% alzhub.org library filter
% Source: https://alzhub.org/research?about=caregiving
% 500 entries, in the order the page lists them. Built from alzhub.org's own records.
% 4 entries have no readable author in the source record and carry no author field.

@article{gassoumis2024-37791406,
  author  = {Gassoumis, Zachary D and Martinez, Julia M and Yonashiro-Cho, Jeanine and Mosqueda, Laura and Hou, Anthony and Han, S Duke and Olsen, Bonnie and Louis, Anat and others},
  title   = {{Comprehensive Older Adult and Caregiver Help (COACH): A person-centered caregiver intervention prevents elder mistreatment}},
  journal = {Journal of the American Geriatrics Society},
  year    = {2024},
  doi     = {10.1111/jgs.18597},
  pmid    = {37791406},
  url     = {https://doi.org/10.1111/jgs.18597}
}

@article{sapra2025-40129751,
  author  = {Sapra, Mamta and Hagemann, Lauren and Luci, Katherine and Savla, Jyoti},
  title   = {{A mindfulness-based multicomponent caregiver intervention (PAACC): objectives, study design, and cohort description}},
  journal = {Alzheimer's \& dementia (New York, N. Y.)},
  year    = {2025},
  doi     = {10.1002/trc2.70064},
  pmid    = {40129751},
  url     = {https://doi.org/10.1002/trc2.70064}
}

@article{rodriguez2023-37706540,
  author  = {Rodriguez, Miriam Jocelyn and Kercher, Vanessa Martinez and Jordan, Evan J and Savoy, April and Hill, Jordan R and Werner, Nicole and Owora, Arthur and Castelluccio, Pete and others},
  title   = {{Technology caregiver intervention for Alzheimer's disease (I-CARE): Feasibility and preliminary efficacy of Brain CareNotes}},
  journal = {Journal of the American Geriatrics Society},
  year    = {2023},
  doi     = {10.1111/jgs.18591},
  pmid    = {37706540},
  url     = {https://doi.org/10.1111/jgs.18591}
}

@article{reuben2025-39878968,
  author  = {Reuben, D. B. and Gill, T. M. and Stevens, A. and Williamson, J. and Volpi, E. and Lichtenstein, M. and Jennings, L. A. and others},
  title   = {{Health System, Community-Based, or Usual Dementia Care for Persons With Dementia and Caregivers: The D-CARE Randomized Clinical Trial}},
  journal = {JAMA},
  year    = {2025},
  doi     = {10.1001/jama.2024.25056},
  pmid    = {39878968},
  url     = {https://doi.org/10.1001/jama.2024.25056}
}

@article{lin2023-37887501,
  author  = {Lin, Xinyao and Moxley, Jerad H and Czaja, Sara J},
  title   = {{Caring for Dementia Caregivers: Psychosocial Factors Related to Engagement in Self-Care Activities}},
  journal = {Behavioral sciences (Basel, Switzerland)},
  year    = {2023},
  doi     = {10.3390/bs13100851},
  pmid    = {37887501},
  url     = {https://doi.org/10.3390/bs13100851}
}

@article{adelman2014-24618967,
  author  = {Adelman, R. D. and Tmanova, L. L. and Delgado, D. and Dion, S. and Lachs, M. S.},
  title   = {{Caregiver burden: a clinical review}},
  journal = {JAMA},
  year    = {2014},
  doi     = {10.1001/jama.2014.304},
  pmid    = {24618967},
  url     = {https://doi.org/10.1001/jama.2014.304}
}

@article{sachs2025-39878993,
  author  = {Sachs, G. A. and Johnson, N. M. and Gao, S. and Torke, A. M. and Hickman, S. E. and Pemberton, A. and Vrobel, A. and Pan, M. and West, J. and Kroenke, K.},
  title   = {{Palliative Care Program for Community-Dwelling Individuals With Dementia and Caregivers: The IN-PEACE Randomized Clinical Trial}},
  journal = {JAMA},
  year    = {2025},
  doi     = {10.1001/jama.2024.25845},
  pmid    = {39878993},
  url     = {https://doi.org/10.1001/jama.2024.25845}
}

