Get help now — free helplines

You can call any of these for free. You do not need a diagnosis, an appointment, or a crisis to call — questions and plain exhaustion are reasons enough.

  • Alzheimer's Association 24/7 Helpline 800-272-3900 24 hours a day, 365 days a year Free, confidential support and information for people with dementia, caregivers, families and the public. Master's-level clinicians. Also Spanish.
  • 988 Suicide & Crisis Lifeline 988 24/7 Call or text 988, or chat at 988lifeline.org. For anyone in emotional distress or a mental-health crisis, including caregivers.
  • Alzheimer's Foundation of America (AFA) Helpline 866-232-8484 9:00 am - 9:00 pm ET, seven days a week Licensed social workers providing support, info and referrals. Also text message and web chat. Text: 646-586-5283

In a medical emergency, call 911. More numbers, and what each line does, on the help page.

Every row

Showing 1 of 382 rows for Undiagnosed or delayed diagnosis. One row per study per exposure: a study that tested two different things appears twice, once for each.

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Research and outcomes, 1 row. Every row links to its source.
Exposure Question Direction Outcome measured Design People Effect size, as the source reported it Source
Undiagnosed or delayed diagnosis Care, carers and services Treatment Harm
why

Direction is for going undiagnosed. Whether the diagnosis itself would change survival is not tested here.

4-year mortality cohort study 13,142 45.1% (US) and 76.1% (Brazil) of dementia cases undiagnosed; the abstract states undiagnosed dementia was associated with increased 4-year mortality compared with no dementia in both countries, without giving a hazard ratio Alzheimer's & Dementia 2026
✓ Peer-reviewed PMID 42056069

How this table was built, and where it is weak →

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