% alzhub.org library filter
% Source: https://alzhub.org/research?category=caregiving
% 500 entries, in the order the page lists them. Built from alzhub.org's own records.
% 5 entries have no readable author in the source record and carry no author field.

@article{birks2006-16437430,
  author  = {Birks, J. and Harvey, R. J.},
  title   = {{Donepezil for dementia due to Alzheimer's disease}},
  journal = {The Cochrane database of systematic reviews},
  year    = {2006},
  doi     = {10.1002/14651858.cd001190.pub2},
  pmid    = {16437430},
  url     = {https://doi.org/10.1002/14651858.cd001190.pub2}
}

@article{gassoumis2024-37791406,
  author  = {Gassoumis, Zachary D and Martinez, Julia M and Yonashiro-Cho, Jeanine and Mosqueda, Laura and Hou, Anthony and Han, S Duke and Olsen, Bonnie and Louis, Anat and others},
  title   = {{Comprehensive Older Adult and Caregiver Help (COACH): A person-centered caregiver intervention prevents elder mistreatment}},
  journal = {Journal of the American Geriatrics Society},
  year    = {2024},
  doi     = {10.1111/jgs.18597},
  pmid    = {37791406},
  url     = {https://doi.org/10.1111/jgs.18597}
}

@article{sapra2025-40129751,
  author  = {Sapra, Mamta and Hagemann, Lauren and Luci, Katherine and Savla, Jyoti},
  title   = {{A mindfulness-based multicomponent caregiver intervention (PAACC): objectives, study design, and cohort description}},
  journal = {Alzheimer's \& dementia (New York, N. Y.)},
  year    = {2025},
  doi     = {10.1002/trc2.70064},
  pmid    = {40129751},
  url     = {https://doi.org/10.1002/trc2.70064}
}

@article{adedeji2025-41144595,
  author  = {Adedeji, Abiodun and Dogan, Huseyin and Adedoyin, Festus and Heward, Michelle},
  title   = {{Adoption of Telemedicine for Dementia Care in Nigeria: Scoping Review}},
  journal = {Interactive journal of medical research},
  year    = {2025},
  doi     = {10.2196/75168},
  pmid    = {41144595},
  url     = {https://doi.org/10.2196/75168}
}

@article{rodriguez2023-37706540,
  author  = {Rodriguez, Miriam Jocelyn and Kercher, Vanessa Martinez and Jordan, Evan J and Savoy, April and Hill, Jordan R and Werner, Nicole and Owora, Arthur and Castelluccio, Pete and others},
  title   = {{Technology caregiver intervention for Alzheimer's disease (I-CARE): Feasibility and preliminary efficacy of Brain CareNotes}},
  journal = {Journal of the American Geriatrics Society},
  year    = {2023},
  doi     = {10.1111/jgs.18591},
  pmid    = {37706540},
  url     = {https://doi.org/10.1111/jgs.18591}
}

@article{reuben2025-39878968,
  author  = {Reuben, D. B. and Gill, T. M. and Stevens, A. and Williamson, J. and Volpi, E. and Lichtenstein, M. and Jennings, L. A. and others},
  title   = {{Health System, Community-Based, or Usual Dementia Care for Persons With Dementia and Caregivers: The D-CARE Randomized Clinical Trial}},
  journal = {JAMA},
  year    = {2025},
  doi     = {10.1001/jama.2024.25056},
  pmid    = {39878968},
  url     = {https://doi.org/10.1001/jama.2024.25056}
}

@article{chan2013-23746902,
  author  = {Chan, K. Y. and Wang, W. and Wu, J. J. and Liu, L. and Theodoratou, E. and Car, J. and Middleton, L. and Russ, T. C. and others},
  title   = {{Epidemiology of Alzheimer's disease and other forms of dementia in China, 1990-2010: a systematic review and analysis}},
  journal = {Lancet (London, England)},
  year    = {2013},
  doi     = {10.1016/s0140-6736(13)60221-4},
  pmid    = {23746902},
  url     = {https://doi.org/10.1016/s0140-6736(13)60221-4}
}

@article{kim2017-28255234,
  author  = {Kim, S. K. and Park, M.},
  title   = {{Effectiveness of person-centered care on people with dementia: a systematic review and meta-analysis}},
  journal = {Clinical interventions in aging},
  year    = {2017},
  doi     = {10.2147/cia.s117637},
  pmid    = {28255234},
  url     = {https://doi.org/10.2147/cia.s117637}
}

@article{lin2023-37887501,
  author  = {Lin, Xinyao and Moxley, Jerad H and Czaja, Sara J},
  title   = {{Caring for Dementia Caregivers: Psychosocial Factors Related to Engagement in Self-Care Activities}},
  journal = {Behavioral sciences (Basel, Switzerland)},
  year    = {2023},
  doi     = {10.3390/bs13100851},
  pmid    = {37887501},
  url     = {https://doi.org/10.3390/bs13100851}
}

@article{prince2013-23305823,
  author  = {Prince, M. and Bryce, R. and Albanese, E. and Wimo, A. and Ribeiro, W. and Ferri, C. P.},
  title   = {{The global prevalence of dementia: a systematic review and metaanalysis}},
  journal = {Alzheimer's \& dementia : the journal of the Alzheimer's Association},
  year    = {2013},
  doi     = {10.1016/j.jalz.2012.11.007},
  pmid    = {23305823},
  url     = {https://doi.org/10.1016/j.jalz.2012.11.007}
}

@article{adelman2014-24618967,
  author  = {Adelman, R. D. and Tmanova, L. L. and Delgado, D. and Dion, S. and Lachs, M. S.},
  title   = {{Caregiver burden: a clinical review}},
  journal = {JAMA},
  year    = {2014},
  doi     = {10.1001/jama.2014.304},
  pmid    = {24618967},
  url     = {https://doi.org/10.1001/jama.2014.304}
}

@article{rensma2018-29656031,
  author  = {Rensma, S. P. and van Sloten, T. T. and Launer, L. J. and Stehouwer, C. D. A.},
  title   = {{Cerebral small vessel disease and risk of incident stroke, dementia and depression, and all-cause mortality: A systematic review and meta-analysis}},
  journal = {Neuroscience and biobehavioral reviews},
  year    = {2018},
  doi     = {10.1016/j.neubiorev.2018.04.003},
  pmid    = {29656031},
  url     = {https://doi.org/10.1016/j.neubiorev.2018.04.003}
}

@article{novak2017-27955995,
  author  = {Novak, P. and Schmidt, R. and Kontsekova, E. and Zilka, N. and Kovacech, B. and Skrabana, R. and Vince-Kazmerova, Z. and Katina, S. and others},
  title   = {{Safety and immunogenicity of the tau vaccine AADvac1 in patients with Alzheimer's disease: a randomised, double-blind, placebo-controlled, phase 1 trial}},
  journal = {The Lancet. Neurology},
  year    = {2017},
  doi     = {10.1016/s1474-4422(16)30331-3},
  pmid    = {27955995},
  url     = {https://doi.org/10.1016/s1474-4422(16)30331-3}
}

@article{teri2000-11087767,
  author  = {Teri, L. and Logsdon, R. G. and Peskind, E. and Raskind, M. and Weiner, M. F. and Tractenberg, R. E. and Foster, N. L. and Schneider, L. S. and others},
  title   = {{Treatment of agitation in AD: a randomized, placebo-controlled clinical trial}},
  journal = {Neurology},
  year    = {2000},
  doi     = {10.1212/wnl.55.9.1271},
  pmid    = {11087767},
  url     = {https://doi.org/10.1212/wnl.55.9.1271}
}

@article{graff2008-18171718,
  author  = {Graff, M. J. and Adang, E. M. and Vernooij-Dassen, M. J. and Dekker, J. and Jönsson, L. and Thijssen, M. and Hoefnagels, W. H. and Rikkert, M. G.},
  title   = {{Community occupational therapy for older patients with dementia and their care givers: cost effectiveness study}},
  journal = {BMJ (Clinical research ed.)},
  year    = {2008},
  doi     = {10.1136/bmj.39408.481898.be},
  pmid    = {18171718},
  url     = {https://doi.org/10.1136/bmj.39408.481898.be}
}

@article{sachs2025-39878993,
  author  = {Sachs, G. A. and Johnson, N. M. and Gao, S. and Torke, A. M. and Hickman, S. E. and Pemberton, A. and Vrobel, A. and Pan, M. and West, J. and Kroenke, K.},
  title   = {{Palliative Care Program for Community-Dwelling Individuals With Dementia and Caregivers: The IN-PEACE Randomized Clinical Trial}},
  journal = {JAMA},
  year    = {2025},
  doi     = {10.1001/jama.2024.25845},
  pmid    = {39878993},
  url     = {https://doi.org/10.1001/jama.2024.25845}
}

@article{possin2019-31566651,
  author  = {Possin, K. L. and Merrilees, J. J. and Dulaney, S. and Bonasera, S. J. and Chiong, W. and Lee, K. and Hooper, S. M. and Allen, I. E. and others},
  title   = {{Effect of Collaborative Dementia Care via Telephone and Internet on Quality of Life, Caregiver Well-being, and Health Care Use: The Care Ecosystem Randomized Clinical Trial}},
  journal = {JAMA internal medicine},
  year    = {2019},
  doi     = {10.1001/jamainternmed.2019.4101},
  pmid    = {31566651},
  url     = {https://doi.org/10.1001/jamainternmed.2019.4101}
}

@article{graff2006-17114212,
  author  = {Graff, M. J. and Vernooij-Dassen, M. J. and Thijssen, M. and Dekker, J. and Hoefnagels, W. H. and Rikkert, M. G.},
  title   = {{Community based occupational therapy for patients with dementia and their care givers: randomised controlled trial}},
  journal = {BMJ (Clinical research ed.)},
  year    = {2006},
  doi     = {10.1136/bmj.39001.688843.be},
  pmid    = {17114212},
  url     = {https://doi.org/10.1136/bmj.39001.688843.be}
}

@article{janelidze2020-32246036,
  author  = {Janelidze, S. and Stomrud, E. and Smith, R. and Palmqvist, S. and Mattsson, N. and Airey, D. C. and Proctor, N. K. and Chai, X. and others},
  title   = {{Cerebrospinal fluid p-tau217 performs better than p-tau181 as a biomarker of Alzheimer's disease}},
  journal = {Nature communications},
  year    = {2020},
  doi     = {10.1038/s41467-020-15436-0},
  pmid    = {32246036},
  url     = {https://doi.org/10.1038/s41467-020-15436-0}
}

@article{ward2012-22265588,
  author  = {Ward, A. and Arrighi, H. M. and Michels, S. and Cedarbaum, J. M.},
  title   = {{Mild cognitive impairment: disparity of incidence and prevalence estimates}},
  journal = {Alzheimer's \& dementia : the journal of the Alzheimer's Association},
  year    = {2012},
  doi     = {10.1016/j.jalz.2011.01.002},
  pmid    = {22265588},
  url     = {https://doi.org/10.1016/j.jalz.2011.01.002}
}

@article{woods2012-22336813,
  author  = {Woods, B. and Aguirre, E. and Spector, A. E. and Orrell, M.},
  title   = {{Cognitive stimulation to improve cognitive functioning in people with dementia}},
  journal = {The Cochrane database of systematic reviews},
  year    = {2012},
  doi     = {10.1002/14651858.cd005562.pub2},
  pmid    = {22336813},
  url     = {https://doi.org/10.1002/14651858.cd005562.pub2}
}

@article{wang2020-32887786,
  author  = {Wang, Y. and Liu, M. and Lu, Q. and Farrell, M. and Lappin, J. M. and Shi, J. and Lu, L. and Bao, Y.},
  title   = {{Global prevalence and burden of HIV-associated neurocognitive disorder: A meta-analysis}},
  journal = {Neurology},
  year    = {2020},
  doi     = {10.1212/wnl.0000000000010752},
  pmid    = {32887786},
  url     = {https://doi.org/10.1212/wnl.0000000000010752}
}

@article{fornage2011-21681796,
  author  = {Fornage, M. and Debette, S. and Bis, J. C. and Schmidt, H. and Ikram, M. A. and Dufouil, C. and Sigurdsson, S. and Lumley, T. and others},
  title   = {{Genome-wide association studies of cerebral white matter lesion burden: the CHARGE consortium}},
  journal = {Annals of neurology},
  year    = {2011},
  doi     = {10.1002/ana.22403},
  pmid    = {21681796},
  url     = {https://doi.org/10.1002/ana.22403}
}

@article{woods2018-29493789,
  author  = {Woods, B. and O'Philbin, L. and Farrell, E. M. and Spector, A. E. and Orrell, M.},
  title   = {{Reminiscence therapy for dementia}},
  journal = {The Cochrane database of systematic reviews},
  year    = {2018},
  doi     = {10.1002/14651858.cd001120.pub3},
  pmid    = {29493789},
  url     = {https://doi.org/10.1002/14651858.cd001120.pub3}
}

@article{quinn2020-33048152,
  author  = {Quinn, K. L. and Shurrab, M. and Gitau, K. and Kavalieratos, D. and Isenberg, SR. and Stall, N. M. and Stukel, T. A. and Goldman, R. and others},
  title   = {{Association of Receipt of Palliative Care Interventions With Health Care Use, Quality of Life, and Symptom Burden Among Adults With Chronic Noncancer Illness: A Systematic Review and Meta-analysis}},
  journal = {JAMA},
  year    = {2020},
  doi     = {10.1001/jama.2020.14205},
  pmid    = {33048152},
  url     = {https://doi.org/10.1001/jama.2020.14205}
}

@article{shrestha2022-33357171,
  author  = {Shrestha, Srijana and Richey, Sheila and Lipovac-Dew, Martha and Kunik, Mark E and Stanley, Melinda A and Ramsey, David and Amspoker, Amber B},
  title   = {{An Examination of Positive and Negative Dementia Caregiving Experiences}},
  journal = {Clinical gerontologist},
  year    = {2022},
  doi     = {10.1080/07317115.2020.1868033},
  pmid    = {33357171},
  url     = {https://doi.org/10.1080/07317115.2020.1868033}
}

@article{fuju2022-34951029,
  author  = {Fuju, Taiga and Yamagami, Tetsuya and Yamaguchi, Haruyasu and Yamazaki, Tsuneo},
  title   = {{A randomized controlled trial of the "positive diary" intervention for family caregivers of people with dementia}},
  journal = {Perspectives in psychiatric care},
  year    = {2022},
  doi     = {10.1111/ppc.13013},
  pmid    = {34951029},
  url     = {https://doi.org/10.1111/ppc.13013}
}

@article{villemagne2013-23477989,
  author  = {Villemagne, V. L. and Burnham, S. and Bourgeat, P. and Brown, B. and Ellis, K. A. and Salvado, O. and Szoeke, C. and Macaulay, S. L. and others},
  title   = {{Amyloid β deposition, neurodegeneration, and cognitive decline in sporadic Alzheimer's disease: a prospective cohort study}},
  journal = {The Lancet. Neurology},
  year    = {2013},
  doi     = {10.1016/s1474-4422(13)70044-9},
  pmid    = {23477989},
  url     = {https://doi.org/10.1016/s1474-4422(13)70044-9}
}

@article{henderson2000-10668686,
  author  = {Henderson, V. W. and Paganini-Hill, A. and Miller, B. L. and Elble, R. J. and Reyes, P. F. and Shoupe, D. and McCleary, C. A. and Klein, R. A. and others},
  title   = {{Estrogen for Alzheimer's disease in women: randomized, double-blind, placebo-controlled trial}},
  journal = {Neurology},
  year    = {2000},
  doi     = {10.1212/wnl.54.2.295},
  pmid    = {10668686},
  url     = {https://doi.org/10.1212/wnl.54.2.295}
}

@article{moscoso2021-33257949,
  author  = {Moscoso, A. and Grothe, M. J. and Ashton, N. J. and Karikari, T. K. and Rodriguez, J. L. and Snellman, A. and Suárez-Calvet, M. and Zetterberg, H. and others},
  title   = {{Time course of phosphorylated-tau181 in blood across the Alzheimer's disease spectrum}},
  journal = {Brain : a journal of neurology},
  year    = {2021},
  doi     = {10.1093/brain/awaa399},
  pmid    = {33257949},
  url     = {https://doi.org/10.1093/brain/awaa399}
}

@article{baharfuchs2019-30909318,
  author  = {Bahar-Fuchs, A. and Martyr, A. and Goh, A. M. and Sabates, J. and Clare, L.},
  title   = {{Cognitive training for people with mild to moderate dementia}},
  journal = {The Cochrane database of systematic reviews},
  year    = {2019},
  doi     = {10.1002/14651858.cd013069.pub2},
  pmid    = {30909318},
  url     = {https://doi.org/10.1002/14651858.cd013069.pub2}
}

@article{xiao2021-33731209,
  author  = {Xiao, S. and Chan, P. and Wang, T. and Hong, Z. and Wang, S. and Kuang, W. and He, J. and Pan, X. and others},
  title   = {{A 36-week multicenter, randomized, double-blind, placebo-controlled, parallel-group, phase 3 clinical trial of sodium oligomannate for mild-to-moderate Alzheimer's dementia}},
  journal = {Alzheimer's research \& therapy},
  year    = {2021},
  doi     = {10.1186/s13195-021-00795-7},
  pmid    = {33731209},
  url     = {https://doi.org/10.1186/s13195-021-00795-7}
}

@article{thyrian2017-28746708,
  author  = {Thyrian, JR. and Hertel, J. and Wucherer, D. and Eichler, T. and Michalowsky, B. and Dreier-Wolfgramm, A. and Zwingmann, I. and Kilimann, I. and others},
  title   = {{Effectiveness and Safety of Dementia Care Management in Primary Care: A Randomized Clinical Trial}},
  journal = {JAMA psychiatry},
  year    = {2017},
  doi     = {10.1001/jamapsychiatry.2017.2124},
  pmid    = {28746708},
  url     = {https://doi.org/10.1001/jamapsychiatry.2017.2124}
}

@article{costello2019-30421691,
  author  = {Costello, H. and Walsh, S. and Cooper, C. and Livingston, G.},
  title   = {{A systematic review and meta-analysis of the prevalence and associations of stress and burnout among staff in long-term care facilities for people with dementia}},
  journal = {International psychogeriatrics},
  year    = {2019},
  doi     = {10.1017/s1041610218001606},
  pmid    = {30421691},
  url     = {https://doi.org/10.1017/s1041610218001606}
}

@article{mittelman2006-b972b154,
  author  = {Mittelman, M. S. and Haley, W. E. and Clay, O. J. and Roth, D. L.},
  title   = {{Improving Caregiver Well-Being Delays Nursing Home Placement of Patients With Alzheimer Disease}},
  journal = {Neurology},
  year    = {2006},
  pmid    = {17101889}
}

@article{vandersteen2025-40049590,
  author  = {van der Steen, J. T. and van der Wouden, J. C. and Methley, A. M. and Smaling, H. J. A. and Vink, A. C. and Bruinsma, M. S.},
  title   = {{Music-based therapeutic interventions for people with dementia (Cochrane review update)}},
  journal = {Cochrane Database of Systematic Reviews},
  year    = {2025},
  doi     = {10.1002/14651858.CD003477.pub5},
  pmid    = {40049590},
  url     = {https://doi.org/10.1002/14651858.CD003477.pub5}
}

@article{mccarney2007-17608932,
  author  = {McCarney, R. and Warner, J. and Iliffe, S. and van Haselen, R. and Griffin, M. and Fisher, P.},
  title   = {{The Hawthorne Effect: a randomised, controlled trial}},
  journal = {BMC medical research methodology},
  year    = {2007},
  doi     = {10.1186/1471-2288-7-30},
  pmid    = {17608932},
  url     = {https://doi.org/10.1186/1471-2288-7-30}
}

@article{xiong2020-32310969,
  author  = {Xiong, C. and Biscardi, M. and Astell, A. and Nalder, E. and Cameron, J. I. and Mihailidis, A. and Colantonio, A.},
  title   = {{Sex and gender differences in caregiving burden experienced by family caregivers of persons with dementia: A systematic review}},
  journal = {PloS one},
  year    = {2020},
  doi     = {10.1371/journal.pone.0231848},
  pmid    = {32310969},
  url     = {https://doi.org/10.1371/journal.pone.0231848}
}

@article{wang2023-36641612,
  author  = {Wang, A. Y. and Hu, H. Y. and Ou, Y. N. and Wang, Z. T. and Ma, Y. H. and Tan, L. and Yu, J. T.},
  title   = {{Socioeconomic Status and Risks of Cognitive Impairment and Dementia: A Systematic Review and Meta-Analysis of 39 Prospective Studies}},
  journal = {The journal of prevention of Alzheimer's disease},
  year    = {2023},
  doi     = {10.14283/jpad.2022.81},
  pmid    = {36641612},
  url     = {https://doi.org/10.14283/jpad.2022.81}
}

@article{rapaport2024-39366393,
  author  = {Rapaport, P. and Amador, S. and Adeleke, M. O. and Barber, J. A. and Banerjee, S. and Charlesworth, G. and others},
  title   = {{Clinical effectiveness of DREAMS START (Dementia Related Manual for Sleep; Strategies for Relatives) versus usual care for people with dementia and their carers: a single-masked, phase 3, parallel-arm, superiority randomised controlled trial}},
  journal = {The Lancet Healthy Longevity},
  year    = {2024},
  doi     = {10.1016/j.lanhl.2024.08.004},
  pmid    = {39366393},
  url     = {https://doi.org/10.1016/j.lanhl.2024.08.004}
}

@article{gustavsson2011-21924589,
  author  = {Gustavsson, A. and Svensson, M. and Jacobi, F. and Allgulander, C. and Alonso, J. and Beghi, E. and Dodel, R. and Ekman, M. and others},
  title   = {{Cost of disorders of the brain in Europe 2010}},
  journal = {European neuropsychopharmacology : the journal of the European College of Neuropsychopharmacology},
  year    = {2011},
  doi     = {10.1016/j.euroneuro.2011.08.008},
  pmid    = {21924589},
  url     = {https://doi.org/10.1016/j.euroneuro.2011.08.008}
}

@article{james2014-24598707,
  author  = {James, B. D. and Leurgans, S. E. and Hebert, L. E. and Scherr, P. A. and Yaffe, K. and Bennett, D. A.},
  title   = {{Contribution of Alzheimer disease to mortality in the United States}},
  journal = {Neurology},
  year    = {2014},
  doi     = {10.1212/wnl.0000000000000240},
  pmid    = {24598707},
  url     = {https://doi.org/10.1212/wnl.0000000000000240}
}

@article{gitlin2010-20810376,
  author  = {Gitlin, L. N. and Winter, L. and Dennis, M. P. and Hodgson, N. and Hauck, W. W.},
  title   = {{A biobehavioral home-based intervention and the well-being of patients with dementia and their caregivers: the COPE randomized trial}},
  journal = {JAMA},
  year    = {2010},
  doi     = {10.1001/jama.2010.1253},
  pmid    = {20810376},
  url     = {https://doi.org/10.1001/jama.2010.1253}
}

@article{pontecorvo2019-31009046,
  author  = {Pontecorvo, M. J. and Devous, M. D. and Kennedy, I. and Navitsky, M. and Lu, M. and Galante, N. and Salloway, S. and Doraiswamy, P. M. and others},
  title   = {{A multicentre longitudinal study of flortaucipir (18F) in normal ageing, mild cognitive impairment and Alzheimer's disease dementia}},
  journal = {Brain : a journal of neurology},
  year    = {2019},
  doi     = {10.1093/brain/awz090},
  pmid    = {31009046},
  url     = {https://doi.org/10.1093/brain/awz090}
}

@article{delpinocasado2019-31141556,
  author  = {Del-Pino-Casado, R. and Rodríguez Cardosa, M. and López-Martínez, C. and Orgeta, V.},
  title   = {{The association between subjective caregiver burden and depressive symptoms in carers of older relatives: A systematic review and meta-analysis}},
  journal = {PloS one},
  year    = {2019},
  doi     = {10.1371/journal.pone.0217648},
  pmid    = {31141556},
  url     = {https://doi.org/10.1371/journal.pone.0217648}
}

@article{study2006-46801c00,
  author  = {{REACH II Investigators}},
  title   = {{Enhancing the Quality of Life of Dementia Caregivers From Different Ethnic or Racial Groups: A Randomized, Controlled Trial}},
  journal = {Annals of Internal Medicine},
  year    = {2006},
  doi     = {10.7326/0003-4819-145-10-200611210-00005},
  pmid    = {17116917},
  url     = {https://doi.org/10.7326/0003-4819-145-10-200611210-00005}
}

@article{riemersmavanderlek2008-18544724,
  author  = {Riemersma-van der Lek, R. F. and Swaab, D. F. and Twisk, J. and Hol, E. M. and Hoogendijk, W. J. and Van Someren, E. J.},
  title   = {{Effect of bright light and melatonin on cognitive and noncognitive function in elderly residents of group care facilities: a randomized controlled trial}},
  journal = {JAMA},
  year    = {2008},
  doi     = {10.1001/jama.299.22.2642},
  pmid    = {18544724},
  url     = {https://doi.org/10.1001/jama.299.22.2642}
}

@article{johnson2018-29322089,
  author  = {Johnson, S. C. and Koscik, R. L. and Jonaitis, E. M. and Clark, L. R. and Mueller, K. D. and Berman, S. E. and Bendlin, B. B. and Engelman, C. D. and others},
  title   = {{The Wisconsin Registry for Alzheimer's Prevention: A review of findings and current directions}},
  journal = {Alzheimer's \& dementia (Amsterdam, Netherlands)},
  year    = {2018},
  doi     = {10.1016/j.dadm.2017.11.007},
  pmid    = {29322089},
  url     = {https://doi.org/10.1016/j.dadm.2017.11.007}
}

@article{kelley2015-26502320,
  author  = {Kelley, A. S. and McGarry, K. and Gorges, R. and Skinner, J. S.},
  title   = {{The burden of health care costs for patients with dementia in the last 5 years of life}},
  journal = {Annals of internal medicine},
  year    = {2015},
  doi     = {10.7326/m15-0381},
  pmid    = {26502320},
  url     = {https://doi.org/10.7326/m15-0381}
}

@article{martyr2018-29734962,
  author  = {Martyr, A. and Nelis, S. M. and Quinn, C. and Wu, Y. T. and Lamont, R. A. and Henderson, C. and Clarke, R. and Hindle, J. V. and others},
  title   = {{Living well with dementia: a systematic review and correlational meta-analysis of factors associated with quality of life, well-being and life satisfaction in people with dementia}},
  journal = {Psychological medicine},
  year    = {2018},
  doi     = {10.1017/s0033291718000405},
  pmid    = {29734962},
  url     = {https://doi.org/10.1017/s0033291718000405}
}

@article{bunn2012-23118618,
  author  = {Bunn, F. and Goodman, C. and Sworn, K. and Rait, G. and Brayne, C. and Robinson, L. and McNeilly, E. and Iliffe, S.},
  title   = {{Psychosocial factors that shape patient and carer experiences of dementia diagnosis and treatment: a systematic review of qualitative studies}},
  journal = {PLoS medicine},
  year    = {2012},
  doi     = {10.1371/journal.pmed.1001331},
  pmid    = {23118618},
  url     = {https://doi.org/10.1371/journal.pmed.1001331}
}

@article{morris1998-9595967,
  author  = {Morris, J. C. and Cyrus, P. A. and Orazem, J. and Mas, J. and Bieber, F. and Ruzicka, B. B. and Gulanski, B.},
  title   = {{Metrifonate benefits cognitive, behavioral, and global function in patients with Alzheimer's disease}},
  journal = {Neurology},
  year    = {1998},
  doi     = {10.1212/wnl.50.5.1222},
  pmid    = {9595967},
  url     = {https://doi.org/10.1212/wnl.50.5.1222}
}

@article{cristancholacroix2015-25967983,
  author  = {Cristancho-Lacroix, V. and Wrobel, J. and Cantegreil-Kallen, I. and Dub, T. and Rouquette, A. and Rigaud, A. S.},
  title   = {{A web-based psychoeducational program for informal caregivers of patients with Alzheimer's disease: a pilot randomized controlled trial}},
  journal = {Journal of medical Internet research},
  year    = {2015},
  doi     = {10.2196/jmir.3717},
  pmid    = {25967983},
  url     = {https://doi.org/10.2196/jmir.3717}
}

@article{dias2008-18523642,
  author  = {Dias, A. and Dewey, M. E. and D'Souza, J. and Dhume, R. and Motghare, D. D. and Shaji, K. S. and Menon, R. and Prince, M. and others},
  title   = {{The effectiveness of a home care program for supporting caregivers of persons with dementia in developing countries: a randomised controlled trial from Goa, India}},
  journal = {PloS one},
  year    = {2008},
  doi     = {10.1371/journal.pone.0002333},
  pmid    = {18523642},
  url     = {https://doi.org/10.1371/journal.pone.0002333}
}

@article{gaugler2013-23339050,
  author  = {Gaugler, Joseph E and Reese, Mark and Mittelman, Mary S},
  title   = {{Effects of the NYU caregiver intervention-adult child on residential care placement}},
  journal = {The Gerontologist},
  year    = {2013},
  doi     = {10.1093/geront/gns193},
  pmid    = {23339050},
  url     = {https://doi.org/10.1093/geront/gns193}
}

@article{kuo2016-27291982,
  author  = {Kuo, Li-Min and Huang, Huei-Ling and Hsu, Wen-Chuin and Wang, Yi-Ting and Shyu, Yea-Ing L},
  title   = {{Home-based caregiver training: Benefits differ by care receivers' dementia diagnosis}},
  journal = {Geriatric nursing (New York, N.Y.)},
  year    = {2016},
  doi     = {10.1016/j.gerinurse.2016.05.005},
  pmid    = {27291982},
  url     = {https://doi.org/10.1016/j.gerinurse.2016.05.005}
}

@article{dhanda2025-41345569,
  author  = {Dhanda, Nisha and Scaria, Emil Basil},
  title   = {{Dementia and communication comorbidities within the context of caregiver support systems: a scoping review}},
  journal = {BMC geriatrics},
  year    = {2025},
  doi     = {10.1186/s12877-025-06622-0},
  pmid    = {41345569},
  url     = {https://doi.org/10.1186/s12877-025-06622-0}
}

@article{dicker2025-40819234,
  author  = {Dicker, Eva E and Jones, Jenna S and Kunik, Mark E and Denny, Bryan T},
  title   = {{Emotion regulation strategies to improve outcomes in family caregivers of people with Alzheimer's disease and related dementias: A systematic review}},
  journal = {Journal of health psychology},
  year    = {2025},
  doi     = {10.1177/13591053251354882},
  pmid    = {40819234},
  url     = {https://doi.org/10.1177/13591053251354882}
}

@article{yu2018-29128685,
  author  = {Yu, D. S. F. and Cheng, S. T. and Wang, J.},
  title   = {{Unravelling positive aspects of caregiving in dementia: An integrative review of research literature}},
  journal = {International journal of nursing studies},
  year    = {2018},
  doi     = {10.1016/j.ijnurstu.2017.10.008},
  pmid    = {29128685},
  url     = {https://doi.org/10.1016/j.ijnurstu.2017.10.008}
}

@article{davis2017-28114436,
  author  = {Davis, D. H. and Muniz-Terrera, G. and Keage, H. A. and Stephan, B. C. and Fleming, J. and Ince, P. G. and Matthews, F. E. and Cunningham, C. and others},
  title   = {{Association of Delirium With Cognitive Decline in Late Life: A Neuropathologic Study of 3 Population-Based Cohort Studies}},
  journal = {JAMA psychiatry},
  year    = {2017},
  doi     = {10.1001/jamapsychiatry.2016.3423},
  pmid    = {28114436},
  url     = {https://doi.org/10.1001/jamapsychiatry.2016.3423}
}

