27,780 Alzheimer's and dementia studies in plain English, each scored out of 100.
Even among patients with early cognitive impairment seen in specialty clinics and their caregivers, most were unaware of the decisions they could face, and there were many barriers to planning for these decisions. 2 key findings →
Evidence: low
Full summary, score breakdown and related studies → Original source
The ongoing change in long-term care from institutional care to housing services causes major challenges to the continuity of end-of-life care. 1 key finding →
Evidence: low
Full summary, score breakdown and related studies → Original source
The American Society for Parenteral and Enteral Nutrition (ASPEN) Position Paper focus is on applying the 4 ethical principles for clinician's decision-making in the use of artificially administered nutrition and hydration (AANH) for adult and pediatric patients. 5 key findings →
Evidence: low
Full summary, score breakdown and related studies → Original source
This qualitative study about the experiences and perceptions of family carers of people with a chronic life-limiting illness living at home regarding the collaboration with different healthcare providers in the last phase life, showed that family carers experience a lot of possibilities, but perceive missed opportunities as well, for healthcare professionals to effectively collaborate with them for palliative care. 2 key findings →
Evidence: low
Full summary, score breakdown and related studies → Original source
ACP practices are evolving. 1 key finding →
Evidence: low
Full summary, score breakdown and related studies → Original source
The results of the study identified that professionals across Europe have different opinions regarding the time point when to consider a person with dementia in need of palliative care. 2 key findings →
Evidence: low
Full summary, score breakdown and related studies → Original source
For people with dementia living and dying in care homes, EoL interventions need to provide strategies that can accommodate or "hold" the inevitable and often unresolvable uncertainties of providing and receiving care in these settings. 2 key findings →
Evidence: low
Full summary, score breakdown and related studies → Original source
In this article we aim to present these recommendations and to invite professionals to consider these important issues and to contribute towards a broader discussion. 1 key finding →
Evidence: low
Full summary, score breakdown and related studies → Original source
Four broad areas were identified as requiring complex decisions at the end of life; 1) eating/swallowing difficulties, 2) agitation/restlessness, 3) ending life-sustaining treatment, and 4) providing "routine care" at the end of life. 3 key findings →
Evidence: low
Full summary, score breakdown and related studies → Original source
Over 40% of US NH decedents have mild-to-moderately severe or advanced dementia. 2 key findings →
Evidence: low
Full summary, score breakdown and related studies → Original source
The aim of the present study was to clarify the processes of decision making and end-of-life care for patients with dementia in the group homes in Japan. 5 key findings →
Evidence: low
Full summary, score breakdown and related studies → Original source
Most HCWs recognised a need for palliative care for people with PD; however several barriers to implementing a palliative care approach in this population need to be addressed. 1 key finding →
Evidence: low
Full summary, score breakdown and related studies → Original source
International experts selected a set of 23 QIs for the organisation of palliative care. 1 key finding →
Evidence: low
Full summary, score breakdown and related studies → Original source
When caring for people with severe Alzheimer's disease (AD), the concept of the person being central is increasingly advocated in clinical practice and academia as an approach to deliver high-quality care. 5 key findings →
Evidence: low
Full summary, score breakdown and related studies → Original source
Antimicrobial treatment of suspected pneumonia episodes is associated with prolonged survival but not with improved comfort in nursing home residents with advanced dementia. 4 key findings →
Evidence: low
Full summary, score breakdown and related studies → Original source
Some indicators imply a less than optimal quality of care (restraints, pressure sores, psychoactive drugs, and the lack of documentation of shared decision-making) and suggest that far advanced demented patients are not fully perceived as "terminal." 2 key findings →
Evidence: low
Full summary, score breakdown and related studies → Original source
Alzheimer’s disease (AD), a devastating neurodegenerative disorder, is the leading cause of dementia in the U.S. and in other developed countries. 5 key findings →
Evidence: low
Full summary, score breakdown and related studies → Original source
84 (4.8%) had NGT procedure flags. Of these 84, 28 (33%) died during admission. 5 key findings →
Participants: 1,765 Evidence: moderate
Full summary, score breakdown and related studies → Original source Full text may need a subscription
