registry

Newest first, then by address. Each study has a usefulness score out of 100 (rubric version 4.0); tap a score to see what makes it up. Tags were assigned automatically from each study's title and summary. The same studies as a filter in the library.

1. 59/100

   Towards a national registry for Alzheimer's disease and related dementias: rationale, design, and initial observations of the ABOARD cohort

   ✓ Peer-reviewed alzhub usefulness score 59 out of 100. Alzheimer's research & therapy · 2025-05-31 · Cognitive tests and assessment

   The ABOARD Cohort has been set up as a national infrastructure to study ADRD disease trajectories, linking data-sources, with the participant at the steering wheel.

2. 57/100

   Remote blood collection from older adults in the Brain Health Registry for plasma biomarker and genetic analysis

   ✓ Peer-reviewed alzhub usefulness score 57 out of 100. Alzheimer's & dementia : the journal of the Alzheimer's Association · 2022-02-28 · Biomarkers

   This study demonstrates the challenges of remote blood collection from a large representative sample of older adults.

   • Biomarkers
   • Genetics
3. 66/100

   Cognitive Performance in Parkinson's Disease in the Brain Health Registry

   ✓ Peer-reviewed alzhub usefulness score 66 out of 100. Journal of Alzheimer's disease : JAD · 2019-01-01 · Cognitive tests and assessment

   The study of cognition in Parkinson's disease (PD) traditionally requires exhaustive recruitment strategies.

   • Diagnosis
   • Other Dementias
4. 39/100

   Adherence to Clinical Practice Guidelines during Dementia Work-Up in a Real-World Setting: A Study from the Registry of Dementias of Girona

   ✓ Peer-reviewed alzhub usefulness score 39 out of 100. Journal of Alzheimer's disease : JAD · 2017-01-01 · Biomarkers

   The adherence to CPG in the catchment area of the ReDeGi is high, and an epidemiological surveillance system such as the ReDeGi may help in improving it.

All topic tags with their study counts