@article{hopwood2018-29895512,
  author  = {Hopwood, J. and Walker, N. and McDonagh, L. and Rait, G. and Walters, K. and Iliffe, S. and Ross, J. and Davies, N.},
  title   = {{Internet-Based Interventions Aimed at Supporting Family Caregivers of People With Dementia: Systematic Review}},
  journal = {Journal of medical Internet research},
  year    = {2018},
  doi     = {10.2196/jmir.9548},
  pmid    = {29895512},
  url     = {https://doi.org/10.2196/jmir.9548}
}

@article{leung2021-33905138,
  author  = {Leung, D. K. Y. and Chan, W. C. and Spector, A. and Wong, G. H. Y.},
  title   = {{Prevalence of depression, anxiety, and apathy symptoms across dementia stages: A systematic review and meta-analysis}},
  journal = {International journal of geriatric psychiatry},
  year    = {2021},
  doi     = {10.1002/gps.5556},
  pmid    = {33905138},
  url     = {https://doi.org/10.1002/gps.5556}
}

@article{sipila2021-34166620,
  author  = {Sipilä, P. N. and Heikkilä, N. and Lindbohm, J. V. and Hakulinen, C. and Vahtera, J. and Elovainio, M. and Suominen, S. and Väänänen, A. and others},
  title   = {{Hospital-treated infectious diseases and the risk of dementia: a large, multicohort, observational study with a replication cohort}},
  journal = {The Lancet. Infectious diseases},
  year    = {2021},
  doi     = {10.1016/s1473-3099(21)00144-4},
  pmid    = {34166620},
  url     = {https://doi.org/10.1016/s1473-3099(21)00144-4}
}

@article{hellis2022-36676672,
  author  = {Hellis, Emily and Mukaetova-Ladinska, Elizabeta B},
  title   = {{Informal Caregiving and Alzheimer's Disease: The Psychological Effect}},
  journal = {Medicina (Kaunas, Lithuania)},
  year    = {2022},
  doi     = {10.3390/medicina59010048},
  pmid    = {36676672},
  url     = {https://doi.org/10.3390/medicina59010048}
}

@article{martinscaulfield2025-39808391,
  author  = {Martins-Caulfield, Josh and Mehdipanah, Roshanak and Briceño, Emily M and Chang, Wen and Heeringa, Steven G and Gonzales, Xavier F and Levine, Deborah A and Langa, Kenneth M and others},
  title   = {{Dementia Diagnosis Unawareness and Caregiver Burden in a Multi-ethnic Cohort}},
  journal = {Journal of general internal medicine},
  year    = {2025},
  doi     = {10.1007/s11606-024-09333-1},
  pmid    = {39808391},
  url     = {https://doi.org/10.1007/s11606-024-09333-1}
}

@article{vanderlee2017-26586266,
  author  = {van der Lee, Jacqueline and Bakker, Ton J E M and Duivenvoorden, Hugo J and Dröes, Rose-Marie},
  title   = {{Do determinants of burden and emotional distress in dementia caregivers change over time?}},
  journal = {Aging \& mental health},
  year    = {2017},
  doi     = {10.1080/13607863.2015.1102196},
  pmid    = {26586266},
  url     = {https://doi.org/10.1080/13607863.2015.1102196}
}

@article{kwok2025-40094667,
  author  = {Kwok, J. Y. Y. and Cheung, D. S. K. and Zarit, S. and Cheung, K. S. and Lau, B. H. P. and Lou, V. W. and Cheng, S. T. and Gallagher-Thompson, D. and Qian, M. and Chou, K. L.},
  title   = {{Multicomponent Intervention for Distressed Informal Caregivers of People With Dementia: A Randomized Clinical Trial}},
  journal = {JAMA Network Open},
  year    = {2025},
  doi     = {10.1001/jamanetworkopen.2025.0069},
  pmid    = {40094667},
  url     = {https://doi.org/10.1001/jamanetworkopen.2025.0069}
}

@article{reines2004-14718699,
  author  = {Reines, S. A. and Block, G. A. and Morris, J. C. and Liu, G. and Nessly, M. L. and Lines, C. R. and Norman, B. A. and Baranak, C. C. and others},
  title   = {{Rofecoxib: no effect on Alzheimer's disease in a 1-year, randomized, blinded, controlled study}},
  journal = {Neurology},
  year    = {2004},
  doi     = {10.1212/wnl.62.1.66},
  pmid    = {14718699},
  url     = {https://doi.org/10.1212/wnl.62.1.66}
}

@article{prince2007-17659078,
  author  = {Prince, M. and Ferri, C. P. and Acosta, D. and Albanese, E. and Arizaga, R. and Dewey, M. and Gavrilova, S. I. and Guerra, M. and others},
  title   = {{The protocols for the 10/66 dementia research group population-based research programme}},
  journal = {BMC public health},
  year    = {2007},
  doi     = {10.1186/1471-2458-7-165},
  pmid    = {17659078},
  url     = {https://doi.org/10.1186/1471-2458-7-165}
}

@article{beeldman2016-26283685,
  author  = {Beeldman, E. and Raaphorst, J. and Klein Twennaar, M. and de Visser, M. and Schmand, B. A. and de Haan, R. J.},
  title   = {{The cognitive profile of ALS: a systematic review and meta-analysis update}},
  journal = {Journal of neurology, neurosurgery, and psychiatry},
  year    = {2016},
  doi     = {10.1136/jnnp-2015-310734},
  pmid    = {26283685},
  url     = {https://doi.org/10.1136/jnnp-2015-310734}
}

@article{farina2017-28167069,
  author  = {Farina, N. and Page, T. E. and Daley, S. and Brown, A. and Bowling, A. and Basset, T. and Livingston, G. and Knapp, M. and others},
  title   = {{Factors associated with the quality of life of family carers of people with dementia: A systematic review}},
  journal = {Alzheimer's \& dementia : the journal of the Alzheimer's Association},
  year    = {2017},
  doi     = {10.1016/j.jalz.2016.12.010},
  pmid    = {28167069},
  url     = {https://doi.org/10.1016/j.jalz.2016.12.010}
}

@article{sanchez2021-33472953,
  author  = {Sanchez, J. S. and Becker, J. A. and Jacobs, H. I. L. and Hanseeuw, B. J. and Jiang, S. and Schultz, A. P. and Properzi, M. J. and Katz, SR. and others},
  title   = {{The cortical origin and initial spread of medial temporal tauopathy in Alzheimer's disease assessed with positron emission tomography}},
  journal = {Science translational medicine},
  year    = {2021},
  doi     = {10.1126/scitranslmed.abc0655},
  pmid    = {33472953},
  url     = {https://doi.org/10.1126/scitranslmed.abc0655}
}

@article{cheng2020-31985249,
  author  = {Cheng, S. T. and Li, K. K. and Losada, A. and Zhang, F. and Au, A. and Thompson, L. W. and Gallagher-Thompson, D.},
  title   = {{The effectiveness of nonpharmacological interventions for informal dementia caregivers: An updated systematic review and meta-analysis}},
  journal = {Psychology and aging},
  year    = {2020},
  doi     = {10.1037/pag0000401},
  pmid    = {31985249},
  url     = {https://doi.org/10.1037/pag0000401}
}

@article{malpetti2020-32380523,
  author  = {Malpetti, M. and Kievit, R. A. and Passamonti, L. and Jones, P. S. and Tsvetanov, K. A. and Rittman, T. and Mak, E. and Nicastro, N. and others},
  title   = {{Microglial activation and tau burden predict cognitive decline in Alzheimer's disease}},
  journal = {Brain : a journal of neurology},
  year    = {2020},
  doi     = {10.1093/brain/awaa088},
  pmid    = {32380523},
  url     = {https://doi.org/10.1093/brain/awaa088}
}

@article{petersen2017-27716673,
  author  = {Petersen, S. and Houston, S. and Qin, H. and Tague, C. and Studley, J.},
  title   = {{The Utilization of Robotic Pets in Dementia Care}},
  journal = {Journal of Alzheimer's disease : JAD},
  year    = {2017},
  doi     = {10.3233/jad-160703},
  pmid    = {27716673},
  url     = {https://doi.org/10.3233/jad-160703}
}

@article{aarsland2003-12633150,
  author  = {Aarsland, D. and Andersen, K. and Larsen, J. P. and Lolk, A. and Kragh-Sørensen, P.},
  title   = {{Prevalence and characteristics of dementia in Parkinson disease: an 8-year prospective study}},
  journal = {Archives of neurology},
  year    = {2003},
  doi     = {10.1001/archneur.60.3.387},
  pmid    = {12633150},
  url     = {https://doi.org/10.1001/archneur.60.3.387}
}

@article{sorensen2002-12040138,
  author  = {Sörensen, S. and Pinquart, M. and Duberstein, P.},
  title   = {{How effective are interventions with caregivers? An updated meta-analysis}},
  journal = {The Gerontologist},
  year    = {2002},
  doi     = {10.1093/geront/42.3.356},
  pmid    = {12040138},
  url     = {https://doi.org/10.1093/geront/42.3.356}
}

@article{irwin2017-27979356,
  author  = {Irwin, D. J. and Grossman, M. and Weintraub, D. and Hurtig, H. I. and Duda, J. E. and Xie, S. X. and Lee, E. B. and Van Deerlin, V. M. and others},
  title   = {{Neuropathological and genetic correlates of survival and dementia onset in synucleinopathies: a retrospective analysis}},
  journal = {The Lancet. Neurology},
  year    = {2017},
  doi     = {10.1016/s1474-4422(16)30291-5},
  pmid    = {27979356},
  url     = {https://doi.org/10.1016/s1474-4422(16)30291-5}
}

@article{vanginneken2013-24249541,
  author  = {van Ginneken, N. and Tharyan, P. and Lewin, S. and Rao, G. N. and Meera, S. M. and Pian, J. and Chandrashekar, S. and Patel, V.},
  title   = {{Non-specialist health worker interventions for the care of mental, neurological and substance-abuse disorders in low- and middle-income countries}},
  journal = {The Cochrane database of systematic reviews},
  year    = {2013},
  doi     = {10.1002/14651858.cd009149.pub2},
  pmid    = {24249541},
  url     = {https://doi.org/10.1002/14651858.cd009149.pub2}
}

@article{northouse2012-22412124,
  author  = {Northouse, L. and Williams, A. L. and Given, B. and McCorkle, R.},
  title   = {{Psychosocial care for family caregivers of patients with cancer}},
  journal = {Journal of clinical oncology : official journal of the American Society of Clinical Oncology},
  year    = {2012},
  doi     = {10.1200/jco.2011.39.5798},
  pmid    = {22412124},
  url     = {https://doi.org/10.1200/jco.2011.39.5798}
}

@article{vickrey2006-17116916,
  author  = {Vickrey, B. G. and Mittman, B. S. and Connor, K. I. and Pearson, M. L. and Della Penna, R. D. and Ganiats, T. G. and Demonte, R. W. and Chodosh, J. and others},
  title   = {{The effect of a disease management intervention on quality and outcomes of dementia care: a randomized, controlled trial}},
  journal = {Annals of internal medicine},
  year    = {2006},
  doi     = {10.7326/0003-4819-145-10-200611210-00004},
  pmid    = {17116916},
  url     = {https://doi.org/10.7326/0003-4819-145-10-200611210-00004}
}

@article{jia2019-31266451,
  author  = {Jia, R. X. and Liang, J. H. and Xu, Y. and Wang, Y. Q.},
  title   = {{Effects of physical activity and exercise on the cognitive function of patients with Alzheimer disease: a meta-analysis}},
  journal = {BMC geriatrics},
  year    = {2019},
  doi     = {10.1186/s12877-019-1175-2},
  pmid    = {31266451},
  url     = {https://doi.org/10.1186/s12877-019-1175-2}
}

@article{gilhooly2016-27193287,
  author  = {Gilhooly, K. J. and Gilhooly, M. L. and Sullivan, M. P. and McIntyre, A. and Wilson, L. and Harding, E. and Woodbridge, R. and Crutch, S.},
  title   = {{A meta-review of stress, coping and interventions in dementia and dementia caregiving}},
  journal = {BMC geriatrics},
  year    = {2016},
  doi     = {10.1186/s12877-016-0280-8},
  pmid    = {27193287},
  url     = {https://doi.org/10.1186/s12877-016-0280-8}
}

@article{pearsonstuttard2021-33549162,
  author  = {Pearson-Stuttard, J. and Bennett, J. and Cheng, Y. J. and Vamos, E. P. and Cross, A. J. and Ezzati, M. and Gregg, E. W.},
  title   = {{Trends in predominant causes of death in individuals with and without diabetes in England from 2001 to 2018: an epidemiological analysis of linked primary care records}},
  journal = {The lancet. Diabetes \& endocrinology},
  year    = {2021},
  doi     = {10.1016/s2213-8587(20)30431-9},
  pmid    = {33549162},
  url     = {https://doi.org/10.1016/s2213-8587(20)30431-9}
}

@article{sarkamo2014-24009169,
  author  = {Särkämö, T. and Tervaniemi, M. and Laitinen, S. and Numminen, A. and Kurki, M. and Johnson, J. K. and Rantanen, P.},
  title   = {{Cognitive, emotional, and social benefits of regular musical activities in early dementia: randomized controlled study}},
  journal = {The Gerontologist},
  year    = {2014},
  doi     = {10.1093/geront/gnt100},
  pmid    = {24009169},
  url     = {https://doi.org/10.1093/geront/gnt100}
}

@article{kawas2015-26180144,
  author  = {Kawas, C. H. and Kim, R. C. and Sonnen, J. A. and Bullain, S. S. and Trieu, T. and Corrada, M. M.},
  title   = {{Multiple pathologies are common and related to dementia in the oldest-old: The 90+ Study}},
  journal = {Neurology},
  year    = {2015},
  doi     = {10.1212/wnl.0000000000001831},
  pmid    = {26180144},
  url     = {https://doi.org/10.1212/wnl.0000000000001831}
}

@article{holstege2022-36411364,
  author  = {Holstege, H. and Hulsman, M. and Charbonnier, C. and Grenier-Boley, B. and Quenez, O. and Grozeva, D. and van Rooij, J. G. J. and Sims, R. and others},
  title   = {{Exome sequencing identifies rare damaging variants in ATP8B4 and ABCA1 as risk factors for Alzheimer's disease}},
  journal = {Nature genetics},
  year    = {2022},
  doi     = {10.1038/s41588-022-01208-7},
  pmid    = {36411364},
  url     = {https://doi.org/10.1038/s41588-022-01208-7}
}

@article{baharfuchs2013-23740535,
  author  = {Bahar-Fuchs, A. and Clare, L. and Woods, B.},
  title   = {{Cognitive training and cognitive rehabilitation for mild to moderate Alzheimer's disease and vascular dementia}},
  journal = {The Cochrane database of systematic reviews},
  year    = {2013},
  doi     = {10.1002/14651858.cd003260.pub2},
  pmid    = {23740535},
  url     = {https://doi.org/10.1002/14651858.cd003260.pub2}
}

@article{peters2019-30782689,
  author  = {Peters, R. and Booth, A. and Rockwood, K. and Peters, J. and D'Este, C. and Anstey, K. J.},
  title   = {{Combining modifiable risk factors and risk of dementia: a systematic review and meta-analysis}},
  journal = {BMJ open},
  year    = {2019},
  doi     = {10.1136/bmjopen-2018-022846},
  pmid    = {30782689},
  url     = {https://doi.org/10.1136/bmjopen-2018-022846}
}

@article{lindeza2020-33055092,
  author  = {Lindeza, P. and Rodrigues, M. and Costa, J. and Guerreiro, M. and Rosa, M. M.},
  title   = {{Impact of dementia on informal care: a systematic review of family caregivers' perceptions}},
  journal = {BMJ supportive \& palliative care},
  year    = {2020},
  doi     = {10.1136/bmjspcare-2020-002242},
  pmid    = {33055092},
  url     = {https://doi.org/10.1136/bmjspcare-2020-002242}
}

@article{hughes2013-24132374,
  author  = {Hughes, T. M. and Kuller, L. H. and Barinas-Mitchell, E. J. and Mackey, R. H. and McDade, E. M. and Klunk, W. E. and Aizenstein, H. J. and Cohen, A. D. and others},
  title   = {{Pulse wave velocity is associated with β-amyloid deposition in the brains of very elderly adults}},
  journal = {Neurology},
  year    = {2013},
  doi     = {10.1212/01.wnl.0000435301.64776.37},
  pmid    = {24132374},
  url     = {https://doi.org/10.1212/01.wnl.0000435301.64776.37}
}

@article{rodriguezgonzalez2020-31818233,
  author  = {Rodríguez-González, Ana-María and Rodríguez-Míguez, Eva},
  title   = {{A meta-analysis of the association between caregiver burden and the dependent's illness}},
  journal = {Journal of women \& aging},
  year    = {2020},
  doi     = {10.1080/08952841.2019.1700728},
  pmid    = {31818233},
  url     = {https://doi.org/10.1080/08952841.2019.1700728}
}

@article{gaugler2018-29562359,
  author  = {Gaugler, Joseph E and Reese, Mark and Mittelman, Mary S},
  title   = {{Process Evaluation of the NYU Caregiver Intervention-Adult Child}},
  journal = {The Gerontologist},
  year    = {2018},
  doi     = {10.1093/geront/gnx048},
  pmid    = {29562359},
  url     = {https://doi.org/10.1093/geront/gnx048}
}

@article{lorenz2008-18195339,
  author  = {Lorenz, K. A. and Lynn, J. and Dy, S. M. and Shugarman, L. R. and Wilkinson, A. and Mularski, R. A. and Morton, S. C. and Hughes, R. G. and others},
  title   = {{Evidence for improving palliative care at the end of life: a systematic review}},
  journal = {Annals of internal medicine},
  year    = {2008},
  doi     = {10.7326/0003-4819-148-2-200801150-00010},
  pmid    = {18195339},
  url     = {https://doi.org/10.7326/0003-4819-148-2-200801150-00010}
}

@article{langa2008-18631957,
  author  = {Langa, K. M. and Larson, E. B. and Karlawish, J. H. and Cutler, D. M. and Kabeto, M. U. and Kim, S. Y. and Rosen, A. B.},
  title   = {{Trends in the prevalence and mortality of cognitive impairment in the United States: is there evidence of a compression of cognitive morbidity?}},
  journal = {Alzheimer's \& dementia : the journal of the Alzheimer's Association},
  year    = {2008},
  doi     = {10.1016/j.jalz.2008.01.001},
  pmid    = {18631957},
  url     = {https://doi.org/10.1016/j.jalz.2008.01.001}
}

@article{gibb2020-32239173,
  author  = {Gibb, K. and Seeley, A. and Quinn, T. and Siddiqi, N. and Shenkin, S. and Rockwood, K. and Davis, D.},
  title   = {{The consistent burden in published estimates of delirium occurrence in medical inpatients over four decades: a systematic review and meta-analysis study}},
  journal = {Age and ageing},
  year    = {2020},
  doi     = {10.1093/ageing/afaa040},
  pmid    = {32239173},
  url     = {https://doi.org/10.1093/ageing/afaa040}
}

@article{mccurry2005-15877554,
  author  = {McCurry, S. M. and Gibbons, L. E. and Logsdon, R. G. and Vitiello, M. V. and Teri, L.},
  title   = {{Nighttime insomnia treatment and education for Alzheimer's disease: a randomized, controlled trial}},
  journal = {Journal of the American Geriatrics Society},
  year    = {2005},
  doi     = {10.1111/j.1532-5415.2005.53252.x},
  pmid    = {15877554},
  url     = {https://doi.org/10.1111/j.1532-5415.2005.53252.x}
}

@article{smith2017-28166234,
  author  = {Smith, D. and Lovell, J. and Weller, C. and Kennedy, B. and Winbolt, M. and Young, C. and Ibrahim, J.},
  title   = {{A systematic review of medication non-adherence in persons with dementia or cognitive impairment}},
  journal = {PloS one},
  year    = {2017},
  doi     = {10.1371/journal.pone.0170651},
  pmid    = {28166234},
  url     = {https://doi.org/10.1371/journal.pone.0170651}
}

@article{delgadosaborit2021-33340865,
  author  = {Delgado-Saborit, J. M. and Guercio, V. and Gowers, A. M. and Shaddick, G. and Fox, N. C. and Love, S.},
  title   = {{A critical review of the epidemiological evidence of effects of air pollution on dementia, cognitive function and cognitive decline in adult population}},
  journal = {The Science of the total environment},
  year    = {2021},
  doi     = {10.1016/j.scitotenv.2020.143734},
  pmid    = {33340865},
  url     = {https://doi.org/10.1016/j.scitotenv.2020.143734}
}

@article{morenograu2019-31473137,
  author  = {Moreno-Grau, S. and de Rojas, I. and Hernández, I. and Quintela, I. and Montrreal, L. and Alegret, M. and Hernández-Olasagarre, B. and Madrid, L. and others},
  title   = {{Genome-wide association analysis of dementia and its clinical endophenotypes reveal novel loci associated with Alzheimer's disease and three causality networks: The GR@ACE project}},
  journal = {Alzheimer's \& dementia : the journal of the Alzheimer's Association},
  year    = {2019},
  doi     = {10.1016/j.jalz.2019.06.4950},
  pmid    = {31473137},
  url     = {https://doi.org/10.1016/j.jalz.2019.06.4950}
}

@article{gao2019-31441938,
  author  = {Gao, C. and Chapagain, N. Y. and Scullin, M. K.},
  title   = {{Sleep Duration and Sleep Quality in Caregivers of Patients With Dementia: A Systematic Review and Meta-analysis}},
  journal = {JAMA network open},
  year    = {2019},
  doi     = {10.1001/jamanetworkopen.2019.9891},
  pmid    = {31441938},
  url     = {https://doi.org/10.1001/jamanetworkopen.2019.9891}
}

@article{cheung2022-36192349,
  author  = {Cheung, C. Y. and Ran, A. R. and Wang, S. and Chan, V. T. T. and Sham, K. and Hilal, S. and Venketasubramanian, N. and Cheng, C. Y. and others},
  title   = {{A deep learning model for detection of Alzheimer's disease based on retinal photographs: a retrospective, multicentre case-control study}},
  journal = {The Lancet. Digital health},
  year    = {2022},
  doi     = {10.1016/s2589-7500(22)00169-8},
  pmid    = {36192349},
  url     = {https://doi.org/10.1016/s2589-7500(22)00169-8}
}

@article{blom2015-25679228,
  author  = {Blom, M. M. and Zarit, S. H. and Groot Zwaaftink, R. B. and Cuijpers, P. and Pot, A. M.},
  title   = {{Effectiveness of an Internet intervention for family caregivers of people with dementia: results of a randomized controlled trial}},
  journal = {PloS one},
  year    = {2015},
  doi     = {10.1371/journal.pone.0116622},
  pmid    = {25679228},
  url     = {https://doi.org/10.1371/journal.pone.0116622}
}

@article{abdulazeem2025-39928936,
  author  = {Abdulazeem, Hebatullah Mohamed and Nascimento, Israel Júnior Borges do and Weerasekara, Ishanka and Sharifan, Amin and Bianco, Véronique and Cunningham, Charnay and Kularathne, Indunil and Deeken, Genevieve and others},
  title   = {{Use of Digital Health Technologies for Dementia Care: Bibliometric Analysis and Report}},
  journal = {JMIR Mental Health},
  year    = {2025},
  doi     = {10.2196/64445},
  pmid    = {39928936},
  url     = {https://doi.org/10.2196/64445}
}

@article{thompson2007-17662119,
  author  = {Thompson, C. A. and Spilsbury, K. and Hall, J. and Birks, Y. and Barnes, C. and Adamson, J.},
  title   = {{Systematic review of information and support interventions for caregivers of people with dementia}},
  journal = {BMC geriatrics},
  year    = {2007},
  doi     = {10.1186/1471-2318-7-18},
  pmid    = {17662119},
  url     = {https://doi.org/10.1186/1471-2318-7-18}
}

@article{schulz1999-28eb29b7,
  author  = {Schulz, R. and Beach, SR.},
  title   = {{Caregiving as a Risk Factor for Mortality: The Caregiver Health Effects Study}},
  journal = {JAMA},
  year    = {1999},
  pmid    = {10605972}
}

@article{pinquart2003-12825775,
  author  = {Pinquart, M. and Sörensen, S.},
  title   = {{Differences between caregivers and noncaregivers in psychological health and physical health: a meta-analysis}},
  journal = {Psychology and aging},
  year    = {2003},
  doi     = {10.1037/0882-7974.18.2.250},
  pmid    = {12825775},
  url     = {https://doi.org/10.1037/0882-7974.18.2.250}
}

@article{olazaran2010-20838046,
  author  = {Olazarán, J. and Reisberg, B. and Clare, L. and Cruz, I. and Peña-Casanova, J. and Del Ser, T. and Woods, B. and Beck, C. and others},
  title   = {{Nonpharmacological therapies in Alzheimer's disease: a systematic review of efficacy}},
  journal = {Dementia and geriatric cognitive disorders},
  year    = {2010},
  doi     = {10.1159/000316119},
  pmid    = {20838046},
  url     = {https://doi.org/10.1159/000316119}
}

@article{rockwood2000-10668712,
  author  = {Rockwood, K. and Wentzel, C. and Hachinski, V. and Hogan, D. B. and MacKnight, C. and McDowell, I.},
  title   = {{Prevalence and outcomes of vascular cognitive impairment. Vascular Cognitive Impairment Investigators of the Canadian Study of Health and Aging}},
  journal = {Neurology},
  year    = {2000},
  doi     = {10.1212/wnl.54.2.447},
  pmid    = {10668712},
  url     = {https://doi.org/10.1212/wnl.54.2.447}
}

@article{gitlin2001-11220813,
  author  = {Gitlin, L. N. and Corcoran, M. and Winter, L. and Boyce, A. and Hauck, W. W.},
  title   = {{A randomized, controlled trial of a home environmental intervention: effect on efficacy and upset in caregivers and on daily function of persons with dementia}},
  journal = {The Gerontologist},
  year    = {2001},
  doi     = {10.1093/geront/41.1.4},
  pmid    = {11220813},
  url     = {https://doi.org/10.1093/geront/41.1.4}
}

@article{fiest2016-27307128,
  author  = {Fiest, K. M. and Roberts, J. I. and Maxwell, C. J. and Hogan, D. B. and Smith, E. E. and Frolkis, A. and Cohen, A. and Kirk, A. and others},
  title   = {{The Prevalence and Incidence of Dementia Due to Alzheimer's Disease: a Systematic Review and Meta-Analysis}},
  journal = {The Canadian journal of neurological sciences. Le journal canadien des sciences neurologiques},
  year    = {2016},
  doi     = {10.1017/cjn.2016.36},
  pmid    = {27307128},
  url     = {https://doi.org/10.1017/cjn.2016.36}
}

@article{connors2020-31821606,
  author  = {Connors, M. H. and Seeher, K. and Teixeira-Pinto, A. and Woodward, M. and Ames, D. and Brodaty, H.},
  title   = {{Dementia and caregiver burden: A three-year longitudinal study}},
  journal = {International journal of geriatric psychiatry},
  year    = {2020},
  doi     = {10.1002/gps.5244},
  pmid    = {31821606},
  url     = {https://doi.org/10.1002/gps.5244}
}

@article{stinton2015-26085043,
  author  = {Stinton, C. and McKeith, I. and Taylor, J. P. and Lafortune, L. and Mioshi, E. and Mak, E. and Cambridge, V. and Mason, J. and others},
  title   = {{Pharmacological Management of Lewy Body Dementia: A Systematic Review and Meta-Analysis}},
  journal = {The American journal of psychiatry},
  year    = {2015},
  doi     = {10.1176/appi.ajp.2015.14121582},
  pmid    = {26085043},
  url     = {https://doi.org/10.1176/appi.ajp.2015.14121582}
}

@article{lampe2019-30556596,
  author  = {Lampe, L. and Zhang, R. and Beyer, F. and Huhn, S. and Kharabian Masouleh, S. and Preusser, S. and Bazin, P. L. and Schroeter, M. L. and others},
  title   = {{Visceral obesity relates to deep white matter hyperintensities via inflammation}},
  journal = {Annals of neurology},
  year    = {2019},
  doi     = {10.1002/ana.25396},
  pmid    = {30556596},
  url     = {https://doi.org/10.1002/ana.25396}
}

@article{feast2016-26989095,
  author  = {Feast, A. and Orrell, M. and Charlesworth, G. and Melunsky, N. and Poland, F. and Moniz-Cook, E.},
  title   = {{Behavioural and psychological symptoms in dementia and the challenges for family carers: systematic review}},
  journal = {The British journal of psychiatry : the journal of mental science},
  year    = {2016},
  doi     = {10.1192/bjp.bp.114.153684},
  pmid    = {26989095},
  url     = {https://doi.org/10.1192/bjp.bp.114.153684}
}

@article{pollock2007-17846102,
  author  = {Pollock, B. G. and Mulsant, B. H. and Rosen, J. and Mazumdar, S. and Blakesley, R. E. and Houck, P. R. and Huber, K. A.},
  title   = {{A double-blind comparison of citalopram and risperidone for the treatment of behavioral and psychotic symptoms associated with dementia}},
  journal = {The American journal of geriatric psychiatry : official journal of the American Association for Geriatric Psychiatry},
  year    = {2007},
  doi     = {10.1097/jgp.0b013e3180cc1ff5},
  pmid    = {17846102},
  url     = {https://doi.org/10.1097/jgp.0b013e3180cc1ff5}
}

@article{rait2010-20688840,
  author  = {Rait, G. and Walters, K. and Bottomley, C. and Petersen, I. and Iliffe, S. and Nazareth, I.},
  title   = {{Survival of people with clinical diagnosis of dementia in primary care: cohort study}},
  journal = {BMJ (Clinical research ed.)},
  year    = {2010},
  doi     = {10.1136/bmj.c3584},
  pmid    = {20688840},
  url     = {https://doi.org/10.1136/bmj.c3584}
}

@article{maayan2014-7ba38cc8,
  author  = {Maayan, N. and Soares-Weiser, K. and Lee, H.},
  title   = {{Respite Care for People With Dementia and Their Carers}},
  journal = {Cochrane Database of Systematic Reviews},
  year    = {2014}
}

@article{liao2024-38752797,
  author  = {Liao, X. and Wang, Z. and Zeng, Q. and Zeng, Y.},
  title   = {{Loneliness and social isolation among informal carers of individuals with dementia: A systematic review and meta-analysis}},
  journal = {International Journal of Geriatric Psychiatry},
  year    = {2024},
  doi     = {10.1002/gps.6101},
  pmid    = {38752797},
  url     = {https://doi.org/10.1002/gps.6101}
}

@article{falzarano2026-42018322,
  author  = {Falzarano, F. B. and Greenfield, A. and Saviano, S. C. and Kolla, S. and Korian, S. and Osso, F. and Miller, J. and Whitson, H. E. and Maciejewski, P. K. and Prigerson, H. G.},
  title   = {{Digital Reminiscence for Predeath Grief Among Family Caregivers of Patients With Dementia: A Pilot Randomized Clinical Trial}},
  journal = {JAMA Network Open},
  year    = {2026},
  doi     = {10.1001/jamanetworkopen.2026.8278},
  pmid    = {42018322},
  url     = {https://doi.org/10.1001/jamanetworkopen.2026.8278}
}

@article{tomic2022-35668219,
  author  = {Tomic, D. and Shaw, J. E. and Magliano, D. J.},
  title   = {{The burden and risks of emerging complications of diabetes mellitus}},
  journal = {Nature reviews. Endocrinology},
  year    = {2022},
  doi     = {10.1038/s41574-022-00690-7},
  pmid    = {35668219},
  url     = {https://doi.org/10.1038/s41574-022-00690-7}
}

@article{pendlebury2019-30784556,
  author  = {Pendlebury, S. T. and Rothwell, P. M. and {Oxford Vascular Study}},
  title   = {{Incidence and prevalence of dementia associated with transient ischaemic attack and stroke: analysis of the population-based Oxford Vascular Study}},
  journal = {The Lancet. Neurology},
  year    = {2019},
  doi     = {10.1016/s1474-4422(18)30442-3},
  pmid    = {30784556},
  url     = {https://doi.org/10.1016/s1474-4422(18)30442-3}
}

