makes it up. Tags were assigned automatically from each study's title and summary. The same studies as a filter in the library.

  1. Potentially Inappropriate Prescribing in Australian Nursing Home Residents with Advanced Dementia: A Substudy of the IDEAL Study

    ✓ Peer-reviewed alzhub usefulness score 55 out of 100. Journal of palliative medicine 2018-08-14 Treatments

    Use of potentially inappropriate medications in Australian nursing home residents with advanced dementia is common.

  2. Advance Care Planning in Cognitively Impaired Older Adults

    ✓ Peer-reviewed alzhub usefulness score 38 out of 100. Journal of the American Geriatrics Society 2018-08-01 End-of-life care

    Older adults with cognitive impairment face many healthcare challenges, chief among them participating in medical decision-making about their own health care.

  3. Quality of end-of-life care in patients with dementia compared to patients with cancer: A population-based register study

    ✓ Peer-reviewed alzhub usefulness score 52 out of 100. PloS one 2018-07-30 End-of-life care

    A subgroup of patients with Alzheimer's disease was identified and compared to patients with other and unspecified types of dementia.

  4. Estimating the survival of elderly patients diagnosed with dementia in Taiwan: A longitudinal study

    ✓ Peer-reviewed alzhub usefulness score 69 out of 100. PloS one 2018-07-25 End-of-life care

    The survival prediction model demonstrated moderate accuracy for predicting mortality at 6 and 12 months before death in elderly patients with dementia.

  5. Key mechanisms of action were: improved observation and awareness of residents, collaborative assessment, comprehensive 'picture of the person', systematic record keeping, improved review and monitoring, care planning and changes to care provision, and facilitated multi-agency communication.

  6. An Advance Care Planning Video Decision Support Tool for Nursing Home Residents With Advanced Dementia: A Cluster Randomized Clinical Trial

    ✓ Peer-reviewed alzhub usefulness score 81 out of 100. JAMA internal medicine 2018-07-01 End-of-life care

    The mean age of the 402 study residents was 86.7 years [range, 67-102 years]; 350 were white (87.1%) and 323 were female (80.3%), with DNH directives that by 6 months did not differ between arms (63% in both arms; adjusted odds ratio [AOR], 1.08; 95% CI, 0.69-1.69).

  7. Concordance between Goals of Care and Treatment Decisions for Persons with Dementia

    ✓ Peer-reviewed alzhub usefulness score 67 out of 100. Journal of palliative medicine 2018-06-29 End-of-life care

    Most families chose comfort as the primary GOC.

  8. Hospital outcomes of older people with cognitive impairment: An integrative review

    ✓ Peer-reviewed alzhub usefulness score 49 out of 100. International journal of geriatric psychiatry 2018-06-26 Caregiving

    Older people with cognitive impairment have a higher risk of a variety of negative outcomes in hospital.

  9. Advance care planning in dementia: recommendations for healthcare professionals

    ✓ Peer-reviewed alzhub usefulness score 48 out of 100. BMC palliative care 2018-06-21 End-of-life care

    No high-quality guidelines are available for ACP in dementia care.

  10. Barriers and facilitators for GPs in dementia advance care planning: A systematic integrative review

    ✓ Peer-reviewed alzhub usefulness score 62 out of 100. PloS one 2018-06-20 End-of-life care

    Discussing future care is difficult due to uncertainties about the future and the decisional capacities of people with dementia.

  11. Internet-Based Interventions Aimed at Supporting Family Caregivers of People With Dementia: Systematic Review

    ✓ Peer-reviewed alzhub usefulness score 70 out of 100. Journal of medical Internet research 2018-06-12 Caregiving

    Although mixed, the results indicate a positive response for the use of internet-based interventions by caregivers.

  12. Association of Clinical Outcomes With Surgical Repair of Hip Fracture vs Nonsurgical Management in Nursing Home Residents With Advanced Dementia

    ✓ Peer-reviewed alzhub usefulness score 71 out of 100. JAMA internal medicine 2018-06-01 End-of-life care

    Surgical repair of a hip fracture was associated with lower mortality among NH residents with advanced dementia and should be considered together with the residents' goals of care in management decisions.

