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% 0 entries have no readable author in the source record and carry no author field.

@article{brazil2018-28786323,
  author  = {Brazil, K. and Carter, G. and Cardwell, C. and Clarke, M. and Hudson, P. and Froggatt, K. and McLaughlin, D. and Passmore, P. and others},
  title   = {{Effectiveness of advance care planning with family carers in dementia nursing homes: A paired cluster randomized controlled trial}},
  journal = {Palliative medicine},
  year    = {2018},
  doi     = {10.1177/0269216317722413},
  pmid    = {28786323},
  url     = {https://doi.org/10.1177/0269216317722413}
}

@article{sampson2011-21228087,
  author  = {Sampson, E. L. and Jones, L. and Thuné-Boyle, I. C. and Kukkastenvehmas, R. and King, M. and Leurent, B. and Tookman, A. and Blanchard, M. R.},
  title   = {{Palliative assessment and advance care planning in severe dementia: an exploratory randomized controlled trial of a complex intervention}},
  journal = {Palliative medicine},
  year    = {2011},
  doi     = {10.1177/0269216310391691},
  pmid    = {21228087},
  url     = {https://doi.org/10.1177/0269216310391691}
}

@article{browne2021-34137314,
  author  = {Browne, B. and Kupeli, N. and Moore, K. J. and Sampson, E. L. and Davies, N.},
  title   = {{Defining end of life in dementia: A systematic review}},
  journal = {Palliative medicine},
  year    = {2021},
  doi     = {10.1177/02692163211025457},
  pmid    = {34137314},
  url     = {https://doi.org/10.1177/02692163211025457}
}

@article{miranda2019-31057088,
  author  = {Miranda, R. and Bunn, F. and Lynch, J. and Van den Block, L. and Goodman, C.},
  title   = {{Palliative care for people with dementia living at home: A systematic review of interventions}},
  journal = {Palliative medicine},
  year    = {2019},
  doi     = {10.1177/0269216319847092},
  pmid    = {31057088},
  url     = {https://doi.org/10.1177/0269216319847092}
}

@article{chen2018-29343186,
  author  = {Chen, P. J. and Liang, F. W. and Ho, C. H. and Cheng, S. Y. and Chen, Y. C. and Chen, Y. H.},
  title   = {{Association between palliative care and life-sustaining treatments for patients with dementia: A nationwide 5-year cohort study}},
  journal = {Palliative medicine},
  year    = {2018},
  doi     = {10.1177/0269216317751334},
  pmid    = {29343186},
  url     = {https://doi.org/10.1177/0269216317751334}
}

@article{rosenwax2015-25783598,
  author  = {Rosenwax, L. and Spilsbury, K. and Arendts, G. and McNamara, B. and Semmens, J.},
  title   = {{Community-based palliative care is associated with reduced emergency department use by people with dementia in their last year of life: A retrospective cohort study}},
  journal = {Palliative medicine},
  year    = {2015},
  doi     = {10.1177/0269216315576309},
  pmid    = {25783598},
  url     = {https://doi.org/10.1177/0269216315576309}
}

@article{kars2016-26577927,
  author  = {Kars, M. C. and van Thiel, G. J. and van der Graaf, R. and Moors, M. and de Graeff, A. and van Delden, J. J.},
  title   = {{A systematic review of reasons for gatekeeping in palliative care research}},
  journal = {Palliative medicine},
  year    = {2016},
  doi     = {10.1177/0269216315616759},
  pmid    = {26577927},
  url     = {https://doi.org/10.1177/0269216315616759}
}

@article{dixon2015-26060176,
  author  = {Dixon, J. and Matosevic, T. and Knapp, M.},
  title   = {{The economic evidence for advance care planning: Systematic review of evidence}},
  journal = {Palliative medicine},
  year    = {2015},
  doi     = {10.1177/0269216315586659},
  pmid    = {26060176},
  url     = {https://doi.org/10.1177/0269216315586659}
}

@article{brown2013-23175514,
  author  = {Brown, M. A. and Sampson, E. L. and Jones, L. and Barron, A. M.},
  title   = {{Prognostic indicators of 6-month mortality in elderly people with advanced dementia: a systematic review}},
  journal = {Palliative medicine},
  year    = {2013},
  doi     = {10.1177/0269216312465649},
  pmid    = {23175514},
  url     = {https://doi.org/10.1177/0269216312465649}
}

