% alzhub.org library filter
% Source: https://alzhub.org/research?category=assessment&about=caregiving
% 42 entries, in the order the page lists them. Built from alzhub.org's own records.
% 0 entries have no readable author in the source record and carry no author field.

@article{neal2023-37680943,
  author  = {Neal, D. P. and Ettema, T. P. and Zwan, M. D. and Dijkstra, K. and Finnema, E. and Graff, M. and Muller, M. and Dröes, R. M.},
  title   = {{FindMyApps compared with usual tablet use to promote social health of community-dwelling people with mild dementia and their informal caregivers: a randomised controlled trial}},
  journal = {EClinicalMedicine},
  year    = {2023},
  doi     = {10.1016/j.eclinm.2023.102169},
  pmid    = {37680943},
  url     = {https://doi.org/10.1016/j.eclinm.2023.102169}
}

@article{zuschnegg2025-39700737,
  author  = {Zuschnegg, J. and Häussl, A. and Lodron, G. and Orgel, T. and Russegger, S. and Schneeberger, M. and Fellner, M. and Holter, M. and others},
  title   = {{Psychosocial effects of a humanoid robot on informal caregivers of people with dementia: A randomised controlled trial with nested interviews}},
  journal = {International journal of nursing studies},
  year    = {2025},
  doi     = {10.1016/j.ijnurstu.2024.104967},
  pmid    = {39700737},
  url     = {https://doi.org/10.1016/j.ijnurstu.2024.104967}
}

@article{rose2021-33576064,
  author  = {Rose, K. M. and Coop Gordon, K. and Schlegel, E. C. and Mccall, M. and Gao, Y. and Ma, M. and Lenger, K. A. and Ko, E. and others},
  title   = {{Smarthealth technology study protocol to improve relationships between older adults with dementia and family caregivers}},
  journal = {Journal of advanced nursing},
  year    = {2021},
  doi     = {10.1111/jan.14714},
  pmid    = {33576064},
  url     = {https://doi.org/10.1111/jan.14714}
}

@article{orrell2017-28350796,
  author  = {Orrell, M. and Yates, L. and Leung, P. and Kang, S. and Hoare, Z. and Whitaker, C. and Burns, A. and others},
  title   = {{The impact of individual Cognitive Stimulation Therapy (iCST) on cognition, quality of life, caregiver health, and family relationships in dementia: A randomised controlled trial}},
  journal = {PLoS medicine},
  year    = {2017},
  doi     = {10.1371/journal.pmed.1002269},
  pmid    = {28350796},
  url     = {https://doi.org/10.1371/journal.pmed.1002269}
}

@article{sriram2021-33737425,
  author  = {Sriram, V. and Jenkinson, C. and Peters, M.},
  title   = {{Using rapid cycle tests of change to develop the Carers Assistive Technology Experience Questionnaire: a cognitive interview study in the UK}},
  journal = {BMJ open},
  year    = {2021},
  doi     = {10.1136/bmjopen-2020-042361},
  pmid    = {33737425},
  url     = {https://doi.org/10.1136/bmjopen-2020-042361}
}

@article{than2023-36937692,
  author  = {Than, T. N. and Nguyen, T. T. and Nguyen, T. C. and Vu, L. T. and Vo, P. T. and TTruong, K. and Schofield, P. and Nguyen, T. A.},
  title   = {{Smartphone app-based intervention for reducing stress, depression, and anxiety in caregivers of people with dementia in Vietnam: Study protocol for a pilot randomized controlled trial}},
  journal = {Digital health},
  year    = {2023},
  doi     = {10.1177/20552076231163786},
  pmid    = {36937692},
  url     = {https://doi.org/10.1177/20552076231163786}
}

@article{scott2019-30832581,
  author  = {Scott, T. and Liddle, J. and Mitchell, G. and Beattie, E. and Pachana, N.},
  title   = {{Implementation and evaluation of a driving cessation intervention to improve community mobility and wellbeing outcomes for people living with dementia: study protocol of the 'CarFreeMe' for people with dementia program}},
  journal = {BMC geriatrics},
  year    = {2019},
  doi     = {10.1186/s12877-019-1074-6},
  pmid    = {30832581},
  url     = {https://doi.org/10.1186/s12877-019-1074-6}
}

@article{hales2018-28691520,
  author  = {Hales, S. A. and Fossey, J.},
  title   = {{Caring For Me and You: the co-production of a computerised cognitive behavioural therapy (cCBT) package for carers of people with dementia}},
  journal = {Aging \& mental health},
  year    = {2018},
  doi     = {10.1080/13607863.2017.1348475},
  pmid    = {28691520},
  url     = {https://doi.org/10.1080/13607863.2017.1348475}
}

