% alzhub.org library filter
% Source: https://alzhub.org/research?category=end_of_life&score_min=70
% 59 entries, in the order the page lists them. Built from alzhub.org's own records.
% 0 entries have no readable author in the source record and carry no author field.

@article{walsh2021-34582034,
  author  = {Walsh, S. C. and Murphy, E. and Devane, D. and Sampson, E. L. and Connolly, S. and Carney, P. and O'Shea, E.},
  title   = {{Palliative care interventions in advanced dementia}},
  journal = {The Cochrane database of systematic reviews},
  year    = {2021},
  doi     = {10.1002/14651858.cd011513.pub3},
  pmid    = {34582034},
  url     = {https://doi.org/10.1002/14651858.cd011513.pub3}
}

@article{courtright2024-38227032,
  author  = {Courtright, K. R. and Madden, V. and Bayes, B. and Chowdhury, M. and Whitman, C. and Small, D. S. and Harhay, M. O. and Parra, S. and others},
  title   = {{Default Palliative Care Consultation for Seriously Ill Hospitalized Patients: A Pragmatic Cluster Randomized Trial}},
  journal = {JAMA},
  year    = {2024},
  doi     = {10.1001/jama.2023.25092},
  pmid    = {38227032},
  url     = {https://doi.org/10.1001/jama.2023.25092}
}

@article{mitchell2020-32628258,
  author  = {Mitchell, S. L. and Volandes, A. E. and Gutman, R. and Gozalo, P. L. and Ogarek, J. A. and Loomer, L. and McCreedy, E. M. and Zhai, R. and others},
  title   = {{Advance Care Planning Video Intervention Among Long-Stay Nursing Home Residents: A Pragmatic Cluster Randomized Clinical Trial}},
  journal = {JAMA internal medicine},
  year    = {2020},
  doi     = {10.1001/jamainternmed.2020.2366},
  pmid    = {32628258},
  url     = {https://doi.org/10.1001/jamainternmed.2020.2366}
}

@article{mitchell2018-29868778,
  author  = {Mitchell, S. L. and Shaffer, M. L. and Cohen, S. and Hanson, L. C. and Habtemariam, D. and Volandes, A. E.},
  title   = {{An Advance Care Planning Video Decision Support Tool for Nursing Home Residents With Advanced Dementia: A Cluster Randomized Clinical Trial}},
  journal = {JAMA internal medicine},
  year    = {2018},
  doi     = {10.1001/jamainternmed.2018.1506},
  pmid    = {29868778},
  url     = {https://doi.org/10.1001/jamainternmed.2018.1506}
}

@article{volandes2009-19477893,
  author  = {Volandes, A. E. and Paasche-Orlow, M. K. and Barry, M. J. and Gillick, M. R. and Minaker, K. L. and Chang, Y. and Cook, E. F. and Abbo, E. D. and others},
  title   = {{Video decision support tool for advance care planning in dementia: randomised controlled trial}},
  journal = {BMJ (Clinical research ed.)},
  year    = {2009},
  doi     = {10.1136/bmj.b2159},
  pmid    = {19477893},
  url     = {https://doi.org/10.1136/bmj.b2159}
}

@article{murphy2016-27911489,
  author  = {Murphy, E. and Froggatt, K. and Connolly, S. and O'Shea, E. and Sampson, E. L. and Casey, D. and Devane, D.},
  title   = {{Palliative care interventions in advanced dementia}},
  journal = {The Cochrane database of systematic reviews},
  year    = {2016},
  doi     = {10.1002/14651858.cd011513.pub2},
  pmid    = {27911489},
  url     = {https://doi.org/10.1002/14651858.cd011513.pub2}
}

@article{tilburgs2020-31759901,
  author  = {Tilburgs, B. and Koopmans, R. and Vernooij-Dassen, M. and Adang, E. and Schers, H. and Teerenstra, S. and van de Pol, M. and Smits, C. and others},
  title   = {{Educating Dutch General Practitioners in Dementia Advance Care Planning: A Cluster Randomized Controlled Trial}},
  journal = {Journal of the American Medical Directors Association},
  year    = {2020},
  doi     = {10.1016/j.jamda.2019.09.010},
  pmid    = {31759901},
  url     = {https://doi.org/10.1016/j.jamda.2019.09.010}
}