@article{black2016-26857358,
  author  = {Black, H. and Waugh, C. and Munoz-Arroyo, R. and Carnon, A. and Allan, A. and Clark, D. and Graham, F. and Isles, C.},
  title   = {{Predictors of place of death in South West Scotland 2000-2010: Retrospective cohort study}},
  journal = {Palliative medicine},
  year    = {2016},
  doi     = {10.1177/0269216315627122},
  pmid    = {26857358},
  url     = {https://doi.org/10.1177/0269216315627122}
}

@article{tenkoppel2019-31258004,
  author  = {Ten Koppel, M. and Onwuteaka-Philipsen, B. D. and Van den Block, L. and Deliens, L. and Gambassi, G. and Heymans, M. W. and Kylänen, M. and Oosterveld-Vlug, M. G. and others},
  title   = {{Palliative care provision in long-term care facilities differs across Europe: Results of a cross-sectional study in six European countries (PACE)}},
  journal = {Palliative medicine},
  year    = {2019},
  doi     = {10.1177/0269216319861229},
  pmid    = {31258004},
  url     = {https://doi.org/10.1177/0269216319861229}
}

@article{evans2014-24642671,
  author  = {Evans, N. and Pasman, H. R. and Donker, G. A. and Deliens, L. and Van den Block, L. and Onwuteaka-Philipsen, B. and EUROIMPACT},
  title   = {{End-of-life care in general practice: A cross-sectional, retrospective survey of 'cancer', 'organ failure' and 'old-age/dementia' patients}},
  journal = {Palliative medicine},
  year    = {2014},
  doi     = {10.1177/0269216314526271},
  pmid    = {24642671},
  url     = {https://doi.org/10.1177/0269216314526271}
}

@article{gomes2018-29235927,
  author  = {Gomes, B. and Pinheiro, M. J. and Lopes, S. and de Brito, M. and Sarmento, V. P. and Lopes Ferreira, P. and Barros, H.},
  title   = {{Risk factors for hospital death in conditions needing palliative care: Nationwide population-based death certificate study}},
  journal = {Palliative medicine},
  year    = {2018},
  doi     = {10.1177/0269216317743961},
  pmid    = {29235927},
  url     = {https://doi.org/10.1177/0269216317743961}
}

@article{sampson2018-28922625,
  author  = {Sampson, E. L. and Candy, B. and Davis, S. and Gola, A. B. and Harrington, J. and King, M. and Kupeli, N. and Leavey, G. and others},
  title   = {{Living and dying with advanced dementia: A prospective cohort study of symptoms, service use and care at the end of life}},
  journal = {Palliative medicine},
  year    = {2018},
  doi     = {10.1177/0269216317726443},
  pmid    = {28922625},
  url     = {https://doi.org/10.1177/0269216317726443}
}

@article{gomezbatiste2014-24403380,
  author  = {Gómez-Batiste, X. and Martínez-Muñoz, M. and Blay, C. and Amblàs, J. and Vila, L. and Costa, X. and Espaulella, J. and Espinosa, J. and others},
  title   = {{Prevalence and characteristics of patients with advanced chronic conditions in need of palliative care in the general population: a cross-sectional study}},
  journal = {Palliative medicine},
  year    = {2014},
  doi     = {10.1177/0269216313518266},
  pmid    = {24403380},
  url     = {https://doi.org/10.1177/0269216313518266}
}

@article{riyin2024-39092850,
  author  = {RiYin, Tay and Ys, Tan Joyce and BinYan, Lim and Ym, Hum Allyn and Jane, Simpson and Nancy, Preston},
  title   = {{Factors associated with the place of death of persons with advanced dementia: A systematic review of international literature with meta-analysis}},
  journal = {Palliative medicine},
  year    = {2024},
  doi     = {10.1177/02692163241265231},
  pmid    = {39092850},
  url     = {https://doi.org/10.1177/02692163241265231}
}