@article{possin2019-31566651,
  author  = {Possin, K. L. and Merrilees, J. J. and Dulaney, S. and Bonasera, S. J. and Chiong, W. and Lee, K. and Hooper, S. M. and Allen, I. E. and others},
  title   = {{Effect of Collaborative Dementia Care via Telephone and Internet on Quality of Life, Caregiver Well-being, and Health Care Use: The Care Ecosystem Randomized Clinical Trial}},
  journal = {JAMA internal medicine},
  year    = {2019},
  doi     = {10.1001/jamainternmed.2019.4101},
  pmid    = {31566651},
  url     = {https://doi.org/10.1001/jamainternmed.2019.4101}
}

@article{boess2024-38706270,
  author  = {Boess, F G and Scelsi, M A and Grimmer, T and Perry, R J and Tonietto, M and Klein, G and Hofmann, C and Salami, M and others},
  title   = {{At-Home Administration of Gantenerumab by Care Partners to People with Early Alzheimer's Disease: Feasibility, Safety and Pharmacodynamic Impact}},
  journal = {The journal of prevention of Alzheimer's disease},
  year    = {2024},
  doi     = {10.14283/jpad.2024.60},
  pmid    = {38706270},
  url     = {https://doi.org/10.14283/jpad.2024.60}
}

@article{towsley2022-34962157,
  author  = {Towsley, Gail L and Neller, Sarah and Baier, Rosa R and Wong, Bob},
  title   = {{Me \& My Wishes: Concordance of End-of-Life Preferences between Residents with Dementia, Family, and Staff}},
  journal = {Journal of palliative medicine},
  year    = {2022},
  doi     = {10.1089/jpm.2021.0111},
  pmid    = {34962157},
  url     = {https://doi.org/10.1089/jpm.2021.0111}
}

@article{bonner2021-32308012,
  author  = {Bonner, G. J. and Freels, S. and Ferrans, C. and Steffen, A. and Suarez, M. L. and Dancy, B. L. and Watkins, Y. J. and Collinge, W. and others},
  title   = {{Advance Care Planning for African American Caregivers of Relatives With Dementias: Cluster Randomized Controlled Trial}},
  journal = {The American journal of hospice \& palliative care},
  year    = {2021},
  doi     = {10.1177/1049909120916127},
  pmid    = {32308012},
  url     = {https://doi.org/10.1177/1049909120916127}
}

@article{shrestha2022-33357171,
  author  = {Shrestha, Srijana and Richey, Sheila and Lipovac-Dew, Martha and Kunik, Mark E and Stanley, Melinda A and Ramsey, David and Amspoker, Amber B},
  title   = {{An Examination of Positive and Negative Dementia Caregiving Experiences}},
  journal = {Clinical gerontologist},
  year    = {2022},
  doi     = {10.1080/07317115.2020.1868033},
  pmid    = {33357171},
  url     = {https://doi.org/10.1080/07317115.2020.1868033}
}

@article{fuju2022-34951029,
  author  = {Fuju, Taiga and Yamagami, Tetsuya and Yamaguchi, Haruyasu and Yamazaki, Tsuneo},
  title   = {{A randomized controlled trial of the "positive diary" intervention for family caregivers of people with dementia}},
  journal = {Perspectives in psychiatric care},
  year    = {2022},
  doi     = {10.1111/ppc.13013},
  pmid    = {34951029},
  url     = {https://doi.org/10.1111/ppc.13013}
}

@article{pujante2025-41089743,
  author  = {Pujante, Vianca Gloriene Barcoma and Sami, Waqas and Al-Kuwari, Noof Fahad and Rizvi, Moattar Raza},
  title   = {{Nursing Interventions in Palliative Care for Advanced Dementia: A Systematic Review of Symptom, Relief, Comfort, and Caregiver Support}},
  journal = {Journal of multidisciplinary healthcare},
  year    = {2025},
  doi     = {10.2147/jmdh.s546183},
  pmid    = {41089743},
  url     = {https://doi.org/10.2147/jmdh.s546183}
}