@article{grudzen2019-30813112,
  author  = {Grudzen, C. R. and Shim, D. J. and Schmucker, A. M. and Cho, J. and Goldfeld, K. S. and {EMPallA Investigators}},
  title   = {{Emergency Medicine Palliative Care Access (EMPallA): protocol for a multicentre randomised controlled trial comparing the effectiveness of specialty outpatient versus nurse-led telephonic palliative care of older adults with advanced illness}},
  journal = {BMJ open},
  year    = {2019},
  doi     = {10.1136/bmjopen-2018-025692},
  pmid    = {30813112},
  url     = {https://doi.org/10.1136/bmjopen-2018-025692}
}

@article{beernaert2017-28526493,
  author  = {Beernaert, K. and Smets, T. and Cohen, J. and Verhofstede, R. and Costantini, M. and Eecloo, K. and Van Den Noortgate, N. and Deliens, L.},
  title   = {{Improving comfort around dying in elderly people: a cluster randomised controlled trial}},
  journal = {Lancet (London, England)},
  year    = {2017},
  doi     = {10.1016/s0140-6736(17)31265-5},
  pmid    = {28526493},
  url     = {https://doi.org/10.1016/s0140-6736(17)31265-5}
}

@article{hanson2017-27893884,
  author  = {Hanson, L. C. and Zimmerman, S. and Song, M. K. and Lin, F. C. and Rosemond, C. and Carey, T. S. and Mitchell, S. L.},
  title   = {{Effect of the Goals of Care Intervention for Advanced Dementia: A Randomized Clinical Trial}},
  journal = {JAMA internal medicine},
  year    = {2017},
  doi     = {10.1001/jamainternmed.2016.7031},
  pmid    = {27893884},
  url     = {https://doi.org/10.1001/jamainternmed.2016.7031}
}

@article{mitchell2017-28797857,
  author  = {Mitchell, S. L. and Palmer, J. A. and Volandes, A. E. and Hanson, L. C. and Habtemariam, D. and Shaffer, M. L.},
  title   = {{Level of Care Preferences Among Nursing Home Residents With Advanced Dementia}},
  journal = {Journal of pain and symptom management},
  year    = {2017},
  doi     = {10.1016/j.jpainsymman.2017.04.020},
  pmid    = {28797857},
  url     = {https://doi.org/10.1016/j.jpainsymman.2017.04.020}
}

@article{kistler2020-32061721,
  author  = {Kistler, E. A. and Stevens, E. and Scott, E. and Philpotts, L. L. and Greer, J. A. and Greenwald, J. L.},
  title   = {{Triggered Palliative Care Consults: A Systematic Review of Interventions for Hospitalized and Emergency Department Patients}},
  journal = {Journal of pain and symptom management},
  year    = {2020},
  doi     = {10.1016/j.jpainsymman.2020.02.001},
  pmid    = {32061721},
  url     = {https://doi.org/10.1016/j.jpainsymman.2020.02.001}
}

@article{cohen2019-30273717,
  author  = {Cohen, S. M. and Volandes, A. E. and Shaffer, M. L. and Hanson, L. C. and Habtemariam, D. and Mitchell, S. L.},
  title   = {{Concordance Between Proxy Level of Care Preference and Advance Directives Among Nursing Home Residents With Advanced Dementia: A Cluster Randomized Clinical Trial}},
  journal = {Journal of pain and symptom management},
  year    = {2019},
  doi     = {10.1016/j.jpainsymman.2018.09.018},
  pmid    = {30273717},
  url     = {https://doi.org/10.1016/j.jpainsymman.2018.09.018}
}

@article{narayan2017-28853000,
  author  = {Narayan, S. W. and Nishtala, P. S.},
  title   = {{Discontinuation of Preventive Medicines in Older People with Limited Life Expectancy: A Systematic Review}},
  journal = {Drugs \& aging},
  year    = {2017},
  doi     = {10.1007/s40266-017-0487-1},
  pmid    = {28853000},
  url     = {https://doi.org/10.1007/s40266-017-0487-1}
}