@article{sleeman2013-23737036,
  author  = {Sleeman, K. E. and Ho, Y. K. and Verne, J. and Glickman, M. and Silber, E. and Gao, W. and Higginson, I. J. and {GUIDE\_Care Project}},
  title   = {{Place of death, and its relation with underlying cause of death, in Parkinson's disease, motor neurone disease, and multiple sclerosis: a population-based study}},
  journal = {Palliative medicine},
  year    = {2013},
  doi     = {10.1177/0269216313490436},
  pmid    = {23737036},
  url     = {https://doi.org/10.1177/0269216313490436}
}

@article{perrels2014-24317193,
  author  = {Perrels, A. J. and Fleming, J. and Zhao, J. and Barclay, S. and Farquhar, M. and Buiting, H. M. and Brayne, C.},
  title   = {{Place of death and end-of-life transitions experienced by very old people with differing cognitive status: retrospective analysis of a prospective population-based cohort aged 85 and over}},
  journal = {Palliative medicine},
  year    = {2014},
  doi     = {10.1177/0269216313510341},
  pmid    = {24317193},
  url     = {https://doi.org/10.1177/0269216313510341}
}

@article{payne2022-35114839,
  author  = {Payne, S. and Harding, A. and Williams, T. and Ling, J. and Ostgathe, C.},
  title   = {{Revised recommendations on standards and norms for palliative care in Europe from the European Association for Palliative Care (EAPC): A Delphi study}},
  journal = {Palliative medicine},
  year    = {2022},
  doi     = {10.1177/02692163221074547},
  pmid    = {35114839},
  url     = {https://doi.org/10.1177/02692163221074547}
}

@article{formiga2007-17169958,
  author  = {Formiga, F. and Olmedo, C. and López-Soto, A. and Navarro, M. and Culla, A. and Pujol, R.},
  title   = {{Dying in hospital of terminal heart failure or severe dementia: the circumstances associated with death and the opinions of caregivers}},
  journal = {Palliative medicine},
  year    = {2007},
  doi     = {10.1177/0269216306073256},
  pmid    = {17169958},
  url     = {https://doi.org/10.1177/0269216306073256}
}

@article{dening2013-23128905,
  author  = {Dening, K. H. and Jones, L. and Sampson, E. L.},
  title   = {{Preferences for end-of-life care: a nominal group study of people with dementia and their family carers}},
  journal = {Palliative medicine},
  year    = {2013},
  doi     = {10.1177/0269216312464094},
  pmid    = {23128905},
  url     = {https://doi.org/10.1177/0269216312464094}
}

@article{jones2016-26354388,
  author  = {Jones, L. and Candy, B. and Davis, S. and Elliott, M. and Gola, A. and Harrington, J. and Kupeli, N. and Lord, K. and others},
  title   = {{Development of a model for integrated care at the end of life in advanced dementia: A whole systems UK-wide approach}},
  journal = {Palliative medicine},
  year    = {2016},
  doi     = {10.1177/0269216315605447},
  pmid    = {26354388},
  url     = {https://doi.org/10.1177/0269216315605447}
}

@article{verreault2018-28731379,
  author  = {Verreault, R. and Arcand, M. and Misson, L. and Durand, P. J. and Kroger, E. and Aubin, M. and Savoie, M. and Hadjistavropoulos, T. and others},
  title   = {{Quasi-experimental evaluation of a multifaceted intervention to improve quality of end-of-life care and quality of dying for patients with advanced dementia in long-term care institutions}},
  journal = {Palliative medicine},
  year    = {2018},
  doi     = {10.1177/0269216317719588},
  pmid    = {28731379},
  url     = {https://doi.org/10.1177/0269216317719588}
}

@article{byock1998-9743822,
  author  = {Byock, I. R. and Merriman, M. P.},
  title   = {{Measuring quality of life for patients with terminal illness: the Missoula-VITAS quality of life index}},
  journal = {Palliative medicine},
  year    = {1998},
  doi     = {10.1191/026921698670234618},
  pmid    = {9743822},
  url     = {https://doi.org/10.1191/026921698670234618}
}

@article{pivodic2018-30273519,
  author  = {Pivodic, L. and Smets, T. and Van den Noortgate, N. and Onwuteaka-Philipsen, B. D. and Engels, Y. and Szczerbińska, K. and Finne-Soveri, H. and Froggatt, K. and others},
  title   = {{Quality of dying and quality of end-of-life care of nursing home residents in six countries: An epidemiological study}},
  journal = {Palliative medicine},
  year    = {2018},
  doi     = {10.1177/0269216318800610},
  pmid    = {30273519},
  url     = {https://doi.org/10.1177/0269216318800610}
}