@article{livingston2005-16263837,
  author  = {Livingston, G. and Johnston, K. and Katona, C. and Paton, J. and Lyketsos, C. G. and {Old Age Task Force of the World Federation of Biological Psychiatry}},
  title   = {{Systematic review of psychological approaches to the management of neuropsychiatric symptoms of dementia}},
  journal = {The American journal of psychiatry},
  year    = {2005},
  doi     = {10.1176/appi.ajp.162.11.1996},
  pmid    = {16263837},
  url     = {https://doi.org/10.1176/appi.ajp.162.11.1996}
}

@article{brodaty2012-22952073,
  author  = {Brodaty, H. and Arasaratnam, C.},
  title   = {{Meta-analysis of nonpharmacological interventions for neuropsychiatric symptoms of dementia}},
  journal = {The American journal of psychiatry},
  year    = {2012},
  doi     = {10.1176/appi.ajp.2012.11101529},
  pmid    = {22952073},
  url     = {https://doi.org/10.1176/appi.ajp.2012.11101529}
}

@article{toot2017-27806743,
  author  = {Toot, S. and Swinson, T. and Devine, M. and Challis, D. and Orrell, M.},
  title   = {{Causes of nursing home placement for older people with dementia: a systematic review and meta-analysis}},
  journal = {International psychogeriatrics},
  year    = {2017},
  doi     = {10.1017/s1041610216001654},
  pmid    = {27806743},
  url     = {https://doi.org/10.1017/s1041610216001654}
}

@article{turner2004-15271637,
  author  = {Turner, S. and Iliffe, S. and Downs, M. and Wilcock, J. and Bryans, M. and Levin, E. and Keady, J. and O'Carroll, R.},
  title   = {{General practitioners' knowledge, confidence and attitudes in the diagnosis and management of dementia}},
  journal = {Age and ageing},
  year    = {2004},
  doi     = {10.1093/ageing/afh140},
  pmid    = {15271637},
  url     = {https://doi.org/10.1093/ageing/afh140}
}

@article{brickman2012-22945686,
  author  = {Brickman, A. M. and Provenzano, F. A. and Muraskin, J. and Manly, J. J. and Blum, S. and Apa, Z. and Stern, Y. and Brown, T. R. and others},
  title   = {{Regional white matter hyperintensity volume, not hippocampal atrophy, predicts incident Alzheimer disease in the community}},
  journal = {Archives of neurology},
  year    = {2012},
  doi     = {10.1001/archneurol.2012.1527},
  pmid    = {22945686},
  url     = {https://doi.org/10.1001/archneurol.2012.1527}
}

@article{wilson2019-30728309,
  author  = {Wilson, R. S. and Yu, L. and Lamar, M. and Schneider, J. A. and Boyle, P. A. and Bennett, D. A.},
  title   = {{Education and cognitive reserve in old age}},
  journal = {Neurology},
  year    = {2019},
  doi     = {10.1212/wnl.0000000000007036},
  pmid    = {30728309},
  url     = {https://doi.org/10.1212/wnl.0000000000007036}
}

@article{jeste2008-17637610,
  author  = {Jeste, D. V. and Blazer, D. and Casey, D. and Meeks, T. and Salzman, C. and Schneider, L. and Tariot, P. and Yaffe, K.},
  title   = {{ACNP White Paper: update on use of antipsychotic drugs in elderly persons with dementia}},
  journal = {Neuropsychopharmacology : official publication of the American College of Neuropsychopharmacology},
  year    = {2008},
  doi     = {10.1038/sj.npp.1301492},
  pmid    = {17637610},
  url     = {https://doi.org/10.1038/sj.npp.1301492}
}

@article{barnes2015-26180136,
  author  = {Barnes, L. L. and Leurgans, S. and Aggarwal, N. T. and Shah, R. C. and Arvanitakis, Z. and James, B. D. and Buchman, A. S. and Bennett, D. A. and others},
  title   = {{Mixed pathology is more likely in black than white decedents with Alzheimer dementia}},
  journal = {Neurology},
  year    = {2015},
  doi     = {10.1212/wnl.0000000000001834},
  pmid    = {26180136},
  url     = {https://doi.org/10.1212/wnl.0000000000001834}
}

@article{black2013-22795617,
  author  = {Black, D. S. and Cole, S. W. and Irwin, M. R. and Breen, E. and St Cyr, N. M. and Nazarian, N. and Khalsa, D. S. and Lavretsky, H.},
  title   = {{Yogic meditation reverses NF-κB and IRF-related transcriptome dynamics in leukocytes of family dementia caregivers in a randomized controlled trial}},
  journal = {Psychoneuroendocrinology},
  year    = {2013},
  doi     = {10.1016/j.psyneuen.2012.06.011},
  pmid    = {22795617},
  url     = {https://doi.org/10.1016/j.psyneuen.2012.06.011}
}

@article{gitlin2010-20662955,
  author  = {Gitlin, L. N. and Winter, L. and Dennis, M. P. and Hodgson, N. and Hauck, W. W.},
  title   = {{Targeting and managing behavioral symptoms in individuals with dementia: a randomized trial of a nonpharmacological intervention}},
  journal = {Journal of the American Geriatrics Society},
  year    = {2010},
  doi     = {10.1111/j.1532-5415.2010.02971.x},
  pmid    = {20662955},
  url     = {https://doi.org/10.1111/j.1532-5415.2010.02971.x}
}

@article{troncoso2008-18496870,
  author  = {Troncoso, J. C. and Zonderman, A. B. and Resnick, S. M. and Crain, B. and Pletnikova, O. and O'Brien, R. J.},
  title   = {{Effect of infarcts on dementia in the Baltimore longitudinal study of aging}},
  journal = {Annals of neurology},
  year    = {2008},
  doi     = {10.1002/ana.21413},
  pmid    = {18496870},
  url     = {https://doi.org/10.1002/ana.21413}
}

@article{cummings2016-26822146,
  author  = {Cummings, J. L. and Zhong, K. and Kinney, J. W. and Heaney, C. and Moll-Tudla, J. and Joshi, A. and Pontecorvo, M. and Devous, M. and others},
  title   = {{Double-blind, placebo-controlled, proof-of-concept trial of bexarotene Xin moderate Alzheimer's disease}},
  journal = {Alzheimer's research \& therapy},
  year    = {2016},
  doi     = {10.1186/s13195-016-0173-2},
  pmid    = {26822146},
  url     = {https://doi.org/10.1186/s13195-016-0173-2}
}

@article{hogan2016-27307130,
  author  = {Hogan, D. B. and Jetté, N. and Fiest, K. M. and Roberts, J. I. and Pearson, D. and Smith, E. E. and Roach, P. and Kirk, A. and others},
  title   = {{The Prevalence and Incidence of Frontotemporal Dementia: a Systematic Review}},
  journal = {The Canadian journal of neurological sciences. Le journal canadien des sciences neurologiques},
  year    = {2016},
  doi     = {10.1017/cjn.2016.25},
  pmid    = {27307130},
  url     = {https://doi.org/10.1017/cjn.2016.25}
}

@article{elliott2010-20122038,
  author  = {Elliott, A. F. and Burgio, L. D. and Decoster, J.},
  title   = {{Enhancing caregiver health: findings from the resources for enhancing Alzheimer's caregiver health II intervention}},
  journal = {Journal of the American Geriatrics Society},
  year    = {2010},
  doi     = {10.1111/j.1532-5415.2009.02631.x},
  pmid    = {20122038},
  url     = {https://doi.org/10.1111/j.1532-5415.2009.02631.x}
}

@article{hogan2016-27307129,
  author  = {Hogan, D. B. and Fiest, K. M. and Roberts, J. I. and Maxwell, C. J. and Dykeman, J. and Pringsheim, T. and Steeves, T. and Smith, E. E. and others},
  title   = {{The Prevalence and Incidence of Dementia with Lewy Bodies: a Systematic Review}},
  journal = {The Canadian journal of neurological sciences. Le journal canadien des sciences neurologiques},
  year    = {2016},
  doi     = {10.1017/cjn.2016.2},
  pmid    = {27307129},
  url     = {https://doi.org/10.1017/cjn.2016.2}
}

@article{coon2003-14570964,
  author  = {Coon, D. W. and Thompson, L. and Steffen, A. and Sorocco, K. and Gallagher-Thompson, D.},
  title   = {{Anger and depression management: psychoeducational skill training interventions for women caregivers of a relative with dementia}},
  journal = {The Gerontologist},
  year    = {2003},
  doi     = {10.1093/geront/43.5.678},
  pmid    = {14570964},
  url     = {https://doi.org/10.1093/geront/43.5.678}
}

@article{knopman1994-7991118,
  author  = {Knopman, D. S. and Knapp, M. J. and Gracon, S. I. and Davis, C. S.},
  title   = {{The Clinician Interview-Based Impression (CIBI): a clinician's global change rating scale in Alzheimer's disease}},
  journal = {Neurology},
  year    = {1994},
  doi     = {10.1212/wnl.44.12.2315},
  pmid    = {7991118},
  url     = {https://doi.org/10.1212/wnl.44.12.2315}
}

@article{betz2024-39531391,
  author  = {Betz, M. E. and Portz, J. and Knoepke, C. and Ranney, M. L. and Fischer, S. M. and Peterson, R. A. and Johnson, R. L. and Omeragic, F. and Castaneda, M. and Greenway, E. and Matlock, D.},
  title   = {{The Effect of the "Safety in Dementia" Online Tool to Assist Decision Making for Caregivers of Persons With Dementia and Access to Firearms: A Randomized Trial}},
  journal = {Annals of Internal Medicine},
  year    = {2024},
  doi     = {10.7326/ANNALS-24-00763},
  pmid    = {39531391},
  url     = {https://doi.org/10.7326/ANNALS-24-00763}
}

@article{sveinsdottir2025-41380710,
  author  = {Sveinsdottir, V. and Assmus, J. and Schneider, J. and Baker, F. A. and Uçaner, B. and Kreutz, G. and Geretsegger, M. and others},
  title   = {{Clinical effectiveness of music interventions for dementia and depression in older people (MIDDEL): a multinational, cluster-randomised controlled trial}},
  journal = {The Lancet Healthy Longevity},
  year    = {2025},
  doi     = {10.1016/j.lanhl.2025.100783},
  pmid    = {41380710},
  url     = {https://doi.org/10.1016/j.lanhl.2025.100783}
}

@article{vitaliano2003-14599289,
  author  = {Vitaliano, P. P. and Zhang, J. and Scanlan, J. M.},
  title   = {{Is caregiving hazardous to one's physical health? A meta-analysis}},
  journal = {Psychological bulletin},
  year    = {2003},
  doi     = {10.1037/0033-2909.129.6.946},
  pmid    = {14599289},
  url     = {https://doi.org/10.1037/0033-2909.129.6.946}
}

@article{pinquart2007-17379673,
  author  = {Pinquart, M. and Sörensen, S.},
  title   = {{Correlates of physical health of informal caregivers: a meta-analysis}},
  journal = {The journals of gerontology. Series B, Psychological sciences and social sciences},
  year    = {2007},
  doi     = {10.1093/geronb/62.2.p126},
  pmid    = {17379673},
  url     = {https://doi.org/10.1093/geronb/62.2.p126}
}

@article{yaffe2002-11966383,
  author  = {Yaffe, K. and Fox, P. and Newcomer, R. and Sands, L. and Lindquist, K. and Dane, K. and Covinsky, K. E.},
  title   = {{Patient and caregiver characteristics and nursing home placement in patients with dementia}},
  journal = {JAMA},
  year    = {2002},
  doi     = {10.1001/jama.287.16.2090},
  pmid    = {11966383},
  url     = {https://doi.org/10.1001/jama.287.16.2090}
}

@article{pinquart2006-16686964,
  author  = {Pinquart, M. and Sörensen, S.},
  title   = {{Helping caregivers of persons with dementia: which interventions work and how large are their effects?}},
  journal = {International psychogeriatrics},
  year    = {2006},
  doi     = {10.1017/s1041610206003462},
  pmid    = {16686964},
  url     = {https://doi.org/10.1017/s1041610206003462}
}

@article{habes2016-26912649,
  author  = {Habes, M. and Erus, G. and Toledo, J. B. and Zhang, T. and Bryan, N. and Launer, L. J. and Rosseel, Y. and Janowitz, D. and others},
  title   = {{White matter hyperintensities and imaging patterns of brain ageing in the general population}},
  journal = {Brain : a journal of neurology},
  year    = {2016},
  doi     = {10.1093/brain/aww008},
  pmid    = {26912649},
  url     = {https://doi.org/10.1093/brain/aww008}
}

@article{banerjee2011-21764118,
  author  = {Banerjee, S. and Hellier, J. and Dewey, M. and Romeo, R. and Ballard, C. and Baldwin, R. and Bentham, P. and Fox, C. and others},
  title   = {{Sertraline or mirtazapine for depression in dementia (HTA-SADD): a randomised, multicentre, double-blind, placebo-controlled trial}},
  journal = {Lancet (London, England)},
  year    = {2011},
  doi     = {10.1016/s0140-6736(11)60830-1},
  pmid    = {21764118},
  url     = {https://doi.org/10.1016/s0140-6736(11)60830-1}
}

@article{kim2008-18420838,
  author  = {Kim, Y. and Schulz, R.},
  title   = {{Family caregivers' strains: comparative analysis of cancer caregiving with dementia, diabetes, and frail elderly caregiving}},
  journal = {Journal of aging and health},
  year    = {2008},
  doi     = {10.1177/0898264308317533},
  pmid    = {18420838},
  url     = {https://doi.org/10.1177/0898264308317533}
}

@article{fitzpatrick2004-14728627,
  author  = {Fitzpatrick, A. L. and Kuller, L. H. and Ives, D. G. and Lopez, O. L. and Jagust, W. and Breitner, J. C. and Jones, B. and Lyketsos, C. and others},
  title   = {{Incidence and prevalence of dementia in the Cardiovascular Health Study}},
  journal = {Journal of the American Geriatrics Society},
  year    = {2004},
  doi     = {10.1111/j.1532-5415.2004.52058.x},
  pmid    = {14728627},
  url     = {https://doi.org/10.1111/j.1532-5415.2004.52058.x}
}

@article{higginson2010-19836205,
  author  = {Higginson, I. J. and Gao, W. and Jackson, D. and Murray, J. and Harding, R.},
  title   = {{Short-form Zarit Caregiver Burden Interviews were valid in advanced conditions}},
  journal = {Journal of clinical epidemiology},
  year    = {2010},
  doi     = {10.1016/j.jclinepi.2009.06.014},
  pmid    = {19836205},
  url     = {https://doi.org/10.1016/j.jclinepi.2009.06.014}
}

@article{savva2009-19252147,
  author  = {Savva, G. M. and Zaccai, J. and Matthews, F. E. and Davidson, J. E. and McKeith, I. and Brayne, C. and {Medical Research Council Cognitive Function and Ageing Study}},
  title   = {{Prevalence, correlates and course of behavioural and psychological symptoms of dementia in the population}},
  journal = {The British journal of psychiatry : the journal of mental science},
  year    = {2009},
  doi     = {10.1192/bjp.bp.108.049619},
  pmid    = {19252147},
  url     = {https://doi.org/10.1192/bjp.bp.108.049619}
}

@article{jaremka2014-23957903,
  author  = {Jaremka, L. M. and Andridge, R. R. and Fagundes, C. P. and Alfano, C. M. and Povoski, S. P. and Lipari, A. M. and Agnese, D. M. and Arnold, M. W. and others},
  title   = {{Pain, depression, and fatigue: loneliness as a longitudinal risk factor}},
  journal = {Health psychology : official journal of the Division of Health Psychology, American Psychological Association},
  year    = {2014},
  doi     = {10.1037/a0034012},
  pmid    = {23957903},
  url     = {https://doi.org/10.1037/a0034012}
}

@article{resnick2010-20147655,
  author  = {Resnick, S. M. and Sojkova, J. and Zhou, Y. and An, Y. and Ye, W. and Holt, D. P. and Dannals, R. F. and Mathis, C. A. and others},
  title   = {{Longitudinal cognitive decline is associated with fibrillar amyloid-beta measured by [11C]PiB}},
  journal = {Neurology},
  year    = {2010},
  doi     = {10.1212/wnl.0b013e3181d3e3e9},
  pmid    = {20147655},
  url     = {https://doi.org/10.1212/wnl.0b013e3181d3e3e9}
}

@article{feast2016-27345942,
  author  = {Feast, A. and Moniz-Cook, E. and Stoner, C. and Charlesworth, G. and Orrell, M.},
  title   = {{A systematic review of the relationship between behavioral and psychological symptoms (BPSD) and caregiver well-being}},
  journal = {International psychogeriatrics},
  year    = {2016},
  doi     = {10.1017/s1041610216000922},
  pmid    = {27345942},
  url     = {https://doi.org/10.1017/s1041610216000922}
}

@article{ostwald1999-10396888,
  author  = {Ostwald, S. K. and Hepburn, K. W. and Caron, W. and Burns, T. and Mantell, R.},
  title   = {{Reducing caregiver burden: a randomized psychoeducational intervention for caregivers of persons with dementia}},
  journal = {The Gerontologist},
  year    = {1999},
  doi     = {10.1093/geront/39.3.299},
  pmid    = {10396888},
  url     = {https://doi.org/10.1093/geront/39.3.299}
}

@article{tsoy2021-33779684,
  author  = {Tsoy, E. and Kiekhofer, R. E. and Guterman, E. L. and Tee, B. L. and Windon, C. C. and Dorsman, K. A. and Lanata, S. C. and others},
  title   = {{Assessment of Racial/Ethnic Disparities in Timeliness and Comprehensiveness of Dementia Diagnosis in California}},
  journal = {JAMA neurology},
  year    = {2021},
  doi     = {10.1001/jamaneurol.2021.0399},
  pmid    = {33779684},
  url     = {https://doi.org/10.1001/jamaneurol.2021.0399}
}

@article{grande2019-31173841,
  author  = {Grande, G. and Triolo, F. and Nuara, A. and Welmer, A. K. and Fratiglioni, L. and Vetrano, D. L.},
  title   = {{Measuring gait speed to better identify prodromal dementia}},
  journal = {Experimental gerontology},
  year    = {2019},
  doi     = {10.1016/j.exger.2019.05.014},
  pmid    = {31173841},
  url     = {https://doi.org/10.1016/j.exger.2019.05.014}
}

@article{wu2025-39918818,
  author  = {Wu, Zimu and Cribb, Lachlan and Wolfe, Rory and Shah, Raj C. and Orchard, Suzanne Gaye and Owen, Alice J. and Woods, Robyn L. and Vishwanath, Swarna and others},
  title   = {{Cardiometabolic Trajectories Preceding Dementia in Community-Dwelling Older Individuals}},
  journal = {JAMA Network Open},
  year    = {2025},
  doi     = {10.1001/jamanetworkopen.2024.58591},
  pmid    = {39918818},
  url     = {https://doi.org/10.1001/jamanetworkopen.2024.58591}
}

@article{yang2018-30093249,
  author  = {Yang, H. S. and Yu, L. and White, C. C. and Chibnik, L. B. and Chhatwal, J. P. and Sperling, R. A. and Bennett, D. A. and Schneider, J. A. and others},
  title   = {{Evaluation of TDP-43 proteinopathy and hippocampal sclerosis in relation to APOE ε4 haplotype status: a community-based cohort study}},
  journal = {The Lancet. Neurology},
  year    = {2018},
  doi     = {10.1016/s1474-4422(18)30251-5},
  pmid    = {30093249},
  url     = {https://doi.org/10.1016/s1474-4422(18)30251-5}
}

@article{gitlin2003-14518800,
  author  = {Gitlin, L. N. and Belle, S. H. and Burgio, L. D. and Czaja, S. J. and Mahoney, D. and Gallagher-Thompson, D. and Burns, R. and Hauck, W. W. and others},
  title   = {{Effect of multicomponent interventions on caregiver burden and depression: the REACH multisite initiative at 6-month follow-up}},
  journal = {Psychology and aging},
  year    = {2003},
  doi     = {10.1037/0882-7974.18.3.361},
  pmid    = {14518800},
  url     = {https://doi.org/10.1037/0882-7974.18.3.361}
}

@article{holmes2011-21753171,
  author  = {Holmes, C. and Cunningham, C. and Zotova, E. and Culliford, D. and Perry, V. H.},
  title   = {{Proinflammatory cytokines, sickness behavior, and Alzheimer disease}},
  journal = {Neurology},
  year    = {2011},
  doi     = {10.1212/wnl.0b013e318225ae07},
  pmid    = {21753171},
  url     = {https://doi.org/10.1212/wnl.0b013e318225ae07}
}

@article{langa2020-31563909,
  author  = {Langa, K. M. and Ryan, L. H. and McCammon, R. J. and Jones, R. N. and Manly, J. J. and Levine, D. A. and Sonnega, A. and Farron, M. and others},
  title   = {{The Health and Retirement Study Harmonized Cognitive Assessment Protocol Project: Study Design and Methods}},
  journal = {Neuroepidemiology},
  year    = {2020},
  doi     = {10.1159/000503004},
  pmid    = {31563909},
  url     = {https://doi.org/10.1159/000503004}
}

@article{study2022-34998485,
  author  = {{GBD 2019 Dementia Forecasting Collaborators}},
  title   = {{Estimation of the global prevalence of dementia in 2019 and forecasted prevalence in 2050: an analysis for the Global Burden of Disease Study 2019}},
  journal = {The Lancet. Public health},
  year    = {2022},
  doi     = {10.1016/s2468-2667(21)00249-8},
  pmid    = {34998485},
  url     = {https://doi.org/10.1016/s2468-2667(21)00249-8}
}

@article{pinquart2003-12646594,
  author  = {Pinquart, M. and Sörensen, S.},
  title   = {{Associations of stressors and uplifts of caregiving with caregiver burden and depressive mood: a meta-analysis}},
  journal = {The journals of gerontology. Series B, Psychological sciences and social sciences},
  year    = {2003},
  doi     = {10.1093/geronb/58.2.p112},
  pmid    = {12646594},
  url     = {https://doi.org/10.1093/geronb/58.2.p112}
}

@article{bejanin2017-29053874,
  author  = {Bejanin, A. and Schonhaut, D. R. and La Joie, R. and Kramer, J. H. and Baker, S. L. and Sosa, N. and Ayakta, N. and Cantwell, A. and others},
  title   = {{Tau pathology and neurodegeneration contribute to cognitive impairment in Alzheimer's disease}},
  journal = {Brain : a journal of neurology},
  year    = {2017},
  doi     = {10.1093/brain/awx243},
  pmid    = {29053874},
  url     = {https://doi.org/10.1093/brain/awx243}
}

@article{jia2018-29433981,
  author  = {Jia, J. and Wei, C. and Chen, S. and Li, F. and Tang, Y. and Qin, W. and Zhao, L. and Jin, H. and others},
  title   = {{The cost of Alzheimer's disease in China and re-estimation of costs worldwide}},
  journal = {Alzheimer's \& dementia : the journal of the Alzheimer's Association},
  year    = {2018},
  doi     = {10.1016/j.jalz.2017.12.006},
  pmid    = {29433981},
  url     = {https://doi.org/10.1016/j.jalz.2017.12.006}
}

@article{brodaty2003-12752841,
  author  = {Brodaty, H. and Green, A. and Koschera, A.},
  title   = {{Meta-analysis of psychosocial interventions for caregivers of people with dementia}},
  journal = {Journal of the American Geriatrics Society},
  year    = {2003},
  doi     = {10.1034/j.1600-0579.2003.00210.x},
  pmid    = {12752841},
  url     = {https://doi.org/10.1034/j.1600-0579.2003.00210.x}
}

@article{corrada2010-20186856,
  author  = {Corrada, M. M. and Brookmeyer, R. and Paganini-Hill, A. and Berlau, D. and Kawas, C. H.},
  title   = {{Dementia incidence continues to increase with age in the oldest old: the 90+ study}},
  journal = {Annals of neurology},
  year    = {2010},
  doi     = {10.1002/ana.21915},
  pmid    = {20186856},
  url     = {https://doi.org/10.1002/ana.21915}
}

@article{boots2014-23963684,
  author  = {Boots, L. M. and de Vugt, M. E. and van Knippenberg, R. J. and Kempen, G. I. and Verhey, F. R.},
  title   = {{A systematic review of Internet-based supportive interventions for caregivers of patients with dementia}},
  journal = {International journal of geriatric psychiatry},
  year    = {2014},
  doi     = {10.1002/gps.4016},
  pmid    = {23963684},
  url     = {https://doi.org/10.1002/gps.4016}
}

@article{kreisl2013-23775979,
  author  = {Kreisl, W. C. and Lyoo, C. H. and McGwier, M. and Snow, J. and Jenko, K. J. and Kimura, N. and Corona, W. and Morse, C. L. and others},
  title   = {{In vivo radioligand binding to translocator protein correlates with severity of Alzheimer's disease}},
  journal = {Brain : a journal of neurology},
  year    = {2013},
  doi     = {10.1093/brain/awt145},
  pmid    = {23775979},
  url     = {https://doi.org/10.1093/brain/awt145}
}

@article{vanderlee2014-24675045,
  author  = {van der Lee, J. and Bakker, T. J. and Duivenvoorden, H. J. and Dröes, R. M.},
  title   = {{Multivariate models of subjective caregiver burden in dementia: a systematic review}},
  journal = {Ageing research reviews},
  year    = {2014},
  doi     = {10.1016/j.arr.2014.03.003},
  pmid    = {24675045},
  url     = {https://doi.org/10.1016/j.arr.2014.03.003}
}

@article{risacher2016-27088965,
  author  = {Risacher, S. L. and McDonald, B. C. and Tallman, E. F. and West, J. D. and Farlow, M. R. and Unverzagt, F. W. and Gao, S. and Boustani, M. and others},
  title   = {{Association Between Anticholinergic Medication Use and Cognition, Brain Metabolism, and Brain Atrophy in Cognitively Normal Older Adults}},
  journal = {JAMA neurology},
  year    = {2016},
  doi     = {10.1001/jamaneurol.2016.0580},
  pmid    = {27088965},
  url     = {https://doi.org/10.1001/jamaneurol.2016.0580}
}

@article{scarmeas2006-16484637,
  author  = {Scarmeas, N. and Albert, S. M. and Manly, J. J. and Stern, Y.},
  title   = {{Education and rates of cognitive decline in incident Alzheimer's disease}},
  journal = {Journal of neurology, neurosurgery, and psychiatry},
  year    = {2006},
  doi     = {10.1136/jnnp.2005.072306},
  pmid    = {16484637},
  url     = {https://doi.org/10.1136/jnnp.2005.072306}
}

@article{clare2003-14583963,
  author  = {Clare, L. and Woods, R. T. and Moniz Cook, E. D. and Orrell, M. and Spector, A.},
  title   = {{Cognitive rehabilitation and cognitive training for early-stage Alzheimer's disease and vascular dementia}},
  journal = {The Cochrane database of systematic reviews},
  year    = {2003},
  doi     = {10.1002/14651858.cd003260},
  pmid    = {14583963},
  url     = {https://doi.org/10.1002/14651858.cd003260}
}

@article{johnson2013-23375563,
  author  = {Johnson, K. A. and Sperling, R. A. and Gidicsin, C. M. and Carmasin, J. S. and Maye, J. E. and Coleman, R. E. and Reiman, E. M. and Sabbagh, M. N. and others},
  title   = {{Florbetapir (F18-AV-45) PET to assess amyloid burden in Alzheimer's disease dementia, mild cognitive impairment, and normal aging}},
  journal = {Alzheimer's \& dementia : the journal of the Alzheimer's Association},
  year    = {2013},
  doi     = {10.1016/j.jalz.2012.10.007},
  pmid    = {23375563},
  url     = {https://doi.org/10.1016/j.jalz.2012.10.007}
}

@article{tonelli2015-26221754,
  author  = {Tonelli, M. and Wiebe, N. and Guthrie, B. and James, M. T. and Quan, H. and Fortin, M. and Klarenbach, S. W. and Sargious, P. and others},
  title   = {{Comorbidity as a driver of adverse outcomes in people with chronic kidney disease}},
  journal = {Kidney international},
  year    = {2015},
  doi     = {10.1038/ki.2015.228},
  pmid    = {26221754},
  url     = {https://doi.org/10.1038/ki.2015.228}
}

@article{hall2007-17954781,
  author  = {Hall, C. B. and Derby, C. and LeValley, A. and Katz, M. J. and Verghese, J. and Lipton, R. B.},
  title   = {{Education delays accelerated decline on a memory test in persons who develop dementia}},
  journal = {Neurology},
  year    = {2007},
  doi     = {10.1212/01.wnl.0000278163.82636.30},
  pmid    = {17954781},
  url     = {https://doi.org/10.1212/01.wnl.0000278163.82636.30}
}

@article{amjad2016-27454945,
  author  = {Amjad, H. and Carmichael, D. and Austin, A. M. and Chang, C. H. and Bynum, J. P.},
  title   = {{Continuity of Care and Health Care Utilization in Older Adults With Dementia in Fee-for-Service Medicare}},
  journal = {JAMA internal medicine},
  year    = {2016},
  doi     = {10.1001/jamainternmed.2016.3553},
  pmid    = {27454945},
  url     = {https://doi.org/10.1001/jamainternmed.2016.3553}
}

@article{gomperts2013-23243071,
  author  = {Gomperts, S. N. and Locascio, J. J. and Rentz, D. and Santarlasci, A. and Marquie, M. and Johnson, K. A. and Growdon, J. H.},
  title   = {{Amyloid is linked to cognitive decline in patients with Parkinson disease without dementia}},
  journal = {Neurology},
  year    = {2013},
  doi     = {10.1212/wnl.0b013e31827b1a07},
  pmid    = {23243071},
  url     = {https://doi.org/10.1212/wnl.0b013e31827b1a07}
}

@article{study2024-38689398,
  title   = {{2024 Alzheimer's disease facts and figures}},
  journal = {Alzheimer's \& dementia : the journal of the Alzheimer's Association},
  year    = {2024},
  doi     = {10.1002/alz.13809},
  pmid    = {38689398},
  url     = {https://doi.org/10.1002/alz.13809}
}

@article{study2012-22404854,
  author  = {{Alzheimer's Association}},
  title   = {{2012 Alzheimer's disease facts and figures}},
  journal = {Alzheimer's \& dementia : the journal of the Alzheimer's Association},
  year    = {2012},
  doi     = {10.1016/j.jalz.2012.02.001},
  pmid    = {22404854},
  url     = {https://doi.org/10.1016/j.jalz.2012.02.001}
}

@article{katzmarzyk2022-33782046,
  author  = {Katzmarzyk, P. T. and Friedenreich, C. and Shiroma, E. J. and Lee, I. M.},
  title   = {{Physical inactivity and non-communicable disease burden in low-income, middle-income and high-income countries}},
  journal = {British journal of sports medicine},
  year    = {2022},
  doi     = {10.1136/bjsports-2020-103640},
  pmid    = {33782046},
  url     = {https://doi.org/10.1136/bjsports-2020-103640}
}

@article{kalmijn2000-11031212,
  author  = {Kalmijn, S. and Foley, D. and White, L. and Burchfiel, C. M. and Curb, J. D. and Petrovitch, H. and Ross, G. W. and Havlik, R. J. and others},
  title   = {{Metabolic cardiovascular syndrome and risk of dementia in Japanese-American elderly men. The Honolulu-Asia aging study}},
  journal = {Arteriosclerosis, thrombosis, and vascular biology},
  year    = {2000},
  doi     = {10.1161/01.atv.20.10.2255},
  pmid    = {11031212},
  url     = {https://doi.org/10.1161/01.atv.20.10.2255}
}

@article{selwood2007-17173977,
  author  = {Selwood, A. and Johnston, K. and Katona, C. and Lyketsos, C. and Livingston, G.},
  title   = {{Systematic review of the effect of psychological interventions on family caregivers of people with dementia}},
  journal = {Journal of affective disorders},
  year    = {2007},
  doi     = {10.1016/j.jad.2006.10.025},
  pmid    = {17173977},
  url     = {https://doi.org/10.1016/j.jad.2006.10.025}
}