  13. Place of death in patients with dementia and the association with comorbidities: a retrospective population-based observational study in Germany

    ✓ Peer-reviewed alzhub usefulness score 64 out of 100. BMC palliative care 2018-05-24 End-of-life care

    The most common place of death in patients with dementia is the retirement or nursing home, followed by hospital and home.

  14. Current policy emphasises the importance of 'living well' with dementia, but there has been no comprehensive synthesis of the factors related to quality of life (QoL), subjective well-being or life satisfaction in people with dementia.

  15. A Web-Based Intervention to Help Caregivers of Older Adults With Dementia and Multiple Chronic Conditions: Qualitative Study

    ✓ Peer-reviewed alzhub usefulness score 56 out of 100. JMIR aging 2018-04-23 Treatments

    Recent evidence suggests that Web-based interventions have the potential to support caregivers by decreasing caregiver stress and burden.

  16. The experiences and preparedness of family carers for best interest decision-making of a relative living with advanced dementia: A qualitative study

    ✓ Peer-reviewed alzhub usefulness score 64 out of 100. Journal of advanced nursing 2018-04-20 End-of-life care

    The experiences and preparedness of informal carers is a reflection of their personal response, but the distress experienced highlights the significant need of adequate support availability and of enhancing nursing staffs' dementia expertise to maximize their role in facilitating best interest decision-making.

  17. Reminiscence therapy for dementia

    ✓ Peer-reviewed alzhub usefulness score 75 out of 100. The Cochrane database of systematic reviews 2018-03-01 Caregiving

    We undertook subgroup analysis by setting (community versus care home) and by modality (individual versus group).

  18. Association between palliative care and life-sustaining treatments for patients with dementia: A nationwide 5-year cohort study

    ✓ Peer-reviewed alzhub usefulness score 67 out of 100. Palliative medicine 2018-01-18 End-of-life care

    Palliative care is related to reduced life-sustaining treatments for patients with dementia.

  19. Caring for a family member or friend with dementia at the end of life: A scoping review and implications for palliative care practice

    ✓ Peer-reviewed alzhub usefulness score 38 out of 100. Palliative medicine 2018-01-18 End-of-life care

    Palliative care services would benefit from ensuring holistic approaches to supporting people with dementia, their carers and wider family networks.

  20. From Research to Application: Supportive and Therapeutic Environments for People Living With Dementia

    ✓ Peer-reviewed alzhub usefulness score 38 out of 100. The Gerontologist 2018-01-01 End-of-life care

    The evidence about the role the designed and built environment plays in supporting individuals living with dementia has been steadily mounting for almost 40 years.

  21. Long-Term Care Workforce Issues: Practice Principles for Quality Dementia Care

    ✓ Peer-reviewed alzhub usefulness score 38 out of 100. The Gerontologist 2018-01-01 End-of-life care

    Although not all settings currently require attention to the principles described, this article proposes these principles as best practice recommendations.

  22. A Novel Screening Method to Identify Late-Stage Dementia Patients for Palliative Care Research and Practice

    ✓ Peer-reviewed alzhub usefulness score 67 out of 100. Journal of pain and symptom management 2017-12-27 End-of-life care

    A novel method using an EHR phenotype plus brief medical record review is effective to identify hospitalized patients with late-stage dementia.

  23. Advance Care Planning in Community-Dwelling Patients With Dementia

    ✓ Peer-reviewed alzhub usefulness score 52 out of 100. Journal of pain and symptom management 2017-12-14 End-of-life care

    Our findings support need for greater ACP discussions between patients and proxies.

  24. Needs of people with advanced dementia in their final phase of life: A multi-perspective qualitative study in nursing homes

    ✓ Peer-reviewed alzhub usefulness score 45 out of 100. Palliative medicine 2017-12-13 End-of-life care

    People with advanced dementia in their final phase of life have a multitude of individual and complex needs.