@article{jagoda2024-39143591,
  author  = {Jagoda, T. and Dharmaratne, S. D. and Rathnayake, S.},
  title   = {{Designing an mHealth application for informal carers concerning the management of behavioural and psychological symptoms of dementia: a need analysis survey}},
  journal = {BMC health services research},
  year    = {2024},
  doi     = {10.1186/s12913-024-11273-9},
  pmid    = {39143591},
  url     = {https://doi.org/10.1186/s12913-024-11273-9}
}

@article{guzmanparra2020-32442136,
  author  = {Guzman-Parra, J. and Barnestein-Fonseca, P. and Guerrero-Pertiñez, G. and Anderberg, P. and Jimenez-Fernandez, L. and Valero-Moreno, E. and Goodman-Casanova, J. M. and Cuesta-Vargas, A. and others},
  title   = {{Attitudes and Use of Information and Communication Technologies in Older Adults With Mild Cognitive Impairment or Early Stages of Dementia and Their Caregivers: Cross-Sectional Study}},
  journal = {Journal of medical Internet research},
  year    = {2020},
  doi     = {10.2196/17253},
  pmid    = {32442136},
  url     = {https://doi.org/10.2196/17253}
}

@article{dauphinot2015-25374109,
  author  = {Dauphinot, V. and Delphin-Combe, F. and Mouchoux, C. and Dorey, A. and Bathsavanis, A. and Makaroff, Z. and Rouch, I. and Krolak-Salmon, P.},
  title   = {{Risk factors of caregiver burden among patients with Alzheimer's disease or related disorders: a cross-sectional study}},
  journal = {Journal of Alzheimer's disease : JAD},
  year    = {2015},
  doi     = {10.3233/jad-142337},
  pmid    = {25374109},
  url     = {https://doi.org/10.3233/jad-142337}
}

@article{coffman2017-28894746,
  author  = {Coffman, I. and Resnick, H. E. and Lathan, C. E.},
  title   = {{Behavioral health characteristics of a technology-enabled sample of Alzheimer's caregivers with high caregiver burden}},
  journal = {mHealth},
  year    = {2017},
  doi     = {10.21037/mhealth.2017.08.01},
  pmid    = {28894746},
  url     = {https://doi.org/10.21037/mhealth.2017.08.01}
}

@article{gallagher2011-21547745,
  author  = {Gallagher, D. and Ni Mhaolain, A. and Crosby, L. and Ryan, D. and Lacey, L. and Coen, R. F. and Walsh, C. and Coakley, D. and others},
  title   = {{Self-efficacy for managing dementia may protect against burden and depression in Alzheimer's caregivers}},
  journal = {Aging \& mental health},
  year    = {2011},
  doi     = {10.1080/13607863.2011.562179},
  pmid    = {21547745},
  url     = {https://doi.org/10.1080/13607863.2011.562179}
}

@article{collinspisano2024-38801660,
  author  = {Collins-Pisano, C. and Leggett, A. N. and Gambee, D. and Fortuna, K. L.},
  title   = {{Usability, Acceptability, and Preliminary Effectiveness of a Peer-Delivered and Technology-Supported Mental Health Intervention for Family Caregivers of People With Dementia: Field Usability Study}},
  journal = {JMIR human factors},
  year    = {2024},
  doi     = {10.2196/41202},
  pmid    = {38801660},
  url     = {https://doi.org/10.2196/41202}
}

@article{fernandez2010-20920205,
  author  = {Fernández, M. and Gobartt, A. L. and Balañá, M. and {COOPERA Study Group}},
  title   = {{Behavioural symptoms in patients with Alzheimer's disease and their association with cognitive impairment}},
  journal = {BMC neurology},
  year    = {2010},
  doi     = {10.1186/1471-2377-10-87},
  pmid    = {20920205},
  url     = {https://doi.org/10.1186/1471-2377-10-87}
}

@article{goodridge2021-34842530,
  author  = {Goodridge, D. and Reis, N. and Neiser, J. and Haubrich, T. and Westberg, B. and Erickson-Lumb, L. and Storozinski, J. and Gonzales, C. and others},
  title   = {{An App-Based Mindfulness-Based Self-compassion Program to Support Caregivers of People With Dementia: Participatory Feasibility Study}},
  journal = {JMIR aging},
  year    = {2021},
  doi     = {10.2196/28652},
  pmid    = {34842530},
  url     = {https://doi.org/10.2196/28652}
}