@article{maass2019-31199481,
  author  = {Maass, A. and Berron, D. and Harrison, T. M. and Adams, J. N. and La Joie, R. and Baker, S. and Mellinger, T. and Bell, R. K. and others},
  title   = {{Alzheimer's pathology targets distinct memory networks in the ageing brain}},
  journal = {Brain : a journal of neurology},
  year    = {2019},
  doi     = {10.1093/brain/awz154},
  pmid    = {31199481},
  url     = {https://doi.org/10.1093/brain/awz154}
}

@article{walter2020-33226434,
  author  = {Walter, E. and Pinquart, M.},
  title   = {{How Effective Are Dementia Caregiver Interventions? An Updated Comprehensive Meta-Analysis}},
  journal = {The Gerontologist},
  year    = {2020},
  doi     = {10.1093/geront/gnz118},
  pmid    = {33226434},
  url     = {https://doi.org/10.1093/geront/gnz118}
}

@article{buckley2017-28973551,
  author  = {Buckley, R. F. and Hanseeuw, B. and Schultz, A. P. and Vannini, P. and Aghjayan, S. L. and Properzi, M. J. and Jackson, J. D. and Mormino, E. C. and others},
  title   = {{Region-Specific Association of Subjective Cognitive Decline With Tauopathy Independent of Global β-Amyloid Burden}},
  journal = {JAMA neurology},
  year    = {2017},
  doi     = {10.1001/jamaneurol.2017.2216},
  pmid    = {28973551},
  url     = {https://doi.org/10.1001/jamaneurol.2017.2216}
}

@article{afilalo2011-21939837,
  author  = {Afilalo, J. and Therrien, J. and Pilote, L. and Ionescu-Ittu, R. and Martucci, G. and Marelli, A. J.},
  title   = {{Geriatric congenital heart disease: burden of disease and predictors of mortality}},
  journal = {Journal of the American College of Cardiology},
  year    = {2011},
  doi     = {10.1016/j.jacc.2011.06.041},
  pmid    = {21939837},
  url     = {https://doi.org/10.1016/j.jacc.2011.06.041}
}

@article{lusk2025-40788638,
  author  = {Lusk, Jay B. and Ford, Cassie B. and Soneji, Samir S. and Blass, Beau and Rosa, Talita D’Aguiar and Kaufman, Brystana G. and Mantri, Sneha Shivkumar and Fan, Li and others},
  title   = {{Sex Differences in Mortality and Health Care Utilization After Dementia Diagnosis}},
  journal = {JAMA Neurology},
  year    = {2025},
  doi     = {10.1001/jamaneurol.2025.2236},
  pmid    = {40788638},
  url     = {https://doi.org/10.1001/jamaneurol.2025.2236}
}

@article{xiao2025-41023309,
  author  = {Xiao, Lily Dongxia and Ullah, Shahid and Yu, Ying and Meyer, Claudia and Chapman, Michael and Chen, Langduo and Tan, Kai Ping and McKechnie, Sue and others},
  title   = {{Effects of a virtual iSupport Program on carers and people with dementia}},
  journal = {Alzheimer s \& Dementia},
  year    = {2025},
  doi     = {10.1002/alz.70747},
  pmid    = {41023309},
  url     = {https://doi.org/10.1002/alz.70747}
}

@article{smaling2025-40684251,
  author  = {Smaling, Hanneke J. A. and Joling, Karlijn J. and Rijnhart, Judith J. M. and Twisk, Jos W. R. and Achterberg, Wilco P. and Francke, Anneke L. and van der Steen, Jenny Theodora},
  title   = {{Namaste Care Family for people with dementia and family−A randomized controlled trial}},
  journal = {Alzheimer s \& Dementia},
  year    = {2025},
  doi     = {10.1002/alz.70495},
  pmid    = {40684251},
  url     = {https://doi.org/10.1002/alz.70495}
}

@article{akinyemi2022-34569714,
  author  = {Akinyemi, R. O. and Yaria, J. and Ojagbemi, A. and Guerchet, M. and Okubadejo, N. and Njamnshi, A. K. and Sarfo, F. S. and Akpalu, A. and others},
  title   = {{Dementia in Africa: Current evidence, knowledge gaps, and future directions}},
  journal = {Alzheimer's \& dementia : the journal of the Alzheimer's Association},
  year    = {2022},
  doi     = {10.1002/alz.12432},
  pmid    = {34569714},
  url     = {https://doi.org/10.1002/alz.12432}
}

@article{adelman2014-1b049335,
  author  = {Adelman, R. D. and Tmanova, L. L. and Delgado, D. and Dion, S. and Lachs, M. S.},
  title   = {{Caregiver Burden: A Clinical Review}},
  journal = {JAMA},
  year    = {2014},
  pmid    = {24618967}
}

@article{chiao2015-26058542,
  author  = {Chiao, C. Y. and Wu, H. S. and Hsiao, C. Y.},
  title   = {{Caregiver burden for informal caregivers of patients with dementia: A systematic review}},
  journal = {International nursing review},
  year    = {2015},
  doi     = {10.1111/inr.12194},
  pmid    = {26058542},
  url     = {https://doi.org/10.1111/inr.12194}
}

@article{gunningdixon2000-10791862,
  author  = {Gunning-Dixon, F. M. and Raz, N.},
  title   = {{The cognitive correlates of white matter abnormalities in normal aging: a quantitative review}},
  journal = {Neuropsychology},
  year    = {2000},
  doi     = {10.1037//0894-4105.14.2.224},
  pmid    = {10791862},
  url     = {https://doi.org/10.1037//0894-4105.14.2.224}
}

@article{vreugdenhil2012-21564154,
  author  = {Vreugdenhil, A. and Cannell, J. and Davies, A. and Razay, G.},
  title   = {{A community-based exercise programme to improve functional ability in people with Alzheimer's disease: a randomized controlled trial}},
  journal = {Scandinavian journal of caring sciences},
  year    = {2012},
  doi     = {10.1111/j.1471-6712.2011.00895.x},
  pmid    = {21564154},
  url     = {https://doi.org/10.1111/j.1471-6712.2011.00895.x}
}

@article{matthews2009-19901977,
  author  = {Matthews, F. E. and Brayne, C. and Lowe, J. and McKeith, I. and Wharton, S. B. and Ince, P.},
  title   = {{Epidemiological pathology of dementia: attributable-risks at death in the Medical Research Council Cognitive Function and Ageing Study}},
  journal = {PLoS medicine},
  year    = {2009},
  doi     = {10.1371/journal.pmed.1000180},
  pmid    = {19901977},
  url     = {https://doi.org/10.1371/journal.pmed.1000180}
}

@article{wilson2007-17909133,
  author  = {Wilson, R. S. and Schneider, J. A. and Arnold, S. E. and Bienias, J. L. and Bennett, D. A.},
  title   = {{Conscientiousness and the incidence of Alzheimer disease and mild cognitive impairment}},
  journal = {Archives of general psychiatry},
  year    = {2007},
  doi     = {10.1001/archpsyc.64.10.1204},
  pmid    = {17909133},
  url     = {https://doi.org/10.1001/archpsyc.64.10.1204}
}

@article{cai2013-23183138,
  author  = {Cai, X. and Campbell, N. and Khan, B. and Callahan, C. and Boustani, M.},
  title   = {{Long-term anticholinergic use and the aging brain}},
  journal = {Alzheimer's \& dementia : the journal of the Alzheimer's Association},
  year    = {2013},
  doi     = {10.1016/j.jalz.2012.02.005},
  pmid    = {23183138},
  url     = {https://doi.org/10.1016/j.jalz.2012.02.005}
}

@article{yuan2025-40461148,
  author  = {Yuan, Shuai and Zhang, Fengying and Pu, Lihui and Lv, Juan and Xie, Xiaofeng and Lin, Lin and Qiu, Mengying and Huang, Lei and others},
  title   = {{Social support interventions for caregivers of older adults with dementia: a scoping review}},
  journal = {BMJ Open},
  year    = {2025},
  doi     = {10.1136/bmjopen-2024-095815},
  pmid    = {40461148},
  url     = {https://doi.org/10.1136/bmjopen-2024-095815}
}

@article{ye2025-40324768,
  author  = {Ye, Mengfei and Liu, Zheng and Xie, Weigen and Shou, Mengna and Wang, S J and Lin, Xuebing and Xu, Yan and Yao, Miner and others},
  title   = {{Implementation of Telemedicine for Patients With Dementia and Their Caregivers: Scoping Review}},
  journal = {Journal of Medical Internet Research},
  year    = {2025},
  doi     = {10.2196/65667},
  pmid    = {40324768},
  url     = {https://doi.org/10.2196/65667}
}

@article{bosco2019-29543501,
  author  = {Bosco, Alessandro and Schneider, Justine and Coleston-Shields, Donna Maria and Sousa, Lidia and Orrell, Martin},
  title   = {{Dyadic construction of dementia: meta-ethnography and behaviour-process synthesis}},
  journal = {Aging \& mental health},
  year    = {2019},
  doi     = {10.1080/13607863.2018.1450836},
  pmid    = {29543501},
  url     = {https://doi.org/10.1080/13607863.2018.1450836}
}

@article{gilmorebykovskyi2018-29281895,
  author  = {Gilmore-Bykovskyi, Andrea and Johnson, Rachel and Walljasper, Lily and Block, Laura and Werner, Nicole},
  title   = {{Underreporting of Gender and Race/Ethnicity Differences in NIH-Funded Dementia Caregiver Support Interventions}},
  journal = {American journal of Alzheimer's disease and other dementias},
  year    = {2018},
  doi     = {10.1177/1533317517749465},
  pmid    = {29281895},
  url     = {https://doi.org/10.1177/1533317517749465}
}

@article{klcaslan2024-39812009,
  author  = {Kılıçaslan, Kimya and Tulek, Zeliha and Gurvit, I Hakan},
  title   = {{The effect of apathy on quality of life and caregiver burden in patients with dementia}},
  journal = {Cognitive neuropsychiatry},
  year    = {2024},
  doi     = {10.1080/13546805.2025.2451283},
  pmid    = {39812009},
  url     = {https://doi.org/10.1080/13546805.2025.2451283}
}

@article{pinquart2003-c8319e3f,
  author  = {Pinquart, M. and Sörensen, S.},
  title   = {{Differences Between Caregivers and Noncaregivers in Psychological Health and Physical Health: A Meta-Analysis}},
  journal = {Psychology and Aging},
  year    = {2003},
  pmid    = {12825775}
}

@article{mongelli2025-784513c0,
  author  = {Mongelli, J. and Tangredi, K. and Gieniusz, M. and Nouryan, C. and Ulbricht, C. and Carroll, M. and Carney, M. and Burns, E.},
  title   = {{CMS GUIDE Model: Lessons Learned by an Established Track Program at End of Year One}},
  journal = {Innovation in Aging},
  year    = {2025}
}

@article{cheng2026-41644333,
  author  = {Cheng, Sheung-Tak and Ng, Peter H F},
  title   = {{Intervention Without Borders - an Automated Self-Guided AI-Enhanced Psychoeducation Intervention for Dementia Caregivers: Parallel-Group Randomized Waitlist-Controlled Trial}},
  journal = {The American journal of geriatric psychiatry : official journal of the American Association for Geriatric Psychiatry},
  year    = {2026},
  doi     = {10.1016/j.jagp.2026.01.001},
  pmid    = {41644333},
  url     = {https://doi.org/10.1016/j.jagp.2026.01.001}
}

@article{han2026-42233272,
  author  = {Han, Hae-Ra and Perrin, Nancy and Yun, Ji-Young and Min, Deborah and Kwon, Simona C and Joo, Jinhui and Cho, Ji-Young and Kim, Sara and others},
  title   = {{Efficacy of a language-concordant community health worker intervention to improve community-to-clinic linkage for dementia care: results of the randomized trial PLAN}},
  journal = {Alzheimer's \& dementia : the journal of the Alzheimer's Association},
  year    = {2026},
  doi     = {10.1002/alz.71541},
  pmid    = {42233272},
  url     = {https://doi.org/10.1002/alz.71541}
}

@article{prince2015-25468153,
  author  = {Prince, M. J. and Wu, F. and Guo, Y. and Gutierrez Robledo, L. M. and O'Donnell, M. and Sullivan, R. and Yusuf, S.},
  title   = {{The burden of disease in older people and implications for health policy and practice}},
  journal = {Lancet (London, England)},
  year    = {2015},
  doi     = {10.1016/s0140-6736(14)61347-7},
  pmid    = {25468153},
  url     = {https://doi.org/10.1016/s0140-6736(14)61347-7}
}

@article{zhou2021-34050340,
  author  = {Zhou, B. and Perel, P. and Mensah, G. A. and Ezzati, M.},
  title   = {{Global epidemiology, health burden and effective interventions for elevated blood pressure and hypertension}},
  journal = {Nature reviews. Cardiology},
  year    = {2021},
  doi     = {10.1038/s41569-021-00559-8},
  pmid    = {34050340},
  url     = {https://doi.org/10.1038/s41569-021-00559-8}
}

@article{gomezisla1997-9005861,
  author  = {Gómez-Isla, T. and Hollister, R. and West, H. and Mui, S. and Growdon, J. H. and Petersen, R. C. and Parisi, J. E. and Hyman, B. T.},
  title   = {{Neuronal loss correlates with but exceeds neurofibrillary tangles in Alzheimer's disease}},
  journal = {Annals of neurology},
  year    = {1997},
  doi     = {10.1002/ana.410410106},
  pmid    = {9005861},
  url     = {https://doi.org/10.1002/ana.410410106}
}

@article{study2014-24818261,
  author  = {{Alzheimer's Association}},
  title   = {{2014 Alzheimer's disease facts and figures}},
  journal = {Alzheimer's \& dementia : the journal of the Alzheimer's Association},
  year    = {2014},
  doi     = {10.1016/j.jalz.2014.02.001},
  pmid    = {24818261},
  url     = {https://doi.org/10.1016/j.jalz.2014.02.001}
}

@article{savva2009-19474427,
  author  = {Savva, G. M. and Wharton, S. B. and Ince, P. G. and Forster, G. and Matthews, F. E. and Brayne, C. and {Medical Research Council Cognitive Function and Ageing Study}},
  title   = {{Age, neuropathology, and dementia}},
  journal = {The New England journal of medicine},
  year    = {2009},
  doi     = {10.1056/nejmoa0806142},
  pmid    = {19474427},
  url     = {https://doi.org/10.1056/nejmoa0806142}
}

@article{patel2013-24287107,
  author  = {Patel, K. V. and Guralnik, J. M. and Dansie, E. J. and Turk, D. C.},
  title   = {{Prevalence and impact of pain among older adults in the United States: findings from the 2011 National Health and Aging Trends Study}},
  journal = {Pain},
  year    = {2013},
  doi     = {10.1016/j.pain.2013.07.029},
  pmid    = {24287107},
  url     = {https://doi.org/10.1016/j.pain.2013.07.029}
}

@article{gascasalas2021-33536430,
  author  = {Gasca-Salas, C. and Fernández-Rodríguez, B. and Pineda-Pardo, J. A. and Rodríguez-Rojas, R. and Obeso, I. and Hernández-Fernández, F. and Del Álamo, M. and Mata, D. and others},
  title   = {{Blood-brain barrier opening with focused ultrasound in Parkinson's disease dementia}},
  journal = {Nature communications},
  year    = {2021},
  doi     = {10.1038/s41467-021-21022-9},
  pmid    = {33536430},
  url     = {https://doi.org/10.1038/s41467-021-21022-9}
}

@article{monizcook2008-18297476,
  author  = {Moniz-Cook, E. and Vernooij-Dassen, M. and Woods, R. and Verhey, F. and Chattat, R. and De Vugt, M. and Mountain, G. and O'Connell, M. and others},
  title   = {{A European consensus on outcome measures for psychosocial intervention research in dementia care}},
  journal = {Aging \& mental health},
  year    = {2008},
  doi     = {10.1080/13607860801919850},
  pmid    = {18297476},
  url     = {https://doi.org/10.1080/13607860801919850}
}

@article{ornstein2012-22612881,
  author  = {Ornstein, K. and Gaugler, J. E.},
  title   = {{The problem with "problem behaviors": a systematic review of the association between individual patient behavioral and psychological symptoms and caregiver depression and burden within the dementia patient-caregiver dyad}},
  journal = {International psychogeriatrics},
  year    = {2012},
  doi     = {10.1017/s1041610212000737},
  pmid    = {22612881},
  url     = {https://doi.org/10.1017/s1041610212000737}
}

@article{donovan2016-27806159,
  author  = {Donovan, N. J. and Okereke, O. I. and Vannini, P. and Amariglio, R. E. and Rentz, D. M. and Marshall, G. A. and Johnson, K. A. and Sperling, R. A.},
  title   = {{Association of Higher Cortical Amyloid Burden With Loneliness in Cognitively Normal Older Adults}},
  journal = {JAMA psychiatry},
  year    = {2016},
  doi     = {10.1001/jamapsychiatry.2016.2657},
  pmid    = {27806159},
  url     = {https://doi.org/10.1001/jamapsychiatry.2016.2657}
}

@article{dam2016-26857890,
  author  = {Dam, A. E. and de Vugt, M. E. and Klinkenberg, I. P. and Verhey, F. R. and van Boxtel, M. P.},
  title   = {{A systematic review of social support interventions for caregivers of people with dementia: Are they doing what they promise?}},
  journal = {Maturitas},
  year    = {2016},
  doi     = {10.1016/j.maturitas.2015.12.008},
  pmid    = {26857890},
  url     = {https://doi.org/10.1016/j.maturitas.2015.12.008}
}

@article{reger2004-14744191,
  author  = {Reger, M. A. and Welsh, R. K. and Watson, G. S. and Cholerton, B. and Baker, L. D. and Craft, S.},
  title   = {{The relationship between neuropsychological functioning and driving ability in dementia: a meta-analysis}},
  journal = {Neuropsychology},
  year    = {2004},
  doi     = {10.1037/0894-4105.18.1.85},
  pmid    = {14744191},
  url     = {https://doi.org/10.1037/0894-4105.18.1.85}
}

@article{han2010-20363527,
  author  = {Han, J. H. and Shintani, A. and Eden, S. and Morandi, A. and Solberg, L. M. and Schnelle, J. and Dittus, R. S. and Storrow, A. B. and others},
  title   = {{Delirium in the emergency department: an independent predictor of death within 6 months}},
  journal = {Annals of emergency medicine},
  year    = {2010},
  doi     = {10.1016/j.annemergmed.2010.03.003},
  pmid    = {20363527},
  url     = {https://doi.org/10.1016/j.annemergmed.2010.03.003}
}

@article{quinn2019-30597058,
  author  = {Quinn, C. and Toms, G.},
  title   = {{Influence of Positive Aspects of Dementia Caregiving on Caregivers' Well-Being: A Systematic Review}},
  journal = {The Gerontologist},
  year    = {2019},
  doi     = {10.1093/geront/gny168},
  pmid    = {30597058},
  url     = {https://doi.org/10.1093/geront/gny168}
}

@article{hohman2015-25751166,
  author  = {Hohman, T. J. and Bell, S. P. and Jefferson, A. L. and {Alzheimer’s Disease Neuroimaging Initiative}},
  title   = {{The role of vascular endothelial growth factor in neurodegeneration and cognitive decline: exploring interactions with biomarkers of Alzheimer disease}},
  journal = {JAMA neurology},
  year    = {2015},
  doi     = {10.1001/jamaneurol.2014.4761},
  pmid    = {25751166},
  url     = {https://doi.org/10.1001/jamaneurol.2014.4761}
}

@article{campbell2010-20625168,
  author  = {Campbell, N. L. and Boustani, M. A. and Lane, K. A. and Gao, S. and Hendrie, H. and Khan, B. A. and Murrell, JR. and Unverzagt, F. W. and others},
  title   = {{Use of anticholinergics and the risk of cognitive impairment in an African American population}},
  journal = {Neurology},
  year    = {2010},
  doi     = {10.1212/wnl.0b013e3181e7f2ab},
  pmid    = {20625168},
  url     = {https://doi.org/10.1212/wnl.0b013e3181e7f2ab}
}

@article{joshi2021-33985348,
  author  = {Joshi, Y. B. and Thomas, M. L. and Braff, D. L. and Green, M. F. and Gur, R. C. and Gur, R. E. and Nuechterlein, K. H. and Stone, W. S. and others},
  title   = {{Anticholinergic Medication Burden-Associated Cognitive Impairment in Schizophrenia}},
  journal = {The American journal of psychiatry},
  year    = {2021},
  doi     = {10.1176/appi.ajp.2020.20081212},
  pmid    = {33985348},
  url     = {https://doi.org/10.1176/appi.ajp.2020.20081212}
}

@article{beauchamp2005-16326661,
  author  = {Beauchamp, N. and Irvine, A. B. and Seeley, J. and Johnson, B.},
  title   = {{Worksite-based internet multimedia program for family caregivers of persons with dementia}},
  journal = {The Gerontologist},
  year    = {2005},
  doi     = {10.1093/geront/45.6.793},
  pmid    = {16326661},
  url     = {https://doi.org/10.1093/geront/45.6.793}
}

@article{yuan2025-40925598,
  author  = {Yuan, Shasha and Zhang, Jingbin and Wang, Zheng and Wang, Huali and Xia, Mengfen},
  title   = {{Supporting Informal Dementia Caregivers Through an iSupport Web-Based Primary Health Care Intervention: Hybrid Effectiveness-Implementation Mixed Methods Study}},
  journal = {Journal of Medical Internet Research},
  year    = {2025},
  doi     = {10.2196/77688},
  pmid    = {40925598},
  url     = {https://doi.org/10.2196/77688}
}

@article{amador2025-40116618,
  author  = {Amador, Sarah and Livingston, Gill and Adeleke, Mariam Olaide and Barber, Julie and Webster, Lucy Anne and Yuan, Hang and Banerjee, Sube and Bhojwani, Ankita and others},
  title   = {{Process evaluation in a randomised controlled trial of DREAMS-START (dementia related manual for sleep; strategies for relatives) for sleep disturbance in people with dementia and their carers}},
  journal = {Age and Ageing},
  year    = {2025},
  doi     = {10.1093/ageing/afaf053},
  pmid    = {40116618},
  url     = {https://doi.org/10.1093/ageing/afaf053}
}

@article{koch2010-20594302,
  author  = {Koch, T. and Iliffe, S. and {EVIDEM-ED project}},
  title   = {{Rapid appraisal of barriers to the diagnosis and management of patients with dementia in primary care: a systematic review}},
  journal = {BMC family practice},
  year    = {2010},
  doi     = {10.1186/1471-2296-11-52},
  pmid    = {20594302},
  url     = {https://doi.org/10.1186/1471-2296-11-52}
}

@article{stevens2025-41085219,
  author  = {Stevens, A. B. and Cho, J. and Birchfield, T. and Reese, J. and Han, G. and Thorud, J. L. and Ory, M. G.},
  title   = {{A randomized trial of two online platforms for dementia family caregivers: GamePlan4Care and Resources4Care}},
  journal = {Alzheimer's \& Dementia},
  year    = {2025},
  doi     = {10.1002/alz.70690},
  pmid    = {41085219},
  url     = {https://doi.org/10.1002/alz.70690}
}

@article{brijnath2026-41719424,
  author  = {Brijnath, Bianca and Dang, Thu Ha and Enticott, Joanne and Tian, Yuan and Markusevska, Simona and Antoniades, Josefine and Nguyen, Tuan Anh and Gilbert, Andrew and others},
  title   = {{Evaluating the effects of the World Health Organisation's online intervention 'iSupport lite' to reduce burden in multilingual dementia carers: results from the Australian Draw-Care randomised clinical trial}},
  journal = {Age and ageing},
  year    = {2026},
  doi     = {10.1093/ageing/afag030},
  pmid    = {41719424},
  url     = {https://doi.org/10.1093/ageing/afag030}
}

@article{xue2026-41690252,
  author  = {Xue, Dandan and Ye, Yifan and Chen, Zi and Hu, Yanqiu and Yuan, Changrong and Wang, Yanmei},
  title   = {{Effects of peer support interventions for family caregivers of persons with dementia: A systematic review and meta-analysis}},
  journal = {Archives of gerontology and geriatrics},
  year    = {2026},
  doi     = {10.1016/j.archger.2026.106168},
  pmid    = {41690252},
  url     = {https://doi.org/10.1016/j.archger.2026.106168}
}

@article{wardlaw2013-23602162,
  author  = {Wardlaw, J. M. and Smith, C. and Dichgans, M.},
  title   = {{Mechanisms of sporadic cerebral small vessel disease: insights from neuroimaging}},
  journal = {The Lancet. Neurology},
  year    = {2013},
  doi     = {10.1016/s1474-4422(13)70060-7},
  pmid    = {23602162},
  url     = {https://doi.org/10.1016/s1474-4422(13)70060-7}
}

@article{doody2001-11342679,
  author  = {Doody, R. S. and Stevens, J. C. and Beck, C. and Dubinsky, R. M. and Kaye, J. A. and Gwyther, L. and Mohs, R. C. and Thal, L. J. and others},
  title   = {{Practice parameter: management of dementia (an evidence-based review) [RETIRED]. Report of the Quality Standards Subcommittee of the American Academy of Neurology}},
  journal = {Neurology},
  year    = {2001},
  doi     = {10.1212/wnl.56.9.1154},
  pmid    = {11342679},
  url     = {https://doi.org/10.1212/wnl.56.9.1154}
}

@article{cooper2007-17005068,
  author  = {Cooper, C. and Balamurali, T. B. and Livingston, G.},
  title   = {{A systematic review of the prevalence and covariates of anxiety in caregivers of people with dementia}},
  journal = {International psychogeriatrics},
  year    = {2007},
  doi     = {10.1017/s1041610206004297},
  pmid    = {17005068},
  url     = {https://doi.org/10.1017/s1041610206004297}
}

@article{patrick1994-8152361,
  author  = {Patrick, D. L. and Starks, H. E. and Cain, K. C. and Uhlmann, R. F. and Pearlman, R. A.},
  title   = {{Measuring preferences for health states worse than death}},
  journal = {Medical decision making : an international journal of the Society for Medical Decision Making},
  year    = {1994},
  doi     = {10.1177/0272989x9401400102},
  pmid    = {8152361},
  url     = {https://doi.org/10.1177/0272989x9401400102}
}

@article{vinters2000-11089571,
  author  = {Vinters, H. V. and Ellis, W. G. and Zarow, C. and Zaias, B. W. and Jagust, W. J. and Mack, W. J. and Chui, H. C.},
  title   = {{Neuropathologic substrates of ischemic vascular dementia}},
  journal = {Journal of neuropathology and experimental neurology},
  year    = {2000},
  doi     = {10.1093/jnen/59.11.931},
  pmid    = {11089571},
  url     = {https://doi.org/10.1093/jnen/59.11.931}
}

@article{black2004-15559754,
  author  = {Black, W. and Almeida, O. P.},
  title   = {{A systematic review of the association between the Behavioral and Psychological Symptoms of Dementia and burden of care}},
  journal = {International psychogeriatrics},
  year    = {2004},
  doi     = {10.1017/s1041610204000468},
  pmid    = {15559754},
  url     = {https://doi.org/10.1017/s1041610204000468}
}

@article{chappell2002-12451158,
  author  = {Chappell, N. L. and Reid, R. C.},
  title   = {{Burden and well-being among caregivers: examining the distinction}},
  journal = {The Gerontologist},
  year    = {2002},
  doi     = {10.1093/geront/42.6.772},
  pmid    = {12451158},
  url     = {https://doi.org/10.1093/geront/42.6.772}
}

@article{allen2017-27986469,
  author  = {Allen, A. P. and Curran, E. A. and Á, Duggan and Cryan, J. F. and Chorcoráin, A. N. and Dinan, T. G. and Molloy, D. W. and Kearney, P. M. and others},
  title   = {{A systematic review of the psychobiological burden of informal caregiving for patients with dementia: Focus on cognitive and biological markers of chronic stress}},
  journal = {Neuroscience and biobehavioral reviews},
  year    = {2017},
  doi     = {10.1016/j.neubiorev.2016.12.006},
  pmid    = {27986469},
  url     = {https://doi.org/10.1016/j.neubiorev.2016.12.006}
}

@article{clague2017-28181629,
  author  = {Clague, F. and Mercer, S. W. and McLean, G. and Reynish, E. and Guthrie, B.},
  title   = {{Comorbidity and polypharmacy in people with dementia: insights from a large, population-based cross-sectional analysis of primary care data}},
  journal = {Age and ageing},
  year    = {2017},
  doi     = {10.1093/ageing/afw176},
  pmid    = {28181629},
  url     = {https://doi.org/10.1093/ageing/afw176}
}

@article{schaller2015-25320002,
  author  = {Schaller, S. and Mauskopf, J. and Kriza, C. and Wahlster, P. and Kolominsky-Rabas, P. L.},
  title   = {{The main cost drivers in dementia: a systematic review}},
  journal = {International journal of geriatric psychiatry},
  year    = {2015},
  doi     = {10.1002/gps.4198},
  pmid    = {25320002},
  url     = {https://doi.org/10.1002/gps.4198}
}

@article{menke2014-24951638,
  author  = {Menke, R. A. and Körner, S. and Filippini, N. and Douaud, G. and Knight, S. and Talbot, K. and Turner, M. R.},
  title   = {{Widespread grey matter pathology dominates the longitudinal cerebral MRI and clinical landscape of amyotrophic lateral sclerosis}},
  journal = {Brain : a journal of neurology},
  year    = {2014},
  doi     = {10.1093/brain/awu162},
  pmid    = {24951638},
  url     = {https://doi.org/10.1093/brain/awu162}
}

@article{cagnin2020-33033486,
  author  = {Cagnin, A. and Di Lorenzo, R. and Marra, C. and Bonanni, L. and Cupidi, C. and Laganà, V. and Rubino, E. and Vacca, A. and others},
  title   = {{Behavioral and Psychological Effects of Coronavirus Disease-19 Quarantine in Patients With Dementia}},
  journal = {Frontiers in psychiatry},
  year    = {2020},
  doi     = {10.3389/fpsyt.2020.578015},
  pmid    = {33033486},
  url     = {https://doi.org/10.3389/fpsyt.2020.578015}
}

@article{napoles2010-20508244,
  author  = {Napoles, A. M. and Chadiha, L. and Eversley, R. and Moreno-John, G.},
  title   = {{Reviews: developing culturally sensitive dementia caregiver interventions: are we there yet?}},
  journal = {American journal of Alzheimer's disease and other dementias},
  year    = {2010},
  doi     = {10.1177/1533317510370957},
  pmid    = {20508244},
  url     = {https://doi.org/10.1177/1533317510370957}
}

@article{chien2011-21308785,
  author  = {Chien, L. Y. and Chu, H. and Guo, J. L. and Liao, Y. M. and Chang, L. I. and Chen, C. H. and Chou, K. R.},
  title   = {{Caregiver support groups in patients with dementia: a meta-analysis}},
  journal = {International journal of geriatric psychiatry},
  year    = {2011},
  doi     = {10.1002/gps.2660},
  pmid    = {21308785},
  url     = {https://doi.org/10.1002/gps.2660}
}

@article{hepburn2001-11347790,
  author  = {Hepburn, K. W. and Tornatore, J. and {Center B} and Ostwald, S. W.},
  title   = {{Dementia family caregiver training: affecting beliefs about caregiving and caregiver outcomes}},
  journal = {Journal of the American Geriatrics Society},
  year    = {2001},
  doi     = {10.1046/j.1532-5415.2001.49090.x},
  pmid    = {11347790},
  url     = {https://doi.org/10.1046/j.1532-5415.2001.49090.x}
}

@article{kalicki2021-33848360,
  author  = {Kalicki, A. V. and Moody, K. A. and Franzosa, E. and Gliatto, P. M. and Ornstein, K. A.},
  title   = {{Barriers to telehealth access among homebound older adults}},
  journal = {Journal of the American Geriatrics Society},
  year    = {2021},
  doi     = {10.1111/jgs.17163},
  pmid    = {33848360},
  url     = {https://doi.org/10.1111/jgs.17163}
}