  25. Palliative care for advanced dementia: Knowledge and attitudes of long-term care staff

    ✓ Peer-reviewed alzhub usefulness score 53 out of 100. Journal of clinical nursing 2017-12-13 End-of-life care

    This study indicates the need to provide nurses and nursing assistants with more information about palliative care practice for people with advanced dementia.

  26. Hospice Care for Patients With Dementia in the United States: A Longitudinal Cohort Study

    ✓ Peer-reviewed alzhub usefulness score 69 out of 100. Journal of the American Medical Directors Association 2017-11-16 End-of-life care

    Patients with dementia are significantly more likely to be disenrolled from hospice following a long enrollment period compared with patients without dementia.

  27. Preparedness for Death: How Caregivers of Elders With Dementia Define and Perceive its Value

    ✓ Peer-reviewed alzhub usefulness score 38 out of 100. The Gerontologist 2017-11-01 End-of-life care

    Only one third (n = 10) of caregivers interviewed were prepared for the death, and the majority who were prepared were enrolled in hospice.

  28. The experience of psychological distress in family caregivers of people with dementia: A cross-sectional study

    ✓ Peer-reviewed alzhub usefulness score 38 out of 100. Perspectives in psychiatric care 2017-10-27 End-of-life care

    About half of the caregivers had significant levels of psychological distress.

  29. Unravelling positive aspects of caregiving in dementia: An integrative review of research literature

    ✓ Peer-reviewed alzhub usefulness score 70 out of 100. International journal of nursing studies 2017-10-16 Caregiving

    The findings of this review provide insight into catalysing the paradigm shift from 'reducing stress' to 'optimising positive experience' in developing caregiving support services for dementia, and may guide future empirical study to explain this unique dimension of caregiving experience.

  30. End-of-life care: A qualitative study comparing the views of people with dementia and family carers

    ✓ Peer-reviewed alzhub usefulness score 38 out of 100. Palliative medicine 2017-10-12 End-of-life care

    Seven areas were identified as important to end-of-life care for people with dementia and/or family carers.

  31. Dying comfortably in very old age with or without dementia in different care settings - a representative "older old" population study

    ✓ Peer-reviewed alzhub usefulness score 53 out of 100. BMC geriatrics 2017-10-05 End-of-life care

    These findings are consistent with reports that care homes can provide care akin to hospice for the very old and support an approach of supporting residents to stay in their care home or own home if possible.

  32. Barriers to palliative care for advanced dementia: a scoping review

    ✓ Peer-reviewed alzhub usefulness score 38 out of 100. Annals of palliative medicine 2017-10-01 End-of-life care

    People with dementia often fail to receive palliative care, despite increased recognition of their need and eligibility for such care.

  33. Effectiveness and Safety of Dementia Care Management in Primary Care: A Randomized Clinical Trial

    ✓ Peer-reviewed alzhub usefulness score 74 out of 100. JAMA psychiatry 2017-10-01 Caregiving

    The mean age of 634 patients was 80 years.

  34. The advance care planning experiences of people with dementia, family caregivers and professionals: a synthesis of the qualitative literature

    ✓ Peer-reviewed alzhub usefulness score 38 out of 100. Annals of palliative medicine 2017-10-01 End-of-life care

    There exists compelling evidence that advance care planning (ACP) remains a key factor in the delivery of appropriate end of life care and facilitates the timely transition to palliative care for people with dementia.

  35. Psychosocial behaviour management programme for home-dwelling people with dementia: A cluster-randomized controlled trial

    ✓ Peer-reviewed alzhub usefulness score 57 out of 100. International journal of geriatric psychiatry 2017-08-31 Treatments

    Little is known about the effectiveness of a psychosocial behaviour management programme on home-dwelling people with dementia.

  36. Predictors of emergency department attendance by people with dementia in their last year of life: Retrospective cohort study using linked clinical and administrative data

    ✓ Peer-reviewed alzhub usefulness score 71 out of 100. Alzheimer's & dementia : the journal of the Alzheimer's Association 2017-08-22 End-of-life care

    ED attendance in the last year of life for people with dementia is common and is increasing.