@article{lee2017-29181245,
  author  = {Lee, J. A. and Nguyen, H. and Park, J. and Tran, L. and Nguyen, T. and Huynh, Y.},
  title   = {{Usages of Computers and Smartphones to Develop Dementia Care Education Program for Asian American Family Caregivers}},
  journal = {Healthcare informatics research},
  year    = {2017},
  doi     = {10.4258/hir.2017.23.4.338},
  pmid    = {29181245},
  url     = {https://doi.org/10.4258/hir.2017.23.4.338}
}

@article{kocak2025-40315238,
  author  = {Koçak, Fatma Özge Kayhan and Kumral, Emre},
  title   = {{The relationship between dementia staging scales, cognitive-behavioral scales and functionality in patients with cognitive impairment}},
  journal = {PLoS ONE},
  year    = {2025},
  doi     = {10.1371/journal.pone.0322572},
  pmid    = {40315238},
  url     = {https://doi.org/10.1371/journal.pone.0322572}
}

@article{margarido2022-35314766,
  author  = {Margarido, Milena Guessi and Shah, Amika and Seto, Emily},
  title   = {{Smartphone applications for informal caregivers of chronically ill patients: a scoping review}},
  journal = {NPJ digital medicine},
  year    = {2022},
  doi     = {10.1038/s41746-022-00567-z},
  pmid    = {35314766},
  url     = {https://doi.org/10.1038/s41746-022-00567-z}
}

@article{xie2018-30530450,
  author  = {Xie, B. and Champion, J. D. and Kwak, J. and Fleischmann, K. R.},
  title   = {{Mobile Health, Information Preferences, and Surrogate Decision-Making Preferences of Family Caregivers of People With Dementia in Rural Hispanic Communities: Cross-Sectional Questionnaire Study}},
  journal = {Journal of medical Internet research},
  year    = {2018},
  doi     = {10.2196/11682},
  pmid    = {30530450},
  url     = {https://doi.org/10.2196/11682}
}

@article{wilson2024-37139944,
  author  = {Wilson, S. A. and Byrne, P. and Rodgers, S. E.},
  title   = {{'I'd be lost without my smartphone': a qualitative analysis of the use of smartphones and tablets by people living with dementia, mild cognitive impairment, and their caregivers}},
  journal = {Aging \& mental health},
  year    = {2024},
  doi     = {10.1080/13607863.2023.2205585},
  pmid    = {37139944},
  url     = {https://doi.org/10.1080/13607863.2023.2205585}
}

@article{lai2020-32735223,
  author  = {Lai, R. and Tensil, M. and Kurz, A. and Lautenschlager, N. T. and Diehl-Schmid, J.},
  title   = {{Perceived Need and Acceptability of an App to Support Activities of Daily Living in People With Cognitive Impairment and Their Carers: Pilot Survey Study}},
  journal = {JMIR mHealth and uHealth},
  year    = {2020},
  doi     = {10.2196/16928},
  pmid    = {32735223},
  url     = {https://doi.org/10.2196/16928}
}

@article{jain2022-35331943,
  author  = {Jain, F. A. and Okereke, O. and Gitlin, L. and Pedrelli, P. and Onnela, J. P. and Nyer, M. and Ramirez Gomez, L. A. and Pittman, M. and others},
  title   = {{Mentalizing imagery therapy to augment skills training for dementia caregivers: Protocol for a randomized, controlled trial of a mobile application and digital phenotyping}},
  journal = {Contemporary clinical trials},
  year    = {2022},
  doi     = {10.1016/j.cct.2022.106737},
  pmid    = {35331943},
  url     = {https://doi.org/10.1016/j.cct.2022.106737}
}

@article{sahyouni2017-28324787,
  author  = {Sahyouni, R. and Mahmoodi, A. and Huang, M. and Tran, D. K. and Chen, J. W.},
  title   = {{Interactive eBooks in educating patients and their families about head injury regardless of age}},
  journal = {Clinical neurology and neurosurgery},
  year    = {2017},
  doi     = {10.1016/j.clineuro.2017.03.003},
  pmid    = {28324787},
  url     = {https://doi.org/10.1016/j.clineuro.2017.03.003}
}

@article{marvardi2005-15847122,
  author  = {Marvardi, M. and Mattioli, P. and Spazzafumo, L. and Mastriforti, R. and Rinaldi, P. and Polidori, M. C. and Cherubini, A. and Quartesan, R. and others},
  title   = {{The Caregiver Burden Inventory in evaluating the burden of caregivers of elderly demented patients: results from a multicenter study}},
  journal = {Aging clinical and experimental research},
  year    = {2005},
  doi     = {10.1007/bf03337720},
  pmid    = {15847122},
  url     = {https://doi.org/10.1007/bf03337720}
}