@article{berge2025-40042468,
  author  = {Berge, Line Iden and Angeles, Renira C. and Gedde, Marie Hidle and Fæø, Stein Erik and Mannseth, Janne and Vislapuu, Maarja and Puaschitz, Nathalie Genevieve and Hillestad, Eirin and others},
  title   = {{Burden and care time for dementia caregivers in the LIVE@Home.Path trial}},
  journal = {Alzheimer s \& Dementia},
  year    = {2025},
  doi     = {10.1002/alz.14622},
  pmid    = {40042468},
  url     = {https://doi.org/10.1002/alz.14622}
}

@article{han2025-40163859,
  author  = {Han, Areum and Oster, Robert A. and Yuen, Hon K. and Jenkins, Jeremy and Hawkins, Jessica and Edwards, Lauren},
  title   = {{Videoconference-Delivered Acceptance and Commitment Therapy for Family Caregivers of People With Dementia: Pilot Randomized Controlled Trial}},
  journal = {JMIR Formative Research},
  year    = {2025},
  doi     = {10.2196/67545},
  pmid    = {40163859},
  url     = {https://doi.org/10.2196/67545}
}

@article{ydstebo2020-32811440,
  author  = {Ydstebø, Arnt Egil and Benth, Jurate Šaltytė and Bergh, Sverre and Selbæk, Geir and Vossius, Corinna},
  title   = {{Informal and formal care among persons with dementia immediately before nursing home admission}},
  journal = {BMC geriatrics},
  year    = {2020},
  doi     = {10.1186/s12877-020-01703-8},
  pmid    = {32811440},
  url     = {https://doi.org/10.1186/s12877-020-01703-8}
}

@article{meller2025-41138148,
  author  = {Meller, Andrea House and Siepker, Kathy Lee and Fields, Noelle L and Fantus, Sophia and Jang, Soeun},
  title   = {{Informal Caregiver Outcomes in Home-Based Dyadic Dementia Interventions: A Scoping Review}},
  journal = {Journal of evidence-based social work (2019)},
  year    = {2025},
  doi     = {10.1080/26408066.2025.2576705},
  pmid    = {41138148},
  url     = {https://doi.org/10.1080/26408066.2025.2576705}
}

@article{su2020-32316454,
  author  = {Su, Jian-An and Chang, Chih-Cheng},
  title   = {{Association Between Family Caregiver Burden and Affiliate Stigma in the Families of People with Dementia}},
  journal = {International journal of environmental research and public health},
  year    = {2020},
  doi     = {10.3390/ijerph17082772},
  pmid    = {32316454},
  url     = {https://doi.org/10.3390/ijerph17082772}
}

@article{shi2024-38873291,
  author  = {Shi, Yingying and Dong, Shishi and Liang, Zhiqi and Xie, Mengting and Zhang, Hanyi and Li, Sixie and Li, Jufang},
  title   = {{Affiliate Stigma among family caregivers of individuals with dementia in China: a cross-sectional study}},
  journal = {Frontiers in public health},
  year    = {2024},
  doi     = {10.3389/fpubh.2024.1366143},
  pmid    = {38873291},
  url     = {https://doi.org/10.3389/fpubh.2024.1366143}
}

@article{cummings1994-7991117,
  author  = {Cummings, J. L. and Mega, M. and Gray, K. and Rosenberg-Thompson, S. and Carusi, D. A. and Gornbein, J.},
  title   = {{The Neuropsychiatric Inventory: comprehensive assessment of psychopathology in dementia}},
  journal = {Neurology},
  year    = {1994},
  doi     = {10.1212/wnl.44.12.2308},
  pmid    = {7991117},
  url     = {https://doi.org/10.1212/wnl.44.12.2308}
}

@article{study2020-32157811,
  title   = {{2020 Alzheimer's disease facts and figures}},
  journal = {Alzheimer's \& dementia : the journal of the Alzheimer's Association},
  year    = {2020},
  doi     = {10.1002/alz.12068},
  pmid    = {32157811},
  url     = {https://doi.org/10.1002/alz.12068}
}

@article{morgan2000-11140686,
  author  = {Morgan, D. and Diamond, D. M. and Gottschall, P. E. and Ugen, K. E. and Dickey, C. and Hardy, J. and Duff, K. and Jantzen, P. and others},
  title   = {{A beta peptide vaccination prevents memory loss in an animal model of Alzheimer's disease}},
  journal = {Nature},
  year    = {2000},
  doi     = {10.1038/35050116},
  pmid    = {11140686},
  url     = {https://doi.org/10.1038/35050116}
}

@article{obrien2003-12849265,
  author  = {O'Brien, J. T. and Erkinjuntti, T. and Reisberg, B. and Roman, G. and Sawada, T. and Pantoni, L. and Bowler, J. V. and Ballard, C. and others},
  title   = {{Vascular cognitive impairment}},
  journal = {The Lancet. Neurology},
  year    = {2003},
  doi     = {10.1016/s1474-4422(03)00305-3},
  pmid    = {12849265},
  url     = {https://doi.org/10.1016/s1474-4422(03)00305-3}
}

@article{mackenzie2017-28817800,
  author  = {Mackenzie, I. R. and Nicholson, A. M. and Sarkar, M. and Messing, J. and Purice, M. D. and Pottier, C. and Annu, K. and Baker, M. and others},
  title   = {{TIA1 Mutations in Amyotrophic Lateral Sclerosis and Frontotemporal Dementia Promote Phase Separation and Alter Stress Granule Dynamics}},
  journal = {Neuron},
  year    = {2017},
  doi     = {10.1016/j.neuron.2017.07.025},
  pmid    = {28817800},
  url     = {https://doi.org/10.1016/j.neuron.2017.07.025}
}

@article{bunn2014-25358236,
  author  = {Bunn, F. and Burn, A. M. and Goodman, C. and Rait, G. and Norton, S. and Robinson, L. and Schoeman, J. and Brayne, C.},
  title   = {{Comorbidity and dementia: a scoping review of the literature}},
  journal = {BMC medicine},
  year    = {2014},
  doi     = {10.1186/s12916-014-0192-4},
  pmid    = {25358236},
  url     = {https://doi.org/10.1186/s12916-014-0192-4}
}

@article{gitlin2012-23168825,
  author  = {Gitlin, L. N. and Kales, H. C. and Lyketsos, C. G.},
  title   = {{Nonpharmacologic management of behavioral symptoms in dementia}},
  journal = {JAMA},
  year    = {2012},
  doi     = {10.1001/jama.2012.36918},
  pmid    = {23168825},
  url     = {https://doi.org/10.1001/jama.2012.36918}
}

@article{mccabe2016-27102056,
  author  = {McCabe, M. and You, E. and Tatangelo, G.},
  title   = {{Hearing Their Voice: A Systematic Review of Dementia Family Caregivers' Needs}},
  journal = {The Gerontologist},
  year    = {2016},
  doi     = {10.1093/geront/gnw078},
  pmid    = {27102056},
  url     = {https://doi.org/10.1093/geront/gnw078}
}

@article{graffradford2019-31199475,
  author  = {Graff-Radford, J. and Arenaza-Urquijo, E. M. and Knopman, D. S. and Schwarz, C. G. and Brown, R. D. and Rabinstein, A. A. and Gunter, J. L. and Senjem, M. L. and others},
  title   = {{White matter hyperintensities: relationship to amyloid and tau burden}},
  journal = {Brain : a journal of neurology},
  year    = {2019},
  doi     = {10.1093/brain/awz162},
  pmid    = {31199475},
  url     = {https://doi.org/10.1093/brain/awz162}
}

@article{riedel2008-18204803,
  author  = {Riedel, O. and Klotsche, J. and Spottke, A. and Deuschl, G. and Förstl, H. and Henn, F. and Heuser, I. and Oertel, W. and others},
  title   = {{Cognitive impairment in 873 patients with idiopathic Parkinson's disease. Results from the German Study on Epidemiology of Parkinson's Disease with Dementia (GEPAD)}},
  journal = {Journal of neurology},
  year    = {2008},
  doi     = {10.1007/s00415-008-0720-2},
  pmid    = {18204803},
  url     = {https://doi.org/10.1007/s00415-008-0720-2}
}

@article{torti2004-15249854,
  author  = {Torti, F. M. and Gwyther, L. P. and Reed, S. D. and Friedman, J. Y. and Schulman, K. A.},
  title   = {{A multinational review of recent trends and reports in dementia caregiver burden}},
  journal = {Alzheimer disease and associated disorders},
  year    = {2004},
  doi     = {10.1097/01.wad.0000126902.37908.b2},
  pmid    = {15249854},
  url     = {https://doi.org/10.1097/01.wad.0000126902.37908.b2}
}

@article{nguyen2025-41000210,
  author  = {Nguyen, Tran To Tran and Vu, Lan Duong Tuyet and Truong, Khoa Tri and Nguyen, Tuan Chau and Thai, Truc Thanh and Schofield, Penelope E. and Nguyen, Tuan Anh and Than, The Ha Ngoc and others},
  title   = {{Smartphone App-Based Psychoeducation for Caregivers of People with Dementia in Vietnam: A Pilot Randomized Controlled Trial}},
  journal = {Clinical Interventions in Aging},
  year    = {2025},
  doi     = {10.2147/cia.s551994},
  pmid    = {41000210},
  url     = {https://doi.org/10.2147/cia.s551994}
}

@article{nguyen2025-41158517,
  author  = {Nguyen, Tran To Tran and Vu, Lan Duong Tuyet and Nguyen, Tuan Anh and Truong, Khoa Tri and Thai, Truc Thanh and Than, The Ha Ngoc and Nguyen, Huan Thanh},
  title   = {{Mobile App Psychoeducation for Dementia Caregivers In Vietnam: A Randomized Controlled Trial}},
  journal = {Journal of Multidisciplinary Healthcare},
  year    = {2025},
  doi     = {10.2147/jmdh.s557573},
  pmid    = {41158517},
  url     = {https://doi.org/10.2147/jmdh.s557573}
}

@article{hua2026-41505195,
  author  = {Hua, Musen and Su, Jiacheng and Zhang, Fuyan and Chen, Shuya and Li, Jiaoyue and Yang, Li},
  title   = {{Effects of digital psychological interventions for family caregivers of people with dementia: a systematic review and meta-analysis}},
  journal = {Age and ageing},
  year    = {2026},
  doi     = {10.1093/ageing/afaf373},
  pmid    = {41505195},
  url     = {https://doi.org/10.1093/ageing/afaf373}
}

@article{study2021-33756057,
  title   = {{2021 Alzheimer's disease facts and figures}},
  journal = {Alzheimer's \& dementia : the journal of the Alzheimer's Association},
  year    = {2021},
  doi     = {10.1002/alz.12328},
  pmid    = {33756057},
  url     = {https://doi.org/10.1002/alz.12328}
}

@article{cummings1997-9153155,
  author  = {Cummings, J. L.},
  title   = {{The Neuropsychiatric Inventory: assessing psychopathology in dementia patients}},
  journal = {Neurology},
  year    = {1997},
  doi     = {10.1212/wnl.48.5_suppl_6.10s},
  pmid    = {9153155},
  url     = {https://doi.org/10.1212/wnl.48.5_suppl_6.10s}
}

@article{serranopozo2011-21777559,
  author  = {Serrano-Pozo, A. and Mielke, M. L. and Gómez-Isla, T. and Betensky, R. A. and Growdon, J. H. and Frosch, M. P. and Hyman, B. T.},
  title   = {{Reactive glia not only associates with plaques but also parallels tangles in Alzheimer's disease}},
  journal = {The American journal of pathology},
  year    = {2011},
  doi     = {10.1016/j.ajpath.2011.05.047},
  pmid    = {21777559},
  url     = {https://doi.org/10.1016/j.ajpath.2011.05.047}
}

@article{bevans2012-22274687,
  author  = {Bevans, M. and Sternberg, E. M.},
  title   = {{Caregiving burden, stress, and health effects among family caregivers of adult cancer patients}},
  journal = {JAMA},
  year    = {2012},
  doi     = {10.1001/jama.2012.29},
  pmid    = {22274687},
  url     = {https://doi.org/10.1001/jama.2012.29}
}

@article{gomperts2008-18794492,
  author  = {Gomperts, S. N. and Rentz, D. M. and Moran, E. and Becker, J. A. and Locascio, J. J. and Klunk, W. E. and Mathis, C. A. and Elmaleh, D. R. and others},
  title   = {{Imaging amyloid deposition in Lewy body diseases}},
  journal = {Neurology},
  year    = {2008},
  doi     = {10.1212/01.wnl.0000326146.60732.d6},
  pmid    = {18794492},
  url     = {https://doi.org/10.1212/01.wnl.0000326146.60732.d6}
}

@article{drzezga2011-21490054,
  author  = {Drzezga, A. and Becker, J. A. and Van Dijk, K. R. and Sreenivasan, A. and Talukdar, T. and Sullivan, C. and Schultz, A. P. and Sepulcre, J. and others},
  title   = {{Neuronal dysfunction and disconnection of cortical hubs in non-demented subjects with elevated amyloid burden}},
  journal = {Brain : a journal of neurology},
  year    = {2011},
  doi     = {10.1093/brain/awr066},
  pmid    = {21490054},
  url     = {https://doi.org/10.1093/brain/awr066}
}

@article{brettschneider2014-24407427,
  author  = {Brettschneider, J. and Del Tredici, K. and Irwin, D. J. and Grossman, M. and Robinson, J. L. and Toledo, J. B. and Fang, L. and Van Deerlin, V. M. and others},
  title   = {{Sequential distribution of pTDP-43 pathology in behavioral variant frontotemporal dementia (bvFTD)}},
  journal = {Acta neuropathologica},
  year    = {2014},
  doi     = {10.1007/s00401-013-1238-y},
  pmid    = {24407427},
  url     = {https://doi.org/10.1007/s00401-013-1238-y}
}

@article{wilson2007-17596582,
  author  = {Wilson, R. S. and Scherr, P. A. and Schneider, J. A. and Tang, Y. and Bennett, D. A.},
  title   = {{Relation of cognitive activity to risk of developing Alzheimer disease}},
  journal = {Neurology},
  year    = {2007},
  doi     = {10.1212/01.wnl.0000271087.67782.cb},
  pmid    = {17596582},
  url     = {https://doi.org/10.1212/01.wnl.0000271087.67782.cb}
}

@article{deramecourt2012-22377814,
  author  = {Deramecourt, V. and Slade, J. Y. and Oakley, A. E. and Perry, R. H. and Ince, P. G. and Maurage, C. A. and Kalaria, R. N.},
  title   = {{Staging and natural history of cerebrovascular pathology in dementia}},
  journal = {Neurology},
  year    = {2012},
  doi     = {10.1212/wnl.0b013e31824e8e7f},
  pmid    = {22377814},
  url     = {https://doi.org/10.1212/wnl.0b013e31824e8e7f}
}

@article{black2013-24479141,
  author  = {Black, B. S. and Johnston, D. and Rabins, P. V. and Morrison, A. and Lyketsos, C. and Samus, Q. M.},
  title   = {{Unmet needs of community-residing persons with dementia and their informal caregivers: findings from the maximizing independence at home study}},
  journal = {Journal of the American Geriatrics Society},
  year    = {2013},
  doi     = {10.1111/jgs.12549},
  pmid    = {24479141},
  url     = {https://doi.org/10.1111/jgs.12549}
}

@article{brickman2008-18695055,
  author  = {Brickman, A. M. and Schupf, N. and Manly, J. J. and Luchsinger, J. A. and Andrews, H. and Tang, M. X. and Reitz, C. and Small, S. A. and others},
  title   = {{Brain morphology in older African Americans, Caribbean Hispanics, and whites from northern Manhattan}},
  journal = {Archives of neurology},
  year    = {2008},
  doi     = {10.1001/archneur.65.8.1053},
  pmid    = {18695055},
  url     = {https://doi.org/10.1001/archneur.65.8.1053}
}

@article{korben2022-35075293,
  author  = {Korben, V. A. and Lyashchenko, A. K. and Blanco-Redondo, B. and Jafar-Nejad, P. and Shneider, N. A.},
  title   = {{Antisense oligonucleotide silencing of FUS expression as a therapeutic approach in amyotrophic lateral sclerosis}},
  journal = {Nature medicine},
  year    = {2022},
  doi     = {10.1038/s41591-021-01615-z},
  pmid    = {35075293},
  url     = {https://doi.org/10.1038/s41591-021-01615-z}
}

@article{mcdonald2010-20403962,
  author  = {Mc Donald, J. M. and Savva, G. M. and Brayne, C. and Welzel, A. T. and Forster, G. and Shankar, G. M. and Selkoe, D. J. and Ince, P. G. and others},
  title   = {{The presence of sodium dodecyl sulphate-stable Abeta dimers is strongly associated with Alzheimer-type dementia}},
  journal = {Brain : a journal of neurology},
  year    = {2010},
  doi     = {10.1093/brain/awq065},
  pmid    = {20403962},
  url     = {https://doi.org/10.1093/brain/awq065}
}

@article{connell1997-9203759,
  author  = {Connell, C. M. and Gibson, G. D.},
  title   = {{Racial, ethnic, and cultural differences in dementia caregiving: review and analysis}},
  journal = {The Gerontologist},
  year    = {1997},
  doi     = {10.1093/geront/37.3.355},
  pmid    = {9203759},
  url     = {https://doi.org/10.1093/geront/37.3.355}
}

@article{song2020-32439001,
  author  = {Song, R. and Xu, H. and Dintica, C. S. and Pan, K. Y. and Qi, X. and Buchman, A. S. and Bennett, D. A. and Xu, W.},
  title   = {{Associations Between Cardiovascular Risk, Structural Brain Changes, and Cognitive Decline}},
  journal = {Journal of the American College of Cardiology},
  year    = {2020},
  doi     = {10.1016/j.jacc.2020.03.053},
  pmid    = {32439001},
  url     = {https://doi.org/10.1016/j.jacc.2020.03.053}
}

@article{hope1998-9818303,
  author  = {Hope, T. and Keene, J. and Gedling, K. and Fairburn, C. G. and Jacoby, R.},
  title   = {{Predictors of institutionalization for people with dementia living at home with a carer}},
  journal = {International journal of geriatric psychiatry},
  year    = {1998},
  doi     = {10.1002/(sici)1099-1166(1998100)13:10<682::aid-gps847>3.0.co;2-y},
  pmid    = {9818303},
  url     = {https://doi.org/10.1002/(sici)1099-1166(1998100)13:10<682::aid-gps847>3.0.co;2-y}
}

@article{cooper2008-18383189,
  author  = {Cooper, C. and Katona, C. and Orrell, M. and Livingston, G.},
  title   = {{Coping strategies, anxiety and depression in caregivers of people with Alzheimer's disease}},
  journal = {International journal of geriatric psychiatry},
  year    = {2008},
  doi     = {10.1002/gps.2007},
  pmid    = {18383189},
  url     = {https://doi.org/10.1002/gps.2007}
}

@article{lin2025-40097773,
  author  = {Lin, Zhuoer and Qian, Yuting and Gill, Thomas M. and Hou, Xiaohui and Allore, Heather G and Chen, Shanquan and Chen, Xi},
  title   = {{Absence of care among community-dwelling older adults with dementia and functional limitations}},
  journal = {Nature Aging},
  year    = {2025},
  doi     = {10.1038/s43587-025-00836-y},
  pmid    = {40097773},
  url     = {https://doi.org/10.1038/s43587-025-00836-y}
}

@article{abdelhalim2025-40095192,
  author  = {Abdelhalim, D. and Ahmed, Marwa and Hussein, Hoda Abdou and Sarhan, Mai Diaa and Khalaf, Ola Osama},
  title   = {{A Skill-Based multimodal intervention for dementia caregivers: impact on burden and anxiety}},
  journal = {Aging Clinical and Experimental Research},
  year    = {2025},
  doi     = {10.1007/s40520-025-02985-x},
  pmid    = {40095192},
  url     = {https://doi.org/10.1007/s40520-025-02985-x}
}

@article{knaul2025-40021301,
  author  = {Knaul, Felícia Marie and Arreola‐Ornelas, Héctor and Kwete, Xiaoxiao Jiang and Bhadelia, Afsan and Rosa, William E. and Touchton, Michael M. and Méndez-Carniado, Oscar and Vargas, Valentina and others},
  title   = {{The evolution of serious health-related suffering from 1990 to 2021: an update to The Lancet Commission on global access to palliative care and pain relief}},
  journal = {The Lancet Global Health},
  year    = {2025},
  doi     = {10.1016/s2214-109x(24)00476-5},
  pmid    = {40021301},
  url     = {https://doi.org/10.1016/s2214-109x(24)00476-5}
}

@article{nascimento2025-41194522,
  author  = {Nascimento, Israel Júnior Borges do and Abdulazeem, Hebatullah Mohamed and Weerasekara, Ishanka and Sharifan, Amin and Bianco, Véronique and Kularathne, Indunil and Cunningham, Charnay and Sathian, Brijesh and others},
  title   = {{An Overview of Reviews on Telemedicine and Telehealth in Dementia Care: Mixed Methods Synthesis}},
  journal = {JMIR Mental Health},
  year    = {2025},
  doi     = {10.2196/75266},
  pmid    = {41194522},
  url     = {https://doi.org/10.2196/75266}
}

@article{bamford2004-14758581,
  author  = {Bamford, C. and Lamont, S. and Eccles, M. and Robinson, L. and May, C. and Bond, J.},
  title   = {{Disclosing a diagnosis of dementia: a systematic review}},
  journal = {International journal of geriatric psychiatry},
  year    = {2004},
  doi     = {10.1002/gps.1050},
  pmid    = {14758581},
  url     = {https://doi.org/10.1002/gps.1050}
}

@article{tolea2023-36891256,
  author  = {Tolea, Magdalena I and Camacho, Simone and Cohen, Iris R and Galvin, James E},
  title   = {{Mindfulness and Care Experience in Family Caregivers of Persons Living with Dementia}},
  journal = {Journal of Alzheimer's disease reports},
  year    = {2023},
  doi     = {10.3233/adr-220069},
  pmid    = {36891256},
  url     = {https://doi.org/10.3233/adr-220069}
}

@article{chang2025-40366652,
  author  = {Chang, Y. K. and Philip, J. and van der Steen, J. T. and Van den Block, L. and Hum, A. Y. M. and Pérez-Cruz, P. E. and Paiva, C. and Mori, M. and Chen, P. J. and Agar, M. R. and others},
  title   = {{Referral Criteria for Specialist Palliative Care for Patients With Dementia}},
  journal = {JAMA Network Open},
  year    = {2025},
  doi     = {10.1001/jamanetworkopen.2025.10298},
  pmid    = {40366652},
  url     = {https://doi.org/10.1001/jamanetworkopen.2025.10298}
}

@article{wittchen2011-21896369,
  author  = {Wittchen, H. U. and Jacobi, F. and Rehm, J. and Gustavsson, A. and Svensson, M. and Jönsson, B. and Olesen, J. and Allgulander, C. and others},
  title   = {{The size and burden of mental disorders and other disorders of the brain in Europe 2010}},
  journal = {European neuropsychopharmacology : the journal of the European College of Neuropsychopharmacology},
  year    = {2011},
  doi     = {10.1016/j.euroneuro.2011.07.018},
  pmid    = {21896369},
  url     = {https://doi.org/10.1016/j.euroneuro.2011.07.018}
}

@article{study2016-27570871,
  author  = {{Alzheimer's Association}},
  title   = {{2016 Alzheimer's disease facts and figures}},
  journal = {Alzheimer's \& dementia : the journal of the Alzheimer's Association},
  year    = {2016},
  doi     = {10.1016/j.jalz.2016.03.001},
  pmid    = {27570871},
  url     = {https://doi.org/10.1016/j.jalz.2016.03.001}
}

@article{kaufer2000-11001602,
  author  = {Kaufer, D. I. and Cummings, J. L. and Ketchel, P. and Smith, V. and MacMillan, A. and Shelley, T. and Lopez, O. L. and DeKosky, S. T.},
  title   = {{Validation of the NPI-Q, a brief clinical form of the Neuropsychiatric Inventory}},
  journal = {The Journal of neuropsychiatry and clinical neurosciences},
  year    = {2000},
  doi     = {10.1176/jnp.12.2.233},
  pmid    = {11001602},
  url     = {https://doi.org/10.1176/jnp.12.2.233}
}

@article{keezer2016-26549780,
  author  = {Keezer, M. R. and Sisodiya, S. M. and Sander, J. W.},
  title   = {{Comorbidities of epilepsy: current concepts and future perspectives}},
  journal = {The Lancet. Neurology},
  year    = {2016},
  doi     = {10.1016/s1474-4422(15)00225-2},
  pmid    = {26549780},
  url     = {https://doi.org/10.1016/s1474-4422(15)00225-2}
}

@article{zeppenfeld2017-27893874,
  author  = {Zeppenfeld, D. M. and Simon, M. and Haswell, J. D. and D'Abreo, D. and Murchison, C. and Quinn, J. F. and Grafe, M. R. and Woltjer, R. L. and others},
  title   = {{Association of Perivascular Localization of Aquaporin-4 With Cognition and Alzheimer Disease in Aging Brains}},
  journal = {JAMA neurology},
  year    = {2017},
  doi     = {10.1001/jamaneurol.2016.4370},
  pmid    = {27893874},
  url     = {https://doi.org/10.1001/jamaneurol.2016.4370}
}

@article{li2022-36299608,
  author  = {Li, X. and Feng, X. and Sun, X. and Hou, N. and Han, F. and Liu, Y.},
  title   = {{Global, regional, and national burden of Alzheimer's disease and other dementias, 1990-2019}},
  journal = {Frontiers in aging neuroscience},
  year    = {2022},
  doi     = {10.3389/fnagi.2022.937486},
  pmid    = {36299608},
  url     = {https://doi.org/10.3389/fnagi.2022.937486}
}

@article{wilson2007-17012338,
  author  = {Wilson, R. S. and Arnold, S. E. and Schneider, J. A. and Tang, Y. and Bennett, D. A.},
  title   = {{The relationship between cerebral Alzheimer's disease pathology and odour identification in old age}},
  journal = {Journal of neurology, neurosurgery, and psychiatry},
  year    = {2007},
  doi     = {10.1136/jnnp.2006.099721},
  pmid    = {17012338},
  url     = {https://doi.org/10.1136/jnnp.2006.099721}
}

@article{gitlin2008-18310553,
  author  = {Gitlin, L. N. and Winter, L. and Burke, J. and Chernett, N. and Dennis, M. P. and Hauck, W. W.},
  title   = {{Tailored activities to manage neuropsychiatric behaviors in persons with dementia and reduce caregiver burden: a randomized pilot study}},
  journal = {The American journal of geriatric psychiatry : official journal of the American Association for Geriatric Psychiatry},
  year    = {2008},
  doi     = {10.1097/jgp.0b013e318160da72},
  pmid    = {18310553},
  url     = {https://doi.org/10.1097/jgp.0b013e318160da72}
}

@article{akinyemi2021-34526674,
  author  = {Akinyemi, R. O. and Ovbiagele, B. and Adeniji, O. A. and Sarfo, F. S. and Abd-Allah, F. and Adoukonou, T. and Ogah, O. S. and Naidoo, P. and others},
  title   = {{Stroke in Africa: profile, progress, prospects and priorities}},
  journal = {Nature reviews. Neurology},
  year    = {2021},
  doi     = {10.1038/s41582-021-00542-4},
  pmid    = {34526674},
  url     = {https://doi.org/10.1038/s41582-021-00542-4}
}

@article{burberry2020-32483373,
  author  = {Burberry, A. and Wells, M. F. and Limone, F. and Couto, A. and Smith, K. S. and Keaney, J. and Gillet, G. and van Gastel, N. and others},
  title   = {{C9orf72 suppresses systemic and neural inflammation induced by gut bacteria}},
  journal = {Nature},
  year    = {2020},
  doi     = {10.1038/s41586-020-2288-7},
  pmid    = {32483373},
  url     = {https://doi.org/10.1038/s41586-020-2288-7}
}

@article{andersen2004-15383148,
  author  = {Andersen, C. K. and Wittrup-Jensen, K. U. and Lolk, A. and Andersen, K. and Kragh-Sørensen, P.},
  title   = {{Ability to perform activities of daily living is the main factor affecting quality of life in patients with dementia}},
  journal = {Health and quality of life outcomes},
  year    = {2004},
  doi     = {10.1186/1477-7525-2-52},
  pmid    = {15383148},
  url     = {https://doi.org/10.1186/1477-7525-2-52}
}

@article{buchman2008-18695161,
  author  = {Buchman, A. S. and Schneider, J. A. and Leurgans, S. and Bennett, D. A.},
  title   = {{Physical frailty in older persons is associated with Alzheimer disease pathology}},
  journal = {Neurology},
  year    = {2008},
  doi     = {10.1212/01.wnl.0000324864.81179.6a},
  pmid    = {18695161},
  url     = {https://doi.org/10.1212/01.wnl.0000324864.81179.6a}
}

@article{murley2018-29373632,
  author  = {Murley, A. G. and Rowe, J. B.},
  title   = {{Neurotransmitter deficits from frontotemporal lobar degeneration}},
  journal = {Brain : a journal of neurology},
  year    = {2018},
  doi     = {10.1093/brain/awx327},
  pmid    = {29373632},
  url     = {https://doi.org/10.1093/brain/awx327}
}

@article{robinson2023-36864661,
  author  = {Robinson, J. L. and Xie, S. X. and Baer, D. R. and Suh, E. and Van Deerlin, V. M. and Loh, N. J. and Irwin, D. J. and McMillan, C. T. and others},
  title   = {{Pathological combinations in neurodegenerative disease are heterogeneous and disease-associated}},
  journal = {Brain : a journal of neurology},
  year    = {2023},
  doi     = {10.1093/brain/awad059},
  pmid    = {36864661},
  url     = {https://doi.org/10.1093/brain/awad059}
}

@article{chan2013-22407743,
  author  = {Chan, D. and Livingston, G. and Jones, L. and Sampson, E. L.},
  title   = {{Grief reactions in dementia carers: a systematic review}},
  journal = {International journal of geriatric psychiatry},
  year    = {2013},
  doi     = {10.1002/gps.3795},
  pmid    = {22407743},
  url     = {https://doi.org/10.1002/gps.3795}
}

@article{study2025-13438b83,
  title   = {{2025 Alzheimer's disease facts and figures}},
  journal = {Alzheimer s \& Dementia},
  year    = {2025},
  doi     = {10.1002/alz.70235},
  url     = {https://doi.org/10.1002/alz.70235}
}

@article{appelhof2017-28558375,
  author  = {Appelhof, Britt and Bakker, Christian and den IJssel, Jeannette C.L. van Duinen‐van and Zwijsen, Sandra A. and Smalbrugge, Martin and Verhey, Frans R.J. and de Vugt, Marjolein Elizabeth and Zuidema, Sytse Ulbe and others},
  title   = {{The Determinants of Quality of Life of Nursing Home Residents with Young-Onset Dementia and the Differences between Dementia Subtypes}},
  journal = {Dementia and Geriatric Cognitive Disorders},
  year    = {2017},
  doi     = {10.1159/000477087},
  pmid    = {28558375},
  url     = {https://doi.org/10.1159/000477087}
}

@article{butters2004-15184238,
  author  = {Butters, M. A. and Whyte, E. M. and Nebes, R. D. and Begley, A. E. and Dew, M. A. and Mulsant, B. H. and Zmuda, M. D. and Bhalla, R. and others},
  title   = {{The nature and determinants of neuropsychological functioning in late-life depression}},
  journal = {Archives of general psychiatry},
  year    = {2004},
  doi     = {10.1001/archpsyc.61.6.587},
  pmid    = {15184238},
  url     = {https://doi.org/10.1001/archpsyc.61.6.587}
}