@article{vanrickstal2019-31342861,
  author  = {Van Rickstal, R. and De Vleminck, A. and Aldridge, M. D. and Morrison, SR. and Koopmans, R. T. and van der Steen, J. T. and Engelborghs, S. and Van den Block, L.},
  title   = {{Limited engagement in, yet clear preferences for advance care planning in young-onset dementia: An exploratory interview-study with family caregivers}},
  journal = {Palliative medicine},
  year    = {2019},
  doi     = {10.1177/0269216319864777},
  pmid    = {31342861},
  url     = {https://doi.org/10.1177/0269216319864777}
}

@article{vansoestpoortvliet2015-25690602,
  author  = {van Soest-Poortvliet, M. C. and van der Steen, J. T. and de Vet, H. C. and Hertogh, C. M. and Deliens, L. and Onwuteaka-Philipsen, B. D.},
  title   = {{Comfort goal of care and end-of-life outcomes in dementia: A prospective study}},
  journal = {Palliative medicine},
  year    = {2015},
  doi     = {10.1177/0269216315570409},
  pmid    = {25690602},
  url     = {https://doi.org/10.1177/0269216315570409}
}

@article{ellissmith2017-28618899,
  author  = {Ellis-Smith, C. and Evans, C. J. and Murtagh, F. E. and Henson, L. A. and Firth, A. M. and Higginson, I. J. and Daveson, B. A. and BuildCARE},
  title   = {{Development of a caregiver-reported measure to support systematic assessment of people with dementia in long-term care: The Integrated Palliative care Outcome Scale for Dementia}},
  journal = {Palliative medicine},
  year    = {2017},
  doi     = {10.1177/0269216316675096},
  pmid    = {28618899},
  url     = {https://doi.org/10.1177/0269216316675096}
}

@article{schmidt2018-29235393,
  author  = {Schmidt, H. and Eisenmann, Y. and Golla, H. and Voltz, R. and Perrar, K. M.},
  title   = {{Needs of people with advanced dementia in their final phase of life: A multi-perspective qualitative study in nursing homes}},
  journal = {Palliative medicine},
  year    = {2018},
  doi     = {10.1177/0269216317746571},
  pmid    = {29235393},
  url     = {https://doi.org/10.1177/0269216317746571}
}

@article{maters2025-40088124,
  author  = {Maters, Jasper and Perry, Marieke and de Wit, Ton and Koopmans, Raymond T.C.M. and de Vugt, Marjolein Elizabeth and Bakker, Christian and van der Steen, Jenny Theodora},
  title   = {{Advance care planning and quality of life: A qualitative interview study in people with young-onset dementia and their family caregivers}},
  journal = {Palliative Medicine},
  year    = {2025},
  doi     = {10.1177/02692163251324796},
  pmid    = {40088124},
  url     = {https://doi.org/10.1177/02692163251324796}
}

@article{vandersteen2014-23828874,
  author  = {van der Steen, J. T. and Radbruch, L. and Hertogh, C. M. and de Boer, M. E. and Hughes, J. C. and Larkin, P. and Francke, A. L. and Jünger, S. and others},
  title   = {{White paper defining optimal palliative care in older people with dementia: a Delphi study and recommendations from the European Association for Palliative Care}},
  journal = {Palliative medicine},
  year    = {2014},
  doi     = {10.1177/0269216313493685},
  pmid    = {23828874},
  url     = {https://doi.org/10.1177/0269216313493685}
}

@article{robinson2013-23175508,
  author  = {Robinson, L. and Dickinson, C. and Bamford, C. and Clark, A. and Hughes, J. and Exley, C.},
  title   = {{A qualitative study: professionals' experiences of advance care planning in dementia and palliative care, 'a good idea in theory but ...'}},
  journal = {Palliative medicine},
  year    = {2013},
  doi     = {10.1177/0269216312465651},
  pmid    = {23175508},
  url     = {https://doi.org/10.1177/0269216312465651}
}