@article{agar2017-28786995,
  author  = {Agar, M. and Luckett, T. and Luscombe, G. and Phillips, J. and Beattie, E. and Pond, D. and Mitchell, G. and Davidson, P. M. and others},
  title   = {{Effects of facilitated family case conferencing for advanced dementia: A cluster randomised clinical trial}},
  journal = {PloS one},
  year    = {2017},
  doi     = {10.1371/journal.pone.0181020},
  pmid    = {28786995},
  url     = {https://doi.org/10.1371/journal.pone.0181020}
}

@article{costello2019-30421691,
  author  = {Costello, H. and Walsh, S. and Cooper, C. and Livingston, G.},
  title   = {{A systematic review and meta-analysis of the prevalence and associations of stress and burnout among staff in long-term care facilities for people with dementia}},
  journal = {International psychogeriatrics},
  year    = {2019},
  doi     = {10.1017/s1041610218001606},
  pmid    = {30421691},
  url     = {https://doi.org/10.1017/s1041610218001606}
}

@article{mittelman2006-b972b154,
  author  = {Mittelman, M. S. and Haley, W. E. and Clay, O. J. and Roth, D. L.},
  title   = {{Improving Caregiver Well-Being Delays Nursing Home Placement of Patients With Alzheimer Disease}},
  journal = {Neurology},
  year    = {2006},
  pmid    = {17101889}
}

@article{mittelman1996-8940320,
  author  = {Mittelman, M. S. and Ferris, S. H. and Shulman, E. and Steinberg, G. and Levin, B.},
  title   = {{A family intervention to delay nursing home placement of patients with Alzheimer disease. A randomized controlled trial}},
  journal = {JAMA},
  year    = {1996},
  doi     = {10.1001/jama.1996.03540210033030},
  pmid    = {8940320},
  url     = {https://doi.org/10.1001/jama.1996.03540210033030}
}

@article{mittelman2006-17101889,
  author  = {Mittelman, M. S. and Haley, W. E. and Clay, O. J. and Roth, D. L.},
  title   = {{Improving caregiver well-being delays nursing home placement of patients with Alzheimer disease}},
  journal = {Neurology},
  year    = {2006},
  doi     = {10.1212/01.wnl.0000242727.81172.91},
  pmid    = {17101889},
  url     = {https://doi.org/10.1212/01.wnl.0000242727.81172.91}
}

@article{xiong2020-32310969,
  author  = {Xiong, C. and Biscardi, M. and Astell, A. and Nalder, E. and Cameron, J. I. and Mihailidis, A. and Colantonio, A.},
  title   = {{Sex and gender differences in caregiving burden experienced by family caregivers of persons with dementia: A systematic review}},
  journal = {PloS one},
  year    = {2020},
  doi     = {10.1371/journal.pone.0231848},
  pmid    = {32310969},
  url     = {https://doi.org/10.1371/journal.pone.0231848}
}

@article{rapaport2024-39366393,
  author  = {Rapaport, P. and Amador, S. and Adeleke, M. O. and Barber, J. A. and Banerjee, S. and Charlesworth, G. and others},
  title   = {{Clinical effectiveness of DREAMS START (Dementia Related Manual for Sleep; Strategies for Relatives) versus usual care for people with dementia and their carers: a single-masked, phase 3, parallel-arm, superiority randomised controlled trial}},
  journal = {The Lancet Healthy Longevity},
  year    = {2024},
  doi     = {10.1016/j.lanhl.2024.08.004},
  pmid    = {39366393},
  url     = {https://doi.org/10.1016/j.lanhl.2024.08.004}
}

@article{gitlin2010-20810376,
  author  = {Gitlin, L. N. and Winter, L. and Dennis, M. P. and Hodgson, N. and Hauck, W. W.},
  title   = {{A biobehavioral home-based intervention and the well-being of patients with dementia and their caregivers: the COPE randomized trial}},
  journal = {JAMA},
  year    = {2010},
  doi     = {10.1001/jama.2010.1253},
  pmid    = {20810376},
  url     = {https://doi.org/10.1001/jama.2010.1253}
}

@article{delpinocasado2019-31141556,
  author  = {Del-Pino-Casado, R. and Rodríguez Cardosa, M. and López-Martínez, C. and Orgeta, V.},
  title   = {{The association between subjective caregiver burden and depressive symptoms in carers of older relatives: A systematic review and meta-analysis}},
  journal = {PloS one},
  year    = {2019},
  doi     = {10.1371/journal.pone.0217648},
  pmid    = {31141556},
  url     = {https://doi.org/10.1371/journal.pone.0217648}
}