@article{pantoni2005-15459510,
  author  = {Pantoni, L. and Basile, A. M. and Pracucci, G. and Asplund, K. and Bogousslavsky, J. and Chabriat, H. and Erkinjuntti, T. and Fazekas, F. and others},
  title   = {{Impact of age-related cerebral white matter changes on the transition to disability -- the LADIS study: rationale, design and methodology}},
  journal = {Neuroepidemiology},
  year    = {2005},
  doi     = {10.1159/000081050},
  pmid    = {15459510},
  url     = {https://doi.org/10.1159/000081050}
}

@article{pereznievas2013-23824488,
  author  = {Perez-Nievas, B. G. and Stein, T. D. and Tai, H. C. and Dols-Icardo, O. and Scotton, T. C. and Barroeta-Espar, I. and Fernandez-Carballo, L. and de Munain, E. L. and others},
  title   = {{Dissecting phenotypic traits linked to human resilience to Alzheimer's pathology}},
  journal = {Brain : a journal of neurology},
  year    = {2013},
  doi     = {10.1093/brain/awt171},
  pmid    = {23824488},
  url     = {https://doi.org/10.1093/brain/awt171}
}

@article{hahad2020-32560306,
  author  = {Hahad, O. and Lelieveld, J. and Birklein, F. and Lieb, K. and Daiber, A. and Münzel, T.},
  title   = {{Ambient Air Pollution Increases the Risk of Cerebrovascular and Neuropsychiatric Disorders through Induction of Inflammation and Oxidative Stress}},
  journal = {International journal of molecular sciences},
  year    = {2020},
  doi     = {10.3390/ijms21124306},
  pmid    = {32560306},
  url     = {https://doi.org/10.3390/ijms21124306}
}

@article{schulz2004-15328328,
  author  = {Schulz, R. and Belle, S. H. and Czaja, S. J. and McGinnis, K. A. and Stevens, A. and Zhang, S.},
  title   = {{Long-term care placement of dementia patients and caregiver health and well-being}},
  journal = {JAMA},
  year    = {2004},
  doi     = {10.1001/jama.292.8.961},
  pmid    = {15328328},
  url     = {https://doi.org/10.1001/jama.292.8.961}
}

@article{gonzalezortiz2023-36927491,
  author  = {Gonzalez-Ortiz, F. and Kac, P. R. and Brum, W. S. and Zetterberg, H. and Blennow, K. and Karikari, T. K.},
  title   = {{Plasma phospho-tau in Alzheimer's disease: towards diagnostic and therapeutic trial applications}},
  journal = {Molecular neurodegeneration},
  year    = {2023},
  doi     = {10.1186/s13024-023-00605-8},
  pmid    = {36927491},
  url     = {https://doi.org/10.1186/s13024-023-00605-8}
}

@article{gomperts2016-27654968,
  author  = {Gomperts, S. N. and Locascio, J. J. and Makaretz, S. J. and Schultz, A. and Caso, C. and Vasdev, N. and Sperling, R. and Growdon, J. H. and others},
  title   = {{Tau Positron Emission Tomographic Imaging in the Lewy Body Diseases}},
  journal = {JAMA neurology},
  year    = {2016},
  doi     = {10.1001/jamaneurol.2016.3338},
  pmid    = {27654968},
  url     = {https://doi.org/10.1001/jamaneurol.2016.3338}
}

@article{liu2017-27681477,
  author  = {Liu, S. and Li, C. and Shi, Z. and Wang, X. and Zhou, Y. and Liu, J. and Yu, T. and others},
  title   = {{Caregiver burden and prevalence of depression, anxiety and sleep disturbances in Alzheimer's disease caregivers in China}},
  journal = {Journal of clinical nursing},
  year    = {2017},
  doi     = {10.1111/jocn.13601},
  pmid    = {27681477},
  url     = {https://doi.org/10.1111/jocn.13601}
}

@article{quinn2009-19347681,
  author  = {Quinn, C. and Clare, L. and Woods, B.},
  title   = {{The impact of the quality of relationship on the experiences and wellbeing of caregivers of people with dementia: a systematic review}},
  journal = {Aging \& mental health},
  year    = {2009},
  doi     = {10.1080/13607860802459799},
  pmid    = {19347681},
  url     = {https://doi.org/10.1080/13607860802459799}
}

@article{reuben2025-40892399,
  author  = {Reuben, David B. and Stevens, Alan B. and Gill, Thomas M. and Williamson, Jeff D. and Volpi, Elena and Lichtenstein, Maya L. and Jennings, Lee A. and Galloway, Rebecca V. and others},
  title   = {{Patient and Caregiver Outcomes of Health System, Community-Based, and Usual Dementia Care}},
  journal = {JAMA Internal Medicine},
  year    = {2025},
  doi     = {10.1001/jamainternmed.2025.4247},
  pmid    = {40892399},
  url     = {https://doi.org/10.1001/jamainternmed.2025.4247}
}

@article{zhou2025-40632534,
  author  = {Zhou, Zi and Hong, Xiaoling},
  title   = {{Caring for Grandchildren and Dementia Among Older Adults in China}},
  journal = {JAMA Network Open},
  year    = {2025},
  doi     = {10.1001/jamanetworkopen.2025.19622},
  pmid    = {40632534},
  url     = {https://doi.org/10.1001/jamanetworkopen.2025.19622}
}

@article{schulz1999-10605972,
  author  = {Schulz, Richard and Beach, Scott R.},
  title   = {{Caregiving as a risk factor for mortality: the Caregiver Health Effects Study}},
  journal = {JAMA},
  year    = {1999},
  doi     = {10.1001/jama.282.23.2215},
  pmid    = {10605972},
  url     = {https://doi.org/10.1001/jama.282.23.2215}
}

@article{moreira2023-37533596,
  author  = {Moreira, Verônica Salazar and Chaves, Márcia Lorena Fagundes and de Castilhos, Raphael Machado and Olchik, Maira Rozenfeld},
  title   = {{Caregiver burden related to feeding process in Alzheimer's disease}},
  journal = {Dementia \& neuropsychologia},
  year    = {2023},
  doi     = {10.1590/1980-5764-dn-2022-0092},
  pmid    = {37533596},
  url     = {https://doi.org/10.1590/1980-5764-dn-2022-0092}
}

@article{zauszniewski2022-36116865,
  author  = {Zauszniewski, Jaclene A and Sweetko, John S and She, Hang-Ying and Schreiner, Nathanial},
  title   = {{Documenting the need for teaching resourcefulness skills to family caregivers}},
  journal = {Applied nursing research : ANR},
  year    = {2022},
  doi     = {10.1016/j.apnr.2022.151627},
  pmid    = {36116865},
  url     = {https://doi.org/10.1016/j.apnr.2022.151627}
}

@article{sleeman2019-31129125,
  author  = {Sleeman, K. E. and de Brito, M. and Etkind, S. and Nkhoma, K. and Guo, P. and Higginson, I. J. and Gomes, B. and Harding, R.},
  title   = {{The escalating global burden of serious health-related suffering: projections to 2060 by world regions, age groups, and health conditions}},
  journal = {The Lancet. Global health},
  year    = {2019},
  doi     = {10.1016/s2214-109x(19)30172-x},
  pmid    = {31129125},
  url     = {https://doi.org/10.1016/s2214-109x(19)30172-x}
}

@article{qaseem2018-29507945,
  author  = {Qaseem, A. and Wilt, T. J. and Kansagara, D. and Horwitch, C. and Barry, M. J. and Forciea, M. A. and {Clinical Guidelines Committee of the American College of Physicians} and Fitterman, N. and others},
  title   = {{Hemoglobin A1c Targets for Glycemic Control With Pharmacologic Therapy for Nonpregnant Adults With Type 2 Diabetes Mellitus: A Guidance Statement Update From the American College of Physicians}},
  journal = {Annals of internal medicine},
  year    = {2018},
  doi     = {10.7326/m17-0939},
  pmid    = {29507945},
  url     = {https://doi.org/10.7326/m17-0939}
}

@article{gross1999-10369852,
  author  = {Gross, C. P. and Anderson, G. F. and Powe, N. R.},
  title   = {{The relation between funding by the National Institutes of Health and the burden of disease}},
  journal = {The New England journal of medicine},
  year    = {1999},
  doi     = {10.1056/nejm199906173402406},
  pmid    = {10369852},
  url     = {https://doi.org/10.1056/nejm199906173402406}
}

@article{langa2001-11722692,
  author  = {Langa, K. M. and Chernew, M. E. and Kabeto, M. U. and Herzog, A. R. and Ofstedal, M. B. and Willis, R. J. and Wallace, R. B. and Mucha, L. M. and others},
  title   = {{National estimates of the quantity and cost of informal caregiving for the elderly with dementia}},
  journal = {Journal of general internal medicine},
  year    = {2001},
  doi     = {10.1111/j.1525-1497.2001.10123.x},
  pmid    = {11722692},
  url     = {https://doi.org/10.1111/j.1525-1497.2001.10123.x}
}

@article{marelli2016-27185022,
  author  = {Marelli, A. and Miller, S. P. and Marino, B. S. and Jefferson, A. L. and Newburger, J. W.},
  title   = {{Brain in Congenital Heart Disease Across the Lifespan: The Cumulative Burden of Injury}},
  journal = {Circulation},
  year    = {2016},
  doi     = {10.1161/circulationaha.115.019881},
  pmid    = {27185022},
  url     = {https://doi.org/10.1161/circulationaha.115.019881}
}

@article{bayer2005-15642910,
  author  = {Bayer, A. J. and Bullock, R. and Jones, R. W. and Wilkinson, D. and Paterson, K. R. and Jenkins, L. and Millais, S. B. and Donoghue, S.},
  title   = {{Evaluation of the safety and immunogenicity of synthetic Abeta42 (AN1792) in patients with AD}},
  journal = {Neurology},
  year    = {2005},
  doi     = {10.1212/01.wnl.0000148604.77591.67},
  pmid    = {15642910},
  url     = {https://doi.org/10.1212/01.wnl.0000148604.77591.67}
}

@article{ajoolabady2022-35970828,
  author  = {Ajoolabady, A. and Lindholm, D. and Ren, J. and Pratico, D.},
  title   = {{ER stress and UPR in Alzheimer's disease: mechanisms, pathogenesis, treatments}},
  journal = {Cell death \& disease},
  year    = {2022},
  doi     = {10.1038/s41419-022-05153-5},
  pmid    = {35970828},
  url     = {https://doi.org/10.1038/s41419-022-05153-5}
}

@article{fenelon2010-19740486,
  author  = {Fénelon, G. and Alves, G.},
  title   = {{Epidemiology of psychosis in Parkinson's disease}},
  journal = {Journal of the neurological sciences},
  year    = {2010},
  doi     = {10.1016/j.jns.2009.08.014},
  pmid    = {19740486},
  url     = {https://doi.org/10.1016/j.jns.2009.08.014}
}

@article{pemberton2022-35389071,
  author  = {Pemberton, H. G. and Collij, L. E. and Heeman, F. and Bollack, A. and Shekari, M. and Salvadó, G. and Alves, I. L. and Garcia, D. V. and others},
  title   = {{Quantification of amyloid PET for future clinical use: a state-of-the-art review}},
  journal = {European journal of nuclear medicine and molecular imaging},
  year    = {2022},
  doi     = {10.1007/s00259-022-05784-y},
  pmid    = {35389071},
  url     = {https://doi.org/10.1007/s00259-022-05784-y}
}

@article{gaugler2005-16398893,
  author  = {Gaugler, J. E. and Kane, R. L. and Kane, R. A. and Newcomer, R.},
  title   = {{Unmet care needs and key outcomes in dementia}},
  journal = {Journal of the American Geriatrics Society},
  year    = {2005},
  doi     = {10.1111/j.1532-5415.2005.00495.x},
  pmid    = {16398893},
  url     = {https://doi.org/10.1111/j.1532-5415.2005.00495.x}
}

@article{yang2018-30618593,
  author  = {Yang, L. and Yan, Y. and Wang, Y. and Hu, X. and Lu, J. and Chan, P. and Yan, T. and Han, Y.},
  title   = {{Gradual Disturbances of the Amplitude of Low-Frequency Fluctuations (ALFF) and Fractional ALFF in Alzheimer Spectrum}},
  journal = {Frontiers in neuroscience},
  year    = {2018},
  doi     = {10.3389/fnins.2018.00975},
  pmid    = {30618593},
  url     = {https://doi.org/10.3389/fnins.2018.00975}
}

@article{harper2001-11296096,
  author  = {Harper, D. G. and Stopa, E. G. and McKee, A. C. and Satlin, A. and Harlan, P. C. and Goldstein, R. and Volicer, L.},
  title   = {{Differential circadian rhythm disturbances in men with Alzheimer disease and frontotemporal degeneration}},
  journal = {Archives of general psychiatry},
  year    = {2001},
  doi     = {10.1001/archpsyc.58.4.353},
  pmid    = {11296096},
  url     = {https://doi.org/10.1001/archpsyc.58.4.353}
}

@article{buhr2006-16452284,
  author  = {Buhr, G. T. and Kuchibhatla, M. and Clipp, E. C.},
  title   = {{Caregivers' reasons for nursing home placement: clues for improving discussions with families prior to the transition}},
  journal = {The Gerontologist},
  year    = {2006},
  doi     = {10.1093/geront/46.1.52},
  pmid    = {16452284},
  url     = {https://doi.org/10.1093/geront/46.1.52}
}

@article{study2021-34337138,
  author  = {{GBD 2019 Collaborators}},
  title   = {{Global mortality from dementia: Application of a new method and results from the Global Burden of Disease Study 2019}},
  journal = {Alzheimer's \& dementia (New York, N. Y.)},
  year    = {2021},
  doi     = {10.1002/trc2.12200},
  pmid    = {34337138},
  url     = {https://doi.org/10.1002/trc2.12200}
}

@article{kim2021-33663416,
  author  = {Kim, B. and Noh, G. O. and Kim, K.},
  title   = {{Behavioural and psychological symptoms of dementia in patients with Alzheimer's disease and family caregiver burden: a path analysis}},
  journal = {BMC geriatrics},
  year    = {2021},
  doi     = {10.1186/s12877-021-02109-w},
  pmid    = {33663416},
  url     = {https://doi.org/10.1186/s12877-021-02109-w}
}

@article{mudrazija2025-40471578,
  author  = {Mudražija, Stipica and Aranda, María and Gaskin, Darrell J. and Monroe, Stephanie and Richard, Patrick J.},
  title   = {{Economic Burden of Alzheimer Disease and Related Dementias by Race and Ethnicity, 2020 to 2060}},
  journal = {JAMA Network Open},
  year    = {2025},
  doi     = {10.1001/jamanetworkopen.2025.13931},
  pmid    = {40471578},
  url     = {https://doi.org/10.1001/jamanetworkopen.2025.13931}
}

@article{zarit1980-7203086,
  author  = {Zarit, Steven Howard and Reever, Karen E. and Bach-Peterson, Julie},
  title   = {{Relatives of the Impaired Elderly: Correlates of Feelings of Burden}},
  journal = {The Gerontologist},
  year    = {1980},
  doi     = {10.1093/geront/20.6.649},
  pmid    = {7203086},
  url     = {https://doi.org/10.1093/geront/20.6.649}
}

@article{chan2010-21252540,
  author  = {Chan, Sally Wai-Chi},
  title   = {{Family caregiving in dementia: the Asian perspective of a global problem}},
  journal = {Dementia and geriatric cognitive disorders},
  year    = {2010},
  doi     = {10.1159/000322086},
  pmid    = {21252540},
  url     = {https://doi.org/10.1159/000322086}
}

@article{ardiningrum2024-38837527,
  author  = {Ardiningrum, Wikan and Nasrun, Martina Wiwie Setiawan and Kusumaningrum, Profitasari and Damping, Charles Evert},
  title   = {{Needs analysis of family caregivers of people living with dementia in Sleman Regency, Yogyakarta}},
  journal = {Psychogeriatrics : the official journal of the Japanese Psychogeriatric Society},
  year    = {2024},
  doi     = {10.1111/psyg.13145},
  pmid    = {38837527},
  url     = {https://doi.org/10.1111/psyg.13145}
}

@article{study2023-36918389,
  title   = {{2023 Alzheimer's disease facts and figures}},
  journal = {Alzheimer's \& dementia : the journal of the Alzheimer's Association},
  year    = {2023},
  doi     = {10.1002/alz.13016},
  pmid    = {36918389},
  url     = {https://doi.org/10.1002/alz.13016}
}

@article{biessels2018-30022099,
  author  = {Biessels, G. J. and Despa, F.},
  title   = {{Cognitive decline and dementia in diabetes mellitus: mechanisms and clinical implications}},
  journal = {Nature reviews. Endocrinology},
  year    = {2018},
  doi     = {10.1038/s41574-018-0048-7},
  pmid    = {30022099},
  url     = {https://doi.org/10.1038/s41574-018-0048-7}
}

@article{logsdon2002-12021425,
  author  = {Logsdon, R. G. and Gibbons, L. E. and McCurry, S. M. and Teri, L.},
  title   = {{Assessing quality of life in older adults with cognitive impairment}},
  journal = {Psychosomatic medicine},
  year    = {2002},
  doi     = {10.1097/00006842-200205000-00016},
  pmid    = {12021425},
  url     = {https://doi.org/10.1097/00006842-200205000-00016}
}

@article{ory1999-10224714,
  author  = {Ory, M. G. and Hoffman, R. R. and Yee, J. L. and Tennstedt, S. and Schulz, R.},
  title   = {{Prevalence and impact of caregiving: a detailed comparison between dementia and nondementia caregivers}},
  journal = {The Gerontologist},
  year    = {1999},
  doi     = {10.1093/geront/39.2.177},
  pmid    = {10224714},
  url     = {https://doi.org/10.1093/geront/39.2.177}
}

@article{whitwell2012-22951070,
  author  = {Whitwell, J. L. and Dickson, D. W. and Murray, M. E. and Weigand, S. D. and Tosakulwong, N. and Senjem, M. L. and Knopman, D. S. and Boeve, B. F. and others},
  title   = {{Neuroimaging correlates of pathologically defined subtypes of Alzheimer's disease: a case-control study}},
  journal = {The Lancet. Neurology},
  year    = {2012},
  doi     = {10.1016/s1474-4422(12)70200-4},
  pmid    = {22951070},
  url     = {https://doi.org/10.1016/s1474-4422(12)70200-4}
}

@article{covinsky2003-14687259,
  author  = {Covinsky, K. E. and Newcomer, R. and Fox, P. and Wood, J. and Sands, L. and Dane, K. and Yaffe, K.},
  title   = {{Patient and caregiver characteristics associated with depression in caregivers of patients with dementia}},
  journal = {Journal of general internal medicine},
  year    = {2003},
  doi     = {10.1111/j.1525-1497.2003.30103.x},
  pmid    = {14687259},
  url     = {https://doi.org/10.1111/j.1525-1497.2003.30103.x}
}

@article{santos2023-36480931,
  author  = {Santos, A. C. and Willumsen, J. and Meheus, F. and Ilbawi, A. and Bull, F. C.},
  title   = {{The cost of inaction on physical inactivity to public health-care systems: a population-attributable fraction analysis}},
  journal = {The Lancet. Global health},
  year    = {2023},
  doi     = {10.1016/s2214-109x(22)00464-8},
  pmid    = {36480931},
  url     = {https://doi.org/10.1016/s2214-109x(22)00464-8}
}

@article{halliday2017-28430857,
  author  = {Halliday, M. and Radford, H. and Zents, K. A. M. and Molloy, C. and Moreno, J. A. and Verity, N. C. and Smith, E. and Ortori, C. A. and others},
  title   = {{Repurposed drugs targeting eIF2α-P-mediated translational repression prevent neurodegeneration in mice}},
  journal = {Brain : a journal of neurology},
  year    = {2017},
  doi     = {10.1093/brain/awx074},
  pmid    = {28430857},
  url     = {https://doi.org/10.1093/brain/awx074}
}

@article{simon2022-35473943,
  author  = {Simon, M. and Wang, M. X. and Ismail, O. and Braun, M. and Schindler, A. G. and Reemmer, J. and Wang, Z. and Haveliwala, M. A. and others},
  title   = {{Loss of perivascular aquaporin-4 localization impairs glymphatic exchange and promotes amyloid β plaque formation in mice}},
  journal = {Alzheimer's research \& therapy},
  year    = {2022},
  doi     = {10.1186/s13195-022-00999-5},
  pmid    = {35473943},
  url     = {https://doi.org/10.1186/s13195-022-00999-5}
}

@article{rentz2011-21689670,
  author  = {Rentz, D. M. and Amariglio, R. E. and Becker, J. A. and Frey, M. and Olson, L. E. and Frishe, K. and Carmasin, J. and Maye, J. E. and others},
  title   = {{Face-name associative memory performance is related to amyloid burden in normal elderly}},
  journal = {Neuropsychologia},
  year    = {2011},
  doi     = {10.1016/j.neuropsychologia.2011.06.006},
  pmid    = {21689670},
  url     = {https://doi.org/10.1016/j.neuropsychologia.2011.06.006}
}

@article{ehrenberg2018-30223398,
  author  = {Ehrenberg, A. J. and Suemoto, C. K. and França Resende, E. P. and Petersen, C. and Leite, R. E. P. and Rodriguez, R. D. and Ferretti-Rebustini, R. E. L. and You, M. and others},
  title   = {{Neuropathologic Correlates of Psychiatric Symptoms in Alzheimer's Disease}},
  journal = {Journal of Alzheimer's disease : JAD},
  year    = {2018},
  doi     = {10.3233/jad-180688},
  pmid    = {30223398},
  url     = {https://doi.org/10.3233/jad-180688}
}

@article{kamatham2024-39236855,
  author  = {Kamatham, P. T. and Shukla, R. and Khatri, D. K. and Vora, L. K.},
  title   = {{Pathogenesis, diagnostics, and therapeutics for Alzheimer's disease: Breaking the memory barrier}},
  journal = {Ageing research reviews},
  year    = {2024},
  doi     = {10.1016/j.arr.2024.102481},
  pmid    = {39236855},
  url     = {https://doi.org/10.1016/j.arr.2024.102481}
}

@article{cheng2019-31172302,
  author  = {Cheng, S. T. and Au, A. and Losada, A. and Thompson, L. W. and Gallagher-Thompson, D.},
  title   = {{Psychological Interventions for Dementia Caregivers: What We Have Achieved, What We Have Learned}},
  journal = {Current psychiatry reports},
  year    = {2019},
  doi     = {10.1007/s11920-019-1045-9},
  pmid    = {31172302},
  url     = {https://doi.org/10.1007/s11920-019-1045-9}
}

@article{acton2001-11746065,
  author  = {Acton, G. J. and Kang, J.},
  title   = {{Interventions to reduce the burden of caregiving for an adult with dementia: a meta-analysis}},
  journal = {Research in nursing \& health},
  year    = {2001},
  doi     = {10.1002/nur.1036},
  pmid    = {11746065},
  url     = {https://doi.org/10.1002/nur.1036}
}

@article{white2016-26888993,
  author  = {White, L. R. and Edland, S. D. and Hemmy, L. S. and Montine, K. S. and Zarow, C. and Sonnen, J. A. and Uyehara-Lock, J. H. and Gelber, R. P. and others},
  title   = {{Neuropathologic comorbidity and cognitive impairment in the Nun and Honolulu-Asia Aging Studies}},
  journal = {Neurology},
  year    = {2016},
  doi     = {10.1212/wnl.0000000000002480},
  pmid    = {26888993},
  url     = {https://doi.org/10.1212/wnl.0000000000002480}
}

@article{wolff2018-28637266,
  author  = {Wolff, J. L. and Mulcahy, J. and Huang, J. and Roth, D. L. and Covinsky, K. and Kasper, J. D.},
  title   = {{Family Caregivers of Older Adults, 1999-2015: Trends in Characteristics, Circumstances, and Role-Related Appraisal}},
  journal = {The Gerontologist},
  year    = {2018},
  doi     = {10.1093/geront/gnx093},
  pmid    = {28637266},
  url     = {https://doi.org/10.1093/geront/gnx093}
}

@article{sheikh2018-28879833,
  author  = {Sheikh, F. and Ismail, Z. and Mortby, M. E. and Barber, P. and Cieslak, A. and Fischer, K. and Granger, R. and Hogan, D. B. and others},
  title   = {{Prevalence of mild behavioral impairment in mild cognitive impairment and subjective cognitive decline, and its association with caregiver burden}},
  journal = {International psychogeriatrics},
  year    = {2018},
  doi     = {10.1017/s104161021700151x},
  pmid    = {28879833},
  url     = {https://doi.org/10.1017/s104161021700151x}
}

@article{burns2005-15851730,
  author  = {Burns, J. M. and Galvin, J. E. and Roe, C. M. and Morris, J. C. and McKeel, D. W.},
  title   = {{The pathology of the substantia nigra in Alzheimer disease with extrapyramidal signs}},
  journal = {Neurology},
  year    = {2005},
  doi     = {10.1212/01.wnl.0000158423.05224.7f},
  pmid    = {15851730},
  url     = {https://doi.org/10.1212/01.wnl.0000158423.05224.7f}
}

@article{sun2025-b7606922,
  author  = {Sun, Fei and Jiang, Lin Hong and Chen, Xiayu Summer and Feng, Yali},
  title   = {{Interactive AI Technology for Dementia Caregivers: Needs and Implementation Evidence}},
  journal = {Journal of Technology in Human Services},
  year    = {2025},
  doi     = {10.1080/15228835.2025.2460156},
  url     = {https://doi.org/10.1080/15228835.2025.2460156}
}

@article{lin2025-41198038,
  author  = {Lin, Y. J. and Chen, Y. J. and Ling, D. I. and Fang, JR. and Wu, J. Y. and Lo, Y. T.},
  title   = {{Effectiveness of Advance Care Planning for End-of-Life Outcomes in Nursing Home Residents With Dementia: A Systematic Review and Meta-Analysis}},
  journal = {Journal of the American Medical Directors Association},
  year    = {2025},
  doi     = {10.1016/j.jamda.2025.105974},
  pmid    = {41198038},
  url     = {https://doi.org/10.1016/j.jamda.2025.105974}
}

@article{pedersen2019-30837717,
  author  = {Pedersen, B. K.},
  title   = {{Physical activity and muscle-brain crosstalk}},
  journal = {Nature reviews. Endocrinology},
  year    = {2019},
  doi     = {10.1038/s41574-019-0174-x},
  pmid    = {30837717},
  url     = {https://doi.org/10.1038/s41574-019-0174-x}
}

@article{carro2002-12415260,
  author  = {Carro, E. and Trejo, J. L. and Gomez-Isla, T. and LeRoith, D. and Torres-Aleman, I.},
  title   = {{Serum insulin-like growth factor I regulates brain amyloid-beta levels}},
  journal = {Nature medicine},
  year    = {2002},
  doi     = {10.1038/nm1202-793},
  pmid    = {12415260},
  url     = {https://doi.org/10.1038/nm1202-793}
}

@article{kim2012-21793872,
  author  = {Kim, H. and Chang, M. and Rose, K. and Kim, S.},
  title   = {{Predictors of caregiver burden in caregivers of individuals with dementia}},
  journal = {Journal of advanced nursing},
  year    = {2012},
  doi     = {10.1111/j.1365-2648.2011.05787.x},
  pmid    = {21793872},
  url     = {https://doi.org/10.1111/j.1365-2648.2011.05787.x}
}

@article{ikeda2002-12235302,
  author  = {Ikeda, M. and Brown, J. and Holland, A. J. and Fukuhara, R. and Hodges, JR.},
  title   = {{Changes in appetite, food preference, and eating habits in frontotemporal dementia and Alzheimer's disease}},
  journal = {Journal of neurology, neurosurgery, and psychiatry},
  year    = {2002},
  doi     = {10.1136/jnnp.73.4.371},
  pmid    = {12235302},
  url     = {https://doi.org/10.1136/jnnp.73.4.371}
}

@article{lam2013-23302773,
  author  = {Lam, B. and Masellis, M. and Freedman, M. and Stuss, D. T. and Black, S. E.},
  title   = {{Clinical, imaging, and pathological heterogeneity of the Alzheimer's disease syndrome}},
  journal = {Alzheimer's research \& therapy},
  year    = {2013},
  doi     = {10.1186/alzrt155},
  pmid    = {23302773},
  url     = {https://doi.org/10.1186/alzrt155}
}

@article{parkkinen2005-15562510,
  author  = {Parkkinen, L. and Kauppinen, T. and Pirttilä, T. and Autere, J. M. and Alafuzoff, I.},
  title   = {{Alpha-synuclein pathology does not predict extrapyramidal symptoms or dementia}},
  journal = {Annals of neurology},
  year    = {2005},
  doi     = {10.1002/ana.20321},
  pmid    = {15562510},
  url     = {https://doi.org/10.1002/ana.20321}
}

@article{schoenmakers2010-20307942,
  author  = {Schoenmakers, B. and Buntinx, F. and Delepeleire, J.},
  title   = {{Factors determining the impact of care-giving on caregivers of elderly patients with dementia. A systematic literature review}},
  journal = {Maturitas},
  year    = {2010},
  doi     = {10.1016/j.maturitas.2010.02.009},
  pmid    = {20307942},
  url     = {https://doi.org/10.1016/j.maturitas.2010.02.009}
}

@article{condesala2010-20374966,
  author  = {Conde-Sala, J. L. and Garre-Olmo, J. and Turró-Garriga, O. and Vilalta-Franch, J. and López-Pousa, S.},
  title   = {{Differential features of burden between spouse and adult-child caregivers of patients with Alzheimer's disease: an exploratory comparative design}},
  journal = {International journal of nursing studies},
  year    = {2010},
  doi     = {10.1016/j.ijnurstu.2010.03.001},
  pmid    = {20374966},
  url     = {https://doi.org/10.1016/j.ijnurstu.2010.03.001}
}

@article{hornberger2011-21785117,
  author  = {Hornberger, M. and Geng, J. and Hodges, JR.},
  title   = {{Convergent grey and white matter evidence of orbitofrontal cortex changes related to disinhibition in behavioural variant frontotemporal dementia}},
  journal = {Brain : a journal of neurology},
  year    = {2011},
  doi     = {10.1093/brain/awr173},
  pmid    = {21785117},
  url     = {https://doi.org/10.1093/brain/awr173}
}

@article{riffin2017-28426910,
  author  = {Riffin, C. and Van Ness, P. H. and Wolff, J. L. and Fried, T.},
  title   = {{Family and Other Unpaid Caregivers and Older Adults with and without Dementia and Disability}},
  journal = {Journal of the American Geriatrics Society},
  year    = {2017},
  doi     = {10.1111/jgs.14910},
  pmid    = {28426910},
  url     = {https://doi.org/10.1111/jgs.14910}
}

@article{cohen1993-8314097,
  author  = {Cohen, C. A. and Gold, D. P. and Shulman, K. I. and Wortley, J. T. and McDonald, G. and Wargon, M.},
  title   = {{Factors determining the decision to institutionalize dementing individuals: a prospective study}},
  journal = {The Gerontologist},
  year    = {1993},
  doi     = {10.1093/geront/33.6.714},
  pmid    = {8314097},
  url     = {https://doi.org/10.1093/geront/33.6.714}
}

@article{mueller2017-28342649,
  author  = {Mueller, C. and Ballard, C. and Corbett, A. and Aarsland, D.},
  title   = {{The prognosis of dementia with Lewy bodies}},
  journal = {The Lancet. Neurology},
  year    = {2017},
  doi     = {10.1016/s1474-4422(17)30074-1},
  pmid    = {28342649},
  url     = {https://doi.org/10.1016/s1474-4422(17)30074-1}
}

@article{draper2016-26807846,
  author  = {Draper, B. and Cations, M. and White, F. and Trollor, J. and Loy, C. and Brodaty, H. and Sachdev, P. and Gonski, P. and others},
  title   = {{Time to diagnosis in young-onset dementia and its determinants: the INSPIRED study}},
  journal = {International journal of geriatric psychiatry},
  year    = {2016},
  doi     = {10.1002/gps.4430},
  pmid    = {26807846},
  url     = {https://doi.org/10.1002/gps.4430}
}