@article{beernaert2014-24534727,
  author  = {Beernaert, K. and Deliens, L. and De Vleminck, A. and Devroey, D. and Pardon, K. and Van den Block, L. and Cohen, J.},
  title   = {{Early identification of palliative care needs by family physicians: A qualitative study of barriers and facilitators from the perspective of family physicians, community nurses, and patients}},
  journal = {Palliative medicine},
  year    = {2014},
  doi     = {10.1177/0269216314522318},
  pmid    = {24534727},
  url     = {https://doi.org/10.1177/0269216314522318}
}

@article{ryan2012-21969310,
  author  = {Ryan, T. and Gardiner, C. and Bellamy, G. and Gott, M. and Ingleton, C.},
  title   = {{Barriers and facilitators to the receipt of palliative care for people with dementia: the views of medical and nursing staff}},
  journal = {Palliative medicine},
  year    = {2012},
  doi     = {10.1177/0269216311423443},
  pmid    = {21969310},
  url     = {https://doi.org/10.1177/0269216311423443}
}

@article{murray2016-26847526,
  author  = {Murray, L. and Butow, P. N. and White, K. and Kiernan, M. C. and D'Abrew, N. and Herz, H.},
  title   = {{Advance care planning in motor neuron disease: A qualitative study of caregiver perspectives}},
  journal = {Palliative medicine},
  year    = {2016},
  doi     = {10.1177/0269216315613902},
  pmid    = {26847526},
  url     = {https://doi.org/10.1177/0269216315613902}
}

@article{romem2015-25680377,
  author  = {Romem, A. and Tom, S. E. and Beauchene, M. and Babington, L. and Scharf, S. M.},
  title   = {{Pain management at the end of life: A comparative study of cancer, dementia, and chronic obstructive pulmonary disease patients}},
  journal = {Palliative medicine},
  year    = {2015},
  doi     = {10.1177/0269216315570411},
  pmid    = {25680377},
  url     = {https://doi.org/10.1177/0269216315570411}
}

@article{vanrickstal2022-35470742,
  author  = {Van Rickstal, R. and Vleminck, A. and Engelborghs, S. and Versijpt, J. and Van den Block, L.},
  title   = {{A qualitative study with people with young-onset dementia and their family caregivers on advance care planning: A holistic, flexible, and relational approach is recommended}},
  journal = {Palliative medicine},
  year    = {2022},
  doi     = {10.1177/02692163221090385},
  pmid    = {35470742},
  url     = {https://doi.org/10.1177/02692163221090385}
}

@article{belar2021-33307989,
  author  = {Belar, A. and Arantzamendi, M. and Payne, S. and Preston, N. and Rijpstra, M. and Hasselaar, J. and Radbruch, L. and Vanderelst, M. and others},
  title   = {{How to measure the effects and potential adverse events of palliative sedation? An integrative review}},
  journal = {Palliative medicine},
  year    = {2021},
  doi     = {10.1177/0269216320974264},
  pmid    = {33307989},
  url     = {https://doi.org/10.1177/0269216320974264}
}

@article{davies2017-27815555,
  author  = {Davies, N. and Rait, G. and Maio, L. and Iliffe, S.},
  title   = {{Family caregivers' conceptualisation of quality end-of-life care for people with dementia: A qualitative study}},
  journal = {Palliative medicine},
  year    = {2017},
  doi     = {10.1177/0269216316673552},
  pmid    = {27815555},
  url     = {https://doi.org/10.1177/0269216316673552}
}

@article{davies2014-24625567,
  author  = {Davies, N. and Maio, L. and Rait, G. and Iliffe, S.},
  title   = {{Quality end-of-life care for dementia: What have family carers told us so far? A narrative synthesis}},
  journal = {Palliative medicine},
  year    = {2014},
  doi     = {10.1177/0269216314526766},
  pmid    = {24625567},
  url     = {https://doi.org/10.1177/0269216314526766}
}

@article{vermorgen2021-32928056,
  author  = {Vermorgen, M. and Vandenbogaerde, I. and Van Audenhove, C. and Hudson, P. and Deliens, L. and Cohen, J. and De Vleminck, A.},
  title   = {{Are family carers part of the care team providing end-of-life care? A qualitative interview study on the collaboration between family and professional carers}},
  journal = {Palliative medicine},
  year    = {2021},
  doi     = {10.1177/0269216320954342},
  pmid    = {32928056},
  url     = {https://doi.org/10.1177/0269216320954342}
}