@article{benge2020-29661059,
  author  = {Benge, Jared F and Dinh, Kara L and Logue, Erin and Phenis, Richard and Dasse, Michelle N and Scullin, Michael K},
  title   = {{The smartphone in the memory clinic: A study of patient and care partner's utilisation habits}},
  journal = {Neuropsychological rehabilitation},
  year    = {2020},
  doi     = {10.1080/09602011.2018.1459307},
  pmid    = {29661059},
  url     = {https://doi.org/10.1080/09602011.2018.1459307}
}

@article{foxfuller2023-36946459,
  author  = {Fox-Fuller, J T and Martinez, J E and Baena, A and Londono, N and Munera, D and Noriega, D and Vila-Castelar, C and Aduen, P A and others},
  title   = {{Memory for Semantically Related Objects Differentiates Cognitively Unimpaired Autosomal Dominant Mutation Carriers from Non-Carrier Family Members}},
  journal = {The journal of prevention of Alzheimer's disease},
  year    = {2023},
  doi     = {10.14283/jpad.2023.14},
  pmid    = {36946459},
  url     = {https://doi.org/10.14283/jpad.2023.14}
}

@article{ankri2005-15717336,
  author  = {Ankri, J. and Andrieu, S. and Beaufils, B. and Grand, A. and Henrard, J. C.},
  title   = {{Beyond the global score of the Zarit Burden Interview: useful dimensions for clinicians}},
  journal = {International journal of geriatric psychiatry},
  year    = {2005},
  doi     = {10.1002/gps.1275},
  pmid    = {15717336},
  url     = {https://doi.org/10.1002/gps.1275}
}

@article{vogel2006-16955419,
  author  = {Vogel, A. and Mortensen, E. L. and Hasselbalch, S. G. and Andersen, B. B. and Waldemar, G.},
  title   = {{Patient versus informant reported quality of life in the earliest phases of Alzheimer's disease}},
  journal = {International journal of geriatric psychiatry},
  year    = {2006},
  doi     = {10.1002/gps.1619},
  pmid    = {16955419},
  url     = {https://doi.org/10.1002/gps.1619}
}

@article{kim2021-34493819,
  author  = {Kim, E. and Baskys, A. and Law, A. V. and Roosan, M. R. and Li, Y. and Roosan, D.},
  title   = {{Scoping review: the empowerment of Alzheimer's Disease caregivers with mHealth applications}},
  journal = {NPJ digital medicine},
  year    = {2021},
  doi     = {10.1038/s41746-021-00506-4},
  pmid    = {34493819},
  url     = {https://doi.org/10.1038/s41746-021-00506-4}
}

@article{hoel2022-36078671,
  author  = {Hoel, V. and Ambugo, E. A. and Wolf-Ostermann, K.},
  title   = {{Sustaining Our Relationship: Dyadic Interactions Supported by Technology for People with Dementia and Their Informal Caregivers}},
  journal = {International journal of environmental research and public health},
  year    = {2022},
  doi     = {10.3390/ijerph191710956},
  pmid    = {36078671},
  url     = {https://doi.org/10.3390/ijerph191710956}
}

@article{harris2021-32249596,
  author  = {Harris, N. and Boyd, H. and Evans, N. and Cheston, R. and Noonan, K. and Ingram, T. and Jarvis, A. and Ridgers, J.},
  title   = {{A preliminary evaluation of a client-centred prompting tool for supporting everyday activities in individuals with mild to moderate levels of cognitive impairment due to dementia}},
  journal = {Dementia (London, England)},
  year    = {2021},
  doi     = {10.1177/1471301220911322},
  pmid    = {32249596},
  url     = {https://doi.org/10.1177/1471301220911322}
}

@article{rigaud2011-21586382,
  author  = {Rigaud, A. S. and Pino, M. and Wu, Y. H. and DE Rotrou, J. and Boulay, M. and Seux, M. L. and Hugonot-Diener, L. and DE Sant'anna, M. and others},
  title   = {{[Support for patients with Alzheimer's disease and their caregivers by gerontechnology]}},
  journal = {Geriatrie et psychologie neuropsychiatrie du vieillissement},
  year    = {2011},
  doi     = {10.1684/pnv.2010.0248},
  pmid    = {21586382},
  url     = {https://doi.org/10.1684/pnv.2010.0248}
}