@article{doppen2022-35705116,
  author  = {Doppen, M. and Kung, S. and Maijers, I. and John, M. and Dunphy, H. and Townsley, H. and Eathorne, A. and Semprini, A. and others},
  title   = {{Cannabis in Palliative Care: A Systematic Review of Current Evidence}},
  journal = {Journal of pain and symptom management},
  year    = {2022},
  doi     = {10.1016/j.jpainsymman.2022.06.002},
  pmid    = {35705116},
  url     = {https://doi.org/10.1016/j.jpainsymman.2022.06.002}
}

@article{macchi2020-31735048,
  author  = {Macchi, Z. A. and Koljack, C. E. and Miyasaki, J. M. and Katz, M. and Galifianakis, N. and Prizer, L. P. and Sillau, S. H. and Kluger, B. M.},
  title   = {{Patient and caregiver characteristics associated with caregiver burden in Parkinson's disease: a palliative care approach}},
  journal = {Annals of palliative medicine},
  year    = {2020},
  doi     = {10.21037/apm.2019.10.01},
  pmid    = {31735048},
  url     = {https://doi.org/10.21037/apm.2019.10.01}
}

@article{vandenblock2020-31710345,
  author  = {Van den Block, L. and Honinx, E. and Pivodic, L. and Miranda, R. and Onwuteaka-Philipsen, B. D. and van Hout, H. and Pasman, H. R. W. and Oosterveld-Vlug, M. and others},
  title   = {{Evaluation of a Palliative Care Program for Nursing Homes in 7 Countries: The PACE Cluster-Randomized Clinical Trial}},
  journal = {JAMA internal medicine},
  year    = {2020},
  doi     = {10.1001/jamainternmed.2019.5349},
  pmid    = {31710345},
  url     = {https://doi.org/10.1001/jamainternmed.2019.5349}
}

@article{hall2011-21412898,
  author  = {Hall, S. and Kolliakou, A. and Petkova, H. and Froggatt, K. and Higginson, I. J.},
  title   = {{Interventions for improving palliative care for older people living in nursing care homes}},
  journal = {The Cochrane database of systematic reviews},
  year    = {2011},
  doi     = {10.1002/14651858.cd007132.pub2},
  pmid    = {21412898},
  url     = {https://doi.org/10.1002/14651858.cd007132.pub2}
}

@article{kupeli2019-30141020,
  author  = {Kupeli, N. and Candy, B. and Tamura-Rose, G. and Schofield, G. and Webber, N. and Hicks, S. E. and Floyd, T. and Vivat, B. and others},
  title   = {{Tools Measuring Quality of Death, Dying, and Care, Completed after Death: Systematic Review of Psychometric Properties}},
  journal = {The patient},
  year    = {2019},
  doi     = {10.1007/s40271-018-0328-2},
  pmid    = {30141020},
  url     = {https://doi.org/10.1007/s40271-018-0328-2}
}

@article{evans2020-32693800,
  author  = {Evans, C. J. and Yorganci, E. and Lewis, P. and Koffman, J. and Stone, K. and Tunnard, I. and Wee, B. and Bernal, W. and others},
  title   = {{Processes of consent in research for adults with impaired mental capacity nearing the end of life: systematic review and transparent expert consultation (MORECare\_Capacity statement)}},
  journal = {BMC medicine},
  year    = {2020},
  doi     = {10.1186/s12916-020-01654-2},
  pmid    = {32693800},
  url     = {https://doi.org/10.1186/s12916-020-01654-2}
}

@article{bonner2021-32308012,
  author  = {Bonner, G. J. and Freels, S. and Ferrans, C. and Steffen, A. and Suarez, M. L. and Dancy, B. L. and Watkins, Y. J. and Collinge, W. and others},
  title   = {{Advance Care Planning for African American Caregivers of Relatives With Dementias: Cluster Randomized Controlled Trial}},
  journal = {The American journal of hospice \& palliative care},
  year    = {2021},
  doi     = {10.1177/1049909120916127},
  pmid    = {32308012},
  url     = {https://doi.org/10.1177/1049909120916127}
}

@article{wenger2001-11601946,
  author  = {Wenger, Neil S. and Shekelle, Paul and {the ACOVE Investigators}},
  title   = {{Assessing Care of Vulnerable Elders: ACOVE Project Overview}},
  journal = {Annals of Internal Medicine},
  year    = {2001},
  doi     = {10.7326/0003-4819-135-8_part_2-200110161-00002},
  pmid    = {11601946},
  url     = {https://doi.org/10.7326/0003-4819-135-8_part_2-200110161-00002}
}