@article{scheeresfeitsma2026-41689565,
  author  = {Scheeres‐Feitsma, Trijntje M. and Schaafsma, Petruschka and van Kempen, Janneke and van der Steen, Jenny Theodora},
  title   = {{Bringing up the end of life and euthanasia. A mixed method study on consultations with people with dementia and their families in the hospital setting}},
  journal = {Palliative Medicine},
  year    = {2026},
  doi     = {10.1177/02692163261416275},
  pmid    = {41689565},
  url     = {https://doi.org/10.1177/02692163261416275}
}

@article{poole2018-29020864,
  author  = {Poole, M. and Bamford, C. and McLellan, E. and Lee, R. P. and Exley, C. and Hughes, J. C. and Harrison-Dening, K. and Robinson, L.},
  title   = {{End-of-life care: A qualitative study comparing the views of people with dementia and family carers}},
  journal = {Palliative medicine},
  year    = {2018},
  doi     = {10.1177/0269216317736033},
  pmid    = {29020864},
  url     = {https://doi.org/10.1177/0269216317736033}
}

@article{broady2018-29343195,
  author  = {Broady, T. R. and Saich, F. and Hinton, T.},
  title   = {{Caring for a family member or friend with dementia at the end of life: A scoping review and implications for palliative care practice}},
  journal = {Palliative medicine},
  year    = {2018},
  doi     = {10.1177/0269216317748844},
  pmid    = {29343195},
  url     = {https://doi.org/10.1177/0269216317748844}
}

@article{deschreye2017-28429629,
  author  = {De Schreye, R. and Houttekier, D. and Deliens, L. and Cohen, J.},
  title   = {{Developing indicators of appropriate and inappropriate end-of-life care in people with Alzheimer's disease, cancer or chronic obstructive pulmonary disease for population-level administrative databases: A RAND/UCLA appropriateness study}},
  journal = {Palliative medicine},
  year    = {2017},
  doi     = {10.1177/0269216317705099},
  pmid    = {28429629},
  url     = {https://doi.org/10.1177/0269216317705099}
}

@article{richfield2013-23838377,
  author  = {Richfield, E. W. and Jones, E. J. and Alty, J. E.},
  title   = {{Palliative care for Parkinson's disease: a summary of the evidence and future directions}},
  journal = {Palliative medicine},
  year    = {2013},
  doi     = {10.1177/0269216313495287},
  pmid    = {23838377},
  url     = {https://doi.org/10.1177/0269216313495287}
}

@article{brandt2005-15984506,
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  title   = {{The last days of life of nursing home patients with and without dementia assessed with the palliative care outcome scale}},
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  year    = {2005},
  doi     = {10.1191/0269216305pm1018oa},
  pmid    = {15984506},
  url     = {https://doi.org/10.1191/0269216305pm1018oa}
}

@article{hjermstad2004-15453620,
  author  = {Hjermstad, M. and Loge, J. H. and Kaasa, S.},
  title   = {{Methods for assessment of cognitive failure and delirium in palliative care patients: implications for practice and research}},
  journal = {Palliative medicine},
  year    = {2004},
  doi     = {10.1191/0269216304pm920oa},
  pmid    = {15453620},
  url     = {https://doi.org/10.1191/0269216304pm920oa}
}

@article{finucane2013-23612957,
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  title   = {{Improving end-of-life care in nursing homes: implementation and evaluation of an intervention to sustain quality of care}},
  journal = {Palliative medicine},
  year    = {2013},
  doi     = {10.1177/0269216313480549},
  pmid    = {23612957},
  url     = {https://doi.org/10.1177/0269216313480549}
}

@article{hinkka2002-12046995,
  author  = {Hinkka, H. and Kosunen, E. and Lammi, E. K. and Metsänoja, R. and Puustelli, A. and Kellokumpu-Lehtinen, P.},
  title   = {{Decision making in terminal care: a survey of finnish doctors' treatment decisions in end-of-life scenarios involving a terminal cancer and a terminal dementia patient}},
  journal = {Palliative medicine},
  year    = {2002},
  doi     = {10.1191/0269216302pm510oa},
  pmid    = {12046995},
  url     = {https://doi.org/10.1191/0269216302pm510oa}
}