  37. Dementia Caregiver Burden: a Research Update and Critical Analysis

    ✓ Peer-reviewed alzhub usefulness score 54 out of 100. Current psychiatry reports 2017-08-10 Getting a diagnosis

    This article provides an updated review of the determinants of caregiver burden and depression, with a focus on care demands and especially the differential effects of various neuropsychiatric symptoms or symptom clusters.

  38. Effectiveness of advance care planning with family carers in dementia nursing homes: A paired cluster randomized controlled trial

    ✓ Peer-reviewed alzhub usefulness score 72 out of 100. Palliative medicine 2017-08-08 End-of-life care

    Advance care planning was effective in reducing family carer uncertainty in decision-making concerning the care of their family member and improving perceptions of quality of care in nursing homes.

  39. Level of Care Preferences Among Nursing Home Residents With Advanced Dementia

    ✓ Peer-reviewed alzhub usefulness score 78 out of 100. Journal of pain and symptom management 2017-08-08 End-of-life care

    Most proxies select comfort as the preferred level of care for NH residents with advanced dementia.

  40. Effects of facilitated family case conferencing for advanced dementia: A cluster randomised clinical trial

    ✓ Peer-reviewed alzhub usefulness score 74 out of 100. PloS one 2017-08-07 End-of-life care

    FCC facilitates a palliative approach to care.

  41. The Effectiveness of Advance Care Planning in Improving End-of-Life Outcomes for People With Dementia and Their Carers: A Systematic Review and Critical Discussion

    ✓ Peer-reviewed alzhub usefulness score 72 out of 100. Journal of pain and symptom management 2017-08-05 End-of-life care

    There is a need for more high-quality outcome studies, particularly using randomized designs to control for confounding.

  42. Our multidimensional intervention in long-term care facilities for patients with terminal dementia resulted in improved quality of care and quality of dying when compared to usual care.

  43. A systematic review of the prevalence of comorbid cancer and dementia and its implications for cancer-related care

    ✓ Peer-reviewed alzhub usefulness score 69 out of 100. Aging & mental health 2017-07-18 End-of-life care

    There is a dearth of good-quality evidence investigating the cancer-dementia prevalence and its implications for successful cancer treatment.

  44. Better palliative care for people with a dementia: summary of interdisciplinary workshop highlighting current gaps and recommendations for future research

    ✓ Peer-reviewed alzhub usefulness score 41 out of 100. BMC palliative care 2017-07-14 End-of-life care

    The care experienced by people with dementia and their families has the potential to be improved; palliative care frameworks may have much to offer in this endeavour.

  45. Implementation was feasible to differing degrees across sites, dependent on context.

  46. Overview of systematic reviews: Effective home support in dementia care, components and impacts-Stage 1, psychosocial interventions for dementia

    ✓ Peer-reviewed alzhub usefulness score 38 out of 100. Journal of advanced nursing 2017-07-07 Prevention trials

    There was a lack of definitive evidence of effectiveness for most psychosocial interventions.

  47. Experiences of end of life amongst family carers of people with advanced dementia: longitudinal cohort study with mixed methods

    ✓ Peer-reviewed alzhub usefulness score 57 out of 100. BMC geriatrics 2017-07-03 End-of-life care

    Regular health status updates and end of life discussions can help families understand dementia progression and prepare for end of life.

  48. The facilitated approach explored in this study addressed known barriers to case conferencing.

  49. A qualitative study exploring the difficulties influencing decision making at the end of life for people with dementia

    ✓ Peer-reviewed alzhub usefulness score 41 out of 100. Health expectations : an international journal of public participation in health care and health policy 2017-06-22 End-of-life care

    This study suggests that decision making at the end of life for people with dementia has the potential to be improved.

  50. The significant challenges of providing good end of life care for people with dementia requires that different forms of expertise should be recognised and used; including the skills and knowledge of care assistants.

From across this tag

9 of the 1,002 studies in this tag, picked by a fixed rule (a hash of each study's address), not by score or date; each page of this list shows a different 9. The same 9 appear here every time.

All topic tags with their study counts