@article{rochon2008-18504337,
  author  = {Rochon, P. A. and Normand, S. L. and Gomes, T. and Gill, S. S. and Anderson, G. M. and Melo, M. and Sykora, K. and Lipscombe, L. and others},
  title   = {{Antipsychotic therapy and short-term serious events in older adults with dementia}},
  journal = {Archives of internal medicine},
  year    = {2008},
  doi     = {10.1001/archinte.168.10.1090},
  pmid    = {18504337},
  url     = {https://doi.org/10.1001/archinte.168.10.1090}
}

@article{wisniewski2003-14518801,
  author  = {Wisniewski, SR. and Belle, S. H. and Coon, D. W. and Marcus, S. M. and Ory, M. G. and Burgio, L. D. and Burns, R. and Schulz, R. and others},
  title   = {{The Resources for Enhancing Alzheimer's Caregiver Health (REACH): project design and baseline characteristics}},
  journal = {Psychology and aging},
  year    = {2003},
  doi     = {10.1037/0882-7974.18.3.375},
  pmid    = {14518801},
  url     = {https://doi.org/10.1037/0882-7974.18.3.375}
}

@article{sonnen2011-21825242,
  author  = {Sonnen, J. A. and Santa Cruz, K. and Hemmy, L. S. and Woltjer, R. and Leverenz, J. B. and Montine, K. S. and Jack, C. R. and Kaye, J. and others},
  title   = {{Ecology of the aging human brain}},
  journal = {Archives of neurology},
  year    = {2011},
  doi     = {10.1001/archneurol.2011.157},
  pmid    = {21825242},
  url     = {https://doi.org/10.1001/archneurol.2011.157}
}

@article{draper1992-1512385,
  author  = {Draper, B. M. and Poulos, C. J. and Cole, A. M. and Poulos, R. G. and Ehrlich, F.},
  title   = {{A comparison of caregivers for elderly stroke and dementia victims}},
  journal = {Journal of the American Geriatrics Society},
  year    = {1992},
  doi     = {10.1111/j.1532-5415.1992.tb01986.x},
  pmid    = {1512385},
  url     = {https://doi.org/10.1111/j.1532-5415.1992.tb01986.x}
}

@article{livingston2010-20719843,
  author  = {Livingston, G. and Leavey, G. and Manela, M. and Livingston, D. and Rait, G. and Sampson, E. and Bavishi, S. and Shahriyarmolki, K. and others},
  title   = {{Making decisions for people with dementia who lack capacity: qualitative study of family carers in UK}},
  journal = {BMJ (Clinical research ed.)},
  year    = {2010},
  doi     = {10.1136/bmj.c4184},
  pmid    = {20719843},
  url     = {https://doi.org/10.1136/bmj.c4184}
}

@article{xu2017-28053361,
  author  = {Xu, J. and Wang, J. and Wimo, A. and Fratiglioni, L. and Qiu, C.},
  title   = {{The economic burden of dementia in China, 1990-2030: implications for health policy}},
  journal = {Bulletin of the World Health Organization},
  year    = {2017},
  doi     = {10.2471/blt.15.167726},
  pmid    = {28053361},
  url     = {https://doi.org/10.2471/blt.15.167726}
}

@article{wolff2025-39899774,
  author  = {Wolff, Jennifer L. and Cornman, Jennifer C. and Freedman, Vicki A.},
  title   = {{The Number Of Family Caregivers Helping Older US Adults Increased From 18 Million To 24 Million, 2011–22}},
  journal = {Health Affairs},
  year    = {2025},
  doi     = {10.1377/hlthaff.2024.00978},
  pmid    = {39899774},
  url     = {https://doi.org/10.1377/hlthaff.2024.00978}
}

@article{li2026-41714582,
  author  = {Li, Niying and Look, Kevin A. and Chou, Lin‐Na},
  title   = {{Dementia Family Caregivers’ Involvement and Perceived Challenges in Health Care Interactions: Informing the GUIDE Model}},
  journal = {Journal of General Internal Medicine},
  year    = {2026},
  doi     = {10.1007/s11606-026-10208-w},
  pmid    = {41714582},
  url     = {https://doi.org/10.1007/s11606-026-10208-w}
}

@article{cheng2025-40249367,
  author  = {Cheng, Xunjie and Song, Chao and Ouyang, Feiyun and Ma, Tianqi and He, Lingfang and Fang, Fang and Zhang, Guogang and Huang, Jiaqi and others},
  title   = {{Systolic blood pressure variability: risk of cardiovascular events, chronic kidney disease, dementia, and death}},
  journal = {European Heart Journal},
  year    = {2025},
  doi     = {10.1093/eurheartj/ehaf256},
  pmid    = {40249367},
  url     = {https://doi.org/10.1093/eurheartj/ehaf256}
}

@article{maust2025-40145303,
  author  = {Maust, Donovan T. and Davis, Rachel E. and Muench, Ulrike and Marcus, Steven C. and Spetz, Joanne},
  title   = {{Clinician type and care setting for treatment of Medicare beneficiaries with dementia}},
  journal = {Alzheimer s \& Dementia},
  year    = {2025},
  doi     = {10.1002/alz.70102},
  pmid    = {40145303},
  url     = {https://doi.org/10.1002/alz.70102}
}

@article{win2017-29204426,
  author  = {Win, Khin Khin and Chong, Mei Sian and Ali, Noorhazlina and Chan, Mark and Lim, Wee Shiong},
  title   = {{Burden among Family Caregivers of Dementia in the Oldest-Old: An Exploratory Study}},
  journal = {Frontiers in medicine},
  year    = {2017},
  doi     = {10.3389/fmed.2017.00205},
  pmid    = {29204426},
  url     = {https://doi.org/10.3389/fmed.2017.00205}
}

@article{park2015-25853717,
  author  = {Park, Myonghwa and Sung, Mira and Kim, Sun Kyung and Kim, Sungjin and Lee, Dong Young},
  title   = {{Multidimensional determinants of family caregiver burden in Alzheimer's disease}},
  journal = {International psychogeriatrics},
  year    = {2015},
  doi     = {10.1017/s1041610215000460},
  pmid    = {25853717},
  url     = {https://doi.org/10.1017/s1041610215000460}
}

@article{sorialopez2019-31753135,
  author  = {Soria Lopez, J. A. and González, H. M. and Léger, G. C.},
  title   = {{Alzheimer's disease}},
  journal = {Handbook of clinical neurology},
  year    = {2019},
  doi     = {10.1016/b978-0-12-804766-8.00013-3},
  pmid    = {31753135},
  url     = {https://doi.org/10.1016/b978-0-12-804766-8.00013-3}
}

@article{jaul2017-29312916,
  author  = {Jaul, E. and Barron, J.},
  title   = {{Age-Related Diseases and Clinical and Public Health Implications for the 85 Years Old and Over Population}},
  journal = {Frontiers in public health},
  year    = {2017},
  doi     = {10.3389/fpubh.2017.00335},
  pmid    = {29312916},
  url     = {https://doi.org/10.3389/fpubh.2017.00335}
}

@article{lauretti2020-32006534,
  author  = {Lauretti, E. and Dincer, O. and Praticò, D.},
  title   = {{Glycogen synthase kinase-3 signaling in Alzheimer's disease}},
  journal = {Biochimica et biophysica acta. Molecular cell research},
  year    = {2020},
  doi     = {10.1016/j.bbamcr.2020.118664},
  pmid    = {32006534},
  url     = {https://doi.org/10.1016/j.bbamcr.2020.118664}
}

@article{kales2014-24635665,
  author  = {Kales, H. C. and Gitlin, L. N. and Lyketsos, C. G. and {Detroit Expert Panel on Assessment and Management of Neuropsychiatric Symptoms of Dementia}},
  title   = {{Management of neuropsychiatric symptoms of dementia in clinical settings: recommendations from a multidisciplinary expert panel}},
  journal = {Journal of the American Geriatrics Society},
  year    = {2014},
  doi     = {10.1111/jgs.12730},
  pmid    = {24635665},
  url     = {https://doi.org/10.1111/jgs.12730}
}

@article{papastavrou2007-17442030,
  author  = {Papastavrou, E. and Kalokerinou, A. and Papacostas, S. S. and Tsangari, H. and Sourtzi, P.},
  title   = {{Caring for a relative with dementia: family caregiver burden}},
  journal = {Journal of advanced nursing},
  year    = {2007},
  doi     = {10.1111/j.1365-2648.2007.04250.x},
  pmid    = {17442030},
  url     = {https://doi.org/10.1111/j.1365-2648.2007.04250.x}
}

@article{gitlin2015-26035597,
  author  = {Gitlin, L. N. and Marx, K. and Stanley, I. H. and Hodgson, N.},
  title   = {{Translating Evidence-Based Dementia Caregiving Interventions into Practice: State-of-the-Science and Next Steps}},
  journal = {The Gerontologist},
  year    = {2015},
  doi     = {10.1093/geront/gnu123},
  pmid    = {26035597},
  url     = {https://doi.org/10.1093/geront/gnu123}
}

@article{taylor2018-29955649,
  author  = {Taylor, M. K. and Sullivan, D. K. and Mahnken, J. D. and Burns, J. M. and Swerdlow, R. H.},
  title   = {{Feasibility and efficacy data from a ketogenic diet intervention in Alzheimer's disease}},
  journal = {Alzheimer's \& dementia (New York, N. Y.)},
  year    = {2018},
  doi     = {10.1016/j.trci.2017.11.002},
  pmid    = {29955649},
  url     = {https://doi.org/10.1016/j.trci.2017.11.002}
}

@article{kessler2019-31267639,
  author  = {Kessler, A. and Sollie, S. and Challacombe, B. and Briggs, K. and Van Hemelrijck, M.},
  title   = {{The global prevalence of erectile dysfunction: a review}},
  journal = {BJU international},
  year    = {2019},
  doi     = {10.1111/bju.14813},
  pmid    = {31267639},
  url     = {https://doi.org/10.1111/bju.14813}
}

@article{mackenzie2015-26374446,
  author  = {Mackenzie, I. R. and Frick, P. and Grässer, F. A. and Gendron, T. F. and Petrucelli, L. and Cashman, N. R. and Edbauer, D. and Kremmer, E. and others},
  title   = {{Quantitative analysis and clinico-pathological correlations of different dipeptide repeat protein pathologies in C9ORF72 mutation carriers}},
  journal = {Acta neuropathologica},
  year    = {2015},
  doi     = {10.1007/s00401-015-1476-2},
  pmid    = {26374446},
  url     = {https://doi.org/10.1007/s00401-015-1476-2}
}

@article{prince2004-14758582,
  author  = {Prince, M. and {10/66 Dementia Research Group}},
  title   = {{Care arrangements for people with dementia in developing countries}},
  journal = {International journal of geriatric psychiatry},
  year    = {2004},
  doi     = {10.1002/gps.1046},
  pmid    = {14758582},
  url     = {https://doi.org/10.1002/gps.1046}
}

@article{cook2020-32878979,
  author  = {Cook, C. N. and Wu, Y. and Odeh, H. M. and Gendron, T. F. and Jansen-West, K. and Del Rosso, G. and Yue, M. and Jiang, P. and others},
  title   = {{C9orf72 poly(GR) aggregation induces TDP-43 proteinopathy}},
  journal = {Science translational medicine},
  year    = {2020},
  doi     = {10.1126/scitranslmed.abb3774},
  pmid    = {32878979},
  url     = {https://doi.org/10.1126/scitranslmed.abb3774}
}

@article{roe2008-19001165,
  author  = {Roe, C. M. and Mintun, M. A. and D'Angelo, G. and Xiong, C. and Grant, E. A. and Morris, J. C.},
  title   = {{Alzheimer disease and cognitive reserve: variation of education effect with carbon 11-labeled Pittsburgh Compound B uptake}},
  journal = {Archives of neurology},
  year    = {2008},
  doi     = {10.1001/archneur.65.11.1467},
  pmid    = {19001165},
  url     = {https://doi.org/10.1001/archneur.65.11.1467}
}

@article{davis2020-32024799,
  author  = {Davis, A. A. and Inman, C. E. and Wargel, Z. M. and Dube, U. and Freeberg, B. M. and Galluppi, A. and Haines, J. N. and Dhavale, D. D. and others},
  title   = {{APOE genotype regulates pathology and disease progression in synucleinopathy}},
  journal = {Science translational medicine},
  year    = {2020},
  doi     = {10.1126/scitranslmed.aay3069},
  pmid    = {32024799},
  url     = {https://doi.org/10.1126/scitranslmed.aay3069}
}

@article{martinezmartin2015-25892660,
  author  = {Martinez-Martin, P. and Rodriguez-Blazquez, C. and Forjaz, M. J. and Frades-Payo, B. and Agüera-Ortiz, L. and Weintraub, D. and Riesco, A. and Kurtis, M. M. and others},
  title   = {{Neuropsychiatric symptoms and caregiver's burden in Parkinson's disease}},
  journal = {Parkinsonism \& related disorders},
  year    = {2015},
  doi     = {10.1016/j.parkreldis.2015.03.024},
  pmid    = {25892660},
  url     = {https://doi.org/10.1016/j.parkreldis.2015.03.024}
}

@article{zucchella2018-30619031,
  author  = {Zucchella, C. and Sinforiani, E. and Tamburin, S. and Federico, A. and Mantovani, E. and Bernini, S. and Casale, R. and Bartolo, M.},
  title   = {{The Multidisciplinary Approach to Alzheimer's Disease and Dementia. A Narrative Review of Non-Pharmacological Treatment}},
  journal = {Frontiers in neurology},
  year    = {2018},
  doi     = {10.3389/fneur.2018.01058},
  pmid    = {30619031},
  url     = {https://doi.org/10.3389/fneur.2018.01058}
}

@article{riffin2019-30452088,
  author  = {Riffin, C. and Van Ness, P. H. and Wolff, J. L. and Fried, T.},
  title   = {{Multifactorial Examination of Caregiver Burden in a National Sample of Family and Unpaid Caregivers}},
  journal = {Journal of the American Geriatrics Society},
  year    = {2019},
  doi     = {10.1111/jgs.15664},
  pmid    = {30452088},
  url     = {https://doi.org/10.1111/jgs.15664}
}

@article{fonareva2014-24507463,
  author  = {Fonareva, I. and Oken, B. S.},
  title   = {{Physiological and functional consequences of caregiving for relatives with dementia}},
  journal = {International psychogeriatrics},
  year    = {2014},
  doi     = {10.1017/s1041610214000039},
  pmid    = {24507463},
  url     = {https://doi.org/10.1017/s1041610214000039}
}

@article{andres2025-41241927,
  author  = {Andres, Ellie B and Malhotra, Chetna and {PISCES Study Group}},
  title   = {{The final year for community-dwelling older adults with dementia in an Asian setting: admissions, interventions, and caregiver burden}},
  journal = {The Journals of Gerontology Series A},
  year    = {2025},
  doi     = {10.1093/gerona/glaf227},
  pmid    = {41241927},
  url     = {https://doi.org/10.1093/gerona/glaf227}
}

@article{fowler2025-40410933,
  author  = {Fowler, Nicole R. and Partrick, Katherine A. and Taylor, James O. and Hornbecker, Michael and Kelleher, Kevin John and Boustani, Malaz A. and Cummings, Jeffrey L. and MacLeod, Tim and others},
  title   = {{Implementing early detection of cognitive impairment in primary care to improve care for older adults}},
  journal = {Journal of Internal Medicine},
  year    = {2025},
  doi     = {10.1111/joim.20098},
  pmid    = {40410933},
  url     = {https://doi.org/10.1111/joim.20098}
}

@article{werner2025-40377938,
  author  = {Werner, Rachel M. and Kim, Seiyoun and Konetzka, Rita Tamara},
  title   = {{Trends in Home Health Care Among Traditional Medicare Beneficiaries With or Without Dementia}},
  journal = {JAMA Network Open},
  year    = {2025},
  doi     = {10.1001/jamanetworkopen.2025.10933},
  pmid    = {40377938},
  url     = {https://doi.org/10.1001/jamanetworkopen.2025.10933}
}

@article{zhao2025-40568416,
  author  = {Zhao, Sijia and Scholcz, Anna and Rouse, Matthew A and Klar, Verena Svenja and Ganse‐Dumrath, Akke and Toniolo, Sofia and Broulidakis, M. John and Ralph, Matthew A. Lambon and others},
  title   = {{Self- versus caregiver-reported apathy across neurological disorders}},
  journal = {Brain Communications},
  year    = {2025},
  doi     = {10.1093/braincomms/fcaf235},
  pmid    = {40568416},
  url     = {https://doi.org/10.1093/braincomms/fcaf235}
}

@article{kok2013-24403908,
  author  = {Kok, Jeroen S. and Berg, Ina J. and Scherder, Erik},
  title   = {{Special Care Units and Traditional Care in Dementia: Relationship with Behavior, Cognition, Functional Status and Quality of Life - A Review}},
  journal = {Dementia and Geriatric Cognitive Disorders Extra},
  year    = {2013},
  doi     = {10.1159/000353441},
  pmid    = {24403908},
  url     = {https://doi.org/10.1159/000353441}
}

@article{pearlin1990-2276631,
  author  = {Pearlin, Leonard I. and Mullan, Joseph T. and Semple, Shirley J. and Skaff, Marilyn McKean},
  title   = {{Caregiving and the Stress Process: An Overview of Concepts and Their Measures}},
  journal = {The Gerontologist},
  year    = {1990},
  doi     = {10.1093/geront/30.5.583},
  pmid    = {2276631},
  url     = {https://doi.org/10.1093/geront/30.5.583}
}

@article{schulz1995-8557205,
  author  = {Schulz, R. and O'Brien, A. T. and Bookwala, J. and Fleissner, K.},
  title   = {{Psychiatric and physical morbidity effects of dementia caregiving: prevalence, correlates, and causes}},
  journal = {The Gerontologist},
  year    = {1995},
  doi     = {10.1093/geront/35.6.771},
  pmid    = {8557205},
  url     = {https://doi.org/10.1093/geront/35.6.771}
}

@article{boyd2008-19093915,
  author  = {Boyd, C. M. and Landefeld, C. S. and Counsell, SR. and Palmer, R. M. and Fortinsky, R. H. and Kresevic, D. and Burant, C. and Covinsky, K. E.},
  title   = {{Recovery of activities of daily living in older adults after hospitalization for acute medical illness}},
  journal = {Journal of the American Geriatrics Society},
  year    = {2008},
  doi     = {10.1111/j.1532-5415.2008.02023.x},
  pmid    = {19093915},
  url     = {https://doi.org/10.1111/j.1532-5415.2008.02023.x}
}

@article{qiu2015-25583619,
  author  = {Qiu, C. and Fratiglioni, L.},
  title   = {{A major role for cardiovascular burden in age-related cognitive decline}},
  journal = {Nature reviews. Cardiology},
  year    = {2015},
  doi     = {10.1038/nrcardio.2014.223},
  pmid    = {25583619},
  url     = {https://doi.org/10.1038/nrcardio.2014.223}
}

@article{landry2015-26441633,
  author  = {Landry, G. J. and Best, JR. and Liu-Ambrose, T.},
  title   = {{Measuring sleep quality in older adults: a comparison using subjective and objective methods}},
  journal = {Frontiers in aging neuroscience},
  year    = {2015},
  doi     = {10.3389/fnagi.2015.00166},
  pmid    = {26441633},
  url     = {https://doi.org/10.3389/fnagi.2015.00166}
}

@article{knopman2010-19893327,
  author  = {Knopman, D. S. and Roberts, R. O. and Geda, Y. E. and Pankratz, V. S. and Christianson, T. J. and Petersen, R. C. and Rocca, W. A.},
  title   = {{Validation of the telephone interview for cognitive status-modified in subjects with normal cognition, mild cognitive impairment, or dementia}},
  journal = {Neuroepidemiology},
  year    = {2010},
  doi     = {10.1159/000255464},
  pmid    = {19893327},
  url     = {https://doi.org/10.1159/000255464}
}

@article{seshadri2007-18031707,
  author  = {Seshadri, S. and Wolf, P. A.},
  title   = {{Lifetime risk of stroke and dementia: current concepts, and estimates from the Framingham Study}},
  journal = {The Lancet. Neurology},
  year    = {2007},
  doi     = {10.1016/s1474-4422(07)70291-0},
  pmid    = {18031707},
  url     = {https://doi.org/10.1016/s1474-4422(07)70291-0}
}

@article{duda2002-12210791,
  author  = {Duda, J. E. and Giasson, B. I. and Mabon, M. E. and Lee, V. M. and Trojanowski, J. Q.},
  title   = {{Novel antibodies to synuclein show abundant striatal pathology in Lewy body diseases}},
  journal = {Annals of neurology},
  year    = {2002},
  doi     = {10.1002/ana.10279},
  pmid    = {12210791},
  url     = {https://doi.org/10.1002/ana.10279}
}

@article{hashimoto2012-23100439,
  author  = {Hashimoto, T. and Serrano-Pozo, A. and Hori, Y. and Adams, K. W. and Takeda, S. and Banerji, A. O. and Mitani, A. and Joyner, D. and others},
  title   = {{Apolipoprotein E, especially apolipoprotein E4, increases the oligomerization of amyloid β peptide}},
  journal = {The Journal of neuroscience : the official journal of the Society for Neuroscience},
  year    = {2012},
  doi     = {10.1523/jneurosci.1542-12.2012},
  pmid    = {23100439},
  url     = {https://doi.org/10.1523/jneurosci.1542-12.2012}
}

@article{bassil2020-31759806,
  author  = {Bassil, F. and Brown, H. J. and Pattabhiraman, S. and Iwasyk, J. E. and Maghames, C. M. and Meymand, E. S. and Cox, T. O. and Riddle, D. M. and others},
  title   = {{Amyloid-Beta (Aβ) Plaques Promote Seeding and Spreading of Alpha-Synuclein and Tau in a Mouse Model of Lewy Body Disorders with Aβ Pathology}},
  journal = {Neuron},
  year    = {2020},
  doi     = {10.1016/j.neuron.2019.10.010},
  pmid    = {31759806},
  url     = {https://doi.org/10.1016/j.neuron.2019.10.010}
}

@article{banerjee2006-16421113,
  author  = {Banerjee, S. and Smith, S. C. and Lamping, D. L. and Harwood, R. H. and Foley, B. and Smith, P. and Murray, J. and Prince, M. and others},
  title   = {{Quality of life in dementia: more than just cognition. An analysis of associations with quality of life in dementia}},
  journal = {Journal of neurology, neurosurgery, and psychiatry},
  year    = {2006},
  doi     = {10.1136/jnnp.2005.072983},
  pmid    = {16421113},
  url     = {https://doi.org/10.1136/jnnp.2005.072983}
}

@article{arvanitakis2006-17159101,
  author  = {Arvanitakis, Z. and Schneider, J. A. and Wilson, R. S. and Li, Y. and Arnold, S. E. and Wang, Z. and Bennett, D. A.},
  title   = {{Diabetes is related to cerebral infarction but not to AD pathology in older persons}},
  journal = {Neurology},
  year    = {2006},
  doi     = {10.1212/01.wnl.0000247053.45483.4e},
  pmid    = {17159101},
  url     = {https://doi.org/10.1212/01.wnl.0000247053.45483.4e}
}

@article{tomaszewskifarias2009-18821181,
  author  = {Tomaszewski Farias, S. and Cahn-Weiner, D. A. and Harvey, D. J. and Reed, B. R. and Mungas, D. and Kramer, J. H. and Chui, H.},
  title   = {{Longitudinal changes in memory and executive functioning are associated with longitudinal change in instrumental activities of daily living in older adults}},
  journal = {The Clinical neuropsychologist},
  year    = {2009},
  doi     = {10.1080/13854040802360558},
  pmid    = {18821181},
  url     = {https://doi.org/10.1080/13854040802360558}
}

@article{klyucherev2022-35449079,
  author  = {Klyucherev, T. O. and Olszewski, P. and Shalimova, A. A. and Chubarev, V. N. and Tarasov, V. V. and Attwood, M. M. and Syvänen, S. and Schiöth, H. B.},
  title   = {{Advances in the development of new biomarkers for Alzheimer's disease}},
  journal = {Translational neurodegeneration},
  year    = {2022},
  doi     = {10.1186/s40035-022-00296-z},
  pmid    = {35449079},
  url     = {https://doi.org/10.1186/s40035-022-00296-z}
}

@article{kales2019-30068400,
  author  = {Kales, H. C. and Lyketsos, C. G. and Miller, E. M. and Ballard, C.},
  title   = {{Management of behavioral and psychological symptoms in people with Alzheimer's disease: an international Delphi consensus}},
  journal = {International psychogeriatrics},
  year    = {2019},
  doi     = {10.1017/s1041610218000534},
  pmid    = {30068400},
  url     = {https://doi.org/10.1017/s1041610218000534}
}

@article{campbell2008-18613247,
  author  = {Campbell, P. and Wright, J. and Oyebode, J. and Job, D. and Crome, P. and Bentham, P. and Jones, L. and Lendon, C.},
  title   = {{Determinants of burden in those who care for someone with dementia}},
  journal = {International journal of geriatric psychiatry},
  year    = {2008},
  doi     = {10.1002/gps.2071},
  pmid    = {18613247},
  url     = {https://doi.org/10.1002/gps.2071}
}

@article{parker2008-21631819,
  author  = {Parker, D. and Mills, S. and Abbey, J.},
  title   = {{Effectiveness of interventions that assist caregivers to support people with dementia living in the community: a systematic review}},
  journal = {International journal of evidence-based healthcare},
  year    = {2008},
  doi     = {10.1111/j.1744-1609.2008.00090.x},
  pmid    = {21631819},
  url     = {https://doi.org/10.1111/j.1744-1609.2008.00090.x}
}

@article{degraaff2025-40087581,
  author  = {de Graaff, M. and van der Heide, Iris and Rademakers, Jany J. D. J. M. and van Valkengoed, Irene G. M. and Francke, A.L. and Woonink, A. and Bijnsdorp, Femmy M.},
  title   = {{Is caregiver burden associated with sex and gender-related characteristics? A large-scale survey study among family caregivers of people with dementia}},
  journal = {BMC Geriatrics},
  year    = {2025},
  doi     = {10.1186/s12877-025-05795-y},
  pmid    = {40087581},
  url     = {https://doi.org/10.1186/s12877-025-05795-y}
}

@article{hu2025-39794759,
  author  = {Hu, Ying and Guo, Xiajun and You, Hui and Liu, Li and Wang, Yao},
  title   = {{Mediating effect of social support on the relationships between caregiver burden and quality of life in family caregivers of people with dementia: a cross-sectional study in Rural China}},
  journal = {BMC Nursing},
  year    = {2025},
  doi     = {10.1186/s12912-024-02671-9},
  pmid    = {39794759},
  url     = {https://doi.org/10.1186/s12912-024-02671-9}
}

@article{pokala2025-40831449,
  author  = {Pokala, Shriya S. and Wandera, Stephen Ojiambo and Kawooya, Shafiq and Victoria, Akia Emily and Odo, Lodrick Wabwire and Nakasujja, Noeline and Diaz, Monica Maria},
  title   = {{Dementia knowledge and caregiver burden among carers of older adults in rural eastern Uganda}},
  journal = {Alzheimer s \& Dementia},
  year    = {2025},
  doi     = {10.1002/alz.70587},
  pmid    = {40831449},
  url     = {https://doi.org/10.1002/alz.70587}
}

@article{brookman2025-39945461,
  author  = {Brookman, Ruth and Lipson‐Smith, Ruby and Maurice, Olivia R. and McIlwain, Nina and Hofstaetter, Lukas and DiGiacomo, Michelle L and Chróinín, Danielle Ní and Cannings, Madeleine and others},
  title   = {{Caring for People With Dementia: Mapping the Experience and Journey From Diagnosis}},
  journal = {The Gerontologist},
  year    = {2025},
  doi     = {10.1093/geront/gnaf053},
  pmid    = {39945461},
  url     = {https://doi.org/10.1093/geront/gnaf053}
}

@article{lim2025-40605056,
  author  = {Lim, Xin Min and Chew, Esther Yin Hui and Glass, George Frederick and Chan, Ee‐Yuee},
  title   = {{Caregiver-involved reminiscence for persons with dementia: a scoping review protocol}},
  journal = {Systematic Reviews},
  year    = {2025},
  doi     = {10.1186/s13643-025-02865-5},
  pmid    = {40605056},
  url     = {https://doi.org/10.1186/s13643-025-02865-5}
}

@article{kaufer1998-9475452,
  author  = {Kaufer, D. I. and Cummings, J. L. and Christine, D. and Bray, T. and Castellon, S. and Masterman, D. and MacMillan, A. and Ketchel, P. and others},
  title   = {{Assessing the impact of neuropsychiatric symptoms in Alzheimer's disease: the Neuropsychiatric Inventory Caregiver Distress Scale}},
  journal = {Journal of the American Geriatrics Society},
  year    = {1998},
  doi     = {10.1111/j.1532-5415.1998.tb02542.x},
  pmid    = {9475452},
  url     = {https://doi.org/10.1111/j.1532-5415.1998.tb02542.x}
}

@article{stephan2018-29866102,
  author  = {Stephan, A. and Bieber, A. and Hopper, L. and Joyce, R. and Irving, K. and Zanetti, O. and Portolani, E. and Kerpershoek, L. and others},
  title   = {{Barriers and facilitators to the access to and use of formal dementia care: findings of a focus group study with people with dementia, informal carers and health and social care professionals in eight European countries}},
  journal = {BMC geriatrics},
  year    = {2018},
  doi     = {10.1186/s12877-018-0816-1},
  pmid    = {29866102},
  url     = {https://doi.org/10.1186/s12877-018-0816-1}
}

@article{miron2023-35686309,
  author  = {Miron, Anca M and Groves, Christopher L and Thompson, Ashley E and McFadden, Susan H and Bowers, Haley R and DeBraal, Jordyn M},
  title   = {{Fear of Incompetence in Family Caregivers and Dementia Care Transitions}},
  journal = {International journal of aging \& human development},
  year    = {2023},
  doi     = {10.1177/00914150221106075},
  pmid    = {35686309},
  url     = {https://doi.org/10.1177/00914150221106075}
}

@article{delfino2021-33907606,
  author  = {Delfino, Lais Lopes and Komatsu, Ricardo Shoiti and Komatsu, Caroline and Neri, Anita Liberalesso and Cachioni, Meire},
  title   = {{Neuropsychiatric symptoms associated with family caregiver burden and depression}},
  journal = {Dementia \& neuropsychologia},
  year    = {2021},
  doi     = {10.1590/1980-57642021dn15-010014},
  pmid    = {33907606},
  url     = {https://doi.org/10.1590/1980-57642021dn15-010014}
}

@article{sharma2024-38255022,
  author  = {Sharma, Shobha and Halim, Nur Atiqah A and Maniam, Puspa},
  title   = {{Caregiver Experiences with Dementia-Related Feeding/Eating Difficulties}},
  journal = {Healthcare (Basel, Switzerland)},
  year    = {2024},
  doi     = {10.3390/healthcare12020133},
  pmid    = {38255022},
  url     = {https://doi.org/10.3390/healthcare12020133}
}

@article{wibawa2020-31213121,
  author  = {Wibawa, P and Zombor, R and Dragovic, M and Hayhow, B and Lee, J and Panegyres, P K and Rock, D and Starkstein, S E},
  title   = {{Anosognosia Is Associated With Greater Caregiver Burden and Poorer Executive Function in Huntington Disease}},
  journal = {Journal of geriatric psychiatry and neurology},
  year    = {2020},
  doi     = {10.1177/0891988719856697},
  pmid    = {31213121},
  url     = {https://doi.org/10.1177/0891988719856697}
}

@article{liu2023-36112385,
  author  = {Liu, Yin and Song, Yeonsu and Johnson, Florence U and Lei, Lianlian and Choi, Seung-Won Emily and Antonucci, Toni C and Robinson-Lane, Sheria G},
  title   = {{Characteristics and Predictors of Sleep Among Spousal Care Dyads Living With Chronic Conditions}},
  journal = {The journals of gerontology. Series B, Psychological sciences and social sciences},
  year    = {2023},
  doi     = {10.1093/geronb/gbac096},
  pmid    = {36112385},
  url     = {https://doi.org/10.1093/geronb/gbac096}
}