@article{pujante2025-41089743,
  author  = {Pujante, Vianca Gloriene Barcoma and Sami, Waqas and Al-Kuwari, Noof Fahad and Rizvi, Moattar Raza},
  title   = {{Nursing Interventions in Palliative Care for Advanced Dementia: A Systematic Review of Symptom, Relief, Comfort, and Caregiver Support}},
  journal = {Journal of multidisciplinary healthcare},
  year    = {2025},
  doi     = {10.2147/jmdh.s546183},
  pmid    = {41089743},
  url     = {https://doi.org/10.2147/jmdh.s546183}
}

@article{wu2020-30795711,
  author  = {Wu, Chiu-Hsiang Chiu and Perng, Shoa-Jen and Shi, Chun-Kuan and Lai, Hui-Ling},
  title   = {{Advance Care Planning and Advance Directives: A Multimedia Education Program in Community-Dwelling Older Adults}},
  journal = {Journal of applied gerontology : the official journal of the Southern Gerontological Society},
  year    = {2020},
  doi     = {10.1177/0733464819831596},
  pmid    = {30795711},
  url     = {https://doi.org/10.1177/0733464819831596}
}

@article{quinn2021-33662135,
  author  = {Quinn, K. L. and Wegier, P. and Stukel, T. A. and Huang, A. and Bell, C. M. and Tanuseputro, P.},
  title   = {{Comparison of Palliative Care Delivery in the Last Year of Life Between Adults With Terminal Noncancer Illness or Cancer}},
  journal = {JAMA network open},
  year    = {2021},
  doi     = {10.1001/jamanetworkopen.2021.0677},
  pmid    = {33662135},
  url     = {https://doi.org/10.1001/jamanetworkopen.2021.0677}
}

@article{quinn2020-32631907,
  author  = {Quinn, K. L. and Stukel, T. and Stall, N. M. and Huang, A. and Isenberg, S. and Tanuseputro, P. and Goldman, R. and Cram, P. and others},
  title   = {{Association between palliative care and healthcare outcomes among adults with terminal non-cancer illness: population based matched cohort study}},
  journal = {BMJ (Clinical research ed.)},
  year    = {2020},
  doi     = {10.1136/bmj.m2257},
  pmid    = {32631907},
  url     = {https://doi.org/10.1136/bmj.m2257}
}

@article{agar2017-28786995,
  author  = {Agar, M. and Luckett, T. and Luscombe, G. and Phillips, J. and Beattie, E. and Pond, D. and Mitchell, G. and Davidson, P. M. and others},
  title   = {{Effects of facilitated family case conferencing for advanced dementia: A cluster randomised clinical trial}},
  journal = {PloS one},
  year    = {2017},
  doi     = {10.1371/journal.pone.0181020},
  pmid    = {28786995},
  url     = {https://doi.org/10.1371/journal.pone.0181020}
}

@article{mor2017-28068789,
  author  = {Mor, V. and Volandes, A. E. and Gutman, R. and Gatsonis, C. and Mitchell, S. L.},
  title   = {{PRagmatic trial Of Video Education in Nursing homes: The design and rationale for a pragmatic cluster randomized trial in the nursing home setting}},
  journal = {Clinical trials (London, England)},
  year    = {2017},
  doi     = {10.1177/1740774516685298},
  pmid    = {28068789},
  url     = {https://doi.org/10.1177/1740774516685298}
}

@article{mo2021-33655535,
  author  = {Mo, L. and Geng, Y. and Chang, Y. K. and Philip, J. and Collins, A. and Hui, D.},
  title   = {{Referral criteria to specialist palliative care for patients with dementia: A systematic review}},
  journal = {Journal of the American Geriatrics Society},
  year    = {2021},
  doi     = {10.1111/jgs.17070},
  pmid    = {33655535},
  url     = {https://doi.org/10.1111/jgs.17070}
}

@article{sampson2008-18620567,
  author  = {Sampson, E. L. and Thuné-Boyle, I. and Kukkastenvehmas, R. and Jones, L. and Tookman, A. and King, M. and Blanchard, M. R.},
  title   = {{Palliative care in advanced dementia; A mixed methods approach for the development of a complex intervention}},
  journal = {BMC palliative care},
  year    = {2008},
  doi     = {10.1186/1472-684x-7-8},
  pmid    = {18620567},
  url     = {https://doi.org/10.1186/1472-684x-7-8}
}