@article{chenoweth2009-19282246,
  author  = {Chenoweth, L. and King, M. T. and Jeon, Y. H. and Brodaty, H. and Stein-Parbury, J. and Norman, R. and Haas, M. and Luscombe, G.},
  title   = {{Caring for Aged Dementia Care Resident Study (CADRES) of person-centred care, dementia-care mapping, and usual care in dementia: a cluster-randomised trial}},
  journal = {The Lancet. Neurology},
  year    = {2009},
  doi     = {10.1016/s1474-4422(09)70045-6},
  pmid    = {19282246},
  url     = {https://doi.org/10.1016/s1474-4422(09)70045-6}
}

@article{dixon2018-28827062,
  author  = {Dixon, J. and Karagiannidou, M. and Knapp, M.},
  title   = {{The Effectiveness of Advance Care Planning in Improving End-of-Life Outcomes for People With Dementia and Their Carers: A Systematic Review and Critical Discussion}},
  journal = {Journal of pain and symptom management},
  year    = {2018},
  doi     = {10.1016/j.jpainsymman.2017.04.009},
  pmid    = {28827062},
  url     = {https://doi.org/10.1016/j.jpainsymman.2017.04.009}
}

@article{brazil2018-28786323,
  author  = {Brazil, K. and Carter, G. and Cardwell, C. and Clarke, M. and Hudson, P. and Froggatt, K. and McLaughlin, D. and Passmore, P. and others},
  title   = {{Effectiveness of advance care planning with family carers in dementia nursing homes: A paired cluster randomized controlled trial}},
  journal = {Palliative medicine},
  year    = {2018},
  doi     = {10.1177/0269216317722413},
  pmid    = {28786323},
  url     = {https://doi.org/10.1177/0269216317722413}
}

@article{study2006-46801c00,
  author  = {{REACH II Investigators}},
  title   = {{Enhancing the Quality of Life of Dementia Caregivers From Different Ethnic or Racial Groups: A Randomized, Controlled Trial}},
  journal = {Annals of Internal Medicine},
  year    = {2006},
  doi     = {10.7326/0003-4819-145-10-200611210-00005},
  pmid    = {17116917},
  url     = {https://doi.org/10.7326/0003-4819-145-10-200611210-00005}
}

@article{kelley2015-26502320,
  author  = {Kelley, A. S. and McGarry, K. and Gorges, R. and Skinner, J. S.},
  title   = {{The burden of health care costs for patients with dementia in the last 5 years of life}},
  journal = {Annals of internal medicine},
  year    = {2015},
  doi     = {10.7326/m15-0381},
  pmid    = {26502320},
  url     = {https://doi.org/10.7326/m15-0381}
}

@article{bunn2012-23118618,
  author  = {Bunn, F. and Goodman, C. and Sworn, K. and Rait, G. and Brayne, C. and Robinson, L. and McNeilly, E. and Iliffe, S.},
  title   = {{Psychosocial factors that shape patient and carer experiences of dementia diagnosis and treatment: a systematic review of qualitative studies}},
  journal = {PLoS medicine},
  year    = {2012},
  doi     = {10.1371/journal.pmed.1001331},
  pmid    = {23118618},
  url     = {https://doi.org/10.1371/journal.pmed.1001331}
}

@article{cristancholacroix2015-25967983,
  author  = {Cristancho-Lacroix, V. and Wrobel, J. and Cantegreil-Kallen, I. and Dub, T. and Rouquette, A. and Rigaud, A. S.},
  title   = {{A web-based psychoeducational program for informal caregivers of patients with Alzheimer's disease: a pilot randomized controlled trial}},
  journal = {Journal of medical Internet research},
  year    = {2015},
  doi     = {10.2196/jmir.3717},
  pmid    = {25967983},
  url     = {https://doi.org/10.2196/jmir.3717}
}