@article{williams2023-36574501,
  author  = {Williams, Kristine N and Coleman, Carissa K and Hu, Jinxiang},
  title   = {{Determining Evidence for Family Caregiver Communication: Associating Communication Behaviors With Breakdown and Repair}},
  journal = {The Gerontologist},
  year    = {2023},
  doi     = {10.1093/geront/gnac193},
  pmid    = {36574501},
  url     = {https://doi.org/10.1093/geront/gnac193}
}

@article{vandenkieboom2024-38995773,
  author  = {van den Kieboom, Robin and Snaphaan, Liselore and Mark, Ruth and van Assen, Marcel and Bongers, Inge},
  title   = {{The Effects of Neuropsychiatric Symptom Clusters in People with Dementia on Family Caregiver Burden}},
  journal = {Journal of Alzheimer's disease : JAD},
  year    = {2024},
  doi     = {10.3233/jad-230972},
  pmid    = {38995773},
  url     = {https://doi.org/10.3233/jad-230972}
}

@article{jetsonen2021-34255025,
  author  = {Jetsonen, Viivi and Kuvaja-Köllner, Virpi and Välimäki, Tarja and Selander, Tuomas and Martikainen, Janne and Koivisto, Anne M},
  title   = {{Total cost of care increases significantly from early to mild Alzheimer's disease: 5-year ALSOVA follow-up}},
  journal = {Age and ageing},
  year    = {2021},
  doi     = {10.1093/ageing/afab144},
  pmid    = {34255025},
  url     = {https://doi.org/10.1093/ageing/afab144}
}

@article{imam2025-40665048,
  author  = {Imam, F. and Saloner, R. and Vogel, J. W. and Krish, V. and Abdel-Azim, G. and Ali, M. and An, L. and Anastasi, F. and others},
  title   = {{The Global Neurodegeneration Proteomics Consortium: biomarker and drug target discovery for common neurodegenerative diseases and aging}},
  journal = {Nature medicine},
  year    = {2025},
  doi     = {10.1038/s41591-025-03834-0},
  pmid    = {40665048},
  url     = {https://doi.org/10.1038/s41591-025-03834-0}
}

@article{jankowsky2005-15917461,
  author  = {Jankowsky, J. L. and Melnikova, T. and Fadale, D. J. and Xu, G. M. and Slunt, H. H. and Gonzales, V. and Younkin, L. H. and Younkin, S. G. and others},
  title   = {{Environmental enrichment mitigates cognitive deficits in a mouse model of Alzheimer's disease}},
  journal = {The Journal of neuroscience : the official journal of the Society for Neuroscience},
  year    = {2005},
  doi     = {10.1523/jneurosci.5080-04.2005},
  pmid    = {15917461},
  url     = {https://doi.org/10.1523/jneurosci.5080-04.2005}
}

@article{leroi2012-23172765,
  author  = {Leroi, I. and McDonald, K. and Pantula, H. and Harbishettar, V.},
  title   = {{Cognitive impairment in Parkinson disease: impact on quality of life, disability, and caregiver burden}},
  journal = {Journal of geriatric psychiatry and neurology},
  year    = {2012},
  doi     = {10.1177/0891988712464823},
  pmid    = {23172765},
  url     = {https://doi.org/10.1177/0891988712464823}
}

@article{schilling2008-18836460,
  author  = {Schilling, S. and Zeitschel, U. and Hoffmann, T. and Heiser, U. and Francke, M. and Kehlen, A. and Holzer, M. and Hutter-Paier, B. and others},
  title   = {{Glutaminyl cyclase inhibition attenuates pyroglutamate Abeta and Alzheimer's disease-like pathology}},
  journal = {Nature medicine},
  year    = {2008},
  doi     = {10.1038/nm.1872},
  pmid    = {18836460},
  url     = {https://doi.org/10.1038/nm.1872}
}

@article{alexopoulos2005-16018984,
  author  = {Alexopoulos, G. S. and Kiosses, D. N. and Heo, M. and Murphy, C. F. and Shanmugham, B. and Gunning-Dixon, F.},
  title   = {{Executive dysfunction and the course of geriatric depression}},
  journal = {Biological psychiatry},
  year    = {2005},
  doi     = {10.1016/j.biopsych.2005.04.024},
  pmid    = {16018984},
  url     = {https://doi.org/10.1016/j.biopsych.2005.04.024}
}

@article{silbert2008-18606964,
  author  = {Silbert, L. C. and Nelson, C. and Howieson, D. B. and Moore, M. M. and Kaye, J. A.},
  title   = {{Impact of white matter hyperintensity volume progression on rate of cognitive and motor decline}},
  journal = {Neurology},
  year    = {2008},
  doi     = {10.1212/01.wnl.0000316799.86917.37},
  pmid    = {18606964},
  url     = {https://doi.org/10.1212/01.wnl.0000316799.86917.37}
}

@article{fogg2018-29947150,
  author  = {Fogg, C. and Griffiths, P. and Meredith, P. and Bridges, J.},
  title   = {{Hospital outcomes of older people with cognitive impairment: An integrative review}},
  journal = {International journal of geriatric psychiatry},
  year    = {2018},
  doi     = {10.1002/gps.4919},
  pmid    = {29947150},
  url     = {https://doi.org/10.1002/gps.4919}
}

@article{simone2018-29113975,
  author  = {Simone, R. and Balendra, R. and Moens, T. G. and Preza, E. and Wilson, K. M. and Heslegrave, A. and Woodling, N. S. and Niccoli, T. and others},
  title   = {{G-quadruplex-binding small molecules ameliorate C9orf72 FTD/ALS pathology in vitro and in vivo}},
  journal = {EMBO molecular medicine},
  year    = {2018},
  doi     = {10.15252/emmm.201707850},
  pmid    = {29113975},
  url     = {https://doi.org/10.15252/emmm.201707850}
}

@article{bonda2011-21349442,
  author  = {Bonda, D. J. and Lee, H. G. and Camins, A. and Pallàs, M. and Casadesus, G. and Smith, M. A. and Zhu, X.},
  title   = {{The sirtuin pathway in ageing and Alzheimer disease: mechanistic and therapeutic considerations}},
  journal = {The Lancet. Neurology},
  year    = {2011},
  doi     = {10.1016/s1474-4422(11)70013-8},
  pmid    = {21349442},
  url     = {https://doi.org/10.1016/s1474-4422(11)70013-8}
}

@article{gaugler2003-12677079,
  author  = {Gaugler, J. E. and Kane, R. L. and Kane, R. A. and Clay, T. and Newcomer, R.},
  title   = {{Caregiving and institutionalization of cognitively impaired older people: utilizing dynamic predictors of change}},
  journal = {The Gerontologist},
  year    = {2003},
  doi     = {10.1093/geront/43.2.219},
  pmid    = {12677079},
  url     = {https://doi.org/10.1093/geront/43.2.219}
}

@article{afram2014-24238605,
  author  = {Afram, B. and Stephan, A. and Verbeek, H. and Bleijlevens, M. H. and Suhonen, R. and Sutcliffe, C. and Raamat, K. and Cabrera, E. and others},
  title   = {{Reasons for institutionalization of people with dementia: informal caregiver reports from 8 European countries}},
  journal = {Journal of the American Medical Directors Association},
  year    = {2014},
  doi     = {10.1016/j.jamda.2013.09.012},
  pmid    = {24238605},
  url     = {https://doi.org/10.1016/j.jamda.2013.09.012}
}

@article{hebert2001-11682577,
  author  = {Hébert, R. and Dubois, M. F. and Wolfson, C. and Chambers, L. and Cohen, C.},
  title   = {{Factors associated with long-term institutionalization of older people with dementia: data from the Canadian Study of Health and Aging}},
  journal = {The journals of gerontology. Series A, Biological sciences and medical sciences},
  year    = {2001},
  doi     = {10.1093/gerona/56.11.m693},
  pmid    = {11682577},
  url     = {https://doi.org/10.1093/gerona/56.11.m693}
}

@article{zanetti1999-9988291,
  author  = {Zanetti, O. and Geroldi, C. and Frisoni, G. B. and Bianchetti, A. and Trabucchi, M.},
  title   = {{Contrasting results between caregiver's report and direct assessment of activities of daily living in patients affected by mild and very mild dementia: the contribution of the caregiver's personal characteristics}},
  journal = {Journal of the American Geriatrics Society},
  year    = {1999},
  doi     = {10.1111/j.1532-5415.1999.tb04578.x},
  pmid    = {9988291},
  url     = {https://doi.org/10.1111/j.1532-5415.1999.tb04578.x}
}

@article{guan2025-39876992,
  author  = {Guan, Xin and Duan, A-min and Xin, Gong-kai and Oyebode, Jan Rachel and Liu, Yu},
  title   = {{Barriers and facilitators to implementing person-centred dementia care in long-term care facilities in Western and Asian countries: a scoping review}},
  journal = {Frontiers in Psychiatry},
  year    = {2025},
  doi     = {10.3389/fpsyt.2024.1523501},
  pmid    = {39876992},
  url     = {https://doi.org/10.3389/fpsyt.2024.1523501}
}

@article{vandersteen2025-40032035,
  author  = {van der Steen, Jenny Theodora and Van den Block, Lieve and Nakanishi, Miharu and Dening, Karen Harrison and Parker, Deborah and Larkin, Philip Joseph and Di Giulio, Paola and der Schmitten, Jürgen in and others},
  title   = {{Optimizing Advance Care Planning in Dementia: Recommendations From a 33-Country Delphi Study}},
  journal = {Journal of Pain and Symptom Management},
  year    = {2025},
  doi     = {10.1016/j.jpainsymman.2025.02.471},
  pmid    = {40032035},
  url     = {https://doi.org/10.1016/j.jpainsymman.2025.02.471}
}

@article{dibaodina2025-39984902,
  author  = {Dibao-Dina, Clarisse and Lydia, Nasri and Dagot, Céline and Fouquet, Jean-Philippe and Sophie, Rideau and Dumas, Vincent and Guillaume, Neff and Véronique, Payen and others},
  title   = {{Identifying the needs of natural caregivers caring for a person with dementia: a mixed method study}},
  journal = {BMC Family Practice},
  year    = {2025},
  doi     = {10.1186/s12875-025-02724-1},
  pmid    = {39984902},
  url     = {https://doi.org/10.1186/s12875-025-02724-1}
}

@article{ali2025-40259973,
  author  = {Ali, Amira Mohammed and AL-Dossary, Saeed Abdullah and Laranjeira, Carlos and Selim, Abeer and Hallit, Souheil R. and Alkhamees, Abdulmajeed A. and Aljubilah, Aljawharah Fahad and Aljaberi, Musheer Abdulwahid Abdo and others},
  title   = {{Loneliness among dementia caregivers: evaluation of the psychometric properties and cutoff score of the Three-item UCLA Loneliness Scale}},
  journal = {Frontiers in Psychiatry},
  year    = {2025},
  doi     = {10.3389/fpsyt.2025.1526569},
  pmid    = {40259973},
  url     = {https://doi.org/10.3389/fpsyt.2025.1526569}
}

@article{smith2025-40820756,
  author  = {Smith, Eric Edward and Aparicio, Hugo Javier and Gottesman, Rebecca F. and Goyal, Manu S. and Greenberg, Steven Mark and Schneider, Julie A. and Sorond, Farzaneh A. and Wright, Clinton B.},
  title   = {{Vascular Contributions to Cognitive Impairment and Dementia in the United States: Prevalence and Incidence: A Scientific Statement From the American Heart Association}},
  journal = {Stroke},
  year    = {2025},
  doi     = {10.1161/str.0000000000000494},
  pmid    = {40820756},
  url     = {https://doi.org/10.1161/str.0000000000000494}
}

@article{deoliveira2025-39843221,
  author  = {de Oliveira, Bárbara Silva and Santos, Daniela Silva and Freire, Geruza Diogo and Moura, Clícia Grazielly de Lima and Nascimento, Ana Clara Lira do and Barbosa, Éverton Emanuel da Silva and Ferraz, Lucas Ribeiro and Silva, Hugo Rafael de Souza e},
  title   = {{Repercussions of abuse by caregivers in the elderly population with dementia: a scoping review}},
  journal = {Psychogeriatrics},
  year    = {2025},
  doi     = {10.1111/psyg.13244},
  pmid    = {39843221},
  url     = {https://doi.org/10.1111/psyg.13244}
}

@article{brodaty2009-19585957,
  author  = {Brodaty, H. and Donkin, M.},
  title   = {{Family caregivers of people with dementia}},
  journal = {Dialogues in clinical neuroscience},
  year    = {2009},
  pmid    = {19585957}
}

@article{alam2018-30348620,
  author  = {Alam, A. and Hana, Z. and Jin, Z. and Suen, K. C. and Ma, D.},
  title   = {{Surgery, neuroinflammation and cognitive impairment}},
  journal = {EBioMedicine},
  year    = {2018},
  doi     = {10.1016/j.ebiom.2018.10.021},
  pmid    = {30348620},
  url     = {https://doi.org/10.1016/j.ebiom.2018.10.021}
}

@article{domenichiello2019-31004724,
  author  = {Domenichiello, A. F. and Ramsden, C. E.},
  title   = {{The silent epidemic of chronic pain in older adults}},
  journal = {Progress in neuro-psychopharmacology \& biological psychiatry},
  year    = {2019},
  doi     = {10.1016/j.pnpbp.2019.04.006},
  pmid    = {31004724},
  url     = {https://doi.org/10.1016/j.pnpbp.2019.04.006}
}

@article{anderson1995-7740578,
  author  = {Anderson, C. S. and Linto, J. and Stewart-Wynne, E. G.},
  title   = {{A population-based assessment of the impact and burden of caregiving for long-term stroke survivors}},
  journal = {Stroke},
  year    = {1995},
  doi     = {10.1161/01.str.26.5.843},
  pmid    = {7740578},
  url     = {https://doi.org/10.1161/01.str.26.5.843}
}

@article{volkert2015-26522922,
  author  = {Volkert, D. and Chourdakis, M. and Faxen-Irving, G. and Frühwald, T. and Landi, F. and Suominen, M. H. and Vandewoude, M. and Wirth, R. and others},
  title   = {{ESPEN guidelines on nutrition in dementia}},
  journal = {Clinical nutrition (Edinburgh, Scotland)},
  year    = {2015},
  doi     = {10.1016/j.clnu.2015.09.004},
  pmid    = {26522922},
  url     = {https://doi.org/10.1016/j.clnu.2015.09.004}
}

@article{dunkin1998-9674763,
  author  = {Dunkin, J. J. and Anderson-Hanley, C.},
  title   = {{Dementia caregiver burden: a review of the literature and guidelines for assessment and intervention}},
  journal = {Neurology},
  year    = {1998},
  doi     = {10.1212/wnl.51.1_suppl_1.s53},
  pmid    = {9674763},
  url     = {https://doi.org/10.1212/wnl.51.1_suppl_1.s53}
}

@article{sorensen2006-17052663,
  author  = {Sörensen, S. and Duberstein, P. and Gill, D. and Pinquart, M.},
  title   = {{Dementia care: mental health effects, intervention strategies, and clinical implications}},
  journal = {The Lancet. Neurology},
  year    = {2006},
  doi     = {10.1016/s1474-4422(06)70599-3},
  pmid    = {17052663},
  url     = {https://doi.org/10.1016/s1474-4422(06)70599-3}
}

@article{biessels2014-24931032,
  author  = {Biessels, G. J. and Reijmer, Y. D.},
  title   = {{Brain changes underlying cognitive dysfunction in diabetes: what can we learn from MRI?}},
  journal = {Diabetes},
  year    = {2014},
  doi     = {10.2337/db14-0348},
  pmid    = {24931032},
  url     = {https://doi.org/10.2337/db14-0348}
}

@article{elkind2020-32897811,
  author  = {Elkind, M. S. V. and Boehme, A. K. and Smith, C. J. and Meisel, A. and Buckwalter, M. S.},
  title   = {{Infection as a Stroke Risk Factor and Determinant of Outcome After Stroke}},
  journal = {Stroke},
  year    = {2020},
  doi     = {10.1161/strokeaha.120.030429},
  pmid    = {32897811},
  url     = {https://doi.org/10.1161/strokeaha.120.030429}
}

@article{corriveau2016-27095366,
  author  = {Corriveau, R. A. and Bosetti, F. and Emr, M. and Gladman, J. T. and Koenig, J. I. and Moy, C. S. and Pahigiannis, K. and Waddy, S. P. and others},
  title   = {{The Science of Vascular Contributions to Cognitive Impairment and Dementia (VCID): A Framework for Advancing Research Priorities in the Cerebrovascular Biology of Cognitive Decline}},
  journal = {Cellular and molecular neurobiology},
  year    = {2016},
  doi     = {10.1007/s10571-016-0334-7},
  pmid    = {27095366},
  url     = {https://doi.org/10.1007/s10571-016-0334-7}
}

@article{religa2006-16832080,
  author  = {Religa, D. and Strozyk, D. and Cherny, R. A. and Volitakis, I. and Haroutunian, V. and Winblad, B. and Naslund, J. and Bush, A. I.},
  title   = {{Elevated cortical zinc in Alzheimer disease}},
  journal = {Neurology},
  year    = {2006},
  doi     = {10.1212/01.wnl.0000223644.08653.b5},
  pmid    = {16832080},
  url     = {https://doi.org/10.1212/01.wnl.0000223644.08653.b5}
}

@article{boissonneault2009-19151372,
  author  = {Boissonneault, V. and Filali, M. and Lessard, M. and Relton, J. and Wong, G. and Rivest, S.},
  title   = {{Powerful beneficial effects of macrophage colony-stimulating factor on beta-amyloid deposition and cognitive impairment in Alzheimer's disease}},
  journal = {Brain : a journal of neurology},
  year    = {2009},
  doi     = {10.1093/brain/awn331},
  pmid    = {19151372},
  url     = {https://doi.org/10.1093/brain/awn331}
}

@article{cooper2008-19008735,
  author  = {Cooper, C. and Katona, C. and Livingston, G.},
  title   = {{Validity and reliability of the brief COPE in carers of people with dementia: the LASER-AD Study}},
  journal = {The Journal of nervous and mental disease},
  year    = {2008},
  doi     = {10.1097/nmd.0b013e31818b504c},
  pmid    = {19008735},
  url     = {https://doi.org/10.1097/nmd.0b013e31818b504c}
}

@article{zarit1998-9750575,
  author  = {Zarit, S. H. and Stephens, M. A. and Townsend, A. and Greene, R.},
  title   = {{Stress reduction for family caregivers: effects of adult day care use}},
  journal = {The journals of gerontology. Series B, Psychological sciences and social sciences},
  year    = {1998},
  doi     = {10.1093/geronb/53b.5.s267},
  pmid    = {9750575},
  url     = {https://doi.org/10.1093/geronb/53b.5.s267}
}

@article{devugt2013-23689068,
  author  = {de Vugt, M. E. and Verhey, F. R.},
  title   = {{The impact of early dementia diagnosis and intervention on informal caregivers}},
  journal = {Progress in neurobiology},
  year    = {2013},
  doi     = {10.1016/j.pneurobio.2013.04.005},
  pmid    = {23689068},
  url     = {https://doi.org/10.1016/j.pneurobio.2013.04.005}
}

@article{yates2014-24432010,
  author  = {Yates, P. A. and Villemagne, V. L. and Ellis, K. A. and Desmond, P. M. and Masters, C. L. and Rowe, C. C.},
  title   = {{Cerebral microbleeds: a review of clinical, genetic, and neuroimaging associations}},
  journal = {Frontiers in neurology},
  year    = {2014},
  doi     = {10.3389/fneur.2013.00205},
  pmid    = {24432010},
  url     = {https://doi.org/10.3389/fneur.2013.00205}
}

@article{galvin2015-26140284,
  author  = {Galvin, J. E.},
  title   = {{THE QUICK DEMENTIA RATING SYSTEM (QDRS): A RAPID DEMENTIA STAGING TOOL}},
  journal = {Alzheimer's \& dementia (Amsterdam, Netherlands)},
  year    = {2015},
  doi     = {10.1016/j.dadm.2015.03.003},
  pmid    = {26140284},
  url     = {https://doi.org/10.1016/j.dadm.2015.03.003}
}

@article{schulz2006-16861369,
  author  = {Schulz, R. and Boerner, K. and Shear, K. and Zhang, S. and Gitlin, L. N.},
  title   = {{Predictors of complicated grief among dementia caregivers: a prospective study of bereavement}},
  journal = {The American journal of geriatric psychiatry : official journal of the American Association for Geriatric Psychiatry},
  year    = {2006},
  doi     = {10.1097/01.jgp.0000203178.44894.db},
  pmid    = {16861369},
  url     = {https://doi.org/10.1097/01.jgp.0000203178.44894.db}
}

@article{starkstein2006-16549411,
  author  = {Starkstein, S. E. and Jorge, R. and Mizrahi, R. and Robinson, R. G.},
  title   = {{A diagnostic formulation for anosognosia in Alzheimer's disease}},
  journal = {Journal of neurology, neurosurgery, and psychiatry},
  year    = {2006},
  doi     = {10.1136/jnnp.2005.085373},
  pmid    = {16549411},
  url     = {https://doi.org/10.1136/jnnp.2005.085373}
}

@article{vandersteen2010-20847433,
  author  = {van der Steen, J. T.},
  title   = {{Dying with dementia: what we know after more than a decade of research}},
  journal = {Journal of Alzheimer's disease : JAD},
  year    = {2010},
  doi     = {10.3233/jad-2010-100744},
  pmid    = {20847433},
  url     = {https://doi.org/10.3233/jad-2010-100744}
}

@article{buckley2016-26852195,
  author  = {Buckley, R. F. and Maruff, P. and Ames, D. and Bourgeat, P. and Martins, R. N. and Masters, C. L. and Rainey-Smith, S. and Lautenschlager, N. and others},
  title   = {{Subjective memory decline predicts greater rates of clinical progression in preclinical Alzheimer's disease}},
  journal = {Alzheimer's \& dementia : the journal of the Alzheimer's Association},
  year    = {2016},
  doi     = {10.1016/j.jalz.2015.12.013},
  pmid    = {26852195},
  url     = {https://doi.org/10.1016/j.jalz.2015.12.013}
}

@article{graessel2014-24555474,
  author  = {Graessel, E. and Berth, H. and Lichte, T. and Grau, H.},
  title   = {{Subjective caregiver burden: validity of the 10-item short version of the Burden Scale for Family Caregivers BSFC-s}},
  journal = {BMC geriatrics},
  year    = {2014},
  doi     = {10.1186/1471-2318-14-23},
  pmid    = {24555474},
  url     = {https://doi.org/10.1186/1471-2318-14-23}
}

@article{colloby2012-22961551,
  author  = {Colloby, S. J. and McParland, S. and O'Brien, J. T. and Attems, J.},
  title   = {{Neuropathological correlates of dopaminergic imaging in Alzheimer's disease and Lewy body dementias}},
  journal = {Brain : a journal of neurology},
  year    = {2012},
  doi     = {10.1093/brain/aws211},
  pmid    = {22961551},
  url     = {https://doi.org/10.1093/brain/aws211}
}

@article{lashley2008-18185940,
  author  = {Lashley, T. and Holton, J. L. and Gray, E. and Kirkham, K. and O'Sullivan, S. S. and Hilbig, A. and Wood, N. W. and Lees, A. J. and others},
  title   = {{Cortical alpha-synuclein load is associated with amyloid-beta plaque burden in a subset of Parkinson's disease patients}},
  journal = {Acta neuropathologica},
  year    = {2008},
  doi     = {10.1007/s00401-007-0336-0},
  pmid    = {18185940},
  url     = {https://doi.org/10.1007/s00401-007-0336-0}
}

@article{rosano2007-18043004,
  author  = {Rosano, C. and Brach, J. and Studenski, S. and Longstreth, W. T. and Newman, A. B.},
  title   = {{Gait variability is associated with subclinical brain vascular abnormalities in high-functioning older adults}},
  journal = {Neuroepidemiology},
  year    = {2007},
  doi     = {10.1159/000111582},
  pmid    = {18043004},
  url     = {https://doi.org/10.1159/000111582}
}

@article{irwin2018-30473927,
  author  = {Irwin, D. J. and Hurtig, H. I.},
  title   = {{The Contribution of Tau, Amyloid-Beta and Alpha-Synuclein Pathology to Dementia in Lewy Body Disorders}},
  journal = {Journal of Alzheimer's disease \& Parkinsonism},
  year    = {2018},
  doi     = {10.4172/2161-0460.1000444},
  pmid    = {30473927},
  url     = {https://doi.org/10.4172/2161-0460.1000444}
}

@article{dening2013-23128905,
  author  = {Dening, K. H. and Jones, L. and Sampson, E. L.},
  title   = {{Preferences for end-of-life care: a nominal group study of people with dementia and their family carers}},
  journal = {Palliative medicine},
  year    = {2013},
  doi     = {10.1177/0269216312464094},
  pmid    = {23128905},
  url     = {https://doi.org/10.1177/0269216312464094}
}

@article{jhang2025-40813642,
  author  = {Jhang, Kai-Ming and Chen, Cheng-Chiang and Wang, Sih-Yi and Wang, Wenfu and Yen, Shao‐Wei and Wu, Hsin‐Hung},
  title   = {{Caregivers’ burden analytics: combining variables from patients with dementia and their caregivers}},
  journal = {BMC Geriatrics},
  year    = {2025},
  doi     = {10.1186/s12877-025-06284-y},
  pmid    = {40813642},
  url     = {https://doi.org/10.1186/s12877-025-06284-y}
}

@article{su2025-40751254,
  author  = {Su, Yung‐Yu and Wang, Wen-Fu and Jhang, Kai-Ming and Mau, Lih‐Wen and Chen, Chun‐Min},
  title   = {{Enhancing care service utilization and reducing burden: the role of needs assessments for dementia caregivers in long-term care}},
  journal = {BMC Nursing},
  year    = {2025},
  doi     = {10.1186/s12912-025-03686-6},
  pmid    = {40751254},
  url     = {https://doi.org/10.1186/s12912-025-03686-6}
}

@article{sideman2025-39763029,
  author  = {Sideman, Alissa Bernstein and Dulaney, Sarah and Merrilees, Jennifer J. and Barclay, Michelle and de Jesús, Alma Hernández and Possin, Katherine L.},
  title   = {{Dissemination of the Care Ecosystem Collaborative Care Model for Dementia}},
  journal = {Journal of the American Geriatrics Society},
  year    = {2025},
  doi     = {10.1111/jgs.19363},
  pmid    = {39763029},
  url     = {https://doi.org/10.1111/jgs.19363}
}

@article{scharf2025-40148225,
  author  = {Scharf, Annelie and Michalowsky, Bernhard and Rädke, Anika and Kleinke, Fabian and Schade, Stefanie and Platen, Moritz and Buchholz, Maresa and Pfaff, Magdalena and others},
  title   = {{Identifying and Addressing Unmet Needs in Dementia: The Role of Care Access and Psychosocial Support}},
  journal = {International Journal of Geriatric Psychiatry},
  year    = {2025},
  doi     = {10.1002/gps.70066},
  pmid    = {40148225},
  url     = {https://doi.org/10.1002/gps.70066}
}

@article{lampe2025-40371759,
  author  = {Lampe, Nik M. and Akré, Ellesse-Roselee and Barbee, Harry and McKay, Tara},
  title   = {{LGBTQ+ identity social support and care access among LGBTQ+ caregivers of individuals living with mild cognitive impairment, Alzheimer's disease, and related dementias}},
  journal = {Alzheimer s \& Dementia},
  year    = {2025},
  doi     = {10.1002/alz.70188},
  pmid    = {40371759},
  url     = {https://doi.org/10.1002/alz.70188}
}

@article{xu2025-40406980,
  author  = {Xu, Libo and Wang, Zhenhao and Li, Mao and Li, Qingsong},
  title   = {{Global incidence trends and projections of Alzheimer disease and other dementias: an age-period-cohort analysis 2021}},
  journal = {Journal of Global Health},
  year    = {2025},
  doi     = {10.7189/jogh.15.04156},
  pmid    = {40406980},
  url     = {https://doi.org/10.7189/jogh.15.04156}
}

@article{byeon2025-39944528,
  author  = {Byeon, Gihwan and Kang, Dong Woo and Kim, Yeshin and Kim, Geon Ha and Kim, Ko Woon and Kim, Hee-jin and Na, Seunghee and Park, Kee Hyung and others},
  title   = {{Clinical Practice Guidelines for Dementia: Recommendations for the Pharmacological Treatment of Behavioral and Psychological Symptoms}},
  journal = {Dementia and Neurocognitive Disorders},
  year    = {2025},
  doi     = {10.12779/dnd.2025.24.1.24},
  pmid    = {39944528},
  url     = {https://doi.org/10.12779/dnd.2025.24.1.24}
}

@article{barman2022-32684094,
  author  = {Barman, Mona Shah and Paulson, Daniel},
  title   = {{Piloting a Dementia Caregiver Intervention in a Primary Care Setting}},
  journal = {Clinical gerontologist},
  year    = {2022},
  doi     = {10.1080/07317115.2020.1791294},
  pmid    = {32684094},
  url     = {https://doi.org/10.1080/07317115.2020.1791294}
}

@article{goldfarb2022-34893448,
  author  = {Goldfarb, Danielle and Allen, Angela M and Nisson, Lori E and Petitti, Diana B and Saner, Donald and Langford, Carrie and Burke, William J and Reiman, Eric M and others},
  title   = {{Design and Development of a Community-Based, Interdisciplinary, Collaborative Dementia Care Program}},
  journal = {The American journal of geriatric psychiatry : official journal of the American Association for Geriatric Psychiatry},
  year    = {2022},
  doi     = {10.1016/j.jagp.2021.10.014},
  pmid    = {34893448},
  url     = {https://doi.org/10.1016/j.jagp.2021.10.014}
}

@article{bouranis2023-36988818,
  author  = {Bouranis, Nicole and Gelmon, Sherril and Lindauer, Allison},
  title   = {{Ability and Willingness to Participate in Dementia Clinical Research: A Qualitative Study}},
  journal = {The patient},
  year    = {2023},
  doi     = {10.1007/s40271-023-00621-2},
  pmid    = {36988818},
  url     = {https://doi.org/10.1007/s40271-023-00621-2}
}

@article{beatie2021-33595336,
  author  = {Beatie, Brooke E and Mackenzie, Corey S and Funk, Laura and Davidson, Dylan and Koven, Lesley and Reynolds, Kristin A},
  title   = {{Caregiver identity in care partners of persons living with mild cognitive impairment}},
  journal = {Dementia (London, England)},
  year    = {2021},
  doi     = {10.1177/1471301221994317},
  pmid    = {33595336},
  url     = {https://doi.org/10.1177/1471301221994317}
}

@article{chen2017-28383687,
  author  = {Chen, C T and Chang, C-C and Chang, W-N and Tsai, N-W and Huang, C-C and Chang, Y-T and Wang, H-C and Kung, C-T and others},
  title   = {{Neuropsychiatric symptoms in Alzheimer's disease: associations with caregiver burden and treatment outcomes}},
  journal = {QJM : monthly journal of the Association of Physicians},
  year    = {2017},
  doi     = {10.1093/qjmed/hcx077},
  pmid    = {28383687},
  url     = {https://doi.org/10.1093/qjmed/hcx077}
}

@article{joo2023-37278694,
  author  = {Joo, Jinhui and Choi, Scott and Gallo, Joseph J and Han, Haera and Kim, Seojin and Xu, Jiayun and Yeom, Sangeun},
  title   = {{Intersection of multiple factors shape Korean American caregiver experience in dementia caregiving}},
  journal = {Aging \& mental health},
  year    = {2023},
  doi     = {10.1080/13607863.2023.2219625},
  pmid    = {37278694},
  url     = {https://doi.org/10.1080/13607863.2023.2219625}
}