@article{husebo2016-27240869,
  author  = {Husebo, B. S. and Achterberg, W. and Flo, E.},
  title   = {{Identifying and Managing Pain in People with Alzheimer's Disease and Other Types of Dementia: A Systematic Review}},
  journal = {CNS drugs},
  year    = {2016},
  doi     = {10.1007/s40263-016-0342-7},
  pmid    = {27240869},
  url     = {https://doi.org/10.1007/s40263-016-0342-7}
}

@article{lackraj2021-33523466,
  author  = {Lackraj, Deven and Kavalieratos, Dio and Murali, Komal P and Lu, Yewei and Hua, May},
  title   = {{Implementation of Specialist Palliative Care and Outcomes for Hospitalized Patients with Dementia}},
  journal = {Journal of the American Geriatrics Society},
  year    = {2021},
  doi     = {10.1111/jgs.17032},
  pmid    = {33523466},
  url     = {https://doi.org/10.1111/jgs.17032}
}

@article{dixon2018-28827062,
  author  = {Dixon, J. and Karagiannidou, M. and Knapp, M.},
  title   = {{The Effectiveness of Advance Care Planning in Improving End-of-Life Outcomes for People With Dementia and Their Carers: A Systematic Review and Critical Discussion}},
  journal = {Journal of pain and symptom management},
  year    = {2018},
  doi     = {10.1016/j.jpainsymman.2017.04.009},
  pmid    = {28827062},
  url     = {https://doi.org/10.1016/j.jpainsymman.2017.04.009}
}

@article{brazil2018-28786323,
  author  = {Brazil, K. and Carter, G. and Cardwell, C. and Clarke, M. and Hudson, P. and Froggatt, K. and McLaughlin, D. and Passmore, P. and others},
  title   = {{Effectiveness of advance care planning with family carers in dementia nursing homes: A paired cluster randomized controlled trial}},
  journal = {Palliative medicine},
  year    = {2018},
  doi     = {10.1177/0269216317722413},
  pmid    = {28786323},
  url     = {https://doi.org/10.1177/0269216317722413}
}

@article{hanson2019-30342242,
  author  = {Hanson, L. C. and Kistler, C. E. and Lavin, K. and Gabriel, S. L. and Ernecoff, N. C. and Lin, F. C. and Sachs, G. A. and Mitchell, S. L.},
  title   = {{Triggered Palliative Care for Late-Stage Dementia: A Pilot Randomized Trial}},
  journal = {Journal of pain and symptom management},
  year    = {2019},
  doi     = {10.1016/j.jpainsymman.2018.10.494},
  pmid    = {30342242},
  url     = {https://doi.org/10.1016/j.jpainsymman.2018.10.494}
}

@article{singer1995-8589316,
  author  = {Singer, P. A. and Thiel, E. C. and Naylor, C. D. and Richardson, R. M. and Llewellyn-Thomas, H. and Goldstein, M. and Saiphoo, C. and Uldall, P. R. and others},
  title   = {{Life-sustaining treatment preferences of hemodialysis patients: implications for advance directives}},
  journal = {Journal of the American Society of Nephrology : JASN},
  year    = {1995},
  doi     = {10.1681/asn.v651410},
  pmid    = {8589316},
  url     = {https://doi.org/10.1681/asn.v651410}
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@article{deardorff2022-36156062,
  author  = {Deardorff, W. J. and Barnes, D. E. and Jeon, S. Y. and Boscardin, W. J. and Langa, K. M. and Covinsky, K. E. and Mitchell, S. L. and Whitlock, E. L. and others},
  title   = {{Development and External Validation of a Mortality Prediction Model for Community-Dwelling Older Adults With Dementia}},
  journal = {JAMA internal medicine},
  year    = {2022},
  doi     = {10.1001/jamainternmed.2022.4326},
  pmid    = {36156062},
  url     = {https://doi.org/10.1001/jamainternmed.2022.4326}
}