@article{dias2008-18523642,
  author  = {Dias, A. and Dewey, M. E. and D'Souza, J. and Dhume, R. and Motghare, D. D. and Shaji, K. S. and Menon, R. and Prince, M. and others},
  title   = {{The effectiveness of a home care program for supporting caregivers of persons with dementia in developing countries: a randomised controlled trial from Goa, India}},
  journal = {PloS one},
  year    = {2008},
  doi     = {10.1371/journal.pone.0002333},
  pmid    = {18523642},
  url     = {https://doi.org/10.1371/journal.pone.0002333}
}

@article{orrell2017-28350796,
  author  = {Orrell, M. and Yates, L. and Leung, P. and Kang, S. and Hoare, Z. and Whitaker, C. and Burns, A. and others},
  title   = {{The impact of individual Cognitive Stimulation Therapy (iCST) on cognition, quality of life, caregiver health, and family relationships in dementia: A randomised controlled trial}},
  journal = {PLoS medicine},
  year    = {2017},
  doi     = {10.1371/journal.pmed.1002269},
  pmid    = {28350796},
  url     = {https://doi.org/10.1371/journal.pmed.1002269}
}

@article{browne2021-34137314,
  author  = {Browne, B. and Kupeli, N. and Moore, K. J. and Sampson, E. L. and Davies, N.},
  title   = {{Defining end of life in dementia: A systematic review}},
  journal = {Palliative medicine},
  year    = {2021},
  doi     = {10.1177/02692163211025457},
  pmid    = {34137314},
  url     = {https://doi.org/10.1177/02692163211025457}
}

@article{gaugler2013-23339050,
  author  = {Gaugler, Joseph E and Reese, Mark and Mittelman, Mary S},
  title   = {{Effects of the NYU caregiver intervention-adult child on residential care placement}},
  journal = {The Gerontologist},
  year    = {2013},
  doi     = {10.1093/geront/gns193},
  pmid    = {23339050},
  url     = {https://doi.org/10.1093/geront/gns193}
}

@article{kuo2016-27291982,
  author  = {Kuo, Li-Min and Huang, Huei-Ling and Hsu, Wen-Chuin and Wang, Yi-Ting and Shyu, Yea-Ing L},
  title   = {{Home-based caregiver training: Benefits differ by care receivers' dementia diagnosis}},
  journal = {Geriatric nursing (New York, N.Y.)},
  year    = {2016},
  doi     = {10.1016/j.gerinurse.2016.05.005},
  pmid    = {27291982},
  url     = {https://doi.org/10.1016/j.gerinurse.2016.05.005}
}

@article{dhanda2025-41345569,
  author  = {Dhanda, Nisha and Scaria, Emil Basil},
  title   = {{Dementia and communication comorbidities within the context of caregiver support systems: a scoping review}},
  journal = {BMC geriatrics},
  year    = {2025},
  doi     = {10.1186/s12877-025-06622-0},
  pmid    = {41345569},
  url     = {https://doi.org/10.1186/s12877-025-06622-0}
}

@article{dicker2025-40819234,
  author  = {Dicker, Eva E and Jones, Jenna S and Kunik, Mark E and Denny, Bryan T},
  title   = {{Emotion regulation strategies to improve outcomes in family caregivers of people with Alzheimer's disease and related dementias: A systematic review}},
  journal = {Journal of health psychology},
  year    = {2025},
  doi     = {10.1177/13591053251354882},
  pmid    = {40819234},
  url     = {https://doi.org/10.1177/13591053251354882}
}

@article{kluger2024-37955923,
  author  = {Kluger, B. M. and Katz, M. and Galifianakis, N. B. and Pantilat, S. Z. and Hauser, J. M. and Khan, R. and Friedman, C. and Vaughan, C. L. and others},
  title   = {{Patient and Family Outcomes of Community Neurologist Palliative Education and Telehealth Support in Parkinson Disease}},
  journal = {JAMA neurology},
  year    = {2024},
  doi     = {10.1001/jamaneurol.2023.4260},
  pmid    = {37955923},
  url     = {https://doi.org/10.1001/jamaneurol.2023.4260}
}

@article{yu2018-29128685,
  author  = {Yu, D. S. F. and Cheng, S. T. and Wang, J.},
  title   = {{Unravelling positive aspects of caregiving in dementia: An integrative review of research literature}},
  journal = {International journal of nursing studies},
  year    = {2018},
  doi     = {10.1016/j.ijnurstu.2017.10.008},
  pmid    = {29128685},
  url     = {https://doi.org/10.1016/j.ijnurstu.2017.10.008}
}