A greater number of needs (B=.42), polypharmacy (B=.33), and unmanaged symptoms (B=.31) significantly predicted higher triage priority (p<.001). 1 key finding →
Participants: 461 Evidence: low
Full summary, score breakdown and related studies → Original source Free full text
Interprofessional case conferences may lead to more awareness regarding gaps in primary palliative care, one's own care routines or a lack of psychosocial support. 5 key findings →
Evidence: high
Full summary, score breakdown and related studies → Original source Free full text
The 29-item needs assessment showed strong internal consistency, with a mean Cronbach’s alpha of .89 and McDonald’s omega of .90. 2 key findings →
Design: cross-sectional Evidence: low
Full summary, score breakdown and related studies → Original source Free full text
End-of-life topics were discussed in 36% of consultations (in regional hospitals, 53%; in academic settings, 27%), and predominantly during diagnostic consultations (54%). 5 key findings →
Evidence: low
Full summary, score breakdown and related studies → Original source Free full text
In this narrative, a third-year medical student recounts an experience with a patient she had while accompanying hospice and palliative workers on home visits. 4 key findings →
Evidence: low
Full summary, score breakdown and related studies → Original source
Palliative care is an approach to the care of patients, affected by serious illness, and their families that aims to reduce suffering through the management of medical symptoms, psychosocial issues, spiritual well-being, and setting goals of care. 1 key finding →
Evidence: low
Full summary, score breakdown and related studies → Original source
With the growing care needs for the older population at the end of their lives, there has been a substantial increase in attention to the management of the patient with dementia in hospice and palliative care services. 4 key findings →
Evidence: low
Full summary, score breakdown and related studies → Original source
Free full text links and the Full text may need a subscription label come from Unpaywall, Europe PMC and OpenAlex records of free copies, checked 10 Oct 2026. A study with neither is unknown, not paywalled. Show only studies that are free to read
This is alzhub's own score. It is not an official metric, not an impact factor, and no journal, publisher or ranking body endorses it. We built it so that a reader who is not a scientist can tell a landmark trial from a conference abstract without having to already know the difference. Every point comes from one of 20 components, all of them printed on the study itself, so you can disagree with our arithmetic rather than having to trust the total.
Journals are placed in ordered tiers, never given a numeric impact factor — we could not verify current impact factors from a source we control, and an invented one would be worse than none. Tier 1 is the top-tier general journals (NEJM, The Lancet, JAMA, Nature, Science, Nature Medicine); tier 2 is the leading specialty journals; tier 3 is every other peer-reviewed journal. A separate part scores how much the journal's own papers are cited, which tells the tier-3 journals apart.
Two rules we don't bend. First, we never fill in a missing value: if a record does not state a sample size or a design, that component scores zero, and if we simply have no data for a part, such as a citation count, that part is left out and the study is scored on the parts we could check. The study card says which. Second, anything that is not a peer-reviewed article is capped at 16/100 and carries a warning chip — so a conference abstract or a company press release can never outrank a peer-reviewed paper, no matter how good it looks.
We rank a rigorous null result — a good trial showing that something does not work — above an early positive finding. Someone deciding whether to buy a supplement is served by that, and the rigour is already counted by the design and journal components.
The score is computed from the published data alone and is reproducible: the same file always yields the same numbers.
See the whole rubric drawn out → — four charts covering all 27,780 studies: how the scores are spread and where the cap bites, which of the 20 components the library is strong and weak on, which subjects rest on stronger evidence, and what kinds of study each subject is actually built from.
This is a large sample of the Alzheimer's literature, not an exhaustive index of it. It holds 27,780 records, built mostly from automated pulls of Europe PMC (61.1% of the library) and OpenAlex (18.3%), plus smaller pulls from PubMed, Crossref and medRxiv. If a study, a drug, or a finding isn't here, that is not evidence it doesn't exist in the literature — it may simply not have been pulled in yet.
1,034 records (3.7% of the library) are not peer-reviewed — 962 of those are preprints posted before any journal review, and the rest are conference abstracts, regulatory notices and reports. Every study card on this page states its status plainly, and the score above is capped for anything that isn't a peer-reviewed article.
See the full, machine-readable breakdown of this library's coverage →