@article{kelly2019-31177997,
  author  = {Kelly, A. J. and Luckett, T. and Clayton, J. M. and Gabb, L. and Kochovska, S. and Agar, M.},
  title   = {{Advance care planning in different settings for people with dementia: A systematic review and narrative synthesis}},
  journal = {Palliative \& supportive care},
  year    = {2019},
  doi     = {10.1017/s1478951519000257},
  pmid    = {31177997},
  url     = {https://doi.org/10.1017/s1478951519000257}
}

@article{hanson2016-27271683,
  author  = {Hanson, L. C. and Song, M. K. and Zimmerman, S. and Gilliam, R. and Rosemond, C. and Chisholm, L. and Lin, F. C.},
  title   = {{Fidelity to a behavioral intervention to improve goals of care decisions for nursing home residents with advanced dementia}},
  journal = {Clinical trials (London, England)},
  year    = {2016},
  doi     = {10.1177/1740774516650863},
  pmid    = {27271683},
  url     = {https://doi.org/10.1177/1740774516650863}
}

@article{earp2021-33762238,
  author  = {Earp, M. and Cai, P. and Fong, A. and Blacklaws, K. and Pham, T. M. and Shack, L. and Sinnarajah, A.},
  title   = {{Hospital-based acute care in the last 30 days of life among patients with chronic disease that received early, late or no specialist palliative care: a retrospective cohort study of eight chronic disease groups}},
  journal = {BMJ open},
  year    = {2021},
  doi     = {10.1136/bmjopen-2020-044196},
  pmid    = {33762238},
  url     = {https://doi.org/10.1136/bmjopen-2020-044196}
}

@article{mitchell2004-15187055,
  author  = {Mitchell, S. L. and Kiely, D. K. and Hamel, M. B. and Park, P. S. and Morris, J. N. and Fries, B. E.},
  title   = {{Estimating prognosis for nursing home residents with advanced dementia}},
  journal = {JAMA},
  year    = {2004},
  doi     = {10.1001/jama.291.22.2734},
  pmid    = {15187055},
  url     = {https://doi.org/10.1001/jama.291.22.2734}
}

@article{sampson2011-21228087,
  author  = {Sampson, E. L. and Jones, L. and Thuné-Boyle, I. C. and Kukkastenvehmas, R. and King, M. and Leurent, B. and Tookman, A. and Blanchard, M. R.},
  title   = {{Palliative assessment and advance care planning in severe dementia: an exploratory randomized controlled trial of a complex intervention}},
  journal = {Palliative medicine},
  year    = {2011},
  doi     = {10.1177/0269216310391691},
  pmid    = {21228087},
  url     = {https://doi.org/10.1177/0269216310391691}
}

@article{berry2018-29801122,
  author  = {Berry, S. D. and Rothbaum, R. R. and Kiel, D. P. and Lee, Y. and Mitchell, S. L.},
  title   = {{Association of Clinical Outcomes With Surgical Repair of Hip Fracture vs Nonsurgical Management in Nursing Home Residents With Advanced Dementia}},
  journal = {JAMA internal medicine},
  year    = {2018},
  doi     = {10.1001/jamainternmed.2018.0743},
  pmid    = {29801122},
  url     = {https://doi.org/10.1001/jamainternmed.2018.0743}
}

@article{ahronheim2000-15859668,
  author  = {Ahronheim, J. C. and Morrison, R. S. and Morris, J. and Baskin, S. and Meier, D. E.},
  title   = {{Palliative care in advanced dementia: a randomized controlled trial and descriptive analysis}},
  journal = {Journal of palliative medicine},
  year    = {2000},
  doi     = {10.1089/jpm.2000.3.265},
  pmid    = {15859668},
  url     = {https://doi.org/10.1089/jpm.2000.3.265}
}

@article{browne2021-34137314,
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@article{chughtai2019-29938539,
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  title   = {{Prevalence and Risk Factors for Fecal Incontinence in Home Hospice}},
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@article{kim2021-33476479,
  author  = {Kim, Hyejin and Cho, Jeonghyun and Park, Won Seok and Kim, Sang Suk},
  title   = {{Characteristics of Advance Care Planning Interventions Across Dementia Stages: A Systematic Review}},
  journal = {Journal of nursing scholarship : an official publication of Sigma Theta Tau International Honor Society of Nursing},
  year    = {2021},
  doi     = {10.1111/jnu.12624},
  pmid    = {33476479},
  url     = {https://doi.org/10.1111/jnu.12624}
}