@article{hopwood2018-29895512,
  author  = {Hopwood, J. and Walker, N. and McDonagh, L. and Rait, G. and Walters, K. and Iliffe, S. and Ross, J. and Davies, N.},
  title   = {{Internet-Based Interventions Aimed at Supporting Family Caregivers of People With Dementia: Systematic Review}},
  journal = {Journal of medical Internet research},
  year    = {2018},
  doi     = {10.2196/jmir.9548},
  pmid    = {29895512},
  url     = {https://doi.org/10.2196/jmir.9548}
}

@article{hellis2022-36676672,
  author  = {Hellis, Emily and Mukaetova-Ladinska, Elizabeta B},
  title   = {{Informal Caregiving and Alzheimer's Disease: The Psychological Effect}},
  journal = {Medicina (Kaunas, Lithuania)},
  year    = {2022},
  doi     = {10.3390/medicina59010048},
  pmid    = {36676672},
  url     = {https://doi.org/10.3390/medicina59010048}
}

@article{martinscaulfield2025-39808391,
  author  = {Martins-Caulfield, Josh and Mehdipanah, Roshanak and Briceño, Emily M and Chang, Wen and Heeringa, Steven G and Gonzales, Xavier F and Levine, Deborah A and Langa, Kenneth M and others},
  title   = {{Dementia Diagnosis Unawareness and Caregiver Burden in a Multi-ethnic Cohort}},
  journal = {Journal of general internal medicine},
  year    = {2025},
  doi     = {10.1007/s11606-024-09333-1},
  pmid    = {39808391},
  url     = {https://doi.org/10.1007/s11606-024-09333-1}
}

@article{vanderlee2017-26586266,
  author  = {van der Lee, Jacqueline and Bakker, Ton J E M and Duivenvoorden, Hugo J and Dröes, Rose-Marie},
  title   = {{Do determinants of burden and emotional distress in dementia caregivers change over time?}},
  journal = {Aging \& mental health},
  year    = {2017},
  doi     = {10.1080/13607863.2015.1102196},
  pmid    = {26586266},
  url     = {https://doi.org/10.1080/13607863.2015.1102196}
}

@article{kwok2025-40094667,
  author  = {Kwok, J. Y. Y. and Cheung, D. S. K. and Zarit, S. and Cheung, K. S. and Lau, B. H. P. and Lou, V. W. and Cheng, S. T. and Gallagher-Thompson, D. and Qian, M. and Chou, K. L.},
  title   = {{Multicomponent Intervention for Distressed Informal Caregivers of People With Dementia: A Randomized Clinical Trial}},
  journal = {JAMA Network Open},
  year    = {2025},
  doi     = {10.1001/jamanetworkopen.2025.0069},
  pmid    = {40094667},
  url     = {https://doi.org/10.1001/jamanetworkopen.2025.0069}
}

@article{prince2007-17659078,
  author  = {Prince, M. and Ferri, C. P. and Acosta, D. and Albanese, E. and Arizaga, R. and Dewey, M. and Gavrilova, S. I. and Guerra, M. and others},
  title   = {{The protocols for the 10/66 dementia research group population-based research programme}},
  journal = {BMC public health},
  year    = {2007},
  doi     = {10.1186/1471-2458-7-165},
  pmid    = {17659078},
  url     = {https://doi.org/10.1186/1471-2458-7-165}
}

@article{farina2017-28167069,
  author  = {Farina, N. and Page, T. E. and Daley, S. and Brown, A. and Bowling, A. and Basset, T. and Livingston, G. and Knapp, M. and others},
  title   = {{Factors associated with the quality of life of family carers of people with dementia: A systematic review}},
  journal = {Alzheimer's \& dementia : the journal of the Alzheimer's Association},
  year    = {2017},
  doi     = {10.1016/j.jalz.2016.12.010},
  pmid    = {28167069},
  url     = {https://doi.org/10.1016/j.jalz.2016.12.010}
}

@article{cheng2020-31985249,
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