@article{vanderschaar2025-40189825,
  author  = {van der Schaar, Jetske and van der Lee, Sven J. and Asscher, Eva C. A. and Pijnenburg, Yolande A.L. and de Geus, Christa M. and Bredenoord, Annelien L. and van der Flier, Wiesje M. and van den Hoven, Mariette A. and others},
  title   = {{Deciding on genetic testing for familial dementia: Perspectives of patients and families}},
  journal = {Alzheimer s \& Dementia},
  year    = {2025},
  doi     = {10.1002/alz.70140},
  pmid    = {40189825},
  url     = {https://doi.org/10.1002/alz.70140}
}

@article{fattah2017-29019964,
  author  = {Fattah, Sheik Mohammad Mostakim and Sung, Nak-Myoung and Ahn, Il-Yeup and Ryu, Min-Woo and Yun, Jaeseok},
  title   = {{Building IoT Services for Aging in Place Using Standard-Based IoT Platforms and Heterogeneous IoT Products}},
  journal = {Sensors},
  year    = {2017},
  doi     = {10.3390/s17102311},
  pmid    = {29019964},
  url     = {https://doi.org/10.3390/s17102311}
}

@article{rathnayake2018-29631492,
  author  = {Rathnayake, Sarath and Moyle, Wendy and Jones, Cindy and Calleja, Pauline},
  title   = {{mHealth applications as an educational and supportive resource for family carers of people with dementia: An integrative review}},
  journal = {Dementia},
  year    = {2018},
  doi     = {10.1177/1471301218768903},
  pmid    = {29631492},
  url     = {https://doi.org/10.1177/1471301218768903}
}

@article{thommessen2002-11802235,
  author  = {Thommessen, B. and Aarsland, D. and Braekhus, A. and Oksengaard, A. R. and Engedal, K. and Laake, K.},
  title   = {{The psychosocial burden on spouses of the elderly with stroke, dementia and Parkinson's disease}},
  journal = {International journal of geriatric psychiatry},
  year    = {2002},
  doi     = {10.1002/gps.524},
  pmid    = {11802235},
  url     = {https://doi.org/10.1002/gps.524}
}

@article{zhang2016-27129032,
  author  = {Zhang, M. W. and Chan, S. and Wynne, O. and Jeong, S. and Hunter, S. and Wilson, A. and Ho, R. C.},
  title   = {{Conceptualization of an evidence-based smartphone innovation for caregivers and persons living with dementia}},
  journal = {Technology and health care : official journal of the European Society for Engineering and Medicine},
  year    = {2016},
  doi     = {10.3233/thc-161165},
  pmid    = {27129032},
  url     = {https://doi.org/10.3233/thc-161165}
}

@article{loewenstein2001-11245361,
  author  = {Loewenstein, D. A. and Argüelles, S. and Bravo, M. and Freeman, R. Q. and Argüelles, T. and Acevedo, A. and Eisdorfer, C.},
  title   = {{Caregivers' judgments of the functional abilities of the Alzheimer's disease patient: a comparison of proxy reports and objective measures}},
  journal = {The journals of gerontology. Series B, Psychological sciences and social sciences},
  year    = {2001},
  doi     = {10.1093/geronb/56.2.p78},
  pmid    = {11245361},
  url     = {https://doi.org/10.1093/geronb/56.2.p78}
}

@article{turcu2026-63bd1b4e,
  author  = {Turcu, Suzana and Glavce, Cristiana Susana and Tatomirescu, Liviu Florian},
  title   = {{Psychological Profiles and Resilience in Family Caregivers of People with Dementia: A Latent Profile Analysis}},
  journal = {Psychiatry International},
  year    = {2026},
  doi     = {10.3390/psychiatryint7010023},
  url     = {https://doi.org/10.3390/psychiatryint7010023}
}

@article{boekholt2026-dc67c10d,
  author  = {Boekholt, M. and Biernetzky, O. and Thyrian, JR. and Blotenberg, I. and Teipel, S. and Michalowsky, B. and Afrin, D. and Kilimann, I. and others},
  title   = {{Efficacy of care management in reducing needs of caregivers of people with dementia}},
  journal = {Research Square},
  year    = {2026},
  doi     = {10.21203/rs.3.rs-10521194/v1},
  url     = {https://doi.org/10.21203/rs.3.rs-10521194/v1}
}

@article{elbeyli2026-696e30ac,
  author  = {Elbeyli, A. B. and Tak, A. Z. A.},
  title   = {{Cognitive Performance in Spouses of Individuals with Alzheimer’s Disease: A Controlled Cross-Sectional Study}},
  journal = {Research Square},
  year    = {2026},
  doi     = {10.21203/rs.3.rs-10589896/v1},
  url     = {https://doi.org/10.21203/rs.3.rs-10589896/v1}
}